ImPaCT in Europe Improving Person Centred Technology in Europe Glossary of Technical Terms This project has been funded with support from the European Commission. This publication reflects the views only of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein. With the cooperation of: European Association www.easpd.eu AIAS Bologna onlus, www.ausilioteca.org, www.aiasbo.it CECD Mira Sintra, www.cecdmirasintra.org Centre de la Gabrielle - Mutualité Fonction Publique action santé social (MFPASS), www.centredelagabrielle.fr FAIDD, www.kehitysvammaliitto.fi Hft, www.hft.org.uk Learning Disability Wales, www.learningdisabilitywales.org.uk Modem Vzw Governeur Kinsbergencentrum, www.modemadvies.be Nottingham Community Housing Association, www.ncha.org.uk of Service providers for Persons with Disabilities, Introduction: ImPaCT in Europe – Improving Person Centred Technology in Europe The Project ImPaCT in Europe – Improving Person Centred Technology in Europe is a networking project in the field of ICT co-financed by the European Commission Executive Agency for Education, Audiovisual and Culture in the framework of the Lifelong Learning Programme. The project has started on 1st January 2009 and will last for 36 months. The objective of the ImPaCT in Europe network is to “accelerate the effective participation of target groups at risk of exclusion and improving their quality of life” as outlined in the European i2010 initiative on e-Inclusion by stimulating the effective use of ICT-enabled services and providing competence building opportunities for the end users of Person Centred Technology (PCT) via education and training services. The overall aim of the ImPaCT partnership is to facilitate the development and implementation of Person Centred Technology for the benefit of key stakeholders within the health and social care sectors in Europe, namely service providers, care staff and most importantly end users. All of the activities of the network will involve and empower the end user of the technology to evaluate its effect on their daily lives. About this Glossary The purpose of this glossary is to assist in promoting a better understanding of Person Centred Technology by introducing and explaining the most commonly used terminology used in this field. In some countries, it appears that assistive technology is not a widely-used term. This glossary aims to break down the barriers that may be presented by the terms and language used, while providing examples of the rehabilitative, integrative, autonomy and independence benefits that can be met by technologies. The glossary is not intended to be an exhaustive list of technologies, but to help in the further understanding of the possible uses of Person Centred Technology and the impact it can have on the lives of disabled people. How to use this glossary? We have split terms into 3 main categories which are split into thematic sub-categories, to facilitate usage and understanding. Most of the terms in this glossary are identified by an acronym (DFA, C, D, etc.) that links them to the sub-section they belong to. E.g.: Barrier-free design is a term you will find in the “Policy / Policy objectives” section. This term is linked to the sub-category “Design for all”. Therefore you will read: “Accessibility > DFA” The 3 main categories are: 1. Policy / Policy objectives 2. Technology based solutions 3. Services Sub-categories: Design for all - see definition - referenced as DFA Communication - see definition - referenced as COM Domotics - see definition - referenced as DOM Health - see definition - referenced as HEA Inclusion - see definition - referenced as INC Information and Communication Technologies - see definition- referenced as ICT Input Device - see definition- referenced as IND 1. Policy / Policy objectives Accessibility The UN Convention on the Rights of Persons with Disabilities stresses the importance of Accessibility to the physical, social, economic and cultural environment, to health and education and to information and communication, to enable persons with disabilities to fully enjoy all human rights and fundamental freedoms. 1 In a technological environment it refers to the accessibility of a computer system or hardware/software devices to all people, regardless of disability (physical, sensorial, cognitive) or severity of impairment. It is largely a software concern2. It is now a legal requirement under disability discrimination legislation in many European countries. For an overview of accessibility in European countries, please refer to the MEAC report and its annex3. Ageing The ageing process is characterised by the acquisition of progressive multiple minor impairments predominantly related to sight, hearing, dexterity, mobility and cognition. In combination these can lead to high levels of disability and dependence4. Barrier-free Design - DFA The original focus of disability campaigners and architects was on barrier-free access to buildings and public environments - kerb cuts, textured paving, ramped entry, wider doorways, corridors and accessible toilets - all denoted by a wheelchair symbol. Communication - COM This term encompasses every device or service that can be used to communicate with others or to access information by means of adapted devices or services. Design for All - DFA EU term equivalent to universal design, but with an emphasis on information. The current goal is the establishment of national centres of excellence in design for all education and dissemination across Europe. Design for All is design that facilitates access to products and environments for the largest range of people, through design focused on user needs. Design for All aims to enable all people to have equal opportunities to participate in every aspect of society. To achieve this, the built environment, everyday objects, services, 1 UN Convention on the Rights of Persons with Disabilities, Preamble, paragraph (v). See also art. 9 on accessibility 2 en.wikipedia.org 3 Main report : http://ec.europa.eu/information_society/activities/einclusion/docs/meac_study/meac_report_06_11 _final.pdf Annex : http://ec.europa.eu/information_society/activities/einclusion/docs/meac_study/meac_policy_inven tory_06_11_07.pdf 4 http://www.education.edean.org/index.php?filters=f37 culture and information – in short, everything that is designed and made by people to be used by people – must be accessible, convenient for everyone in society to use and responsive to evolving human diversity. The practice of Design for All makes conscious use of the analysis of human needs and aspirations and requires the involvement of end users at every stage in the design process. 5 Disability The UN Convention on the Rights of Persons with Disabilities recognizes that “disability is an evolving concept, and that disability results from the interaction between persons with impairments and attitudinal or environmental barriers that hinders their full and effective participation in society on an equal basis with others.” 6 Discrimination on the grounds of disability Unequal treatment of an individual, due to his/her disability. Failure to provide adequate working conditions or reasonable accommodation may also be considered as discrimination. “Discrimination on the basis of disability” means any distinction, exclusion or restriction on the basis of disability which has the purpose or effect of impairing or nullifying the recognition, enjoyment or exercise, on an equal basis with others, of all human rights and fundamental freedoms in the political, economic, social, cultural, civil or any other field. It includes all forms of discrimination, including denial of reasonable accommodation.” 7 E-Inclusion A term used by the European Commission and other EU institutions to describe its policy priority to ensure that social inclusion for all EU citizens is furthered by the appropriate use of electronic communication methods. Ethics The shared set of moral values that guide the way we behave and practice. Ethical framework A document that can be usable for all the project partners in all their working areas and for all types of disabilities they are working with. It must be usable in daily work when quick decisions are to be made and which is also usable as a tool to assess whether the PCT is implemented and used for the benefit of the user with disabilities 8. Health condition or status - HEA Term used by the World Health Organisation to group disease, congenital and other factors previously dealt with in more strictly medical terms, that allows them to be seen as falling within a continuum of health conditions, which all impact on life quality and capability 9. Health - HEA A state of well-being, achieved through the interaction of an individual’s physical, mental, emotional, and social states10. Impairment - HEA Health conditions, ageing, and traumatic events can all result in impaired capability. Whether this gives rise to disability is determined by social and environmental factors, and importantly the design of environments, products, systems and services 11. 5 http://www.designforalleurope.org/Design-for-All/ UN Convention on the Rights of Persons with Disabilities, Preamble, paragraph (e). 7 UN Convention on the Rights of Persons with Disabilities, article 2 paragraph 3. 8 From the ImPaCT ethical framework 9 http://www.education.edean.org/index.php?filters=f37 10 http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf 11 http://www.education.edean.org/index.php?filters=f37 6 Inclusion The process which ensures that those at risk of poverty and social exclusion have the opportunities and resources necessary to participate in economic and social life, securing a standard of living that is considered acceptable in the society in which they live 12. International Classification of Functioning, Disability and Health (ICF) - HEA The classification that provides a unified and standard language and framework for the description of health and health-related states. ICF is part of the “family” of international classifications developed by the World Health Organization13. Medical Model of Disability - HEA The medical model of disability and ageing implies that people are disabled as a consequence of their own condition, and seeks to either remedy the impairment through medication, rehabilitation and surgery, or through adaptive aids and equipment. See also “Social model of Disability” Personalisation A term used in the social care field to describe the design and development of services that are built around the express wishes and needs of the individual. Reflective practice Thinking about the candidate’s own performance, what went well and what could have been improved and learning from this for future practice. Social inclusion - INC A Europe-wide political objective, aimed at combating social marginalisation and conflict due to age, disability, poverty or ethnicity14. discrimination, Social Model of Disability - INC In contrast to the medical model, the social model, which has superseded the medical model, sees people as disabled or enabled by the social context in which they function and proposes that changes in the social context or environment can remove or alleviate disability. See also “Medical model of Disability” Training Organized activity aimed at imparting information and/or instructions to improve the recipient's performance or to help him/her attain a required level of knowledge or skill15. Training needs analysis The Training Needs Analysis (TNA) – also known as a gap needs analysis – identifies performance gaps by isolating the difference between current and future performance. This is achieved by collecting both qualitative and quantitative data for analysis 16. Universal Design - DFA “Universal design” means the design of products, environments, programmes and services to be usable by all people, to the greatest extent possible, without the need for adaptation or specialized design. “Universal design” shall not exclude assistive devices for particular groups of persons with disabilities where this is needed. 17 29 http://www.braidproject.eu/sites/default/files/BRAID%20Glossary_Final%20September%202010.pdf http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf 14 http://www.education.edean.org/index.php?filters=f37 15 http://www.businessdictionary.com/definition/training.html 16 http://www.trainingaustraliamagazine.com.au/articles/1_2.htm 17 UN Convention on the Rights of Persons with Disabilities, article 2 paragraph 5. 13 2. Technology based solutions Assistive Technology There are different definitions of Assistive Technology: AT is understood to be any product (including devices, equipment, instruments, technology and software) specially produced or generally available, for preventing, compensating for, monitoring, relieving or neutralizing impairments, activity limitations and participation restrictions. Assistive Technology is technology used by individuals with disabilities in order to perform functions that might otherwise be difficult or impossible. AT can include mobility devices such as walkers and wheelchairs, as well as hardware, software, and peripherals that assist people with disabilities in accessing computers or other information technologies.18 Any item, piece of technical equipment, or product system that is used to increase, maintain, or improve the functional capabilities of individuals with disabilities. Increasing technology helps the user to make optimum use of available techniques. All are behind providing the best to their customers. Understanding the outcomes of assistive technology (AT) requires consideration of the fact that this intervention is inclusive of both a device and a service. According to American Public Law 100-407, an AT device is “any item, piece of equipment or product system whether acquired commercially off the shelf, modified or customized that is used to increase, maintain or improve functional capabilities of individuals with disabilities”. An AT-service is defined as “any service that directly assists an individual with a disability in the selection, acquisition or use of an AT device” (PL 103-218, HR 351, Section 212)19 Adapted Technologies - DFA Every modification of a device, service or programme that renders it usable for a person with disability. Augmentative and Alternative Communication (AAC) - COM A set of approaches that is used to improve the communication skills of a person who does not speak or whose speech is not intelligible. Augmentative Communication Approaches used to supplement, enhance or support the communication processes for persons who have some speaking skills. Alternative Communication Approaches replace speech as a means of communication.20 Augmentative and Alternative Communication System - COM "An integrated group of components, including the symbols, aids, strategies and techniques used by individuals to enhance communication". As this definition states, communication encompasses more than just spoken words; it includes gestures, eye gaze, touch, body postures/movements, sign language, photographs, printed words, objects, pictoideographs, 18 Definition provided in ISO 9999:2007 “Assistive products for persons with disability --Classification and terminology” 19, 19 From project ATOMS 20 http://www.asdk12.org/depts/AT/aac.asp and Braille21. AAC devices can be low technologies such as picture / symbol boards or high technologies such as electronic devices or computers using synthetic speech. Ambient Intelligence - DFA In computing, ambient intelligence (AmI) refers to electronic environments that are sensitive and responsive to the presence of people. Ambient intelligence is a vision on the future of consumer electronics, telecommunications and computing that was originally developed in the late 1990s for the time frame 2010–2020. In an ambient intelligence world, devices work in concert to support people in carrying out their everyday life activities, tasks and rituals in an easy, natural way using information and intelligence that is hidden in the network connecting these devices (see Internet of Things).22 Bliss symbol - COM A complex, graphic symbol, bliss are mainly used for AAC. Integrated Pictographic Language System for international communication, currently used by people with language-related disabilities. Close Circuit Television (CCTV) - DOM It is a video magnification system consisting of a video screen interfaced with a video camera. Video magnification is achieved in two ways – the electronic conversion from the small camera imager to the larger display screen and the optical effect of the cameras zoom lens. The CCTV system provides high contrast, inverse video display, grey scale, false colours, natural colours, etc23. Communication Board - COM Communication boards are both augmentative and alternative communication devices. That means that they are used to supplement or replace spoken language as a means of communication. Communication boards usually contain the letters of the alphabet, common words or phrases and pictures of common items and/or actions. Individuals with limited or no verbal communication skills simply point to the letters to spell words or to the pictures to express an idea or desire. Sometimes communication boards are also known as symbol boards, word boards or letter boards24. Communication Boards can be built into communication software to a wider communication system and be used in a computer. Communication book - COM Several Communication boards organized into a book. Communication device - COM Communication devices are what some disabled people use to communicate, if they can't talk. There are ones that actually talk, like the one used by the scientist Stephen Hawking, who has ALS. There are of course simpler ones that only speak a word or a sentence, when the person touches a button or uses a motion of the head to indicate which one they want to say. Cellphones are also a communication device, of course. Any device used to communicate can be called a communication device25. Community Alarm Systems - DOM These are systems to help vulnerable or disabled people stay in their own homes with the security of knowing that they can call for help in an emergency, such as a fall, or feeling 21 22 23 24 25 http://www.asdk12.org/depts/AT/aac.asp http://en.wikipedia.org/wiki/Ambient_intelligence http://www.education.uiowa.edu/icater/AT_glossary.htm http://www.speechdisorder.co.uk/communication-boards.html http://wiki.answers.com/Q/What_is_a_communication_device ill, at any time, even when the telephone is out of reach. Users call for assistance through activating a pendant alarm button (worn on around the neck, wrist or waist) or by pulling a pull cord. Alert calls are received by a monitoring centre (or warden/carer) who may communicate with the person at home via a speech unit. Digital speech - COM Voice Output Communication Aids (VOCAs), the device or the computer software will read the message put together with symbols out loud. Electronic Assistive Technology Electronic equipment which enables people with a wide range of impairments to improve their functional abilities and enhance their independence by facilitating their inclusion in society, communication, comfort and safety whilst at home, school, work or at leisure. Environmental control devices - DOM Any piece of equipment that helps people with disabilities to control their environment and help them to achieve usual tasks and ensure their safety, i.e. door’s locker control, lamp, television and alarm system. Eye pointing - ICT Eye pointing refers to a way of communicating where the person uses their eyes to look in the direction of a particular item or symbol to indicate a choice. Eye Tracking - IND Eye-tracking systems serve as a replacement for common input devices such as mouse, keyboard or remote control. Using such systems, users with complex physical disabilities can operate computers and other connected devices simply by moving their eyes. An eye-tracking system consists of a camera which continuously scans one of the user's eyes and of software which analyses the picture captured by the camera to determine which exact point on the screen the user is looking at. Graphic symbol - COM A written symbol that is used to represent speech. The representation system or symbols used in AAC include gestures, hand signals, photographs, pictures, line drawings, words and letters. The choice of symbol system will depend on the AAC user's abilities; many will use different symbol systems at different times. It is important to consider the individual user’s preference, visual acuity, and visual processing of information when establishing which type of pictures is appropriate for their communication system. Hardware - ICT The physical constituents (including the mechanical, magnetic, electronic, and electrical devices) that comprise a technological device, such in the PC: motherboard, disk drives, keyboard, screen, and so on. High Tech High-tech AAC aids are electronic devices that permit the storage and retrieval of messages, with most allowing the user to communicate with others using speech output. Such devices can also be referred to as Speech Generating Devices (SGDs) or Voice Output Communication Aids. Information and Communication Technology (ICT) - ICT ICT (information and communications technology - or technologies) is an umbrella term that includes any communication device or application, encompassing: radio, television, cellular phones, computer and network hardware and software, satellite systems and so on, as well as the various services and applications associated with them, such as videoconferencing and distance learning. ICTs are often spoken of in a particular context, such as ICTs in education, health care, or libraries. According to the European Commission, the importance of ICTs lies less in the technology itself than in its ability to create greater access to information and communication in underserved populations. Input Devices - IND An input device is any peripheral (piece of computer hardware equipment) used to provide data and control signals to an information processing system (such as a computer). Interface - ICT A set of devices, software, and techniques that connect computers with people to make it easier to perform useful activities. Joystick - IND A joystick is an input device consisting of a stick that pivots on a base and reports its angle or direction to the device it is controlling. Joysticks are often used to control video games, and usually have one or more push-buttons whose state can also be read by the computer. Joystick mouse - IND A joystick mouse looks like a joystick but works similarly to the traditional mouse. A joystick mouse plugs into your computer and works just like a regular mouse. Joystick-To-Mouse is a Windows software programme that allows any joystick to point and click just like a mouse. Keyboard - IND An input device. There are different standard keyboards available on the market, small keyboards, big keyboards, screen keyboards. A screen keyboard can be operated with any kind of mouse but also with switches. Low Tech Low-tech communication aids are defined as those that do not need batteries, electricity or electronics to meet the user's communication needs. These are often very simple aids created by placing letters, words, phrases, pictures and/or symbols on a board or in a book, which may be accessed Mouse - IND An input device for computer. There are different kinds of standard mouse available on the market, like roller mouse, joystick mouse, touch screen. A touchscreen allows you to directly point on the screen, this simulates the mouse click. Pictograms A graphic symbol, white easy picture on black background. Person Centred Technology (PCT) or Personalised Technology (PT) Person Centred Technology (PCT) is technology specifically designed around the needs of the individual for disabled people and their carers. Its aim is to improve quality of life and opening up potential employment opportunities for the individual. It includes Electronic Assistive Technologies, Environmental Controls, Telecare, Telehealth and Information and Communication Technology (ICT). Software - ICT General term used to describe a collection of computer programmes, procedures and documentation that perform some task on a computer system. The term includes application software such as word processors which perform productive tasks for users, system software such as operating systems, which interface with hardware to provide the necessary services for application software. Educational Software and Software for AAC can be personalized and used as support for learning or communicating. Open source software is software whose source code is published and made available to the public, enabling anyone to copy, modify and redistribute the source code without paying royalties or fees. Speech Synthesizer - COM Speech synthesizer software can translate text to speech (TTS technology) to read out loud and clearly. Speech synthesizer software works together with a Communication software and will then speak out the symbols chosen as a spoken message. Switch - IND An input device for a computer or for a Speech Device. For computers, the switch simulates some keyboard keys, generally “space” and “enter”. Switches are used for operating computer software or devices by one switch or with two switches by scanning. Voice input system - IND An input device. Voice input allows to operate the computer with your voice just by talking. Some software translates the speech into text, some software allows to just operate the computer commands. Dragon Dictate is an example of a voice input system. 3. Services Accessible Online Learning - COM Online learning is associated with content readily accessible on a computer. The content may be on the Web or the Internet, or simply installed on a CD-ROM or the computer hard disk26. Accessible online learning defines contents that fit to people with disabilities or impairments (by using tools as easy to read contents, vocal content, etc.). Domotics - DOM Domotics is a new discipline – a technological area that can provide innovative solutions to enhance the quality of life and the needs of home occupiers during their social, cultural, and economic activities or during their spare time. Home automation or domotics is generally understood as the application of new technological solutions based on electronics and telecommunication to the domestic environment, with the purpose of improving devices and already existing products and to provide a large number of services of domestic utility 27. Independent Living Services - INC A wide variety of services designed to enhance the abilities of individuals with significant disabilities to live independently, either in the community or with their families, and, if appropriate, to secure and maintain employment 28. Reasonable accommodation - INC “Reasonable accommodation” means necessary and appropriate modifications and adjustments not imposing a disproportionate or undue burden, where needed in a particular case, to ensure to persons with disabilities the enjoyment or exercise on an equal basis with others of all human rights and fundamental freedoms. 29 Telemonitoring - DOM Telemonitoring is a medical practice that involves remotely monitoring patients who are not at the same location as the health care provider. In general, a patient will have a number of monitoring devices at home, and the results of these devices will be transmitted 26 27 28 29 http://www.elearnmag.org/subpage.cfm?section=best_practices&article=6-1 http://www.braidproject.eu/sites/default/files/BRAID%20Glossary_Final%20September%202010.pdf http://www.education.uiowa.edu/icater/AT_glossary.htm UN Convention on the Rights of Persons with Disabilities, article 2 paragraph 4. via telephone to the health care provider. Telemonitoring is a convenient way for patients to avoid travel and to perform some of the more basic work of healthcare for themselves. Telecare - DOM A method or system whereby care of the elderly and vulnerable people is given remotely, through the use of sensors and monitors, often with the aim of allowing them to remain living in their own homes. Telehealth - HEA “The remote exchange of physiological data between a patient at home and medical staff at hospital to assist in diagnosis and monitoring - this could include support for people with lung function problems, diabetes etc. It includes, amongst other things, a home unit to measure and monitor temperature, blood pressure and other vital signs for clinical review at a remote location, for example, a hospital site using phone lines or wireless technology.” (World Health Organisation). Telemedicine - HEA The use of telecommunication to provide diagnostic and therapeutic medical information between patient and doctor over a distance, without necessitating they meet in person. Telesurgery - HEA Surgical procedures carried out at a distance thanks to advances in robotic and computer technology and their applications to surgery 30. This project has been funded with support from the European Commission. This publication reflects the views only of the author, and the Commission cannot be held responsible for any use which may be made of the information contained therein. 30 http://www.medterms.com/script/main/art.asp?articlekey=18479
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