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Information
Booklet
Friday 1st August
jeansforgenes.org.au
Proudly supporting Children’s Medical Research Institute
Celebrating 21 years of Jeans for Genes
“1 in 20 Aussie kids is born with
a birth defect or genetic disease.
Contents
It will take 20 out of 20 Aussies
to help find a cure.”
Welcome to Jeans for Genes 2014 ���������������������� 4
Your Jeans for Genes Day Checklist�������������������� 5
About Children’s Medical Research Institute ������ 6
What is Jeans for Genes Day? ���������������������������� 7
What is a Gene?�������������������������������������������������� 8
Erin’s Story ���������������������������������������������������������� 9
What Your Support Will Achieve ���������������������� 10
Fundraising Ideas! �������������������������������������������� 12
Groovy Gear ���������������������������������������������������� 13
Jeans for Genes Gala Dinner ���������������������������� 14
Support CMRI All Year Round���������������������������� 15
What to Do After Jeans for Genes Day�������������� 16
Merchandise Re-Order�������������������������������������� 17
Our Retail Partners�������������������������������������������� 18
Business Partnerships���������������������������������������� 19
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Your Jeans for Genes Day Checklist
Thank you for getting involved!
We’re here to help and we really appreciate your support.
One
Welcome to Jeans for Genes 2014
On Jeans for Genes Day, Friday
1st August, over 2 million Australians
will show their support by wearing
their jeans to work, school and
on the street.
Just by taking part and wearing jeans,
you will be making a public stand in
the fight against childhood diseases.
Jeans and denim are the signature
looks of Jeans for Genes Day so why
not really make a statement in denim
and all its glory? Dare yourself and
your friends to wear the grand-daddy
of fashion faux pas – double denim
or go all out in… triple denim!!
4
Have fun by collecting gold coins
every time you can “Fine a fashion
crime” or charge anyone who
doesn’t wear denim at all. It’s up
to you how creative you get – all
in the name of Jeans for Genes!
Remember have fun and… Carpe
Denim – seize the denim!
By selling merchandise and collecting
donations, you will turn all of our
public support into vital funds for
Children’s Medical Research Institute
and make our 21st Anniversary of
Jeans for Genes the biggest ever!
Two
Three
Four
Check the contents of your package:
If you have not received everything you ordered,
give us a call 1800 GENIES (436 437).
Put up some Jeans for Genes posters:
Increase awareness of Jeans for Genes day and put posters
and merchandise in a prominent place.
Spread the Word:
Let everyone know that you’re fundraising for Jeans
for Genes. The more people that know about it, the more
donations you’ll receive on the day.
Keep your money safe and bank
before 15th September
5
About CMRI
The vital work of the scientists at
Children’s Research Medical Institute
(CMRI) is carried out with the single
aim to improve and extend the lives
of children everywhere. Currently,
1 in 20 children is born with a
congenital abnormality or genetic
disease. That’s over 12,000 children
born in Australia each year. CMRI is
dedicated to changing that.
Medical research is the only way to
discover cures for conditions affecting
children such as cancer, epilepsy
and a range of genetic defects.
CMRI’s vital work does not receive
guaranteed government funding
and relies on community support.
Find out more about CMRI online
at cmri.org.au.
Every dollar you raise or
donate will help build the
cornerstones for tomorrow’s
cures and treatments –
for the benefit of children
everywhere.
6
What is Jeans for Genes Day?
Jeans for Genes Day is one of Australia’s most
loved fundraising events. A generation of
Australians have grown up with this iconic
fundraiser which started 20 years ago and
continues to provide vital funds for Children’s
Medical Research Institute (CMRI).
Jeans for Genes has become an Australian icon and
continues to grow thanks to the help of generous
supporters like yourself.
Beginning with the simple idea of wearing jeans
and making a gold coin donation on the first Friday
in August, Jeans for Genes now sees over 2 million
Australians taking part each year by making a donation,
buying merchandise, volunteering their time or directly
fundraising for us.
Jeans for Genes Day brings together school children,
workmates, friends and families across the country in
a united show of support for research into childhood
genetic diseases affecting 1 in every 20 kids. The more
people who get involved, the more money we raise and
the sooner we will find more cures for more kids.
7
What is a Gene?
All of the information needed to
make a person is contained in the DNA
of our cells. DNA can be thought of as
a long stretch of instructions telling the
cells in our body how to do their job,
whether it’s lung cells helping us breathe
or heart cells keeping a rhythm.
There are three billion bits of information
contained in the DNA of each person –
enough information to fill 200 phone
books – and this information is divided
into genes, each one the blueprint for
a particular piece of the cell.
If only one bit of DNA is wrong, the
gene can’t function – this results in a
genetic disorder. There currently exists
a range of genetic disorders for which
no cure has yet been developed. These
include cancer, cystic fibrosis, muscular
dystrophy, blindness, epilepsy and rarer
yet equally devastating diseases.
Understanding our genes
will allow us to treat and
prevent currently incurable
conditions, offering real
hope for children today
and for future generations.
8
Erin’s Story
- Dean Hutchison
CMRI has pioneered treatments for many types of conditions
affecting children, including neonatal intensive care. Here’s the
difference that has made to one family.
Meet my little girl Erin. She’s the most
outgoing, bubbly and sociable child I’ve
ever known. And we almost lost her.
In 2006, my wife Kim was pregnant.
We were doubly thrilled because we
knew this was Kim’s only chance to
have a baby. When she woke one
night and said, “I’m feeling a bit off,”
I wouldn’t normally have worried
about it, but something made me
sit up and take notice.
On the way to the hospital, things went
from not great to extremely bad in a
matter of seconds. Kim was screaming in agony and when we arrived she
started fitting. The doctors gave me two
choices – stay at that hospital and save
Kim but lose our baby, or risk moving
them to Westmead to save them both,
but with a 50/50 chance that neither
of them would make it there.
I’m lucky I made the right choice.
Kim had an emergency C-section
as soon as we got to Westmead, at
only 25½ weeks into her pregnancy.
She was placed in an induced coma
while Erin was fighting for her life, so
for three days I didn’t know whether
either of them would make it home.
Erin was so tiny – just 597 grams – that
she was given only a five per cent
chance of surviving. It was a heartbreaking percentage to deal with, but
she was just a born fighter. Imagine a
baby so small that my wedding ring
could travel all the way up her arm to
her shoulder. That was Erin.
Even while Kim was in a coma and Erin
was struggling for every breath, I maintained an unusual level of optimism.
Still, most nights were spent worrying
and hoping. My way of coping was to
immerse myself in information. Erin’s
specialists credited CMRI with some of
the treatments we went through. CMRI’s
research went a long way to establishing neonatology as a subspecialty. They
helped pioneer neonatal intensive care
units – a key element in the improved
survival of premature babies like Erin;
they helped introduce the principles of
newborn care; and conducted cardiopulmonary studies in newborns.
A while after Kim and Erin came home
from hospital, I joined the team at
CMRI as their Payroll Officer. I’d always
donated to CMRI … and now I had real
reasons to be grateful for their work.
9
What Your Support Will Achieve
Every
$
2
$
5
Fight cancer
Treat epilepsy
A gold coin will buy enough of
the crucial enzyme needed to test
the blood of one patient for
aggressive types of cancers.
Buy a badge and CMRI scientists
can buy a plastic 96-in-one ‘test
tube’ to screen 96 potential
epilepsy drugs at once.
Every
$
10
Crack the causes
of blindness
Our eye genetics group has
already discovered 12 genes
that cause blindness in children.
Ten dollars gives our scientists
200 mini test tubes to
help discover more.
10
Every
Your support on Jeans for Genes Day helps the scientists
at Children’s Medical Research Institute create a healthier
future for all children.
The more you raise
the closer we get to
finding vital cures and
treatments that will
save children’s lives.
Every $500
$500 – Cure liver disease
Gather a team of volunteers and help
sell merchandise on the streets across
Australia and you could raise enough
money to prepare a sample of cells
needed to develop a treatment for
liver disease. Currently the only hope
for infants born with this disease is a
liver transplant, but CMRI scientists
have made a major breakthrough and
are on their way to clinical trials in
seriously ill patients.
Every
$
1K
Make a new discovery
Hold your own Jeans for Genes
event and you’ll help our scientists
test a new drug that could
treat cancer, epilepsy or other
neurological conditions. A drug we
developed to treat epilepsy may also
cure kidney disease – an unexpected
discovery that has the potential to
save millions of people from the
need for transplants and dialysis.
11
Fundraising Ideas!
There’s so much you can do
to make Jeans for Genes fun
and exciting.
Finding cu
res for ch
ildhood di
seases
Friday 1s
t August
Lo
m ok fo
an ercha r our
dp
nd
ge lease ise
ne
rou give
sly
!
Why not organise a morning tea and
sell delicious cakes.
Groovy Gear
Look the part on Jeans for
Genes Day in our fabulous
new range of Groovy Gear.
Visit our online shop to grab your
gear while stocks last.
jeansforgenes.org.au/Shop
Put up a Fundraising Target poster
to chart your progress. There’s a
downloadable poster on our website.
Put up your Jeans for Genes poster
as decoration.
And above all, have
fun!
Or donate
online jea
Proudly
12
supporting
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Children’
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Celebrat
Research
ing 21 yea
Institute
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13
Jeans for Genes is celebrating 21 years
Support CMRI
All Year Round
Join us at the Sofitel Sydney Wentworth to celebrate our 21st...
Jog for Genes:
Gala Dinner
Saturday, 23rd August 2014
Enjoy an evening of fine food, wine and entertainment. Early bird
specials will be available for tables of 10.
For more information and to register your interest in attending
visit cmri.org.au/Events/Jeans-for-Genes-Gala-Dinner
14
There’s no better feeling than
challenging yourself, pushing your
limits and knowing you’re improving
your health, and the health of
generations of children all around
the world.
Whether you’re a serious runner,
jogger, walker, dancer or pram
pusher don’t miss your chance to
Jog for Genes and be a part of the
journey to finding treatments and
cures for childhood genetic diseases.
You can get involved in any race or
event you like. Simply choose your
challenge, and show your support
by nominating Children’s Medical
Research Institute as your charity of
choice. It’s that easy – and it makes
a huge difference! Get your runners
on and get jogging for genes!
Jump for Genes:
If skydiving is on your bucket list,
there has never been a better time
to take the plunge than right now.
Set up your personalised page, raise
$1,000 to jump for free!
Visit fundraising.cmri.org.au
to find out more.
15
Merchandise Re-Order
What to Do AFTER Jeans for Genes Day
Thank you for participating in this year’s Jeans for Genes campaign and
helping to improve the health of future generations of children everywhere.
To order more merchandise, please go to our website
jeansforgenes.org.au, call us on 1800 436 437 or fill out
and return the form below.
Supporter Number: (if known)
Organisation Name:
(Mr/Ms/Miss/Mrs/Dr) Surname:
One
You can continue selling merchandise and
fundraising through the month of August!
Bank the money you have raised by:
• Lodging directly at any Westpac branch using the
deposit slip provided with your cover letter
Two
Three
• Credit card or bank transfer via
jeansforgenes.org.au
(please include your supporter number)
First Name:
Job Title:
Delivery Address (not PO Box):
Suburb:
State:
Phone (BH):
Fax:
Postcode:
Mobile:
Email:
Second company contact person
(essential for administration purposes)
(Mr/Ms/Miss/Mrs/Dr) Surname:
First Name:
Has your organisation participated before?
Yes
No
• Cheques sent to Locked Bag 23 Wentworthville NSW 2145
(please include your supporter number)
PLEASE SEND THE FOLLOWING:
• By 15th September 2014.
Contains 16 x $5 badges, 8 x $6 pens, 6 x $8 bracelets,
8 x $3 pocket tissues, display box with internal money box. Value $200.
I f you still have merchandise left over, count the
remaining merchandise, fill in the Jeans for Genes
returns form and return with your merchandise.
x Pre-packed Jeans for Genes Box(s)
Pocket Tissues
PLEASE ALSO SEND ME THE FOLLOWING ADDITIONAL ITEMS:
Special
Edition Pen
IMPORTANT: Please insert QUANTITY below
Large Donation Collection Box (only)
Jeans for Genes A2 Posters
Special Edition
Badge
Bracelet
I/we are responsible for returning all unsold products together with funds
Four
Should you require receipts for tax deductible donations you have
collected over $2, please download the ‘Donation Receipt Request
Form’ from our website jeansforgenes.org.au/Downloadableresources or call us on 1800 436 437.
raised to Children’s Medical Research Institute by September 16th 2014.
Signature:
Post to: Children’s Medical Research Institute
Locked Bag 23, Wentworthville NSW 2145
Fax to: 16
lease dispose of promotional material, including the counter display
P
box and posters, in the recycle bin where appropriate.
1800 436 329
Merchandise box
(valued at $200)
PLEASE NOTE: For orders received after July 20, delivery of goods cannot be guaranteed by 2 August.
17
Our Retail Partners
Business Partnerships
A huge thank you to our Retail Partners who are
selling merchandise throughout their branches.
Get your business involved
Every year Jeans for Genes partners with many companies across Australia to help
raise awareness and vital funds for Children’s Medical Research Institute. We work
with your team to develop a tailored support package which reflects your individual
corporate social responsibility program.
Getting involved is easy and provides valuable benefits to businesses and employees
while making a real difference to Children’s Medical Research Institute.
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ou!
We hout y
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How can BUSINESSES
get involved?
How can EMPLOYEES
get involved?
• P
rogram/event sponsorship – cash
sponsorship to subsidise program
costs and resourcing
• C
orporate volunteering – selling
Jeans for Genes merchandise on
1st August 2014
• D
onations in kind – companies
can offer prizes which are used for
events, auctions or programs to
help raise funds
• E vent participation – attending official
events including our annual Gala
Dinner, golf and race days
• P
ro bono support – companies can
offer professional services to help
reduce program costs
• D
ollar matching – incentivise
employees to raise funds for
Jeans for Genes day
• R
etail partner program –
demonstrate your support by
selling merchandise through
your business.
• C
ommunity fundraising events –
get involved in the many community
events supporting Jeans for Genes
day such as Jamm for Genes, Jump
for Genes and Jog for Genes
• W
orkplace giving – donating pre-tax
dollars is a simple and cost effective
way to get involved and support
the cause
• W
ear Jeans and spread the word about
Jeans for Genes day - encourage your
team to wear jeans to work and have
some fun raising money for the cause
on 1st August 2014.
Find out more about Business Partnerships today by calling 1800 436 437
or email [email protected] for more information.
18
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Thank yo
u!
postal: Locked Bag 23, Wentworthville NSW 2145 Australia
jeansforgenes.org.au
freecall: 1800 (GENIES) 436 437 cmri.org.au
Proudly supporting Children’s Medical Research Institute – Celebrating 21 years of Jeans for Genes