MANUAL FOR THE LIFE SITUATION SURVEY Robert A. Chubon R EH A B ILITA TIO N P ROGRGRAM COUNSELING Department of Neuropsychiatry and Behavioral Science School of Medicine (1999 Revision) Contents Overview . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 Instructions for Administration . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2 Scoring and Interpreting the LSS . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3 Development of the Life Situation Survey . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Defining Q uality of Life . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Quality of Life and Health . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Disability and Rehabilitation . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4 Instrument Development . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 5 Reliability and Validity Studies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7 Revisions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9 Additional Validity Studies . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Conclusion . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 10 Appendix A Group Norms . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13 Demographics of Norm Groups . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 14 Appendix B Scoring Key . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 16 Sources . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17 Copyright © 1990, 1995, 1999 by Robert A. Chubon, Ph.D., University of South Carolina, School of Medicine, Department of Neuropsychiatry and Behavioral Science, Rehabilitation Counseling Program, 3555 Harden Street Ext., Columbia, SC 29203. All rights reserved. No portion of this manual may be reproduced without written approval from the author/publisher. i Overview tance to individuals who have reading, writing, and comprehension problems. It has been administered orally to persons who are mentally retarded and who are blind, and reliability coefficients comparable to self-administration have been obtained. Description The Life Situation Survey (LSS) is a 20-item Likert-type rating scale designed to measure perceived life quality. The items were derived from several quality of life indicator areas considered applicable to the general population and other areas determined to be especially relevant to persons with chronic illnesses and permanent disabilities. Thus, it is suitable for use with a broad spectrum of populations. Most non-disabled persons can complete the questionnaire in a few minutes, but since the Life Situation Survey is not a "power test," protracted administration sessions have not shown any effect on reliability. Uses Scoring The instrument initially was developed to provide a measure for conducting quality of life studies concerned with the comparative status of disability and other disadva ntaged groups. However, it can also serve as a tool to assist in assessing the impact of social policies and programs, and intervention progra m effectiveness. The Life Situation Survey has potential clinical uses, either as an individual progress measure or as a screening device for identifying problem areas that might warrant attention. The rating scale follows a Likert-type format, with item scores ranging from 1 to 7. The total score is the sum of the individual item ratings, without need for weighting or other alteration. Interpretation Higher scores reflect higher life quality. Norms are provided for several disabled and disadvantaged populations, as well a healthy college student group for comparison. Conceptually, the item scores can be used to develop profiles or clusters that may reflect more detailed group differences and associated areas of impact. Administration Ease of administration was a priority in developing the Life Situation Survey. Concern stemmed from recognition that many potential target populations have reading, writing, comprehension, and other difficulties that interfere with even the most basic pencil-paper operations. Additionally, the number of items was limited to minimize the possibility of overtaxing persons who are easily fatigued or who have limited attention spans. In essence, the LSS was designed for use with persons varying extensively in aptitudes and abilities, and a number of administration approaches can yield reliable and valid scores. Because the reading level of the items is in the elementary school range and the time required for completion is nominal, the instrument can usually be administered as a self-report questionnaire. However, the instructions allow for the provision of assis1 Instructions for Administration to alleviate the likelihood of confusion and enhance the validity of responses. Although administration procedures can be tailored to the specific needs of users, careful planning is essential to obtain the most reliable and meaningful results. Effort should be taken to establish a relationship that will the motivate the respondents to be conscientious when completing the rating scale. After rapport is established, under optimal circumstances, the Life Situation Survey can be administered as an untimed, self-report instrument. Most unimpaired respondents are able to complete the instrument in 15 to 20 minutes. The basic instructions are contained on the rating scale. A similar problem may exist with item 17 which refers to the individual's main life role now. In addition to being ambiguous for persons in transition, others who fill or have filled multiple roles may be uncertain as to what to use as their referent. Again, a specific definition may be indicated by the purpose of the study. If the study is focused on patient, student or some other particular status, that can be spelled out at the onset to gain assurance that the appropriate reference has been used, and to diminish the need for respondents to deliberate over the meaning or ask questions. Although the administration procedure can be adapted to accommodate the specific aptitudes and abilities of the persons being surveyed, there are some common questions that arise during administration. Some forethought and development of standardized supplemental instructions to deal with these issues are essential to obtaining the most reliable and valid data. It has been reported that a few respondents have raised questions about the m eaning of services provided by the government as contained in item 15. This item is intended to be widely encompassing, including, but not limited to services such as police, mail delivery, health care, welfare, street maintenance, and public utilities. When questions regarding the meaning of this item arise, the broad nature of the referent should be stressed. First, the instructions contained on the LSS indicate that responses should be made on the basis of reference to one's present life situation. Although this is a clear referent for persons in many ordinary life situations, those who are undergoing a change in their situation or recently made a significant life transition are sometimes confused regarding the reference period. In other instances, individuals may not have identified with their new situation, and respond erroneously using a past period as their referent. For example, individuals who have been recently admitted to an institution may interpret the instructions as referring to their pre-institutionalized status. If there is uncertainty as to how the target population might interpret these aspects of the instructions, it may be useful to conduct a pilot study in which administration is followed by a debriefing interview. Respondents can be questioned directly regarding the referent they used and whether the items were ambiguous. When it is apparent that there are a significant number of persons in the target population whose situation may be unclear, it is essential that a consistent explanation be given at administration. If, for example, the purpose of administering the Life Situation Survey is to determine how individuals are faring within the context of an institutional environment, that should be made clear by providing them with a specific definition of present life situation reflecting that referent. Such explanations help 2 Scoring and Interpreting the LSS Thus, the temporal proximity of comparison scores must be carefully considered when interpreting comparison group differences. Scoring A scoring key is contained in appendix B. The item scores range from 1 to 7. The midpoint rating of 4 has been omitted to provide a means for dealing with missing data. Items for which no response has been made can be assigned this value (4) in accordance with a procedure described by Kerlinger (1973). Other approaches to dealing with missing data can be used; however, all results reported in this manual were obtained using the using the above procedure. The total score is calculated by adding the rating values of the 20 items on the LSS. The possible range of scores is from 20 to 140, with the lower end of the scoring continuum representing poorer life quality. No weightings or other adjustments are required. When statistically supported differences based on total scores are found and the time-difference factor can be discounted as a probable cause, it may be reasonable to conclude that a group difference has been detected. However, if comparison groups produce similar total scores, it cannot be assumed conclusively that the life quality of the groups does not differ. The response patterns or item score profiles of the groups must be determined to be comparable before it can be concluded that they are truly similar. It is reasonable to expect that different factors vary in impact on groups that result in different item score patterns, although the overall impact may be of similar intensity. Such differences are not revealed by total scores alone. Interpreting the Results Generally, scores of 100 or more reflect perception of a very good life quality. Scores in the 80's and lower are associated with a relatively poor quality of life. These interpretations are reflected by the norm group scores reported in the appendices. Before interpreta tion of scores is undertaken, it is recommended that the reliability be established by calculating Cronbach's alpha or other appropriate reliability coefficient. This is especially critical when the target population is of questionable competency. Some individuals, for example, frail elderly, mentally retarded, and sedated persons, may have judgmental or other cognitive limitations that diminish reliability. Results obtained with translated versions of the LSS must be treated ca utiously. Reliability could adversely be affected if the language level of the translation exceeds that of the English version or if the meaning of the items is altered. It is essential that the reliability coefficient be determined for altered forms. Additionally, comparing scores obtained in different countries presents problems. For example, socio-economic factors could account for score differences rather than disability or chronic illness. Appendix A contains scores and other data obtained from a num ber of different populations that can serve as a basis for com parative studies. However, interpreting the findings from comparative studies should be cautiously approached. Longitudinal studies using the LSS indicate that there are notable undulations in the outlook of the population as a whole that are attributable to major social influences such as economic downturns. Consequently, comparison scores may differ because of the time frames when they were obtained rather than group characteristics or other variables under study. For example, samples of university graduate students consistently scored in the 105 to 107 range in the mid-1980s. In the mid-1990s, comparable groups have typically scored in the 101 to 103 range. 3 Development of the Life Situation Survey It is now accepted that quality of life is a complex, multi-faceted concept. Not only are there numerous domains to be considered, there are variants that emanate from human development stages (Weisgerber, 1991). Others have pointed out that who is considering quality of life issues and the purpose of examination are integral to influencing what form the concept takes (Mukherjee, 1989). Recently, Lawton (1991) has attempted to integr ate several of these factors by constructing a multidimensional model that incorporates psychological well-being, behavioral competence, perceived life quality, and environmental factors. Others have come to view the construct or term as having taken on so much "excessive baggage" that it has become useless and should be abandoned (Wolfensberger, 1994, p. 286). However, that point of view does not appear to be widespread. Defining Q uality of Life In his discussion of quality of life assessment issues, Scheer (1980) has stated that it is the quality of life which makes us feel that life is worth living. This matter-of-fact comment underscores the relatedness of quality of life to disability and health care issues. Insufficient life quality is an often expressed reason for denying, refusing, or failing to pursue treatment. In other instances, disability and chronic illness may result in an arduous existence replete with stressors that contribute to further deterioration. Strauss (1975) has chronicled the plight of persons with chronic and terminal illness and provides insight into the manner in which the combinations of symptoms, treatment demands and side effects, and the person's life situation in general interact to reduce life quality to the point where it is no longer considered worth continuing. Paradoxically, it is noted that individuals who may not be willing to comply with treatment to prolong their life may actively seek out and accept treatment directed toward easing them into death, e.g., hospice care and assisted suicide. Although these cases are extreme, they suggest that acquiring a broad perspective of the person's situation may be critical to understanding compliance and other behavioral issues. The use of life quality assessment concepts may help to provide this perspective. Quality of Life and Health Although health has been one of the most prominent and universally accepted quality of life constituents, development of qualitative indicators in this area has lagged (Berg, 1975). Often, consideration has been limited to factors such as the presence or absence of disease, life expectancies, and morbidity rates, without concern for extent of the impact of illness or disability on the individual's life. However, relatively recent advancements in medical technology, for example, dialysis and artificial heart implants, have resulted in increased concern with such qualitative issues within the health care community (Dimond & Jones, 1983), and seem to be giving impetus to developmental activities. Quality of life assessment has evolved from a number of diverse fields, notably the social sciences (e.g., see Liu, 1978) and public administration (Schneider, 1976). Although originally focused on objective, gross indicators of well-being such as economic status, it quickly became recognized that there is also a subjective domain. It includes perceived needs and satisfaction with living conditions (Campbell, 1976). This subjective domain derives from a tendency to compare our life condition with that of others to whom we are exposed, and then to make some judgement as to how we are faring. Although these two domains are interrelated, the latter seems most closely linked to individual actions or behaviors, and therefore, may be especially helpful to understanding response to treatment. Examples of efforts involving life quality measurement concepts in health care include Blau's (1977) demonstrated the use of quality of life indicators as the basis for evaluating treatment impact on psychiatric patients. Also, Padilla et al. (1983) have undertaken the developm ent of a disease specific instrument for use with cancer patients. Disability and Rehabilitation Notable interest in quality of life assessment 4 Instrument Development has emerged in the field of rehabilitation (e.g., see Anderson, 1982). There has been a call for expanding traditional indices of rehabilitation impact beyond changes in functional level or readily identifiable monetary benefits related to returning persons with disabling conditions back to the work force (Cardus, Fuhrer, & Thrall, 1981; Alexander & Willems, 1981). This need for expanding rehabilitation indicators stems from recognition that many nonmonetary, non-objective benefits accrue from rehabilitation, such as enhanced personal dignity and self-esteem (Kottke, 1982; Freed, 1984). Consequently, there is a need to assess the impact of rehabilitation services in a more comprehensive manner. Because of the cited limitations in available instruments for use in life quality assessment, effort was directed toward development of a measure which would be sensitive to factors related to a spectrum of chronic illnesses and disabilities. The approach used was to build upon generally accepted quality of life measurement concepts and foci to ensure that the instrument would be suitable for use with the general population, as well as the described sub-populations. The idea was to develop a broadbased instrument that would enable a wide range of comparative studies. Traditional areas of measurement were gleaned from existing instruments, such as that developed by Blau (1977). Additional areas for measurement were sought through the use of a critical incidents technique (Flanagan, 1954) based on mail surveys and personal interviews of persons with chronic illness or disabling conditions, including cancer, diabetes mellitus, heart disease, m ultiple sclerosis, spinal cord injury, muscular dystrophy, epilepsy, and blindness. The participants were asked questions pertaining to difficulties experienced as a result of their condition, and what actions could be taken to improve the quality of their life. Both institutionalized and non-institutionalized persons contributed. One hundred and sixty-eight pertinent responses were sorted into 17 different categories (impact areas) for consideration by the researcher (Table 1). Some researchers (e.g., Trudel, Fabia, & Bouchard, 1984, and Baird, Adams, Ausman, & Diaz, 1985) have approached quality of life assessment by surveying functional limitations, using instruments such as the Level of Rehabilitation Scale (Carey & Posavac, 1978) and the Sickness Impact Profile (Bergner, Bobbitt, Pollard, M artin, & Gilson, 1976). Although these studies support the utility of quality of life assessment concepts in researching some rehabilitation-relevant issues, the instrum ents are limited in the range of applications either because they are disease specific or because they are concerned only with objective indicators, that is, functional deficits. The meaning of the functional deficits to the persons who manifest them must be based on inference or imagination, and this is risky without some verification and a means by which to establish relevance to the total life situation. This is a serious shortcoming insofar as treatment compliance and other behavioral issues are concerned because, as has been previously noted, the subjective aspect of life quality may be more critical to understanding response to treatment and overall impact. Thus, there seemed sufficient need and rationale for developing a research instrument to explore a variety of rehabilitation and health care related issues, which includes the subjective life quality assessment domain, and which can be used with a variety of populations. It is noted that all of these categories have been reported in one or more previous studies in the literature reviewed for the project. These impact areas provided the content foci for measurement items, together with ten categories considered to be "traditional" based on their widespread use and acceptance. Several pilot testings were conducted using a variety of item forms. A Likert-type format was subsequently chosen for use because of the reported clarity of the response procedure and ease of completion by the vast majority of participants in the pilot studies. Items were altered or eliminated on the basis 5 The positive and negative items are randomly interspersed to diminish the likelihood of response pattern bias. The midpoint of the item scales was omitted and reserved for assignment of scores when no response is recorded in accordance with a procedure described by Kerlinger (1973). The possible total score range is from 20 to 140. Special attention was given to maximizing the readability of the scale items, and findings from several reading level measures suggest that it is in the fourth to fifth grade range. Instructions include provisions for using assistance in completing the instrument, if required. Approximately 20 minutes are required to complete the rating scale. of item analyses. Items which consistently produced low item-total correlations or more than a 10% nonresponse rate were eliminated. Twenty items were retained for a final item analysis, which was based on responses obtained from a relatively heterogeneous volunteer sample comprised of 166 adult weekend patrons of a large enclosed metropolitan shopping mall located in a southeastern U.S. city. Itemtotal correlations ranged from .26 to .71 and were highly significant (p < .001). The twenty-item, self-administered instrument utilizes a 7 rating interval format. Half the items are phrased positively and half negatively. Impact Areas for Inclusion in Rating Scale Derived from Previous Studies Derived Through Critical Incidents Technique Retained Rejected Work Security Parenting Leisure Public Support Discrimination Nutrition Stress Spirituality Sleep Mobility Purposefulness Social Nuturance Autonomy Comfort/Pain Earnings Energy Level Personal Expression Health Social Support Love/Affection Mood/Affect Environment Outlook Self-esteem Egalitarianism School* *Incorporated into item with work Table 1 6 reported in Table 2.. Reliability and Validity Studies Results of t-Tests Used to Compare the Scores of the University Student Group with Others in the Validation Studies The Life Situation Survey rating scale has undergone several reliability and validity studies. Test-retest reliability for a one-week interval based on data obtained from 23 graduate level university students was .91. However, since the area of measurem ent is situation dependent and retest reliability is expected to diminish substantially with time, inter-item consistency is a more appropriate measure of reliability. During initial development, coefficients (Cronbach's alpha) ranging from .74 to .95 were obtained for a variety of groups, including prison inmates, hospital patients, university students, and rehabilitated spinal cord injured adults. In sum, the findings from the studies indicated an acceptable degree of reliability with diverse populations. Validity derives, in part, from the construction procedure which was designed to gather data relevant to the target populations. This is supplemented by the instrument's demonstrated a bility to discriminate between populations in accordance with hypothesized differences. Because the Life Situation Survey evolved from the premise that health and non-health factors are synergistic in terms of impact on life quality, studies were conducted to demonstrate its discriminant validity in both areas. Group N Mean SD t Students 50 107.34 11.21 Prison Inmates 44 74.27 14.87 12.66* ESRD Patients 27 83.15 14.07 8.25* Persons with Back Problems 22 81.14 20.88 5.55* Persons with SCI 16 87.88 26.37 2.87* Note: Because the variances of the groups cannot be assumed equal, an approximated t is given instead of Student's t *p < .01, one-tailed. Table 2 In a successive study, it was predicted that a group of 17 otherwise healthy, middleclass, stress management workshop enrollees would score lower than the students but higher than the prison group. A mean of 96.06 and a standard deviation of 12.47 were calculated for the stress management group, and the three groups were compared using the general linear models procedure (SAS Institute, 1982) analysis of variance (Table 3). Scheffe's test was used to establish the locus of the highly significant difference, and all means differed from one another (p < .05). The first series of comparative studies was undertaken to demonstrate the instrument's sensitivity to non-health related factors. It is noted that in these studies, health sta tus was confirmed by selfreport through an item on a general information questionnaire provided with the Life Situation Survey rating scale. The initial comparative study was conducted with a group of 50 healthy, graduate level counseling students at a southeastern U.S. university, which was predicted to be a high scoring group, and a group of 44 healthy prison inmates in a medium security prison described in the courts as outdated, overcrowded, and having intolerably harsh conditions. The latter group was considered to have an extremely poor life quality. Analysis of the data revealed a mean score of 107.34 for the student group, and a mean of 74.27 for the inmate group. T-test results for this and other related studies are A related study was subsequently conducted in which it was predicted that the instrument would discriminate between the previously described prison population and a group of 23 inmates in a minimum custody prison where conditions were considerably better in terms of space, freedom to move about, recreational activities, visitation privileges, and work opportunities. Although the significance 7 A similar study was conducted using persons who were hospitalized and undergoing treatment for chronic back pain. The mean for this sample is 81.14, which is significantly lower than that of the comparison group, and provides additional support for the hypothesis. This study has been reported in detail elsewhere (Chubon, 1985). Findings from an additional study, which was also recorded in Table 2, indicated that a group of rehabilitated spinal cord injured persons also scored lower on the Life Situation Survey than did the university students. Although these findings are somewhat tentative because of the compromised hypothesis and use of convenience samples, their consistency and number provide considerable evidence that the Life Situation Survey is sensitive to the impact of severe chronic illness and disability. level (p< .08, one-tailed) established with Student's t-test did not reach the acceptable criterion (p< .05), the mean of 80.00 is in the expected direction, and failure of the test may be an artifact of the small group size. In sum, this series of studies indicated that the Life Situation Survey does discrim inate between groups experiencing non-health related life quality differences. Analysis of Variance of Life Situation Survey Scores for the University Student, Medium Security Prison Inmate, and Stress Management Workshop Groups Source of Variation SS MS df F Between 25844.46 129221.43 Within 18150.89 168.06 108 Total 43995.75 110 To further ascertain the instrument's sensitivity to manifestations of severe chronic disease and disability, and treatment, a pre- and post-treatment study was conducted. The underlying hypothesis was that if the instrument does measure the impact of these problems, it should be sensitive to changes, i.e., improvement, brought about by treatment. The pre-post paradigm was developed around an intensive, 25 day inpatient pain treatment program. The Life Situation Survey was administered to 70 patients who were consecutively admitted to a pain therapy center for treatment during the fall of 1985. Approximately 90% of the participants reported their primary problem to be chronic back pain, with the remainder seeking treatment of chronic headaches or lower extremity pain. Treatment was provided by an interdisciplinary team of professionals, emphasizing a nonsurgical, behavioral approach to remediation. Specific treatments included, but were not limited to, instruction in body mechanics and relaxation, cognitive restructuring, group psychotherapy, and a graded conditioning program. Upon completion of the highly structured treatment program, the Life Situation Survey was re-administered in conjunction with other discharge checkout procedures. Most patients com pleted the questionnaire prior to leaving the facility, but for convenience several were permitted to take theirs with them with the stipulation that they be returned within a few days. 2 76.89 * *p < .001 Table 3 A second series of studies was designed to determine if the instrument would discriminate between persons who were healthy and those who manifest serious illness or disabilities. Ideally, the strongest evidence of this capability would have been obtained by comparing college student and prison inmate populations in similar circumstances to those used in the above studies also manifesting serious illness or disability, with the prediction that those with illness or disability would score lower than the respective healthy groups. However, because such groups were not available for study, it was hypothesized that groups in general with serious illness or disability would score lower than the healthy university student group. To test this compromise hypothesis, a group of 27 persons with endstage renal disease (ESRD) was administered the instrument. Data analysis yielded a mean of 83.15, which lies in the predicted direction and is statistically significant (Table 2). Other details of this study are contained in a published report (Chubon, 1986). Fifty-five of the persons who completed the 8 Further, a number of users reported a problem with item 17 on the original version of the LSS, which read, "I am satisfied with my employment (or school if you are primarily a student)." The problem was that the item resulted in a high number of nonresponses when the Life Situation Survey was administered to some populations, particularly those including older persons who were retired. Additionally, homemakers frequently did not recognize the item as being applicable to their situation and did not respond. pre-treatment questionnaire subsequently completed the 25 day program. Of the remainder, six were terminated early on recommendation of the staff, and nine dropped out on their own accord. Pre- and post-treatment data were obtained from 37 (67%) of the 55 persons who completed the entire 25 day program, and their respective means were found to be 83.87 and 91.16. A paired t-test was performed to test the hypothesis that there would be a significant increase in scores on the Life Situation Survey. The results indicated a highly significant difference between the pre- and post-treatment scores (t = 2.54, df = 36, p < .01, one-tailed). Comparison of the pretest data from this group with scores from those who completed the program but did not return their posttreatment questionnaire revealed no differences. A number of alternative items were formulated and tested in an effort to develop one that would more clearly reflect the intended, broa dly encompassing meaning. Ultimately, a somewhat lengthy replacement item was selected which reads, "I am satisfied with my main life role now (for example, as a worker, student, homemaker, retiree, or patient)." However, when the pre-test data from those who dropped out of the program on their own accord was examined, their scores appeared to be lower, having a mean of 77.20 in comparison to a mean of 83.87 calculated from the pre-test scores of those who completed the program. Additionally, the dropouts reported an a verage of 2.1 trips out of their place of residence in the week preceding admission compared to an average of 4.2 reported by the completion group. It is emphasized, however, that these are only apparent differences, because the sma ll number (9) in the dropout group precluded meaningful statistical testing. Nevertheless, these serendipitous findings underscore the potential applicability of the quality of life assessment approach to compliance issues. In total, the findings from this study are consistent in supporting the discriminant properties of the Life Situation Survey. Additionally, these studies confirmed its suitability for use with a spectrum of chronically ill and disabled populations. Concurrent administration of both the original and revised items to a group of 19 graduate students in a counselor education course was carried out. Correlation of the ratings for item 5 produced a coefficient of 1.00, indicating that the items were virtually identical in meaning to the persons who were all U.S. citizens. The correlation between the original and revised forms of item 17 was .74. This reflects substantial similarity of the two versions of the item, but there appears to be some difference. In a post administration debriefing of the respondents, there was near consensus that the revised version was more clearly understood and that there was much more certainty about the correctness of response. It was concluded that the revised item would yield more reliable and valid responses than the original. In addition to the item comparisons described above, two additional studies were carried out to establish equivalence of the original and revised versions of the complete 20-item rating scale. In a study involving repeated administration of the revised version of the Life Situation Survey to 24 graduate students enrolled in a counselor education course, test-retest reliability over a two week interval was determined to be .84 (Pearson correlation coefficient). The inter-item consistency (Cronbach's alpha) was found to be .84 based on the pre-test Revisions As a result of relatively extensive use of the Life Situation Survey and feedback from users during the three ye ars following development, late in 1988 two of the 20 items were revised. To accommodate international users, item 5, which originally stated, "I am better off than most people in the U. S.," was reworded to read, "I am better off than most people in this country." 9 ers, 1976) were administered in randomly ordered sets to 41 university graduate students. Pearson product moment correlation coefficients were calculated for the scores from the three measures. The results are contained in Table 4. data. A second study was conducted on a similar group of 18 gradua te counseling students in which the revised version of the LSS was administered as a pre-test, and the original version was administered on a post-test basis two weeks later. The Pearson correlation coefficient derived from the items was found to be .84. The inter-item consistency for the revised form of the LSS was determined to be .86, and the Cronbach's alpha coefficient for the original version (post-test) was found to be .89 Correlations Between the Life Situation Survey, Life Satisfaction Index - A, and the Index of Well-Being LSS LSIA These studies provide evidence that the revised version of the Life Situation Survey is virtually equivalent to the original form used in the earlier developmental studies. LSIA .77 IWB .65 .69 Table 4 Additional Validity Studies It is apparent that there is a relationship between the LSS and the other two instruments. However, the moderate correlations are suggestive of significant difference. The finding is consistent with expectations. Although both instruments were designed to measure life satisfaction, the LSIA was developed for persons 65 years of age or older and the Index of Well-being was developed for the general population without particular regard for the impact of disability and illness. It can be concluded that some items contained in the LSIA are not relevant or appropriate for non-elderly populations, and that those that underlie the IWB do not as adequately address disability relevant factors. Thus, the limited correlations. A study was conducted to establish the construct validity of the LSS. In the first study, the instrument was adm inistered to forty students enrolled in a graduate level counseling class. Based on self-reports, none had a significant disability or chronic illness. In addition to the LSS, the students were also administered the Beck Depression Inventory (Beck & Steer, 1987), and the Crowne-Marlowe Social Desirability Scale (Crowne & Marlowe, 1964). The respective correlations with the LSS were -.61, and .13. Only the -.61 correlation between the LSS and Beck Depression Inventory was significant (p < .001). These findings suggest that there is a notable relationship between LSS scores and the affective state of individuals. One would ordinarily expect a higher prevalence of depression among individuals who perceive their life quality to be relatively poor. Finally, items on the Life Situation Survey do not appear to induce individuals to give responses that they feel are socially desirable or acceptable. Rather, they are apparently comfortable in making ratings consistent with their true feelings. Conclusion The reliability and validity of the Life Situation Survey have been supported by a series of purposefully designed studies. The internal consistency of the rating scale items falls at acceptable levels with diverse populations. The studies reflect substantial discriminant validity, with sensitivity to both health and non-health factors affecting perceived life quality. It appears to be effective in discriminating between groups, as well as measuring treatment impact. A noteworthy serendipitous finding occurred when it was discovered that a small group of dropouts from a treatment program scored lower than their compliant counterparts in the most A second study was implemented to establish concurrent validity. The Life Situation Survey, Life Satisfaction Index - A (LSIA) Adams, 1969; Neugarten, Havinghurst, & Tobin, (1961) and the Index of Well-Being (Campbell, Converse,& Rog10 recent study. The finding underscores the instrument's potential use in exploring compliance issues. At this point, the instrument seems adequately developed to justify its use in a broad spectrum of health care related research. Because it has apparent sensitivity to treatment related change, it may be useful as a progress measure. Although the empirical evidence is impressive insofar as consistency in findings and the number of supporting studies are concerned, the instrument's greatest strength may lie in the manner in which the items were derived, that is, from information obtained from target populations, and in its focus on measuring perceived status or life condition. Developmentally and conceptually, the Life Situation Survey has evolved with a strong person-centered emphasis. It has been approached from the premise that those who have been affected by illness and disability are likely to be most knowledgeable or aware of the problems imposed by these conditions, as well as the best source from which to acquire understanding of the meaning of their condition. Although going to the patient for answers seems to be commonsensical, personal experience, as well as reviews of published research dealing with compliance and other health care issues such as program and treatment evaluation, suggest that the approach is exceptional. 11 Appendix A 12 Population 1 1 Reliability N Mean SD Nursing home residents 20 90.50 10.51 .67 Suicidal psychiatric hospital patients 50 88.06 19.52 .87 Graduate counseling students 41 101.32 15.00 .89 Mentally retarded adults 120 85.57 6.51 .70 Spinal cord injured persons 100 89.51 15.05 .85 Chronbach's alpha Group Norms Nursing Home Residents: Data were collected in 1988. Half the individuals required skilled care and the others, intermediate. All individuals were oriented and able to communicate. Additional information is contained in Hulsman and Chubon (1989). Suicidal Psychiatric Hospital Patients: Data were collected in 1988. These were consecutive admissions to a South Carolina state psychiatric facilities who were institutionalized because of an attempt or threatened attempt to commit suicide. The LSS was administered by a counselor as part of the initial assessment procedures within 48 hours following admission. Graduate Counseling Students: Data were collected in January, 1992. Administration was carried out at the onset of regularly scheduled classes by instructors at the University of South Carolina. Questionnaires were returned anonymously. Based on self-report, none of the students had a significant disability or illness. Mentally Retarded Adults: Data were collected in June 1991. This was a stratified sam ple of persons receiving services from the South Carolina Department of Mental Retardation. They represented all IQ levels and residential options provided by the system. Details are contained in Vandergriff and Chubon (1994). Spinal Cord Injured Persons: Data were collected between June 1990 and June 1991. The sample was comprised of South Carolinians whose injury was severe enough to necessitate wheelchair use and who were at least two years post injury. Details are contained in Clayton and Chubon (1994). 13 Age Education Population N M M Sex Race Male Female White Af-Am Income Other M Nursing home residents 20 75 6.8 2 18 17 3 NA Suicidal psychiatric hospital patients 50 49 11.4 28 22 40 10 14367 Graduate counseling students 41 31 19.9 13 28 38 2 1 32757 Mentally retarded adults 120 42 NA 62 58 NA NA NA NA Spinal cord injured persons 100 34 12.6 80 20 60 36 4 17000 Demographics of Norm Groups 14 Appendix B 15 LIFE SITUATION SURVEY Scoring Key 1. I feel safe and secure. 7 6 5 3 2 1 2. My health is good. 7 6 5 3 2 1 3. I have too few friends who I can count on. 1 2 3 5 6 7 4. I like myself the way I am. 7 6 5 3 2 1 5. I am better off than m ost people in this country. 7 6 5 3 2 1 6. I feel constantly under pressure. 1 2 3 5 6 7 7. I don't eat very well. 1 2 3 5 6 7 8. My future is hopeless. 1 2 3 5 6 7 9. I am a happy person. 7 6 5 3 2 1 10. There are always people willing to help me when I really need it. 7 6 5 3 2 1 11. My income is a constant source of worry. 1 2 3 5 6 7 12. My sleep is restful and refreshing. 7 6 5 3 2 1 13. I don't get the love and affection I need. 1 2 3 5 6 7 14. I don't have any fun or relaxation. 1 2 3 5 6 7 15. Services provided by the government and other public agencies meet my needs. 7 6 5 3 2 1 16. I am able to go when and where I need to go. 7 6 5 3 2 1 17. I am satisfied with my main life role now. (for example, as a worker, student, homemaker, retiree, or patient) 7 6 5 3 2 1 18. There is little that I am able to enjoy in my community and surroundings. 1 2 3 5 6 7 19. I am exhausted well before the end of the day. 1 2 3 5 6 7 20. 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