2016
Annual Report
Believe in
BETTER
A division of the Parkinson’s Foundation
BET T ER res earch
|
BETTER tre atme nt
|
BETTER lives
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B E T T E R to g e t h e r
ABOUT THE PARKINSON’S FOUNDATION
The Parkinson’s Foundation is working toward a world without
Parkinson’s disease. Formed by the merger of the National
Parkinson Foundation (NPF) and the Parkinson’s Disease
Foundation (PDF) in August 2016, the mission of the Parkinson’s
Foundation is to invest in promising scientific research that will
end Parkinson’s disease and improve the lives of people living
with Parkinson’s and their families through improved treatments,
support and the best care.
A division of the Parkinson’s Foundation
“
My dad greets each day with
strength and perseverance.
He is determined to win the
battle against Parkinson’s.
I participate in the Moving
Day® Walk for Parkinson’s
for him and others with the
disease to help them live
their best life. I’ll do whatever
it takes to beat Parkinson’s.
— Amy
P
ictured with her father,
Marty, who is living
with Parkinson’s
1
”
MESSAGE FROM THE CEO
I am honored to introduce myself as the Chief Executive Officer
(CEO) of the Parkinson’s Foundation, an organization with a rich
history of serving the community.
In August 2016, two legacy organizations, the National Parkinson
Foundation (NPF) and the Parkinson’s Disease Foundation (PDF),
merged to form the Parkinson’s Foundation. At the time of the
merger, the NPF division was headed by Paul R. Blom, formerly the
chair of its Chapter Advisory Council. The PDF division was headed
for more than 20 years by Robin Anthony Elliott. Mr. Blom, after
a brief hiatus, will join the Parkinson’s Foundation Board and Mr.
Elliott, the emeritus chief executive officer of Parkinson’s Disease
Foundation division, will retire at the end of June 2017.
We have a shared purpose—working toward a world without Parkinson’s disease:
•
Better Research: We support promising scientific research by investing in individual and collaborative
research, as well as an extensive network of research and medical centers in the United States and
around the world.
•
Better Treatment: We continue to focus on
the care and well-being of people living with
Parkinson’s today.
•
Better Lives: We will expand our advocacy and
community outreach efforts to ensure that the
response to this disease matches the urgent need.
BETTER
together
We know that this is a pivotal time, one in which the needs of the Parkinson’s community and the potential
of science are greater than ever. That’s why we are committed to accelerating the science and care for
Parkinson’s on behalf of the millions of people across the globe living with the disease.
We look forward to working with you to ensure that people with Parkinson’s and their families have the
tools they need to live well with the disease today, and to ending the disease once and for all. We are
stronger and better together.
Yours in the fight,
John L. Lehr
Chief Executive Officer
Parkinson’s Foundation
Please note: This report reflects the financials
of the National Parkinson Foundation, a division
of the Parkinson’s Foundation.
Annual
Report
2016
2
The next
these differences existed across centers by analyzing
breakthrough
patients and caregivers in our Parkinson’s Outcomes
in Parkinson’s
Project — the largest ongoing clinical study of more
disease is to
than 9,000 Parkinson’s patients receiving care at
ensure everyone
Parkinson’s Foundation Centers of Excellence.
has access to
the care that
Nabila Dahodwala, MD
delivers the
best results
now. We produce better outcomes through our grants,
which fund research initiatives. Better research leads
to improvements in care and the ability to further
understand Parkinson’s in real time.
One of our grant recipients, Nabila Dahodwala, MD, is
at the forefront of identifying differences in caregiving
based on gender. She works to make life better for
patients and caregivers alike by determining the
everyday issues that result in caregiving barriers.
Dr. Dahodwala noted that patient outcomes are
linked to differences in caregiving and showed that
Dr. Dahodwala found that women with Parkinson’s
have fewer informal caregiving resources to rely on
and have a tougher time getting support for their
Parkinson’s issues than men. She proved that men are
significantly more likely to have a regular care partner
and less likely to have a paid caregiver, while women
were less likely to have a caregiver accompany them to
a doctor’s visit. Dr. Dahodwala also found that women
use a paid caregiver earlier in disease progression.
Each year, we work to fund even more front-line
research studies like this one that can utilize the
limitless potential of our expanding Parkinson’s
Outcomes Project. Harnessing this data allows us
to help each person with Parkinson’s and caregivers
receive better care now.
Learn more about our commitment to expert care and
research at www.parkinson.org/research.
3
A division of the Parkinson’s Foundation
Annual
Report
2016
BETTER
research
“ We are looking at how important the informal caregiving role is.
For instance, if you put a monetary value to caregiver resources—
the number of hours spent helping with activities of daily living,
administering medicine and going to doctor’s appointments
—it’s substantial. The fact that women with Parkinson’s don’t have
as much access to caregiver resources as men is a major concern
that we need to think about on a societal level. ”
Nabila Dahodwala, MD
Site Principal Investigator, Parkinson’s Outcomes Project study
Director, Parkinson’s Disease and Movement Disorders Center
at the University of Pennsyl­vania, a Center of Excellence
4
Annual
Report
2016
BETTER
treatment
“From data collected in the Parkinson’s Outcomes
Project, we know that medication use patterns vary
across expert Parkinson’s disease clinics. We have
the ability to establish and disseminate the first-ever
standardized treatment protocol that will help inform
models of precision care for Parkinson’s.”
Peter Schmidt, PhD
Principal Investigator, Parkinson’s Outcomes Project study
NPF Chief Mission Officer
5
Every day,
Researchers discovered that more than 346 different
people with
combinations can be made using the 10 most
Parkinson’s
common Parkinson’s medications. However, most
fight to find
patients enrolled in the study used one of just nine
ways to live
combinations. The study also taught us that the
with their
Parkinson’s care delivered by leading experts is not
symptoms—
systematic or scientific, but instead dependent on
symptoms
the experience and preferences of a neurologist.
that make even the smallest tasks like buttoning a
shirt seem impossible. Finding the right dopamine
replacement therapy is essential, but doctors often
prescribe these medications inconsistently and
ineffectively. People living with Parkinson’s have an
urgent need for a standard treatment protocol so they
have more time to live active, productive lives.
Using the Parkinson’s Outcomes Project as a
platform, researchers examined medication
use patterns from more than 9,000 people with
Parkinson’s disease, across 25 Centers of Excellence
located in four countries. The overarching goal of
the Parkinson’s Outcomes Project is to identify and
explain how expert care delivers better outcomes for
We want to change that.
People living with Parkinson’s have an urgent need
for a standard treatment protocol. The foundation
hopes to streamline recommendations to create the
first-ever dopamine replacement therapy protocol
doctors could use to treat patients.
Soon our Parkinson’s Outcomes Project will reach
10,000 participants. This cutting-edge, ongoing study
allows us to continuously help people live better
lives today and pave the way for the next clinical
breakthrough.
Learn more about the Parkinson’s Outcomes
Project at www.parkinson.org/outcomes.
people with Parkinson’s. A division of the Parkinson’s Foundation
6
At Iris Rodriguez-
Iris learned that the class was free due to a community
Cavallo’s 50th
grant sponsored by the foundation and that anyone
birthday party,
with Parkinson’s could attend. The class became
her cousin,
her favorite way to work out and meet people in the
Miriam Rodriguez,
Parkinson’s community. A recent study, funded by
who is a nurse,
the foundation, discovered that 2.5 hours of weekly
noticed Iris was
exercise can help manage Parkinson’s symptoms.
walking strangely. She thought the symptoms could be
neurological and told Iris to see a neurologist. She was
right. Iris was diagnosed with Parkinson’s after her first
visit to the University of Miami Parkinson’s Disease &
Movement Disorders Center, a Parkinson’s Foundation
Center of Excellence.
“In a way, I was relieved to find out what was wrong
with me, but I kept thinking about what I was going to
do next,” Iris said. She found her answer a few days
later while watching a local news segment about
She searched online for the foundation and was excited
to find local support groups, videos about Parkinson’s
and Moving Day®, A Walk for Parkinson’s. For the last
three years, Iris has been a Team Captain for Moving
Day Miami, helping to raise Parkinson’s awareness and
dancing to help manage her Parkinson’s symptoms.
Iris’ dance class is just one of the local Parkinson’s
programs supported by our annual community grant
funding.
a dance class tailored to people with Parkinson’s.
Funds raised from Moving Day in its 2015-2016 season
“I saw people like me dancing, socializing, having fun
were distributed to 23 health, wellness, and education
and exercising,” Iris said.
programs across six cities.
Learn more about the community impact of
Moving Day at www.npfmovingday.org.
7
A division of the Parkinson’s Foundation
Annual
Report
2016
BETTER
lives
“ I have an amazing care team at a Center of Excellence in
Florida. My support group led me to Moving Day® Miami,
which provides community grants to my favorite PD
dance class. I’ve really come full circle with the help of the
foundation. Help them keep these programs available for
people like me and our caregivers.”
Iris Rodriguez-Cavallo
Moving Day Miami Team Captain
Living with Parkinson’s disease
8
64,084
2016
CALLERS
received vital counseling
from trained specialists
IN NUMBERS
answering our toll-free
Helpline, 1-800-4PD-INFO
242,412
YOU TUBE VIEWS
across our library of
198 educational videos
MORE THAN
105,000
PEOPLE
307,439
with Parkinson’s received
FACEBOOK
FOLLOWERS
Centers of Excellence
and 10,040
followers
on Twitter
expert care at our 42
62,000 FREE,
LIFE-SAVING
AWARE IN CARE KITS
distributed through the Helpline
and local chapters to help people
get better care in a hospital
9
234,500
FREE EDUCATIONAL
MANUALS
on 8 different topics mailed
to homes across America
3,253,000
WEB VISITS
to Parkinson.org – the
go-to online resource
77,500
DONORS
supported
our
mission this year to
make life better for
people living with
Parkinson’s disease
8,731
PARTICIPANTS
e n r o l l e d i n t h e Parkinson’s
Outcomes Project, the largest
Parkinson’s clinical study, at
25 NPF Centers of Excellence
A division of the Parkinson’s Foundation
10
More
than
0ts
0
1p0ar0tic,0
n
a
ip
100
$
®
ents
Day ev untry
Moving
s the co
s
ro
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held
More
th a n
13.7
million
raised
to date
s
m
a
e
t
0
7,00
Cleveland
Dallas/Ft.Worth
Kansas City
Chicago
Washington, D.C.
11
Annual
Report
2016
Join Moving Day®, A Walk for Parkinson’s.
People who move change the world®.
Moving Day does so much more than
raise funds—it provides support to cities
across the country through community
grants, which provide a wide range of
critical health and wellness services to
people with Parkinson’s and caregivers.
Find a Moving Day walk near
you at www.npfmovingday.org.
Funds raised through Moving Day support our mission by:
• Delivering quality care to more than
105,000 people with Parkinson’s
worldwide through the Center of
Excellence network
• Providing free resources for patients
and their families, such as our tollfree Helpline (1-800-4PD-INFO) and
our life-saving Aware in Care kits
• Funding cutting-edge research like
the Parkinson’s Outcomes Project,
aimed at better treatment and care
• Delivering community grants that
support local Parkinson’s-tailored
exercise classes
Miami
Boston
Tampa
Los Angeles
A division of the Parkinson’s Foundation
12
2015-16
Honor Roll
$250,000 AND ABOVE
Rollin M. Gerstacker
Foundation*
Estate of Fayne E. Harter
Estate of Gerald R. Hiering
The McCamish Family
Charitable Fund
J. Gordon and Sully Beckham
Margaret P. McCamish
Estate of Nancy J. Novick
The Edmond J. Safra
Philanthropic Foundation
Estate of Nhu Y. Herman
Trust of Chester W. and
Nadine C. Houston
The Don A. Hunziker
Memorial Foundation, Inc.
Impax Pharmaceuticals,
Inc.
The KCPL Fund
Marcia Mondavi Borger
Orig3n
Estate of Carol C. Price
Anne J. Sherr
Estate of Manette H. Speas
$100,000 TO $249,999
Ms. Nettie M. Swinney
AbbVie Neurosciences
US WorldMeds, LLC
Acadia Pharmaceuticals,
Inc.
$25,000 TO $49,999
Charles S. Ackerman
Philanthropic Fund
Acorda Therapeutics
The Applebaum
Foundation, Inc.
Estate of Marion F. Dean
Estate of Elaine D. Dooman
Lundbeck, LLC
Mindy McIlroy*
Medtronic, Inc.
Estate of Kathrine A.
Neubauer
The Oreffice Foundation
Parkinson’s Unity Walk
Right at Home, Inc.
UCB, Inc.
University of Rochester
$50,000 TO $99,999
Robert and Juliette Bacon
Foundation
The Batchelor Foundation,
Inc.
Lourdes and Alberto Dosal
Estate of Alice B. Dunn
GE Healthcare
Guido Goldman, PhD
13
Annual
Report
Anonymous (1)
The Jane H. Berktold
Parkinson Fund
Mr. and Mrs. Stephen H.
Bittel
Paul R. Blom and Robert
W. White*
Bloomfield Family
Foundation
Myron and Shirley
Blumberg Charitable
Remainder Trust
Estate of Willard H.
Braman
Carani Charitable
Foundation Trust
Community Health
Charities
Cynapsus Therapeutics, Inc.
Ross S. Evans
Estate of Peter R. Hubert
The Kinetics Foundation
Cheryl Ruth Korth
The Holly Marie Fund
Miami Wine Auction, Inc.
Massmutual Life
Insurance Co.
Trust of Dennis Olivieri
Estate of Mary M. Patrick
Eloise And Carl Pohlad
Family Fund
2016
The National Parkinson Foundation gratefully acknowledges all
our supporters who donated $1,000 or more between July 1, 2015
and June 30, 2016.
Our generous donors allow to us to educate and assist people
in communities across the country about Parkinson’s disease.
We thank them for their dedicated support.
Estate of Mary Honor Rivin
Estate of Doris R. Schmidt
Estate of Sherwood and
Mildred Schwartz
Estate of Joyce Specter
Jerome A. Yavitz
Charitable Foundation,
Inc.*
Mr. and Mrs. Sherwin
Zuckerman
Zuckerman Family
Foundation
$10,000 TO $24,999
Anonymous (1)
AbbVie, Inc.
Albert Family Fund
Andrew B. and
Mona Albert
Vanguard Explorer Fund
Admiral Shares
Terry and Regina
Armstrong Family
Charitable Foundation
Mr. Harry Augeneblick
Mr. and Mrs. Byrd Ball
The Bock Family Gift Fund
Blue Cross & Blue Shield
of Kansas City
Boston Scientific
Corporation
Estate of James M.
Cantrell, Jr.
Mrs. Pansy L. Chan
W. G. Christianson
Foundation
Estate of Thomas P.
Christino
The John P. Clulow Fund
Reitzel Cook Foundation
Robert and Joanne Crown
Income Charitable Fund
CSRA Parkinson Support
Group
Curt and Clara Fund
Rodger L. and Gloria
F. Daniels Charitable
Foundation
Mr. and Mrs. John L.
DiMarco
Downtown Building
Ventures, LLLP
Edward Jones
Ms. Zahra Elmekkawy
Jan and Guy Ferris
Linda and Robert P. Fetch
Florman Family Foundation
Dr. and Mrs. Bernard J. and
Judith Fogel
Charles H. Gehret and
Sandy Hanson
Mr. and Mrs. George E.
Hollodick
JGB Jr. Charitable Giving
Fund
Mr. Stephen Joyce
John W. Kozyak and
Barbara Silverman
Rita A. Lehnert
Edwin and Carolyne Levy
Charitable Foundation, Inc.
Jerry M. Lindzon
Mr. and Mrs. Wendy and
Matthew Little
Mahoney Charitable
Remainder Unitrust
Marian S. and Frederic T.
McAuslan Endowment
Fund
The Melzer Family
Charitable Fund
Gail and Robert Milhous
Trust of Barbara A. Nelson
NPF Greater Rochester
Chapter
NPF Minnesota Chapter
NPF Western New York
Chapter
Mr. Denny Ogden
Ohiohealth
Parker Hannifin
Corporation
Parkinson Association
of Central Florida
Bee Payne-Stewart
Foundation
Estate of Virginia M.
Richert
Estate of Aleen M.
Schreiber
The Richard M. And
Maureen G. Schulze Fund
Alan M. Slewett
Solomon Family
Foundation
South Palm Beach County
Chapter of NPF
Degna Spoldi Private
Family Foundation
Trust of Mary E. Sublett
The Change The World
Foundation
The Miami Foundation
Wagner Family Fund
The Marjorie P. Willoughby
Trust
YMCA Retirement Fund
David Zid
$1,000 TO $9,999
Anonymous (18)
23 and Me, Inc.
A.T. Kearney, Inc.
Mr. John Adams
Mr. Benjamin Albert
Devin M. Albert
Trust of Rita Alexander
All Saints Senior Living
Allergan USA, Inc.
Ms. Julie Allinson
The Ame Foundation, Inc.
Amgen PAC- Match Gift
Program
Leo M. Amoroso
Kathleen and Harold
Anderson
The Anderson Family Trust
Mr. Richard D. Anderson
Mr. and Mrs. Robert K.
Anzick
Castlewood Apparel Corp.
ArcelorMittal Matching
Gifts Program
Mrs. Renee Arturo
Dr. Virginia Ashley
Home Care Assistance
Associated Electrics, Inc.
Backwoods Fest Auction
* Includes payment toward a multi-year gift
Mr. Ronald E. Austin
Mr. and Mrs. E. H. Avery
Ms. Nancy S. Ayers
Ms. Beth Azor
Isabel L. Bader
Mr. Bryan Bain
Mr. Decio Baio
Ed Baker
Baker & Hostetler, LLP
Mr. and Mrs. Stewart
Balkin
Eugene M. Bane Charitable
Trust
Bank of America
Commerce Bank
Mr. John Bankston
Ms. Shirley A. Barbula
Estate of Mildred Barcus
Ms. Allison Barnes
The Barr Foundation
John E. and Nellie
J. Bastien Memorial
Foundation
Mr. David Bastos
Trust of Jean F. and
Christopher R. Batchelder
Battelle
Dr. Clifford T. Bauer
Mr. Ben Bauer
Mr. and Mrs. Frank
Baumgardner
Baxalta
Bay Area Golf for
Parkinson Foundation
Ms. Beverly Bear
Mr. Jeff Beard
Mr. Robert H. Beasley, Jr.
Mrs. Susan K. Bechter
Mr. Don C. Bedell
Claire Beekman
Ms. Carol Beesley
Ms. Angela Belding
Ms. Maradee Bell
Bemis Associates, Inc.
Patricia and Gardner Bemis
Fund
Berdon, LLP
Joan and James Berkowitz
Fund
Jay Berryman
The David H. Bescherer
Family Charitable Fund
Betty Dain Creations, LLC
Mr. John Beuerlein
Mr. Mark Bezner
Mr. Scott Bieler
Mr. Thomas E. Biery
Mr. James Bilan
Lampinen E. Billie
Mr. Stephen Bischoff
Mr. and Mrs. Joseph J.
Bishow
Mr. Michael Bittel
Ms. Marta Blanco
Ms. Patricia Blasi
Linda and Steven Blasnik
Philanthropic Fund
Bliss Associates, LLC
Mr. Robert S. Bloom
Mr. and Mrs. Herschel M.
Bloom
Jacob Bolger
Mr. Ed Bond
Ms. Shirley Bos
Colonel (Ret.) and Mrs.
Conrad Boterweg
Helen S. Boylan Foundation
Ms. Caroline F. Brady
Mrs. Nancy Brandau
Roxanne Brandt
Ms. Judy Braun
Mr. Jeffrey W. Breeser
The Mervyn L. Brenner
Foundation, Inc.
Mr. and Mrs. Peter E.
Bressler
Ms. Delia Brinton
Bristol-Myers Squibb
Foundation Matching
Gift Program
Mr. and Mrs. William F.
Broll
Mr. Keith T. Brook
Mr. Steve Brougher
Lewis D. Brounell
Charitable Trust
Ms. Karen Brown
Mr. Leonard Brown
Mr. Joe Brown
Ms. Karen Brown
Dr. Warren Browner
The Brunetti Foundation
Bruce H. Bryant
Buckles-Smith
Mr. and Mrs. Robert H.
Buescher
Highmark Builders, Inc.
Mr. and Mrs. Robert S.
Burnstine
Estate of Hildegard Butler
Mr. Todd Butler
Charity Buzz
Mr. Steven R Byars
Mr. Tim Cabral
Mrs. Missy Callero
Mr. and Mrs. Michael
Cannizzo
Mr. Robert Cantor
Capitol Federal Foundation
Mr. and Mrs. Ricardo
Caporal
The Capps Family Giving
Fund
Capstone Group, LLC
Mr. and Mrs. Donald J.
Carani
Tim Carlin
Carlson and the Curtis L.
Carlson Family Foundation
Mr. John Carlson
Mr. Paul Carlucci
Ms. Sandra Caron
Clay Carpernter
Carrera Races, Inc.
Mr. Jeff Carson
Paul and Pearl Caslow
Foundation
Patricia Catarello
Catch The Cure
Mr. Ronald Cazalot
Cbiz Mhm, LLC
Cemex Materials, LLC
Dr. & Mrs. Craig E. Chalfie
The Chaney Family
Foundation
Ms. Barbara Charles
Chattanooga Shooting
Supplies, Inc.
Mr. Luis Chiappy
Chinowth Charitable
Lead Trust
Mr. Martin Chodorow
National Christian
Foundation
Ms. Josephine Chu
Ricky Churchwell
Mr. Anthony B.
Cimmarrusti
Dr. Charles Clapp
Mrs. Mary R. Clarbour
Mr. Phil Clark
Clif Family Winery
Levine Clopton Family
Fund
Douglas R. Clovis
Ms. Josie Co
Mr. John W. Coffey and
Ms. Ann P. Roth
Dr. and Mrs. Andrew
Cogbill
Mr. Barry Cohen
Ms. Reina Cohen
Mr. Jason Cohen
Mr. and Mrs. George
Collins
Ms. Carole Coloe
Community Foundation
of The Lowcountry, Inc.
The Community
Foundation of Macon
County
Community Foundation
of New Jersey
Community Health
Charities of Heartland
CommunityAmerica
Credit Union
Estate of Sally Cooper
The Cooper Family Fund
Corinthian International
Foundation
Corning, Inc.
Ms. Constance Cory
Cosentino Charity
Foundation
Mrs. Susan Costello
Creger Family Foundation
Crestwood
Ms. Cynthia Crist
Mr. Edgar H. Crosby
Mr. and Mrs. Donald Cross
Mr. Jordan Curnes
Bobby’s Frozen Custard,
Inc.
Mr. Andrew Czekaj
Dac Patient Recruitment
Services, LLC
Mr. Todd Dalley
Daluge Family Fund
Trust of Thomas A.
Damrow
Mrs. Diana Danaher
Ms. Lindsay Darosa
The Daus Family
Foundation
David Arthur Vineyards
Mr. Steve Davidson
Alvin and Fern Davis
Foundation
Franklin L. Davis
M. Robin Davis
Mr. Donald Davis
Mrs. Patricia de Stacy
Harrison
Mr. and Mrs. Mark
Debofsky
Mr. Joe C. Degraffenried
David Delgado
Delouri Farms, Inc.
Charles H. Denny, III
Charitable Trust
Mr. John Densmore
Ms. Susan Devencenzi
Willa Ruth Deveny
Mrs. Bonee Dewitz
Alessandro Di Rocco, MD
Evelyn Diament
Harriet Ford Dickenson
Foundation
Mr. Thomas W. Dickson
Ms. Suzanne Dimmel
Ms. Sue Disabel
Ms. Elaine Diviney
Mrs. Tommye B. Dodd
Ms. Rosaleen Doherty
Mr. Robert E. Dolan
Donelan Family Wines
Mr. Arthur K. Donley
John W. and Patricia H.
Donoghue Family Fund
Gus B. Doppes
Ms. Susan Dorsch
Mr. and Mrs. Jim and
Donna Down
Mr. Robert Downes
Doyne-Oury-Rosenfeld
Family Philanthropic Fund
Mr. Gerri Drew
Ms. Jeanne Driscoll
Mr. Barry W. Dubin
Mark Duffy
Mr. Jim Dunn
Joseph Dunn
Dupuis Family Foundation
The John and Marilyn
Dutton Charitable Giving
Fund
Ms. Lois Dyk
Eagan Family Foundation,
Inc.
Mr. Norman Eaker
Mr. Michael Earley
Earthly Treasures, LLC
A division of the Parkinson’s Foundation
14
2015-16
Honor Roll
Mr. William Egan
Estate of Paul V. Eggstein
Steven B. Eiden
Elias Family Charitable
Fund
Nadine Ellerthorpe
Mr. Gary Elliott
Ms. Gail Ellis
Ms. Sherry Emily
Emrik, LLC
Dr. Bruce A. Epstein
Ms. Millicent Erwin
Mr. Greg Essig
Dr. and Mrs. Robert and
Janet Ettleman
Frank E. Evarone
Mrs. Gloria Evelyn
Evenor Fund
Exelon
Highmark Exteriors, LLC
Mr. and Mrs. Robert S.
Fabris
Ms. Barb Fahnestock
Erin Fauber
H. Haines Fenimore
Charitable Trust
Mr. Gary Ferman
Ms. Mary Jo Ferris
Mr. Steven Feuling
Jane Feldman Fields
Mr. and Mrs. Walter E.
Fillman
Dr. Mark Finklestein
A.E. Finley Foundation, Inc.
Shelley Fiore
First Federal Lakewood
Ms. Judi Fishman
Flat Creek Baptist Church
Alan and Esther Fleder
Foundation
Mr. James A. Fletcher
Ms. and Mr. Diana Fleysher
Mr. and Mrs. William
Fondren
Rudolph and Hilda U.
Forchheimer Foundation,
Inc.
Crum & Forster
Ms. Susan Fossett
Paul Fox
15
Annual
Report
Ms. Suzanne Frank
Ms. Denise Franklin
Dr. Anne French
Mrs. Patricia Friedberg
Mr. Roger Friedberger
Mr. Richard W. Friedman
Mrs. Gloria Friedman
Rob and Shari Friedman
Fund
FWP Speed School, LLC
Mr. James Gabriel and Ms.
Ellen R. Rosenthal
Linda Gabriel
Ms. Sue Gallagher
Mr. Robert Gathman
Mr. and Mrs. Richard and
Cheryl Gelber
Ms. Jennifer Gemma
J. Geraghty
Gettler Family Foundation
Lee Gibstein
Mr. Greg Gilbert
Mr. Steve Gilbert
Mrs. Judith S. Gillies
Mrs. Marilyn Girsh
Dr. Andrew Glantz
Mr. Gary Glaser
Glenmore Industries, LLC
Glenview State Bank
Global Kinetics Corp
Mr. Jeffrey Goettman
Mr. Frank Goetz
Mrs. Deanna B. Goldberg
Ms. Diane Golden
Golub Group Philanthropy
Team
Mrs. Linda Gonot
Dr. Moses & Beatrice
Goodman Fund
H. Gail Gordon
Ms. Patrice Gordon
Ms. Nancy Gordon
Mr. Mark Gordon
Gordon-Olim Individualized
Fund at Brandeis University
Mr. Peter M. Gotsch
Mrs. Doris W. Graham
Heather Graham
The Granat Family
Foundation
2016
Mr. Kenneth Granat
Mrs. Carole Gray
Gray & Company, Inc.
Gray Metal Products, Inc.
Meg Green Family
Foundation
Mr. Rick C. Green, Jr.
Greenberg Traurig
Richard C. Greenwald
James H. Grew
Mr. Vernon Grizzard
The Steven and Kathleen
Groot Family Fund
The Robert & Lynne
Grossman Family
Foundation
Max Gruber Foundation
Cohen Gujrathi Charitable
Fund
Mr. and Mrs. Jordi and
Miriam Guso
Mr. Ned Gustafson
Mr. and Mrs. Larry
Gutekunst
The Gwyn Family Fund
Jerry Haar, PhD*
Evelyn and Walter Haas,
Jr. Fund
Mr. Kelly Hackett
Mrs. Helen Hagel
Mr. Gerald Halle
Jonathan B. Halle
Mr. Warren Halle
Ms. Kimberly D. Hallum
Hamburger Marys
Ms. Leslie Hamilton
Mr. James B. Hamilton
Mr. Wade Hamilton
Mr. Doug Hammer
Mr. Watts Hamrick
Mr. & Mrs. Michael Haney
The Hansen Trust
The Lewis A. & Ruth L.
Hare Trust
Mr. Sam Hargrave
Jamey Harmon
Mr. and Mrs. Jack Harter
Mr. Nick M. Harvey
Mr. John A. Hash, Jr.
Morris A. Hazan Family
Foundation
Ms. Marie D. Head
Mr. William Heffner
Mr. Daniel Heflin
Mr. Kenneth Helmuth
Mr. Chris Hendriksen
Henry Mayo Newhall
Memorial Hosptial
Logan Herndon
Dr. Brad Herskowitz
Marilyn V. Hibbert
Capt. William L. Hicks
Highland Commercial
Mortgage, LLC
Mr. and Mrs. Lee E. Hill
Mr. Kurt Hill
Dr. Richard E. Hill
Ira S. Hirschfield Fund
Holly Hills Country Club
Mr. Roy L. Holt
Hope Lutheran Church
Dr. Heather Hopkins
Mr. Alan Horwits
Mrs. Geri Howard
John C. and Mary Jane
Howard Foundation
Mr. Michael Hubbard
The Peter & Alice Huppert
Foundation
Daniel Husak
Ms. Susana Huston
Image First of San Antonio,
LLC
Impax Laboratories, Inc.
Infaith
Issa Family Foundation
Denise and Barry R.
Jackson
Mrs. Kathleen Jackson
Ms. Pamela James
Jarvis Law Office
Mr. R. G. Jenkins
Mr. Todd Jenkins
Jenner & Block, LLP
John Starulakis, Inc.
Mr. Wayne Johnson
and Ms. Ruth BradfordJohnson
Stephen Johnson
Lee Johnson
Mr. and Mrs. David
Johnson
Jay and Kathy Johnston
Family Fund
Mr. Chester Jones
Estate of Richard A. Jordan
Mr. Robert Josephberg
JPA Health
Communications
JSJ Family Foundation
Mr. John Julian
JX Enterprises
Dr. Patrick Kaczaral
Trust of Maynard Kagen
Ms. Catherine E. Kangas
Mr. Lloyd Kapp
Mr. Rick Kastner
Mr. and Mrs. Peter Katz
Mr. Raanan Katz
Mr. Norm Kaufman
The Kaul Family
Foundation
Mr. Gary Keenan
Ms. Tricia Kent
Mr. and Mrs. Richard C.
Kerns
Daniel Kerscher
Mr. and Mrs. Eugene
Kessler
Kildaire Farms Tennis
Association
Ms. Janice King
Mr. William Kirk
Kisinger Campo &
Associates Corp.
Mr. Aaron Klein
Ms. Barbara F. Klein
Mr. Steven Klein
Mr. Gary Kleingartner
Mark M. Kliethermes
Mr. Jean D. Kliewer
Ms. Susan Klinger
Estate of Beryl Kneopfle
Mrs. Elizabeth Knowles
Mr. Maurice Koch
Michael Kolodny
Ms. Jill Korpita
Mr. Daniel Kosednar
Wade And Sue Kotula Fund
KP Financial Services
Operations
Mr. Jeremy Kramer
Mr. Marty Krebs
Ms. Rae Krelitz
Mr. Michael Krieger
Ms. Jackie Kropman
Nick S. Kuecker
Mr. Stan Kuecker
Mr. Alfred P. Kuehlewind
Kully Supply, Inc.
John C. Kupetz
* Includes payment toward a multi-year gift
REMEMBERING
JANET RENO
Janet Reno at Moving Day® Miami with
her sister, Maggy Hurchalla, in 2012.
In 2016, we mourned the loss and celebrated the life of Janet
Reno, the first female Attorney General of the U.S. She lived
with Parkinson’s with strength and grace. Ms. Reno was a
longtime supporter of the foundation and an advocate for
Parkinson’s research and awareness.
Mrs. Linda Tse Hung Kwok
Barbara C. Kyse
Mr. Frank Lacy
Esther Lam
Lam Research Foundation
Betty L. Lambert
Joseph Lamberti
Amy and Michael L. Landa
Mrs. Linda Landis
Mike Langdon
Mr. Burton Langer
Larson Family Fund
Astrid A. Lauter
Ms. Barbara Lavelle
Mr. Scott J. Lawrence
Mr. Donald Leebow
Mr. Herbert Lee
Mr. Thomas A. Lehrer
Leidos, Inc.
Ms. Rocio Leon
Mr. and Mrs. Thomas M.
Leopold
Ira M. Levenshon
Ms. Sharon Leventhal
Francis and Gertrude
Levett Foundation
Ms. Caryn Levison
Mr. Miles H. Lewis
Mr. And Mrs. Wesley
and Diann Lewis
Lincoln Square
Entertainment, LLC
Mrs. Kimberly Lindgren
Ms. Katie Lippard
Litchfield Donor Advised
Fund at Yale Law School
Mrs. Julie Litvak
The Litwin Foundation, Inc.
Mr. Edward Loeb
John T. Loftus
Logistics Planning Services
Mr. George Lohrer
Nick S. Lombardo
James L. Long
Ms. Patricia Lopez
Hogan Lovells US, LLP
Darlene Lowe
LPL Financial
LRWL Inc.
Ms. Linda Lucas
Robin Lukacs
Mr. Roger Lumley
Lyons Family Charitable
Fund
Carla Maas
Macadam Company, Inc.
Vista Springs Macedonia
The Louise D. & Morton J.
Macks Family Foundation,
Inc.
Mr. John W. Madigan
Madison Dearborn
Partners, LLC
Mr. and Mrs. Peter and
Elizabeth Maer
Magnakron Corporation
Ms. Betsy H. Magowan
Ms. Katherine L. Malkin
Mrs. Jaime Malone
Mr. Samuel R. and Erica G.
Mandelbaum
David Manheim
Mrs. Nancy Manocherian
Mr. Christopher Mardorf
Lloyd A. Marks and Janic
Siegel Foundation, Inc.
Miami Marlins
Martin Resource
Management Corporation
Mass Mutual Life Insurance
Co.
Mr. and Mrs. Ron L. Mastin
Mrs. Susan W. Mathis
Ms. Shari Matluck
Ms. Catherine Mattaliano
Mr. and Mrs. Steven K.
Matthews
Mr. Todd McAloon
Wesley McCain
Ms. Mary J. McCart
McClelland Family
Foundation
The Steve and Judy
McClure Charitable
Foundation
James & Marie McCurdy
Family Charitable Trust
Mr. and Mrs. Richard B.
McGauley
Mr. James W. McGrath
Mr. and Mrs. Timothy E.
Mckay
The McLean Company
Roland McLendon
McMaster-Carr Supply
Company
Ms. Janet McNew
Mrs. Kathie McReynolds
MDB Capital Group, LLC
Mr. John A. Mead
Mr. Manuel Medina
Mrs. Susan L. Medlin
Mrs. June Meek
Robert and Judith Melzer
The Merck Foundation
Midamerica Rehab Hospital
Company
Ms. Deborah Miesel
Mrs. Jennifer Miller
Miller Realty Family
Philanthropic Fund
Mr. Mike Miller and Ms.
Sharron G. Reiss
Dr. Allan F. Mirsky and Dr.
Connie C. Duncan
Mr. Robert Mirvis
Mr. Constance Mitchell
Mr. Tetsuo Miyake
The Moehnke Family Fund
Mr. William Moler
Molex Incorporated
Ms. Mary P. Monhart
James and Charlotte
Monhart
Mr. Jeffrey Monhart
Ms. Mary P. Monhart
Mr. James Monteiro
Mr. Carlos A. Montorfano
Ms. Ann Moore
Mrs. Darla E. Moore
Ms. Suzanne Morgan
Howard Morgan
Ms. Suzanne Morgan
Mr. Doug Morris
Ms. Jean C. Morris
Mr. Doug Morris
Brian D. Morrison
Mr. Marty Moseley
Judith M. Moss
Robert and Dede Moss
Miss Irene Motta
Mr. T’s Family Foundation
MSJB Family Foundation
Ms. Lori Mulhern
Patrick A. Murphy, Esq.
Timothy Murphy
Massachusetts Mutual
Mr. Samuel Naito
NAON, Inc.
Mr. Joseph A. Nash
Mr. and Mrs. Courtney
Nason
Ambika Nayar, MD
The Neisser Family
Foundation
Mr. Gerald E. Nelson
Mr. James Nemec
Mr. Brad Neuberger
The Neurology Group
NeuroScience Centers of
Florida Foundation
New Century Financial
Services
New York Life Foundation
Stuart Newman Charitable
Trust
A division of the Parkinson’s Foundation
16
2015-16
Honor Roll
Newmark & Company
Real Estate, Inc.
Robert Nolan
Mrs. Mary Ann Nolting
Mr. Gary Norberg
Mrs. Jean F. Norfleet
Northern Tool &
Equipment
Northwestern University
Norwegian Cruise Line
Tolbert H. Nowell
Mr. Deryck G. Nuckton
Mr. Bill Nygren
Scott and Mary Nykerk
Family Fund
Mr. Russ Oasis
Mr. Sean Obranski
Mr. Ronald O’Clair
Mr. George O’Connor
O’Connor Davies, LLP
Dr. and Mrs. Michael and
Leslie Okun
Gary Olix
Mark O’Prey
Opus One
Lisa Orberg
Mr. John O’Rourke
Ortega Foundation
Mrs. Angela Ortolani
Mr. William Ortwein
The Ohio State University
Mr. Dean Owens
Mr. and Mrs. Christopher
D. Owens
Mr. Dean Owens
Ms. Christi Paget
Sunny Pak
Mr. and Mrs. Roberto and
Silvia Palenzuela
Lieutenant Colonel E. M.
Panka
Dr. Sotirios A. Parashos
and Ms. Christine G. Phill
Ms. Christie Pargeter
Mrs. Eulalee Parham
Dave Parker 39 Foundation
Mr. Wright Parker
Mr. and Mrs. Jan L.
Parkinson
17
Annual
Report
Parkinson’s Association
of West Michigan, Inc.
Mrs. Charles G. Patmon, III
Mr. & Mrs. Richard M.
Patterson
Dr. Robert F. Paul
Mr. Scott Payne
Mr. Shane Pearlman
Mr. Michael Peglow
Ms. Jennifer Peltz
Mr. Bill Perdan
Mrs. Charlotte Perdan
Pershing
Mr. Norman Pessin
Mr. & Mrs. Kenneth S.
Petche
Peters Family Memorial
Gifiting Fund
Ms. Deanna Peterson
Edward P. Petrosky
Mrs. Kathy Pick
Pillsbury Foundation
Dr. Lincoln N. Pinsky
Planet Fitness
Frances Platzer
Foundation
Mr. Robert J. Pliska
Ms. Christina Polito
Polsinelli Shugart, PC
Mr. Lawrence Portnoy
Potter Family Fund
Prabhat, Inc.
Patricia Lee Pratt
Mr. William Prindle
Mr. James W. Pritchard
Prothena Biosciences,
Inc.
Ms. Mary Jane Prough
Lawrence Puckett
Mr. Thomas Puckett
Quintiles, Inc.
Quten Research Institute
Mr. Douglas Rachlin
Radio-Coteau
Mr. Andrew Ramos
Ms. Edith M. Ranelli
Sowmyan Ranganathan
Perry L. Rashleigh
Mr. Stuart Ratzan
2016
Mr. Joshua Bartlett
Raudenbush
Ms. Sheila Ravindran
Julian White Rawl
Susan and Buddy Redd
Charitable Account
Mr. Daniel Redmond
Regal Medical Group, Inc.
Regal Foundation
Rehabilitation Institute
of Chicago
Marc A. Reich
Mr. Paul Reich
Ms. Barbara Rembiesa
Renaissance Charitable
Foundation, Inc.
Highmark Restorations,
Inc.
Ms. Lorraine Reynolds
The William D. Rhodes
Foundation
Rhodes Computer Services
Taxslayer
Priscilla Richardson
Ms. Anne Fortney Riddell
Mr. Dallas Riddle
Mr. and Mrs. Evan D. Riley
Mr. William F. Ringier
RJW Foundation
Mr. Daniel Robbins
Rock Steady Boxing
Rocker Family Foundation
Mr. Thomas Roe
Mrs. Carmella Roehrig
Estate of Robert C. Rogers
Feazel Roofing
Michael P. Rose
Ms. Rose Lit
Ms. Sandra Rosenbaum
Mr. and Mrs. Robert R.
Rosenberg
Leon V. and Marilyn L.
Rosenberg
Estate of Jack Roth
Ms. Jeanne Roth
Mrs. Deborah G. Royce
Helena Rubinstein
Philanthropic Fund
Regina M. Rubenstein
Mr. Arthur Rubin
Dr. and Mrs. David
Ruedrich
Mr. Lawrence Ryba
Ms. Ann Rye
Thomas L. Safran
Saint Lukes Health System
Mr. and Mrs. Charles
Salzhauer
Community Grant Funds First
Improv Comedy Clinical Study
“To be able to fund cutting-edge research like the first-ever
improvisational comedy Parkinson’s clinical study is fun,
innovative and making an immediate impact on the local
community,” NPF Chicago Community Development Director
Sara O’Hare said. The study determined that improv classes
can be used as an effective therapy for Parkinson’s. After 12
weeks, attendees experienced significant improvements in
daily living. Northwestern University Movement Disorders
Center, a Center of Excellence, conducted the study.
Samuels Family
Foundation
Jose M. Sanchez Family
Foundation
Mark Sandy
Mr. and Ms. Dan Satre
Schaefer Family
Foundation
W. S. Scharff Family
Foundation
Ms. Liz Schaub
Dr. and Mrs. Martin
Schechter
Mr. Steven Scher
Joseph A. Schindler
Thomas Schlosser
Dr. and Mrs. Peter Schmidt
Margo Schmidt
Mr. and Mrs. Don Schneider
Schoenstadt Family
Foundation
Joyce Schrock
Gail Schroeder
David Schulman
Ms. Nancy Schumacher
Ms. Bonnie J. Schwartz
Mr. and Mrs. Steven Scott
Mr. Paul H. Sears
Mr. Frank J Semcer
Mr. William Senseney
Ms. Barbara Seril
Colonel Orlando C. Severo
Ms. Mary Shaffer
Mr. Bhagirath Shah
Ms. Diane Shaw
Shell Oil Company
Foundation Matching
Gifts Program
Mrs. Irene Shen
Ms. Betty A. Shindler
Ms. Betty S. Shine
Kenneth Shockley
Charitable Trust
The Shore Family Fund
Shure Incorporated
Ms. Joyce Siefering
Nancy Silverman
Marty and Dorothy
Silverman Foundation
Mr. Bradley G. Simpson
Mr. and Mrs. Grover
Simpson
Mr. Grover R. Simpson
Mr. Joel Singer
Shakopee Mdewakanton
Sioux Community
Sanford Sirulnick
Sheila Slewett
Mr. Larry Smith
Mr. and Mrs. Paul G. Smith
Mrs. Rosemary W. Smith
Ms. Ellen Rader Smith
Mr. Steve Snater
Martin H. Snitzer
Mr. and Mrs. Nelson B.
Soggs
John L. & Grace P.
Soldoveri Foundation, Inc.
Sosa Charitable Gift Fund
Dr. and Mrs. Enrique J.
Sosa
Mr. Laurence Spector
Mrs. Lucille Spittler
Ms. Kathryn P Sprouse
Spyderco, Inc.
Mr. John M. St. Clair
Dr. Mark A. Stacy
Mr. David J. Stafford
Ms. Deborah Stange
Ms. Margaret Starner
Mrs. Geraldine Stein
Mr. and Mrs. Sylvester
Steinke
Mr. Mark S. Stephenoff
Mrs. Norval Stephens
Ms. Jennifer Stettner
Stewart Title Company
Stonecrest Senior Living
Mr. Bert Stromberg
Mr. William Stubbs
Mrs. Stephanie B. Stull
Mr. and Mrs. James W.
Stultz
Mr. Bernard G. Suess
Jeff Sultan
Sunset Development
Company
The Sussex County
Parkinson’s Education &
Support Group
Mr. and Mrs. John A.
Svoboda
Mr. and Mrs. Paul H. Swan
Mr. Geoffrey Swett
Mrs. Joanne Symes
Synergy Home Care
T. Rowe Price
Mr. Joel Talish
Tallgrass Energy, LP
Tampa Bay Rays Baseball,
Ltd.
Mr. Mark A. Tancil
TASFAA, Inc.
Mr. Harry Tchira
Mr. Lee Tenenbaum
Teng Family Charitable
Fund
Teva Pharmaceuticals
Teva Neuroscience, Inc.
The GMK Family Fund
The Habit Restaurants,
LLC
The Lucky Clover Trading
Co.
Patrick Thelen
Mr. Tim Theriault
Ernest ‘Tommy’ Hayden
& Harriett ‘Rusty’ Jean
Thomas Fund
Mr. John Thomas
Mrs. Jean S. Thomas
Mr. B. R. Thompson
Ms. Maggie Thompson
Mr. and Mrs. Bernie
Thomsen
Karen Throckmorton
The James and Patricia
Tolley Charitable Gift Fund
Martin Tomberg
Trigran Investments, Inc.
Ms. Sharon L. Troy
Sabra Truesdale
Trukenbrod Family
Foundation
Trustmark National Bank
The Donald P.Tucker and
Family Charitable Fund
Ms. Laura Turner
Mr. and Mrs. John W.
Turner
Mr. Charles Turner
Trust of John and Ruth
Ann Tyler
Mr. Steve Ulrey
United Way of Greater
Philadelphia & Southern
New Jersey
University Hospitals
Mr. Marcello Vaccaro
Rocky Valentine
Valero Texas Open
Ms. Karen Van Haitsma
Mr. and Mrs. Russell Van
Nuis
Ms. Karen Vander Linde
Ms. Sherri Vazales
Mr. Christopher Volk
Mr. and Mrs. Malte Von
Matthiessen
Bruce and Carole Wagner
Charitable Fund
Mr. Herbert Wagner
Robert Wagner
Wake Research Associates
Cushman & Wakefield, Inc.
Mrs. Loretta Wallace
Mr. Joe Waller
Mr. Lawrence Wang
Mr. Andrew Wang
Mr. Dale A. Warner
Mr. and Mrs. Glenn Warren
Alvin Warsaw
Ms. Rosalind Wattel
Ms. Joan A. Watters and
Mr. Frederick Snare
Mr. Steven D. Watts
Mr. and Mrs. David Waud
The Wayen Charitable
Foundation
Mrs. Allyson Weathers
Estate of Douglas L.
Weaver
Mr. and Mrs. John C.
Weicher
Mr. and Mrs. Harvey M.
Weidenfeld
Mr. Melvyn Weiss
Wells Fargo Advisors, LLC
Mrs. Jeannine Wensky
West Gables Rehabilitation
Hospital, LLC
Erik Westrum
Mrs. Margaret E. Whitbread
Mr. and Mrs. Brian Wiest
Ms. Alysha Wilcox
Mrs. Terry Wildblood
Mr. and Mrs. Fred
Wilkinson
Mr. Colin P. Wilkinson
Mr. John I. Williams, Jr.
Williamson Trust
Anthony L. Wilner
Mrs. Nancy L. Wilson
Mr. Curtis Wolfe
Steve & Cindy Wolfe
Family
Wolzinger Family
Foundation
Ms. Kalynn Wood
Mr. and Mrs. Gordon and
Carrie Wood
Phyllis I. Wormwood Fund
Ms. Crystal Worrell
John M. & Kathy R.
Wright Family Charitable
Foundation Trust
The Wuliger Foundation
Mr. Gregory Wuliger
Mr. Timothy Wuliger
Mr. David Wurth
YCNAN & DERF Fund
Dr. Haile Yidegiligne
Yonker Family Foundation
Mr. Edwin York
Mr. Thomas York
Young Living Trust
Mr. Kevin Young
Jason Young
Ms. Louise K. Young
Mr. and Mrs. Stephen N.
Zack, Esq.
Ms. Sandy Zacky
Mr. Keith Zagar
Mr. Ted Zahner
Mr. Phillip Zaman
Zanesville Parkinson’s
Group All Shook Up
Dr. Karen M. Zarlengo
Mr. Mark Zastrow
Mr. Glenn Zebrowski
Mr. Jeffrey Zeidman
Zest
Zissu Family Foundation
Eleanor and Leo Zucker
Family Foundation
Mr. and Mrs. Daniel
Zuckerman
Jerome and Dolores
Zuckerman Gewirtz Trust
*includes payment toward
a multi-year pledge
A division of the Parkinson’s Foundation
18
NATIONAL PARKINSON FOUNDATION
LEGACY SOCIETY
Legacy society members are a select group of donors
who have recognized the National Parkinson Foundation
in their wills, trusts, estates and other planned gifts. Their
generosity and forethought will help thousands of people
with Parkinson’s live better lives in the years to come.
We would like to recognize the following
Legacy Society members:
Anonymous (8)
Rachel K. Johnson
E. Richard Alhadeff
Yetta Kaemmer
Leo M. Amoroso
Barry Kaye
Helen C. Avchin
Carol and James Kitzner
A. Jeffrey Barash
Heinrich E. Kolbel
Dorothy Beatrice
Hanes Lassiter
Ben Berkowitz
Helmut Leeser
Connie Bierlein
John McConeghy
Paul R. Blom and
Robert W. White
James & Marie McCurdy
Family Charitable Trust
Marshall R. Burack
Maida Burka
Diane K. and
James N. McGinnis
Tom Campbell
Karen A. Moschetto
Kari Clark
Anna Nalbandian
Estate of Lewis F.
and Mildred E. Collier
Kimrey Newlin
Richard and Susan
Comeau
Ruth Orfield
Robert A. M. Coppenrath
Anne Romanello
Deloris T. Crews
Kim Schrotenboer
Thomas A. Curtis
Alan M. Slewett
Mary Dexter
Sheila Slewett
Mary Jean Elioff
James A. Enloe, Sr.
Vivian and Centre
Unversaw
Alvin Gardner
Miguel Vargas
Guido Goldman, PhD
Dorothy Vaughn
Dr. Moses and Beatrice
Goodman Fund
Frank A. Waser
James H. Grew, Jr.
Edith Held
Genie B. Hollen
Legacy Society estate donors:
Trust of Rita Alexander
Eugene M. Bane
Charitable Trust
Estate of Mildred Barcus
Myron and Shirley
Blumberg Charitable
Remainder Trust
Estate of Willard H.
Braman
Estate of Hildegard
Butler
Estate of James M.
Cantrell, Jr.
Chinowth Charitable
Lead Trust
Estate of Thomas P.
Christino
Estate of Sally Cooper
Estate of Marion F. Dean
Estate of Elaine D.
Dooman
Estate of Alice B. Dunn
Estate of Paul V.
Eggstein
Estate of Guy Ferris
Dr. Moses & Beatrice
Goodman Fund
The Hansen Trust
Estate of Fayne E.
Harter
Estate of Nhu Y. Herman
Estate of Gerald R.
Hiering
Trust of Chester W. and
Nadine C. Houston
Estate of Peter R.
Hubert
Trust of Dennis Olivieri
Estate of Mary M.
Patrick
Estate of Carol C. Price
Trust of Jean F.
and Christopher R.
Batchelder
Estate of Virginia M.
Richert
Estate of Mary Honor
Rivin
Estate of Jack Roth
Estate of Richard A.
Jordan
Estate of Robert C.
Rogers
Trust of Maynard Kagen
Estate of Beryl Kneopfle
Estate of Doris R.
Schmidt
Mahoney Charitable
Remainder Unitrust
Estate of Aleen M.
Schreiber
James & Marie McCurdy
Family Charitable Trust
Estate of Sherwood
and Mildred Schwartz
Trust of Barbara A.
Nelson
Estate of Manette H.
Speas
Estate of Kathrine A.
Neubauer
Estate of Joyce Specter
Estate of Nancy J.
Novick
Estate of Douglas L.
Weaver
Trust of Mary E. Sublett
Paul F. Oreffice
Margaret Paul
Michael L. &
Antoinette H. Wilkerson
Mary Ellen and Bruce
Wisnicki
REMEMBERING
MUHAMMAD ALI
Muhammad Ali with former
NPF chairman, Nathan Slewett.
Ida Hutzler
Charitable Trust
In 2016, we said goodbye to Muhammad Ali, a longtime friend of
Edward Jervey
world and helped establish the Muhammad Ali Parkinson Center,
the foundation. Ali elevated Parkinson’s awareness around the
a Center of Excellence. His commitment to living his best life
possible with Parkinson’s will forever be an inspiration.
19
A division of the Parkinson’s Foundation
We would like to acknowledge the Team
Hope™ community fundraisers that raised
$1,000 or more and took place between
July 1, 2015 and June 30, 2016. We appreciate
every fundraiser’s energy and dedication to
helping us beat Parkinson’s.
TEAM HOPE™ MEMBER NAME • EVENT NAME
All Saints Senior Living • Awareness Walk
Terrell Allen • Marine Corps Marathon
Makenzie Allison • Santa Barbara Wine Country Half Marathon
Allstate Insurance Co. • Fight Back, Move Forward
Awareness Walk
Catherine Anderson • Barbecue Fundraiser
Ashley Bridget, LLC • Parkinson’s Awareness Bracelets
Associated Electrics, Inc. • Annual Remote Control Cars Racing
Event
Maria Avila • Big Sur International Marathon
Mariah Bamrick • Moving for Mickey
Bay Area Golf for Parkinson Foundation • 4th Annual Bay Area
Golf Raffle
Rebekah Beal • Marine Corps Marathon
Gordon Beckham • Out of the Park
Nicolas Bensen • Big Sur International Marathon
Michael Bernstein • TCS New York City Marathon
Meenu Bhanot • Big Sur International Marathon
Bobby’s Frozen Custard, Inc. • Famous Turtle Sundae Sales
Lauren Bobersky • Saratoga Springs Half Marathon
Aaron Brammer • Marine Corps Marathon
Bravelets, LLC • Parkinson’s Charity Bracelets
Amy Bukszpan • Marine Corps Marathon, TCS New York
City Marathon
Kevin Burkart • 300 Imperfect Jumps
Kristina Castro • Miami Half Marathon
Marco Castro • Miami Half Marathon
Catch the Cure • Paddle for Parkinson’s
Julie Chodacki • Miami Half Marathon
Linda Cibula • Mardi Gras Ball
Citizen’s First State Bank Brenna Clark • 2nd Annual Run2BeatPD
Ashley Coder • Miami Marathon
Kelley Cody-Grimm • Pie it Forward for Parkinson’s Improv Show
Marie Coppola • World Parkinson’s Day 5K
Ashley Dahlman • Big Sur International Marathon
Lindsay DaRosa • Big Sur International Marathon
Jennifer Davis • Santa Barbara Wine Country Half Marathon
Clare Delmastro • Marine Corps Marathon
Jennifer DeTreville • Soul Cycle Charity Ride
Hannah Devries • PD Donut Dash 5K
Nicolina Dinardi • UPMC Health Plan Pittsburgh Half Marathon
Megan Duffy • Indianapolis One America 500 Mini Marathon
Brian Duncan • Marine Corps Marathon
Mary Edmonds • Marine Corps Marathon
Elk River Area Chamber of Commerce • Shiver Plunge Event
Mark Eversgerd • Pancake’s for Parkinson’s
Evolve Therapy • Occupational and Physical Therapy Sales
Adam Farley • Marine Corps Marathon
Flat Creek Baptist Church • The Chris Gaunt 5K Run/Walk
Over Parkinson’s
Gabby Forbes • Big Sur International Marathon
Kristine Ford • TCS New York City Marathon
Garden of Life • Ocean 3’s Better Brain donations
Jackie Gibertini • Big Sur International Marathon
Pura Vida Bracelets • Parkinson’s Charity Bracelets
Jeff Gonot • Running a Race each month for Parkinson’s
RACES2RUN • 17th Annual John D. Kelly III Memorial Run
Theresa and Danny Gordon • Honolulu Marathon
Dexter Ramey • Richmond Half Marathon
Jonathan Gould • Big Sur International Marathon
Dawn Randall • TCS New York City Marathon
Veronica Gould • Big Sur International Marathon
Sheila Ravindran • Miami Half Marathon
Joanna Grote • Marine Corps Marathon
Christine Rhodes • Parkinson’s Benefit Concert
Carlee Guthaus • In memory of Dennis Guthaus
Evan Riley • Punch Out Parkinson’s Golf Tournament
Elena Harp • Marine Corps Marathon
Road Rage Events, LLC • 2nd Annual Summer Slam 5K
Chris Harvey • Albertine Harvey Memorial Art Exhibit Evening
Summer Rodman • Gail Petronis Birthday
Heather Heard • Power and Peace for Parkinson’s
Susannah Scearce • Marine Corps Marathon
Casey Hedden • Big Sur International Marathon
Scranton/Wilkes-Barre RailRiders • New York Yankees
Carissa Hernandez • Santa Barbara Wine Country Half
Marathon
Old Timers’ Weekend
Kathryn Seidenstein • TCS New York City Marathon
Holly Hills Country Club • Pro-am Golf Tournament
Aisha Sheikh • Marine Corps Marathon
Hope Lutheran Church • The Original Knockout Dayton 2016
Pooja Shenoy • Bay to Bay Breakers
Kara Horvath • TCS New York City Marathon
Craig Simon • Marine Corps Marathon
Kendall Hudson • Handmade Furniture Sales
Brad Ivers • Ivers-Schiff Wedding
Denise Janis • Craft Sales
Drew Jennings • Big Sur
International Marathon
Jessica Jensen • Marine Corps
Marathon
Richard Johnston • Team Crusty
Pedals Cyling Ride
JX Enterprises • Casual for a Cause
K & G Striping, Inc. • Strikeout
Parkinson’s Disease
Perius Kanga • Cycling from San
Jose to San Diego
Keenan Antiques • Summer Wade
Fest
James Klagge • Marine Corps
Kevin Burkart jumps out of a plane
Marathon
for his “300 Imperfect Jumps” fundraiser.
Julia Larkin • TCS New York City
“I did it for my dad,” Kevin said.
Marathon
Gabrielle Lee • Walkway Half
Marathon
Marc Levin • Marine Corps Marathon
Jennifer Singer • Chesco Half Marathon
Adam Levine • Pedaling for Parkinson’s: East to West
Alison Spain • Annapolis Classic 10K
Miles Lewis • Geoffrey Lewis Memorial Parkinson Fundraiser
Spyderco, Inc. • Proceeds from Sales
Krissy Lipka • Miami Marathon
Stafford Rosenbaum, LLP • Casual for a Cause Day
Jasmine Liu • TCS New York City Marathon
Courtney Stein • TCS New York City Marathon
Andrea Longoria • Beat Parkinson’s - 5K Walk & Run
Colin Stokes • Coast to Canyon 700-Mile Cycling Ride
Kevin Loughran • Santa Barbara Wine Country Half Marathon
Leticia Suchil • Hair Salon Fundraiser
Paul D. Love • Marine Corps Marathon
Michael Sullivan • Charity of the Month
Lyman Ag Supply • Atlantic High School Softball Team
Mark Swiggum • Ojai Marathon
Lauren Magill • San Francisco Half Marathon
Justin Taylor • Falmouth Road Race
Marc Mahan • TCS New York City Marathon
Samuel Tephabock • Open House Fundraiser
Alexandra Marsek • Earthly Treasures Jewelry Show
The Lucky Clover Trading Co. • Basket Sales
Devon McCarty • Marine Corps Marathon
Sarah Tomal • Big Sur International Marathon
Mer Rouge Community Chest • 37th Annual Drive
Joyce Tracy • Zero Mile Fun Run
Midwest Operating Engineers Valley Quail Chapter of the Embroiders Guild of America •
Darla Moore • Cycling Against Parkinson’s
Annual Summer Party & Auction
Nathan Moore • Nate Moore Music Proceeds
Jared Vazales • Santa Barbara Wine Country Half
Kendra North-Proctor • Strike Out Parkinson’s
Marathon
NPF Ohio Community Partners • Cocktails for a Cure
Angela Vera Jackson • Big Sur International Marathon
OneHope • In-Home Wine Tasting Event
Washington, IL, Police Dept. • No Shave November
David O’Reilly • Big Sur International Marathon
Curt Weeden • Dutch Island Book Sales
Kate O’Reilly • Big Sur International Marathon
Renee White • Eversource Marathon
Katria Oviedo • TCS New York City Marathon
Jodi Winslow • 18 Hole Ladies Golf League
Park Project, Inc. • Perfom Acts of Random Kindness 5K
Tim Winterfield • Ride for Dad: Cycling from New York
David Parker • Marine Corps Marathon
to Miami
Shane Pearlman • Big Sur International Marathon
Eva Wong • Marine Corps Marathon
Gary Pellman • Bob Stanton Memorial Golf Outing
KaLynn Wood • Marine Corps Marathon
Lindsey Peterson
Crystal Worrell • TCS New York City Marathon
Beth Philcrantz • Miami Half Marathon
Gordy Yowell • Marine Corps Marathon, TCS New York
Prabhat, Inc. • Youtopia 5K
City Marathon
Chris Price • Indianapolis One America 500 Mini Marathon
Jennifer Zielke • Run to Beat Parkinson’s
One-Armed
Skydiving
for Parkinson’s
Research
Annual
Report
2016
20
2015-16
Financial Highlights
As illustrated below, the National Parkinson Foundation
directed 76% of its 2015–2016 spending on mission-related activities
and 24% on fundraising and management combined.*
Chapter
Services
$ 2,918,758 | 29%
Patient Care
Services
$ 2,383,744 | 24%
Total Operating Expenses
100 % | $ 13,161,375
EXPENSES
Subtotal Mission-Related
76% | $ 10,009,218
BY CATEGORY
Fundraising
18 % | $ 2,324,967
General & Administration
6% | $ 827,190
Public
Education
$ 2,358,507 | 24%
Research
| 23%
$ 2,348,209
Legacies
& Bequests
$ 2,741,332 | 21%
Total Revenue
$
13,065,880
REVENUES
Total Year-End Assets
$ 15,294,256
21
Annual
Report
2016
BY CATEGORY
Other
$ 368,531
| 3%
Private &
Corporate
$ 9,956,017 | 76%
*Reflects the National Parkinson Foundation’s
IRS Form 990 for the fiscal year 2015-16.
BOARD OF DIRECTORS
The National Parkinson Foundation, a division of the Parkinson’s Foundation, was privileged to have an outstanding
and dedicated group of volunteers who generously donated their time and talents by serving on the Board of Directors
from July 1, 2015 to June 30, 2016. Without their selfless efforts, the work of the foundation would not be possible.
OFFICERS
MEMBERS
EMERITUS BOARD
John W. Kozyak, Esq.
Chairman of the Board
J. Gordon Beckham, Jr.
A. Jeffrey Barash, Esq.
Erin R. Borger
Carmen Y. Cartaya, Esq.
Bernard J. Fogel, MD
Past Chairman
Ricardo Caporal
Edythe Kay-Marsa
Patricia de Stacy Harrison
Harold P. Kravitz, Esq.
Paul F. Oreffice
Chairman Emeritus
Alessandro Di Rocco, MD
Jo Ann Pepper Oreffice
Alberto Dosal
Alan M. Slewett
Guido Goldman, PhD
Enrique J. Sosa, PhD
Gregory E. Katz
Senator Paul B. Steinberg, Esq.
Honorable Shelley J. Kravitz
Robert H. Traurig, Esq.
Andrew B. Albert
Vice Chairman
E. Richard Alhadeff, Esq.
Vice Chairman
Harold P. Kravitz, Esq.
President Emeritus
Marshall R. Burack, Esq.
Secretary
Jonathan Levin
Mindy McIlroy
Robert M. Melzer
Gail Milhous
James F.T. Monhart
Roberto L. Palenzuela
Enrique J. Sosa, PhD
SENIOR PROFESSIONALS
John L. Lehr
Amy Gray
Peter Schmidt, PhD
Chief Executive Officer
Appointed January 2017
Senior Vice President,
Constituent and Community
Relations
Senior Vice President and
Chief Mission Officer
Paul R. Blom*
Interim Chief Executive Officer
Curt De Greff, MBA, CPA
Leilani Pearl
Vice President,
Communications and Marketing
Robert G. Shaw
Vice President, Constituent
and Corporate Relations
Interim Chief Financial Officer
*Served as Interim CEO of the NPF division until December 2016.
A division of the Parkinson’s Foundation
22
www.parkinson.org
A division of the Parkinson’s Foundation
200 S.E. First Street , Suite 800 • Miami, FL 33131 • 800.4PD.INFO (473-4636)