Activity performance in everyday life Listed below are different examples of behavior. The list is to inspire you in considering if the wheelchair user is at risk of any physical injury – including pressure and tissue injuries – corresponding to the way the wheelchair is used or the way it is supposed to be used during activity performance. These examples are from my own experiences during many years of practice in this field. I can highly recommend to you to try out the activity with your own body by using some sliding material to make sure that an activity performance needs rethinking or redesigning. Sitting on a sliding material performing different activities will help you to point out the specific problems in not being stable and sufficiently pressure distributed in a seated position. If you do so with your wheelchair user (be careful!) you will create the motivation to think differently as well – the basis of any change of behavior. Taking the ADL-taxonomy1 as a starting point you might attempt to point out RISKBEHAVIOR in connection with e.g.: Meals If an anterior tilt in space is used – (meaning beyond horizontal) – to avoid reaching the table with knees underneath when dining, the behavior is very risky. If the recline function is used forward in order to press the wheelchair user forward to get a better truncus-support or perhaps a closer table contact the behavior is very risky. You must definitely create alternatives to make sure, that the wheelchair user can eat without these apparently attractive functions, as they will disturb stability and create shear in the tissue during use as well as afterwards. 1 Transfers If the wheelchair back, footrests, sling, buttocks, or clothes need to be adjusted or corrected after ”landing ”on the wheelchair seat the behavior is very risky, because every correction implies a risk of losing the necessary stable and continued contact with the wheelchair corresponding to the SIPS (spina Illiaca posterior superior). If the wheelchair user is practicing a “low transfer” to “take a seat” it is important that the user is gaining a stable and continued contact between the chair and the 3 basic support points – SIPS and the two Tuber Ischii, and that the wheelchair user is able to lift himself 100% up as well. It is necessary to be very critical about this, as a wheelchair user with many years of experience doing this may be reluctant to change practice though he might permanently or just temporarily be weaker than he used to be. ADL-taxonomy http://www.diva-portal.org/smash/get/diva2:318271/FULLTEXT01.pdf www.siddestillingskompagniet.dk 1 Try to find all sorts of risky procedures in connection with transfers – meaning procedures that can lead to shear and loss of stability immediately and over time. It is of great importance that the wheelchair user gains and is able to keep a seated position of high quality. If the wheelchair user glides forward on the seat during the day or immediately during or after a specific transfer, or if the upper body collapses immediately or during the day - the wheelchair user is at high risk of caching physical injuries in the seated position. This is an expression of the lack of both stability and pressure distribution area. Using WC The wheelchair user might have the habit of using reclining function of the wheelchair to empty a catheter or a habit of pulling himself backwards and forwards on the wheelchair seat after having visited the toilet or done catheterization. Then it is essential to make sure that the wheelchair user is actually able to finish the process by lifting himself 100% from the seat. If he is not able to do so it is a very risky behavior and you need to create alternatives to minimize the risk of creating shear because if not the wheelchair user is continuously seated upon displaced and deformating tissue probably resulting in a potential tissue damage. Dressing and un-dressing If it is a habit to use the wheelchair reclining function when dressing – perhaps to get more space for an easier way to pull on clothes or a sling it is a very risky behavior. You need to find better solutions to prevent this habit from creating displacement on the seat (friction) and in the tissue underneath the skin – inside the body (shear). Personal hygiene (and other kinds of body care) It is a very risky behavior if the user perform his transfers TO a bath and toilet chair by a “low transfer” if the user is in fact not able to finish the transfer by lifting himself 100% from the seat. It is a very risky behavior too if it is a habit that the wheelchair user is continuously seated for more than 15 minutes in a sling. You ought to intervene and avoid this by eliminating the tissue deformation – meaning creating stability and pressure distribution to the whole body. Communication If the anterior tilt in space need to be used beyond horizontal in order to reach a good working position by the computer table and to reach the keyboard or perhaps to be able to see the text on the screen it is a risky behavior you need to intervene in. To prevent this you must activate your creative potential in order to optimize a stable and non-sliding displacement of the tissue and the skeleton during work time for more than 15 minutes. Transportation If it is a habit to use the anterior tilt in space beyond horizontal to be seated or to enter the car – either as a driver or as a passenger - it is a very risky behavior. www.siddestillingskompagniet.dk 2 If the recline function of the wheelchair is used either forward or backwards to enable the wheelchair user to enter the car or even be able to drive it, or if the wheelchair user is performing a “low transfer” from wheelchair to car seat without being able finally lifting himself 100% from the seat it is a very risky behavior. A concrete analysis of the shear risk during driving is necessary. Be aware of the total amount of driving time + the subsequent participation in activities, treatments and medical examinations that all together might lead to a very long and risky challenge to the body which is perhaps not sufficiently stable and optimally pressure distributed during driving. Driving-related adjustments of the wheelchair or the car seat considered necessary during driving might contradict the necessary continuous stability. It might be difficult to correct an unsuitable seated position during driving and might allow shear a free rein for many hours – very often an underestimated problem. Consider any possibilities to avoid these consequences even by making suitable changes of the car. Cooking If the anterior tilt in space is used beyond horizontal perhaps to gain a good working height at the kitchen table, sink or stove during cooking or if the footrests are removed it is a risky behavior, that you need to reflect therapeutically upon. There is a need for less risky working postures to prevent shear and friction in tissue and skin. Be aware of heavy kitchen equipment and boxes with e.g. potatoes, flour, beers and stuff like that. It should not be located on the lowest shelves or in places with the most difficult accessibility, as it will cause a need for reaching out beyond the wheelchair side - meaning a risky behavior – losing stability and contact with the important 3 body points of contact to the chair: SIPS and the two Tuber Ischii. The wheelchair user will slide to one side, perform friction and shear - meaning deformation of tissue -, and will perhaps not regain his upright position as he might not realize the sliding process. Be aware of the fact that whet hands or hands with flower or bits of food (during the process of cooking) might prevent the wheelchair user from correcting his seated position after sliding till he is able to dry his hands – in order not to soil his wheelchair. That is how even a well-adjusted wheelchair offering stability and pressure distribution might result in a tissue damage during more than 15 minutes of a bad position. Go shopping If it is a user habit for instance to reach out over his area of support for goods on the lowest or highest shelves it might result in missing stable contact with his 3 important points of contact: SIPS and the two Tuber Ischii between body and chair. The pelvis might tilt – seen from the frontal plane. If so, it will often not be possible to correct this properly until the user is at home again, and the wheelchair user will not even be aware of the problem. If so, the time during which the shear is at work will make a very serious risk. Cleaning If the wheelchair user has a habit of reaching out over his area of support to be able to do cleaning, gardening, or perhaps other kinds of hard physical work it might be a serious risk factor. It may cause loss of stability and contact with the important three body points to the chair: SIPS and the two Tuber Ischii. If so, it can be necessary as OT to assist the wheelchair user in finding alternative ways and tools to enable him to continue his activities. www.siddestillingskompagniet.dk 3 Washing/dishwashing If the washing machine and/or the dishwasher is filled and emptied, for instance by reaching out beyond the wheelchair side it means a risky behavior that needs your analysis to find alternative solutions. Resting Is the wheelchair user resting by using the back recline and the footrest elevation it is a very risky behavior. Partly because it usually is not possible to gain sufficient support and rest to the body – which also means sufficient return of blood to the heart – in this position, partly because the different possibilities of wheelchair adjustment involves a shear and friction generation. For that reason avoid this practice. www.siddestillingskompagniet.dk 4
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