! ! ! Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!! ! Development!and!Testing!of!a!Locally!Adapted! Psychosocial!Assessment!Instrument! ! ! ! ! ! ! ! ! ! ! Conducted!through!the!Collaboration!of:! ! Beyond!Borders!/!Fondasyon!Limyè!Lavi! ! International!Office!on!Migration! Centre!d’Action!pour!le!Développement! Foyer!l’Escale! Restavèk!Freedom!Foundation! Ak! Timoun!k!ap!Teke!Chans! ! !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! ! Author:!Cara!L.!Kennedy,!PhD! ! ! ! [email protected]! ! ! August!2012! ! ! ! ! TABLE OF CONTENTS EXECUTIVE SUMMARY ................................................................................................................................................... 4 PROJECT OBJECTIVES .......................................................................................................................................................... 4 METHODS ............................................................................................................................................................................. 4 RESULTS .............................................................................................................................................................................. 5 DISCUSSION ......................................................................................................................................................................... 5 CONCLUSIONS ...................................................................................................................................................................... 6 RECOMMENDATIONS ........................................................................................................................................................... 7 ACKNOWLEDGEMENTS .................................................................................................................................................. 8 INTRODUCTION ................................................................................................................................................................. 9 BACKGROUND ................................................................................................................................................................... 9 OBJECTIVES ..................................................................................................................................................................... 10 METHODS .......................................................................................................................................................................... 10 DEVELOPING THE DRAFT INSTRUMENT FOR FIELD TESTING ............................................................................................ 10 Instrument Selection....................................................................................................................................................... 10 Instrument Adaptation ................................................................................................................................................... 11 STUDY TEAM ..................................................................................................................................................................... 11 STUDY SITES AND PREPARATION ...................................................................................................................................... 12 PILOT STUDY ..................................................................................................................................................................... 12 RELIABILITY AND VALIDITY STUDY ................................................................................................................................. 13 ANALYSIS .......................................................................................................................................................................... 14 RESULTS............................................................................................................................................................................. 14 SAMPLE CHARACTERISTICS ............................................................................................................................................... 14 Table 1: Study sample characteristics .................................................................................................................................................................. 14 SCALE CHARACTERISTICS ................................................................................................................................................. 15 Table 2: Scale descriptive statistics ..................................................................................................................................................................... 15 INSTRUMENT RELIABILITY ................................................................................................................................................ 15 Internal Consistency Reliability ..................................................................................................................................... 15 Table 3: Cronbach’s alpha scores ........................................................................................................................................................................ 16 Test-Retest Reliability .................................................................................................................................................... 16 Table 4: Test-retest comparison ........................................................................................................................................................................... 17 Criterion Validity ........................................................................................................................................................... 17 ASSESSMENT ISSUES .......................................................................................................................................................... 17 Item Distributions .......................................................................................................................................................... 17 Outlier Analysis ............................................................................................................................................................. 18 Item Analysis .................................................................................................................................................................. 18 Table 7: Item analysis .......................................................................................................................................................................................... 18 Table 8: Descriptive statistics on subscales reduced based on item analysis ...................................................................................................... 19 Internal Consistency Reliability for Reduced Scales ..................................................................................................... 19 Table 9: Cronbach’s alpha scores on subscales reduced based on item analysis ................................................................................................ 19 Test Retest Reliability for Reduced Scales ..................................................................................................................... 20 Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 2 ! ! ! ! Table 10: Test-retest comparison on subscales reduced based on item analysis ................................................................................................. 20 DISCUSSION ...................................................................................................................................................................... 20 CONCLUSIONS ................................................................................................................................................................. 22 RECOMMENDATIONS .................................................................................................................................................... 23 APPENDIX A: INFORMED CONSENT PROCEDURE ............................................................................................... 24 APPENDIX B: EXPLANATION OF RELIABILITY AND VALIDITY CONCEPTS ............................................... 28 APPENDIX C: OUTLIER ANALYSES ........................................................................................................................... 30 APPENDIX D: “YOUTH SELF-REPORT – HAITI” (ENGLISH TRANSLATION) ................................................ 32 Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 3 ! ! ! ! Executive Summary Project Objectives This report describes the development and testing of an instrument to assess mental health and psychosocial problems among survivors of child slavery (restavèk) living in the Port au Prince metropolitan area, Haiti. Development consisted of generating a draft instrument that reflects the mental health and psychosocial problems that emerged in a previous qualitative study among the same target population. Testing consisted of assessing the instrument’s local acceptability, clarity, validity and reliability among the same population. The objectives of the work described here are: 1. To develop a draft quantitative assessment instrument based on the psychosocial problems that emerged in the previous qualitative study of the target population. 2. To test the acceptability, clarity, validity and reliability of this instrument among this same population and finalize the instrument based on these results. Methods The first step was to develop a draft instrument that reflected the salient problems found in the previous qualitative study among the target population of child survivors of restavèk living in the Port au Prince metropolitan area. We identified an existing broad-based child measure that matched these criteria - The Youth Self-Report (YSR) which has been used and studied in more than 80 societies. The YSR was adapted to more closely match the problems identified by our target population in a previous qualitative study by adding items based on frequently mentioned issues in the qualitative study that were not already captured in the YSR. No items were removed nor were any changes made in the administration of the YSR, in order to enable future comparisons with data from other populations in other countries. The additional items were analyzed as distinct local symptom and functioning scales, as well as in composite scales with YSR items. The adapted YSR was translated into Haitian Creole with an emphasis on using the same vocabulary as that found in the qualitative data. In addition to the adapted instrument, study staff and the interviewers drafted an informed consent procedure to be read to children prior to administering the instrument and prior to asking whether they agreed to be interviewed. A pilot study of the instrument (now referred to as the YSR-Haiti or YSR-H) was conducted in order to detect any problems with the interview procedure, the informed consent procedure and the instrument from the point of view of both the interviewers and the interviewees, to determine whether the instrument was acceptable and understandable to our target population, and to give the interviewers practice in interviewing. Based on feedback from interviewers and interviewees the instrument and informed consent procedures were adjusted as necessary for use in the reliability and validity study. The study included assessing the YSR-H’s internal consistency, criterion validity, and test-retest reliability. Interviewees were recruited from four sites (institutions) in the Port au Prince metropolitan area, all of which provide transitional care (residential care and education) to children at risk for a period of months to years. Thirty-nine percent of the children were re-interviewed 2-12 days (mean = 5.7 days) after their first interview in order to assess the YSR-H’s test retest reliability. Internal consistency reliability was assessed using the Cronbach’s alpha measure. Criterion validity was assessed with the help of center staff who work with the children on an ongoing basis. Staff and children participated in a process to identify Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! 4 Assessment!Instrument! ! ! ! ! ! children thought to have significant emotional or behavioral problems (Cases) and those thought not to have them (Noncases). Results Minor changes to the wording of some items and a more extensive protocol for responding to participants who endorsed items related to self-harm and/or suicidal ideation were required based on the pilot study results. For the reliability and validity study, a total of 73 children were assessed, with 67 of these completing the assessment. The YSR problem based scales have good internal consistency (Cronbach’s alpha >.7 for internalizing, >.8 for externalizing and total problems). The Haiti scales and Combined scales had alphas >.8 except for the Haiti function scale, which was >.7. The YSR competence scales had low internal consistency reliability (.4-.5). The results of test-retest reliability were generally lower. Using .6 as an indicator of adequate test-retest reliability, all scales except YSR competence and Haiti function demonstrated adequate reliability. Internalizing scales demonstrated higher test retest reliabilities (>.8) than externalizing scales (>.6). In contrast, the Haiti function scale and the YSR activities, academic and total competence scales all performed poorly (.2-.5) in terms of test-retest reliability. Though we attempted to assess criterion validity through sorting participants into those who have mental health problems (“cases”) and those who don’t (“non-cases”) based on conversations with children and caregivers who know them well, in many cases there was no agreement between the child report and the adult report in the sorting assessments. Conventionally, all cases in which there was no agreement between child and caregiver would be excluded from the study, so that only those where both parties agreed would be used. As a result, we were unable to proceed with a test of criterion validity and thus cannot speak to the criterion validity of this instrument. Additional analyses of distributions, outliers, and items suggested items that could be considered for removal from scale scores based on either very low frequency of response (that may reflect cultural differences in behavior) or very low correlations with the remaining items on the scale, suggesting that the item is not measuring the scale construct. Analyses were repeated after removing items suggested by item analysis, and results indicate that the scales function similarly with and without the indicated items. In addition to the main study purpose, we also conducted preliminary epidemiological analyses of the study data to explore scores of the sample on the YSR problem scales. Though norms will need to be established for a Haitian population, a preliminary comparison has been made with US norms for each scale. For girls, the proportion of the sample that scored in the borderline clinical to clinical ranges was 70% for internalizing problems and 30% for externalizing problems. For boys, the proportion of the sample that scored in the borderline clinical to clinical ranges was 95% for internalizing problems and 50% for externalizing problems. For total problems, 60% of girls and 80% of boys scored in the borderline to clinical ranges. Discussion Reliability and validity testing revealed differences in the performance of YSR-H scales. On this study’s measures of reliability and validity, we found that the YSR and Combined symptom-based scales (the YSR internalizing, externalizing, and total problems scales, and the Combined internalizing, externalizing scales, and Combined total problems scales) have solid psychometric properties in this population. The Haiti-specific scales performed well with the exception of the Haiti function scale at test-retest. All of the YSR competence scales performed poorly except for the YSR social competence scale at test retest. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 5 ! ! ! ! Internal consistency reliability results were good for YSR externalizing, YSR total problems, Haiti symptoms, and the Combined scales (internalizing, externalizing, and total problems), and acceptable for YSR internalizing problems and Haiti function scales, indicating that these items on these scales perform well in terms of measuring the same underlying concept. In contrast, the YSR competence scales (total competence, activities, social, and academic competence subscales) demonstrated poor internal consistency reliability. As these scales have fewer items and were designed to address a variety of competencies measured in different formats, the scales may not be assumed to tap a singular construct. Test-retest reliability results ranged from good (for the YSR internalizing, YSR total problems, Combined internalizing, and Combined total problems scales), to desirable (for the YSR social competence subscale), and adequate (for the Haiti symptoms, YSR externalizing, and Combined externalizing scales). In contrast, the Haiti function scale and the YSR activities, academic and total competence scales all performed poorly in terms of test-retest reliability. It is important to point out that while the YSR is a self-administered scale, for our purposes interviewers read the items and completed the forms with the respondents. We were unable to ensure that the same interviewer was present for each re-interview, and thus the test-retest results may be confounded by inter-interviewer differences as well. Analyses of distributions indicated very low frequencies on a number of the rule-breaking behavior items, and it is possible that the externalizing scales were more affected by social desirability as a function of their content, and/or that the strong cultural norms prohibiting certain behaviors influenced responses when in the presence of different interviewers. We were unable to test criterion validity due to the nature of our methods and the low agreement between children and caregivers in this study regarding emotional and behavioral problems. Research on the use of multiple informants with children/adolescents coupled with situational and cultural factors may help to explain low to modest levels of agreements between pairs of informants. Other approaches that have used local mental health professionals’ assessment of children’s significant emotional or behavioral problems may allow a future examination of criterion validity that may remedy the problem of low agreement between multiple informants. In addition to the main purpose of the study - developing an acceptable, reliable, and valid instrument - we also conducted preliminary epidemiological analyses of the study data. We found that mean scores problem scales were elevated for boys and girls, except for the externalizing scores for girls, suggesting difficulty across the range of problem categories assessed by these scales: anxiety, depression, withdrawal, somatic complaints, aggression, social and cognitive problems and attention problems. In general, boys and girls reported more internalizing problems than externalizing, which may be explained by cultural and behavioral norms that preclude certain behaviors and/or social desirability effects. Most of the children in our sample had been in contact with the centers where they were living for a period of months to years. We would therefore expect that they have already been provided with some degree of support, care and stability and that the scores of their peers who have been through restavèk and are either in the streets or in another setting in which they do not have access to the services provided by these centers are likely to have substantially higher problem scores than those of the children in our study. Conclusions Based on our study, the YSR-H is acceptable for use among children who have been in restavèk in Haiti. Overall, the problem scales of the YSR-H show strong psychometric properties and therefore we believe them to be suitable for use among this type of child population in Haiti. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 6 ! ! ! ! These results suggest several options for use of the YSR-H within Haiti. The YSR-H could be used as a screener to help identify children who need attention, based on the YSR and/or Combined total problems scale. The internalizing and externalizing scales can be used to explore the nature and severity of the problems affecting each child, and therefore help to tailor interventions to the child’s needs. The problem scales in the YSR-H can also be used to assess impact of interventions provided within the centers where children are residing. The YSR competence scales showed poor psychometric properties suggest that these scales may not be accurate. Therefore, our results do not suggest that the YSR competence scores are useful either for screening children into programs or assessing their progress. However, since this is the first time this instrument has been tested, and the study was done among a population of children with prolonged exposure to transitional care settings, and who therefore may have experienced marked improvement in their functioning skills due to exposure to these programs, we are not yet ready to advocate removing the competent functioning items from the instrument. Instead, they should be retained for the time being and their performance reassessed as part of analyses of future data. Average problem scores were high and the distribution of scores shows a large proportion of the children falling in the upper ranges of scores on internalizing, externalizing and total problems. This suggests that most children in our sample have a wide range of significant psychosocial problems. Since most of our sample has been receiving services for several months to years, we suspect that children who are not receiving services will have even higher scores. Recommendations It is recommended that transitional care settings in Haiti use the YSR-H as a screening tool to identify children in need of tailored interventions, and to evaluate their progress over time on mental health dimensions. The goals of these assessments may include: a) Assessing the nature and severity of needs (by using the instrument as a survey tool). b) Using this information to target resources and design appropriate interventions. c) Assessing the impact of these interventions. When the YSR-H is used in the future, analysis of the resulting data should include further characterization of the accuracy of the instrument, particularly regarding criterion validity and the performance of the competence scales. In future use of the YSR-H in community settings, if the length of the scale and time for administration is under consideration, a number of items could be removed without diminishing the psychometrics of the scales on the dimensions we assessed in the current study. The YSR Competence items, comprising two pages of the instrument, may be removed, thus shortening the time of administration considerably. Though there are additional YSR problem-based items, as well as Haiti symptoms items that could be removed without compromising the subscale psychometric properties, these items may contribute to criterion validity, and the Haiti symptom items also contribute to content validity. Thus, we recommend that all symptom-based items be retained pending an assessment of criterion validity. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 7 ! ! ! ! Acknowledgements Without the generous support of Equitas Group, this study would not have been possible. We would like to especially thank Jonathan Scoonover, Program Manager at Equitas Group, for championing and advocating for the financing of this project. We also thank Beyond Borders for welcoming the study and contributing staff time, organizational resources, and project oversight. We are particularly grateful to the collaborating organizations, their site directors and staff, and the interviewers who contributed to this study. Finally, we especially thank the children who provided their time and participation to make this work possible. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 8 ! ! ! ! Introduction This report describes the development and testing of an instrument to assess mental health and psychosocial problems among survivors of child slavery (restavèk) living in the Port au Prince metropolitan area, Haiti. Development consisted of generating a draft instrument that reflects the mental health and psychosocial problems that emerged in a previous qualitative study among the same target population. Testing consisted of assessing the instrument’s local acceptability, clarity, reliability and validity among the same population. In the current report, we describe the background to the activities described here, the methods used to develop and test the instrument and the results of these tests. Conclusions based on the results are also included, as well as specific recommendations for future activities. Finally, the report ends with three appendices containing the final instrument, informed consent procedures, and an explanation of some of the technical terms used in the report referring to important elements of reliability and validity. Background The activities described here (instrument development and testing) form part of a series of field-based activities to inform the design, monitoring, and evaluation (DME) of services based an approach developed by the Johns Hopkins University (JHU) Applied Mental Health Research (AMHR) Group.1 The DME process developed by the AMHR Group consists of the following stages: 1. Qualitative study of the problems affecting the target population and the tasks and activities that are important to local people. 2. Development of a locally appropriate quantitative instrument (questionnaire) to assess the major psychosocial problems emerging from the qualitative study. 3. Evaluation of the acceptability, clarity, validity and reliability of the instrument among the target population, with subsequent revision of the instrument based on the results. 4. Identification and adaptation of an appropriate intervention to address the major psychosocial problems emerging from the qualitative study. 5. Use of the final version of the instrument to conduct baseline assessments among individuals recruited into the intervention. 6. Provision and monitoring of the intervention. 7. Follow-up assessment after participation in the intervention, including re-interview with the assessment instrument to assess program impact. !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 1 "Applied!Mental!Health!Research!Group!(2011).!Design,"implementation,"monitoring,"and"evaluation"of"cross6cultural"HIV6related"mental"health"and"psychosocial" assistance"programs:"A"user’s"manual"for"researchers"and"program"implementers"(Adult"Version)"Module"2:"Developing"quantitative"tools."" Note:!The!instrument!development!and!validation!process!was!developed!by!the!AMHR!Group!with!the!support!of!the!United!States!Agency!for!International! Development!(USAID)!Victims!of!Torture!Program.!" Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 9 ! ! ! ! This report describes the process and results of stages 2 and 3 described above and includes recommendations for future activities. Full details of the qualitative study which constitutes stage 1 (and upon which the current work has been based) are available at www.BeyondBorders.net. Objectives The objectives of the work described here are: 1. To develop a draft quantitative assessment instrument based on the psychosocial problems that emerged in the previous qualitative study of the target population. 2. To test the acceptability, clarity, validity and reliability of this instrument among this same population and finalize the instrument based on these results. Methods Developing the Draft Instrument for Field Testing Instrument Selection In developing a quantitative instrument one important question is whether to adapt an existing instrument already used in other populations, or produce an entirely new instrument for local use. Using an existing instrument is preferable if there is one that adequately reflects the local situation, since use of an existing instrument allows for comparison with other populations. In reviewing existing instruments, we based our choice on whether the instrument reflected those important mental health and psychosocial problems that emerged from the previous qualitative study and were amenable to interventions that are within the resources of the institutions involved in this collaboration who are already providing services. The qualitative study revealed that child survivors of restavèk in the Port au Prince metropolitan area experience a wide range of mental health and psychosocial challenges, which we will refer to as “problems” in this report. These problems can be categorized as emotional problems (also referred to as internalizing symptoms) such as sadness, crying, rumination, remembering the bad moments, and being uncomfortable or nervous; behavioral problems (or externalizing symptoms) such as insulting others, fighting, aggression, or being unruly; and relationship problems such as staying alone, being subjected to insults or humiliation by others, and problems related to adaptation after being in restavèk. In addition, a number of other social, economic, and community-level problems for children who have been in restavèk were revealed in the qualitative study. Those problems are not addressed directly by the current study; however, the emotional and behavioral symptoms that result from them are. The qualitative results suggested that no one particular problem was more prominent than the others, and that most children had multiple problems. Therefore, it was decided that any appropriate instrument would have to be a broadly-based measure that spanned the range of these problems, rather than one that focuses on a particular symptom or group of symptoms, in order to assess the wide range of problems and symptoms reported by children. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 10 ! ! ! ! The Youth Self-Report (YSR), an existing instrument developed in the United States but suitable for use among our target populations, was selected. The YSR assesses a broad range of psychosocial problems that closely matches those emerging from the qualitative studies. The YSR is part of a set of instruments developed by the Achenbach System of Empirically Based Assessment (ASEBA)TM. ASEBA instruments were designed to obtain standardized data on a broad range of problems from multiple sources (e.g., parents, teachers, and youth ASEBA instruments have been translated into more than 90 languages, and studied in over 80 societies.2 An entire supplemental manual now exists on the multi-cultural use of ASEBA instruments, including variations in norms across different countries.3 The YSR is completed by youths themselves to describe their own functioning and problems. The first 2 pages include demographic and competency questions on the child’s interests, chores, social interactions, performance in academics, and open-ended questions about illness, disabilities, problems and concerns. The following 2 pages contain 105 symptom and behavior specific items, plus 14 positive qualities items, with responses rated on a 0-2 scale (0=not true, 1=somewhat or sometimes true, and 2 very true or often true). Instrument Adaptation Through communication with the developers of the YSR, we obtained a license agreement to translate the YSR and underwent an iterative translation and back-translation process to generate the approved translation of the YSR. After examining the items from the YSR in relation to the problems described in the qualitative study, all of the original YSR items were retained in order to maintain the empirical base of the instrument and retain future comparability with results from children in other countries. However, several additional items were added to the YSR based on frequently mentioned issues in the qualitative studies that were not already well captured in the YSR. An additional 34 symptoms and 14 function items that were described in the qualitative study but not assessed by the YSR were added to the instrument. The result was a draft version of the YSR-H (Youth Self-Report – Haiti), which contains sections on assessment of functioning as well as an assessment of internalizing and externalizing symptoms. The team of Haitian staff conducting the validation study reviewed each item of the draft instrument to ensure clarity, comprehensibility, and tolerability of the items. Suggested changes to improve clarity or comprehension of the translation of the YSR items were only made if they did not change the meaning of the item or its back-translation, so as to maintain fidelity to the approved translation. During the review of the instrument, several interviewers objected to assessing children on an item assessing thoughts about sex, as well as to items related to suicidal ideation and past attempt at self-injury or suicide. Interviewers wanted to be sure that site supervisors were fully aware of the content of the interview before posing these questions. For all three items, interviewers were assured that site supervisors were aware of the content of the questions and had authorized the assessment procedures, child participants would be reminded that they would have the right to refuse to answer any questions, and clear procedures for managing responses endorsing suicidal ideation and/or past attempts were developed and practiced. Once this was confirmed, interviewers were comfortable asking these questions. A detailed procedure for managing positive responses to the suicidal ideation/past attempt items was elaborated and interviewers role-played executing the procedure. Study Team The study team consisted of the principal investigator, co-investigator, and five interviewers. In addition, Dr. Paul Bolton, Associate Scientist at JHU, trained Cara Kennedy in the quantitative methodology and provided distance supervision !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 2 "Berube,"R."L.,"&"Achenbach,"T."M."(2012)."Bibliography!of!published!studies!using!ASEBA!instruments:!2007!edition."Burlington,"VT:"University"of"Vermont,"Research" Center"for"Children,"Youth"and"Families." 3 "Ivanova,"M."Y.,"Achenbach,"T."M.,"Rescorla,"L."A.,"et"al."(2007)."The"generalizability"of"the"Youth"Self6Report"syndrome"structure"in"23"societies.!Journal!of!Consulting! and!Clinical!Psychology,!75"(5),"7296738." Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 11 ! ! ! ! periodically throughout data collection and analysis. Three of the interviewers were staff of the International Office on Migration focused on psychosocial support and reinsertion for children who have been in restavèk. Of the remaining two, one was an interviewer for the qualitative study, and the other is a professional trained in psychology with experience working with both child and adult survivors of violence and restavèk. Study Sites and Preparation This study took place in four centers (institutions) in the Port au Prince metropolitan area. Two of these centers, Foyer l’Escale and Restavèk Freedom Foundation, participated in the qualitative study. All four centers provide transitional care to children at risk, providing housing and education for children for a period of months to years. Foyer l’Escale and Restavèk Freedom Foundation work exclusively with children who have been in restavèk. The remaining two, Centre d’Action pour le Développement (CAD) and Timoun K ap Teke Chans (Timkatec), work with children in difficulty for a variety of reasons, with a portion of those children being children who have been in restavèk. In the months leading up to the study, we worked with the four sites to build an understanding of the study and study methods, and asked them to participate in a “sorting” process to help us to assess criterion validity. In previous studies conducted by the AMHR Group in other parts of the world, part of the validity testing procedure has involved comparing scores from the proposed instrument with the overall opinion of the child and caregivers as to whether or not they thought they had a problem. Children who stated that they did have psychosocial problems should (if the instrument is valid) report more symptoms and greater severity of symptoms compared with children who stated they did not have psychosocial problems. In the study model used by the AMHR Group, a term or phrase generated in the qualitative study is used to describe a state of having the psychosocial problem, and are used in the form of question to identify whether the child had a psychosocial problem or not. In the qualitative study in Haiti we did not identify any suitable, consistently-used or general term to describe a child with the kinds of symptoms that emerged in the study. In discussions with field staff, no term could be agreed upon that would accurately and consistently identify children who have mental health or psychosocial problems. Therefore, we decided to use a general question asking whether the child’s emotional and behavioral functioning is in the normal range for a child of his/her age or whether it is beyond the normal range, and the field staff provided the Haitian translation for this question. Interviewers were trained to conduct a short conversation with each child participant and the adult who was determined to know the child best. This conversation was conducted as a means of generating lists of interviewees who were thought to have the problems being assessed by the instrument (according to self-report and by report of an adult who knew them well) and those not likely to have those same problems. These lists were generated prior to the study. Pilot Study Following the instrument translation and review, the draft YSR-H was ready for piloting in the field. The objectives of the pilot study were to detect any problems with the interview procedure, the informed consent procedures and the instrument from the point of view of both the interviewers and the interviewees, to determine whether the instrument was acceptable and understandable to our target population, and to give the interviewers practice in interviewing. The complete questionnaire consisted of two sections: the YSR in its entirety, which included a brief series of demographic questions, items assessing the child’s competence in social, academic, and activity domains, and items assessing mental health problems; and items assessing emotional/behavioral problems as well as positive aspects of functioning that emerged from the qualitative study (See Appendix D for a copy of the finalized YSR-H). Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! 12 Assessment!Instrument! ! ! ! ! ! In addition, the study team translated a verbal informed consent procedure containing a description of the study, potential risks and benefits of participation, a statement on confidentiality procedures, and contact information for any questions that was read to children prior to administering the instrument and prior to asking whether they agreed to be interviewed. (See Appendix A for a copy of the informed consent procedure). On the first day of the pilot study each interviewer interviewed at least two children, not from the study sites, using the draft instrument. The interviewing process was conducted as it would be during they study interview. Once this was completed, the interviewer then asked additional questions about what the interviewee liked and did not like about the interview process and whether they had difficulty understanding any questions. After conducting pilot interviews, the interviewers returned to the training site to review the experience with the research team and each other, including a review of the reactions of the interviewees and their responses to the additional questions. Any issues that emerged from the pilot interviews were discussed. Based upon the pilot study, interviewers suggested minor modifications to the instrument items where participants found them difficult to understand. Suggested changes to the translation of the YSR items were only made if they did not change the meaning of the item or its back-translation, so as to maintain fidelity to the approved translation. As expected, questions based on the qualitative data were mostly well understood. Only one pilot study participant expressed discomfort with the item related to thoughts about sex. There were no instances of a problem or concern occurring in multiple interviews, and thus there were no substantive changes made to the instrument. Reliability and Validity Study Following the pilot study interviewers commenced interviewing for the reliability and validity study, using the procedures and instrument finalized at the end of the pilot study at all four study sites. The purpose of the reliability and validity study was to determine if the YSR-H could accurately assess the presence and severity of the mental health and psychosocial problems selected from the qualitative study. Reliability and validity testing included assessment of the following instrument characteristics4: 1. Internal consistency reliability 2. Test retest reliability 3. Criterion validity Test-retest reliability was evaluated by re-interview of approximately 39% (n=27) of the participants 2-12 days (mean = 5.7 days) after their first interview. For a portion of this sample, the instrument was administered by a different interviewer at retest.5 One major focus of validity testing was to explore criterion validity. This refers to the extent to which the instrument agrees with another method of assessing mental health problems that is known to be accurate. Since we have no such method of known accuracy, we compared data from the instruments with the assessments by the survivors and adults close to them as to whether they have problems related to their behavior and affect. While this is not a standard of known accuracy, and both the survivor and other adult may be incorrect in many cases, we assume that a survivor is more likely to have or not have each of these problems if the survivor and the other adult agree. Those said to have such problems !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 4 "Brief!explanations!of!each!of!these!parameters!are!provided!in!Appendix!B." !Although!the!YSR!is!a!self^administered!instrument,!due!to!literacy!levels!the!items!were!read!to!all!children!except!those!who!demonstrated!adequate!literacy!and! willingness!to!self^administer.!Following!ASEBA!administration!guidelines!(see!Manual"for"the"ASEBA"School6Age"Forms"&"Profiles),!interviewers!read!the!items!to! respondents!and!wrote!down!their!answers.!If!respondents!could!read!at!all,!respondents!were!encouraged!to!read!from!the!form!while!the!interviewer!read!the! questions.!!! 5 Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 13 ! ! ! ! should therefore have higher scores than those said not to have such problems, if both the instrument and the opinions of survivors and other adults are accurate assessment of the presence and severity of these syndromes. Analysis Based on extensive research,6 scales, or lists of problems that tend to co-occur, have been constructed for the YSR. We have used two of these established YSR scales that most closely matched the conceptual distinction between symptoms that emerged in the qualitative study: the YSR Internalizing scale includes symptoms of anxiety, depression, withdrawal, and somatic complaints; the YSR Externalizing scale includes rule breaking and aggressive behaviors. Additional YSR items in the total symptoms scale include social, attention and thought problems. The reliability and validity analyses were based on scale scores on the instrument, both the standardized (YSR) scales and the additional scales that emerged from the qualitative study that were not reflected in the YSR. Each of the symptom items on the YSR and that emerged from the qualitative study was assessed on a 3-point Likert scale (0 = Not true; 1 = Somewhat or Sometimes True; 2 = Very True or Often True). All data analysis was conducted using STATA statistical software. Analysis of validity and reliability included measurement of internal consistency reliability using Cronbach’s alpha and of test-retest correlation using the Pearson correlation coefficient. Criterion validity was assessed by comparing scale scores for the survivors said by themselves and an adult to have affective/behavioral problems with scores of survivors said by themselves and others to not have them. RESULTS Sample Characteristics Interviewers assessed 75 children/youth and the adults close to them across the four study sites. Of the 75 children/youth, one child left the center prior to the time of the validity study, one refused the assessment, three refused less than halfway through the instrument, and the data for an additional three were deemed invalid based on the response patterns. The characteristics of the remaining 67 participants are provided in Table 1. Table 1: Study sample characteristics Total N=67 Gender Male Female Ages* 9-11 12-14 15-17 Sites #1. Foyer L’Escale N (%) 20 (30%) 47 (70%) 16 (24%) 34 (51%) 15 (22%) 29 (43%) !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 6 "Achenbach,!T.!M.,!&!Rescorla,!L.!A.!(2001)."Manual"for"the"ASEBA"School6Age"Forms"&"Profiles.!Burlington,!VT:!University!of!Vermont,!Research!Center!for!Children,! Youth,!and!Families.!! Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 14 ! ! ! ! #2. Restavèk Freedom #3. Centre pour le Developpement et Action #4. Timoun K ap Teke Chans (TIMKATEC) 6 (9%) 23 (34%) 9(13%) *Missing age data for two participants Scale Characteristics The reliability and validity analyses were based on twelve scales. As the YSR is a highly regarded and widely-used instrument, we first conducted analyses of the YSR Subscales (Internalizing Problems, Externalizing Problems, Activities, Social, and Academic Competence) and Total scales (Total Problems and Total Competence). Subsequently, we analyzed Haiti Symptom and Function scales. Finally, we combined analyses of YSR and Haiti items along Internalizing and Externalizing dimensions as well as for Total Problems. The descriptive statistics for the twelve scales are provided in Table 2. Table 2: Scale descriptive statistics # of Items Mean SD Min Max YSR Subscales YSR Internalizing Problems YSR Externalizing Problems YSR Activities Competence YSR Social Competence YSR Academic Competence 31 32 6 6 1 23.76 13.83 9.00 7.23 2.14 8.21 7.59 2.61 2.59 0.51 8 0 3.5 0 1 44 31 14.00 11.67 3 YSR Total Scales YSR Total Problems YSR Total Competence 105 13 68.90 18.38 24.42 3.98 22 8.83 133 25.67 Haiti Scales Haiti Symptom* Haiti Function* 34 14 21.14 22.56 8.77 4.41 2 13 41 28 Combined Scales Combined YSR and Haiti Internalizing* Combined YSR and Haiti Externalizing* YSR-Haiti Total Problems* 48 40 139 35.45 17.23 89.85 12.81 9.65 31.30 10 0 28 63 39 165 *Not all respondents have complete data. Data presented for only those with complete data. Instrument Reliability Internal Consistency Reliability Internal consistency reliability measures the extent of agreement among questions that assess the same underlying concept. If questions believed to be measuring the same concept disagree this suggests that either the questions themselves are unreliable, or they are not really measuring the same concept. Internal consistency reliability is measured using Cronbach’s alpha, for which scores should be at least .7 and ideally between .08-.09. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 15 ! ! ! ! Table 3 shows the Cronbach’s alpha scores on each of the scales for males, females, and the total sample. Table 3: Cronbach’s alpha scores Total Sample Total Sample (N=67) Males (N=20) Females (N=47) YSR Subscales YSR Internalizing Problems YSR Externalizing Problems YSR Activities Competence YSR Social Competence .753 .802 .584 .574 .740 .777 .723 .682 .776 .802 .526 .530 YSR Total Scales YSR Total Problems YSR Total Competence Scale .834 .527 .866 .668 .853 .370 Haiti Scales Haiti Symptoms* Haiti Function Items* .817 .768 .801 .785 .830 .770 Combined Scales Combined YSR and Haiti Internalizing* Combined YSR and Haiti Externalizing* YSR-Haiti Total Problems* .844 .846 .882 .830 .816 .902 .871 .844 .897 *Not all respondents have complete data. Data presented for only those with complete data. Alpha scores for all problem-based scales are in the acceptable range, and are good for YSR externalizing problems, YSR total problems, Haiti symptoms, and the Combined scales (internalizing, externalizing, and total problems). None of the competence-based scales (total competence and subscales) are in the acceptable range. Test-Retest Reliability Table 4 shows test-retest reliability analysis results, based on the 27 (39%) interviews that were repeated 2-12 days (mean=5.7 days) after the preliminary interview. In ten (37%) of the 27 cases, the instrument was administered by a different interviewer at retest. Test-retest reliability is assessed using the Pearson correlation coefficient, which provides a measure of how similar each scale score is on the first and second interviews. This provides an indicator of the extent to which respondents tend to give the same answer to the questions constituting the scale when asked on different occasions. For each comparison, a scatterplot of the scale scores on the first interview was compared with those on the second interview in order to determine whether there was a linear relationship and therefore whether the Pearson correlation coefficient was an appropriate measure. For all comparisons the scatterplot suggested a linear relationship, confirming that the Pearson correlation co-efficient was an appropriate measure of test-retest reliability. When assessing test-retest reliability, Pearson correlation coefficient scores of .7 are considered to be desirable, .6 adequate. On that basis, five of the twelve scales performed well, in the desirable range - YSR internalizing, YSR social Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 16 ! ! ! ! competence, YSR total problems, Combined internalizing, and Combined total problems- and an additional three scales demonstrated adequate test-retest reliability (YSR externalizing, Combined externalizing, and Haiti symptoms). Table 4: Test-retest comparison Mean (sd) First Interview Mean (sd) Repeat Interview Correlation YSR Subscales YSR Internalizing Problems 24.15 (9.29) 19.67 (9.76) .835 YSR Externalizing Problems YSR Activities Competence YSR Social Competence YSR Academic Competence 13.33 (6.78) 10.72 (1.59) 7.67 (2.11) 2.20 (.45) 11.78 (8.93) 11.20 (1.40) 7.96 (1.47) 2.22 (.40) .628 .371 .731 .213 YSR Total Scales YSR Total Problems YSR Total Competence 70.48 (23.86) 20.59 (3.19) 53.19 (27.40) 21.30 (1.83) .834 .544 Haiti Scales Haiti Symptoms Haiti Function Items 20.52 (8.38) 22.67 (4.48) 20.15 (10.15) 23.81 (3.63) .689 .410 YSR-Haiti Subscales Combined YSR and Haiti Internalizing Combined YSR and Haiti Externalizing YSR-Haiti Total Problems 35.22 (14.10) 17.15 (8.84) 91.70 (30.51) 29.74(15.60) 16.00 (12.13) 78.85 (39.47) .827 .617 .834 Criterion Validity Though we attempted to assess criterion validity through sorting participants into those who have mental health problems (“cases”) and those who don’t (“non-cases”) based on conversations with children and caregivers who know them well, in many cases there was little agreement between the child report and the adult report in the sorting assessments. Conventionally, all cases in which there was no agreement between child and caregiver would be excluded from the study, so that only those where both parties agreed would be used. As a result, we were unable to proceed with a test of criterion validity. Assessment Issues Item Distributions Analysis of the distributions of scores on all items was completed. Items in which >= 90% of the sample responded on one of the extremes of the response options (i.e., either not at all, or very true) were examined for content. Six YSR items and one Haiti symptom item met criteria for examination Five of the six YSR items were from the Rule-Breaking Behavior syndrome of the Externalizing subscale (items 72, 81, 82, 99, 105 – content pertaining to fire-setting, stealing, tobacco and drug use), and the remaining item related to picking Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 17 ! ! ! ! skin. In all six cases more than 90% of the sample responded “not true” to these items. The one Haiti item (item 19) pertained to not wanting to attend school, and again over 90% of the sample responded “not true.” The content of these items relates to behaviors that would be seen as unacceptable or shameful by Haitian cultural norms, which may explain the lower rates of exhibiting and/or endorsing these items. However, it is not recommended that these items be removed as their endorsement might indicate a severe degree of problem behavior that would merit attention. Thus, no items were excluded on the basis of the distribution of responses. Outlier Analysis For each scale, box plots were created to identify outlying data points. For each scale the number and ID of the outlier cases were noted at baseline (n=67) and retest (n=27). Based upon these analyses, there were no cases that were outliers at both time points on a scale, nor on multiple scales, except when the scale for which they were outliers was also included in a composite score. Without any other rationale that would explain their difference, none of these cases were removed from analyses. Outlier analyses were also conducted on the difference scores between test and retest on each scale. Cases with large differences in scores between test and retest raise questions as to what would explain these differences. However, without observational data or other explanations as to situations that may have occurred between test and retest that would explain the differences, and because there are no cases whose difference scores were outliers on multiple scales that were not composites of one another, we cannot justify their removal from analyses. (See Appendix C for Outlier Analyses of scale scores and difference scores). Item Analysis Item analysis was completed on all scales for the full sample to determine the reliability of each question by calculating the correlation of the item with the entire scale, the correlation of the item with the rest of the items in the scale, and the overall reliability of the scale without the item. Significant increases in alpha without the question and/or low correlation between the item and the rest of the items in the scale would suggest that the item in question is not measuring the same construct as the other items and should be removed. Items in which item-rest correlation was either negative or < .1 were removed from their scales, and the reduced scales were analyzed. The YSR competence subscales were not subjected to this type of item analysis due to the small number of items in each subscale. Additionally, the YSR total problems scale was not analyzed in this way because it is by its nature a measure of different types of problems. Table 7: Item analysis Subscale Item # YSR Internalizing Problems YSR Externalizing Problems YSR Total Competence # of Items Removed 5 3 2 Haiti Symptoms* Haiti Function Items* 3 0 17, 31, 34 Combined YSR and Haiti Internalizing* Combined YSR and Haiti Externalizing* 6 3 Y5, Y14, Y30, Y32, Y42, H4 Y3, Y63, Y101 5, 14, 30, 32, 42 3, 63, 101 II. Sum Activities, VII. Mean Academic *Not all respondents have complete data. Data presented for only those with complete data. The descriptive statistics for the seven reduced scales are provided in Table 8. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 18 ! ! ! ! Table 8: Descriptive statistics on subscales reduced based on item analysis # of Mean SD Items YSR Subscales YSR Internalizing Problems 26 19.33 7.96 YSR Externalizing Problems 29 12.10 7.49 YSR Total Competence 11 14.15 3.41 Min Max 3 0 5.5 38 30 20.3 Haiti Scales Haiti Symptoms* Haiti Function Items*+ 31 14 19.91 22.56 8.67 4.41 1 13 38 28 YSR-Haiti Subscales Combined YSR and Haiti Internalizing* Combined YSR and Haiti Externalizing* 42 37 30.65 15.48 12.50 9.44 6 0 57 38 *Not all respondents have complete data. Data presented for only those with complete data. +Scale was not reduced. Internal Consistency Reliability for Reduced Scales Table 9 shows the Cronbach’s alpha scores on each of the scales for the total sample. All alphas were in the acceptable range except for the YSR total competence scale. Alphas were good for the YSR externalizing, Haiti symptoms, Combined internalizing and Combined externalizing scales. Relative to the full set of items, the alpha improved with the removal of the items in question for all scales. Table 9: Cronbach’s alpha scores on subscales reduced based on item analysis Total Sample (N=67) YSR Subscales YSR Internalizing Problems .784 YSR Externalizing Problems .819 YSR Total Competence .558 Haiti Scales Haiti Symptoms* Haiti Function Items*+ .826 .768 YSR-Haiti Subscales Combined YSR and Haiti Internalizing Combined YSR and Haiti Externalizing .855 .861 *Not all respondents have complete data. Data presented for only those with complete data. +Scale was not reduced. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 19 ! ! ! ! Test Retest Reliability for Reduced Scales Test Retest reliability was recalculated for the reduced scales. Correlations are good for the Combined internalizing scale and acceptable for the YSR internalizing scale. Correlations are in the adequate range for YSR externalizing, Haiti symptoms, and Combined externalizing scales, and were poor for YSR total competence and Haiti function scales. Testretest reliability improved by reducing the scales for the YSR externalizing, YSR total competence, and Combined externalizing scales, but was not improved for the YSR internalizing, Haiti symptoms, or Combined internalizing scales. Table 10: Test-retest comparison on subscales reduced based on item analysis Mean (sd) Mean (sd) First Repeat Interview Interview YSR Subscales YSR Internalizing Problems 19.37 (9.25) 16.07 (8.20) YSR Externalizing Problems 11.56 (6.66) 10.04 (8.46) YSR Total Competence 15.93 (2.69) 16.46 (1.59) Correlation .792 .648 .577 Haiti Scales Haiti Symptoms Haiti Function Items+ 19.67 (8.73) 22.67 (4.48) 18.78 (9.85) 23.81 (3.63) .662 .410 YSR-H Subscales Combined YSR and Haiti Internalizing Combined YSR and Haiti Externalizing 30.22 (14.01) 15.33 (8.59) 25.74 (13.67) 14.56 (12.00) .811 .626 +Scale was not reduced. Discussion Reliability and validity testing revealed differences in the performance of YSR-H scales. On this study’s measures of reliability and validity, we found that the YSR and Combined YSR and Haiti symptom-based scales (the YSR internalizing, externalizing, and total problems scales, and the Combined internalizing, externalizing scales, and Combined total problems scales) have solid psychometric properties in this population. The Haiti-specific scales performed well with the exception of the Haiti function scale at test-retest. All of the YSR competence scales performed poorly except for the YSR social competence scale at test-retest. Internal consistency reliability results were good for YSR externalizing, YSR total problems, Haiti symptoms, and the Combined scales (internalizing, externalizing, and total problems), and adequate for YSR internalizing problems and Haiti function scales, indicating that these items on these scales perform well in terms of measuring the same underlying concept. In contrast, the YSR competence scales (total competence, activities, social, and academic competence subscales) demonstrated poor internal consistency reliability. As these scales have fewer items and were designed to Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 20 ! ! ! ! address a variety of competencies measured in different formats, the scales may not be assumed to tap a singular construct. Test-retest reliability results ranged from good (for the YSR internalizing, YSR total problems, Combined internalizing, and Combined total problems scales), to desirable (for the YSR social competence subscale), and adequate (for the Haiti symptoms, YSR externalizing, and Combined externalizing scales). In contrast, the Haiti function scale and the YSR activities, academic and total competence scales all performed poorly in terms of test-retest reliability. It is important to point out that while the YSR is a self-administered scale, for our purposes interviewers read the items and completed the forms with the respondents. We were unable to ensure that the same interviewer was present for each re-interview, and thus the test-retest results may be confounded by inter-interviewer differences as well. Analyses of distributions indicated very low frequencies on a number of the rule-breaking behavior items, and it is possible that the externalizing scales were more affected by social desirability as a function of their content, and/or that the strong cultural norms prohibiting certain behaviors influenced responses when in the presence of different interviewers. Though we attempted to assess criterion validity through sorting participants into those who have mental health problems (“cases”) and those who don’t (“non-cases”) based on conversations with children and caregivers who know them well, in many cases there was no agreement between the child report and the adult report in the sorting assessments which precluded our proceeding with the test of criterion validity. There are a number of reasons why this may have occurred in the current study. First, research on the use of multiple informants with children/adolescents, including meta-analyses of studies using the Achenbach scales for self, parent/caregiver, and teacher report have indicated low to modest levels of agreements between pairs of informants, especially between self ratings and ratings of others, the case in our study.7,8 inverse).These results vary based role of the informants and situation in which they observe the child (self, mother, father, teacher, etc.), the age of the child and type of behavioral/emotional problem. This may result from differences in informants’ observations as well as differences in children’s behavior in different contexts (e.g., some children manifest problems at home but not at school, some the The low to modest correlations across reporters have provided a strong basis for the use of data that combines multiple informants, and/or assesses children on multiple axes that are designed to reflect and capture the variations that surface across multiple informants. A sorting of cases and non-cases in our current study could not capture these variations nor capitalize on the different perspectives of multiple informants. Second, a good test of criterion validity using the approach in the current study is dependent upon respondents being willing to provide a definite answer to the question being asked, and that the question being asked is fairly highly correlated with the underlying concept being assessed by the instrument. In our case, because there was no commonly known and used term for either internalizing or externalizing problems, nor for mental health or psychosocial problems more generally, we had to use a phrase that described problems related to behavior and affect, without being more specific about the nature of the problems. This is a limitation to our ability to assess criterion validity, as an unclear criterion, or a criterion open to a wide range of interpretation, would be unlikely to yield to a strong test of criterion validity. Third, situational and cultural factors also may have influenced both child and adult responses to the criterion validity sorting process. In particular, interviewers noticed reluctance on the part of some staff to categorize children in what they perceived to be negative terms, even when children themselves reported they had the problems being asked about. In !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 7 "Achenbach,"T."M.,"McConaughy,"S."H.,""&"Howell,"C."T."(1987)."Child/Adolescent"behavioral"and"emotional"problems:"Implications"of"cross6informant"correlations"for" situational"specificity."Psychological!Bulletin,!101!"(2),"2136232."" 8 "Renk,"K.,"&"Phares,"V."(2003)."Cross6informant"ratings"of"social"competence"in"children"and"adolescents."Clinical!Psychology!Review,!24!"(2),"2396254." Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 21 ! ! ! ! some cases, caregivers wished to place children in an intermediate category, rather than selecting one of the two response options, which interviewers interpreted as a means of politely categorizing the child as one with problems. Though we were unable to test criterion validity due to the nature of our methods and the low agreement between children and caregivers in this study regarding emotional and behavioral problems, other approaches that have used local mental health professionals’ assessment of children’s significant emotional or behavioral problems may allow a future examination of criterion validity. Research on the use of multiple informants with children/adolescents coupled with situational and cultural factors may help to explain low to modest levels of agreements between pairs of informants which may be remedied through the use of trained local professional assessment. In addition to the main purpose of the study - developing an acceptable, reliable, and valid instrument - we also conducted preliminary epidemiological analyses of the study data. We found that mean scores problem scales were elevated for boys and girls, except for the externalizing scores for girls, suggesting difficulty across the range of problem categories assessed by these scales: anxiety, depression, withdrawal, somatic complaints, aggression, social and cognitive problems and attention problems. In general, boys and girls reported more internalizing problems than externalizing, which may be partially explained by cultural and behavioral norms that preclude certain behaviors and/or social desirability effects. Most of the children in our sample had been in contact with the centers where they were living for a period of months to years. We would therefore expect that they have already been provided with some degree of support, care and stability and that the scores of their peers who have been through restavèk and are either in the streets or in another setting in which they do not have access to the services provided by these centers are likely to have substantially higher problem scores than those of the children in our study. Conclusions Based on our pilot study, the YSR-H is acceptable for administration among children who have been in restavèk in Haiti. Overall, the problem scales of the YSR-H show strong psychometric properties and therefore we believe them to be suitable for use for this child population in Haiti. These results suggest several options for use of the YSR-H within Haiti. The YSR-H could be used as a screener to help identify children who need attention, based on the YSR and/or Combined total problems scale. The internalizing and externalizing scales can be used to explore the nature and severity of the problems affecting each child, and therefore help to tailor interventions to the child’s needs. The problem scales in the YSR-H can also be used to assess impact of interventions provided within the centers where children are residing. The YSR competence scales showed poor psychometric properties suggest that these scales may not be accurate. Therefore, our results do not suggest that the YSR competence scores are useful either for screening children into programs or assessing their progress. Average problem scores were high and the distribution of scores shows a large proportion of the children falling in the upper ranges of scores on internalizing, externalizing and total problems. This suggests that most children in our sample have a wide range of significant psychosocial problems. Since most of our sample has been receiving services for several months to years, we suspect that children who are not receiving services will have even higher scores. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 22 ! ! ! ! Recommendations It is recommended that transitional care settings in Haiti use the YSR-H as a screening tool to identify children in need of tailored interventions, and to evaluate their progress over time on mental health dimensions. The goals of these assessments may include: a) Assessing the nature and severity of needs (by using the instrument as a survey tool). b) Using this information to target resources and design appropriate interventions. c) Assessing the impact of these interventions When the YSR-H is used in the future, analysis of the resulting data should include further characterization of the accuracy of the instrument, particularly regarding criterion validity and the performance of the competence scales. In future use of the YSR-H in community settings, if the length of the scale and time for administration is under consideration, a number of items could be removed without diminishing the psychometrics of the scales on the dimensions we assessed in the current study. The YSR Competence items, comprising two pages of the instrument, may be removed, thus shortening the time of administration considerably. Though there are additional YSR problem-based items, as well as Haiti symptoms items that could be removed without compromising the subscale psychometric properties, these items may contribute to criterion validity, and the Haiti symptom items also contribute to content validity. Thus, we recommend that all symptom-based items be retained pending an assessment of criterion validity. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 23 ! ! ! ! Appendix!A:!Informed!Consent!Procedure !! 9 Appendix A1: Haitian Creole Version Konsantman Vèbal pou Etid ak Timoun! Nòt pou moun k ap fè entèvyou: Pati ki ekri an gra se pou nou li yo pou moun nou vle pale avèk yo anvan nou kòmanse fè entèvyou a. Si patisipan an dakò li vle patisipe, fòk ou siyen sou liy ki make “Temwen pou Pwosedi Konsantman” an ba. Anplis, pa bliye note dat entèvyou a anba. Bi Etid la N ap fè yon etid ki pral pèmèt nou aprann plis sou pwoblèm timoun epitou sou sa timoun an jeneral fè. Lè nou aprann sou pwoblèm ak aktivite timoun, Beyond Borders/Limyè Lavi ak lòt òganizasyon k ap travay ak timoun espere kreye pwogram ki kapab pi byen ede timoun ak fanmi yo. Beyond Borders / Limyè Lavi ap fè etid la, an kolaborasyon ak OIM, Foyer L’escale, CAD, e ak Restavèk Freedom. Nou ta renmen envite ou patisipe. Demach Etid la Pou nou reyalize etid la, n ap pale ak timoun, e ak granmoun ki okipe timoun. Se poutèt sa nou te chwazi ou pou patisipe. Si ou dakò pou patisipe, m ap poze ou kèk kesyon sou ou. Risk ak Malèz Potansyèl Chak entèvyou ap mande 30 al 60 minit. Gen de moun ki santi yo malalèz lè moun poze yo kalite kesyon sa yo. Kapab gen kèk kesyon ou renmen oubyen ki fè ou malalèz. Ou gen dwa refize reponn kesyon sa yo, oubyen nenpòt lòt kesyon si ou vle. Ou gen dwa kanpe entèvyou a nenpòt lè ou vle. Si ou santi ou malalèz apre entèvyou a fini, nou gen yon moun nan ekip nou ki kapab pale avèk ou apre entèvyou a. Benefis Enfòmasyon sa a ap ede Beyond Borders / Fondasyon Limyè Lavi / OIM enfòme lòt pwogram ak sèvis ki kapab amelyore sèvis pou timoun. Men, sa pa vle di ap genyen yon benefis dirèk pou ou pou patisipasyon ou. Aspè Volontè Ou pa oblije patisipe nan etid sa a. Pa gen yon benefis dirèk pou ou pou patisipasyon ou. Pa gen okenn konsekans negatif si ou refize patisipe, ni si ou deside patisipe kounye a men ou deside sispann patisipe pi devan. Konfidansyalite !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 9 !Adapted!with!permission!from!Applied!Mental!Health!Research!Group!(2011).!Design,"implementation,"monitoring,"and"evaluation"of"cross6cultural"HIV6related" mental"health"and"psychosocial"assistance"programs:"A"user’s"manual"for"researchers"and"program"implementers"(Adult"Version)"Module"2:"Developing"quantitative" tools.! Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 24 ! ! ! ! Pandan entèvyou a, m ap ekri enfòmasyon ou pataje avè m. Se enfòmasyon sa a n ap itilize pou etid la. Rejis enfòmasyon an p ap gen anyen ladann li ki kapab idantifye ou. Se selman ekip etid la k ap gen dwa gade enfòmasyon yo. Pa gen anyen nan sa ou pataje avèk nou ki ap pataje ak lòt moun ki pa fè pati ekip etid la. Nou p ap pèmèt pèsonn konnen kiyès ki te bay yon repons, sòf o ka ou nou panse ou kapab an danje. Nan ka sa a, nou pa kapab kenbe enfòmasyon sa a an konfidansyalite, epi n ap fè demach ki nesesè pou nou asire nou tout moun an sekirite. Pwen Kontak Si ou gen kesyon kounye a, ou mèt poze yo kounye a. Si ou gen kesyon apre m kite, ou gen dwa mande [Driektris Sant yo]. Epi ou kapab jwenn Cara Kennedy, reskonsab Etid la, nan biwo Beyond Borders sou [adrès] epi nan nimewo telefòn [xxxx-xxxx]. Èske ou gen kesyon? Èske ou ba nou otorizasyon pou ou patisipe nan etid la? Wi [Kontinye] Non [Kanpe] ___________________________________________ Non Timoun nan [Mwen te eksplike etid la ak patisipan an] ________________________ Moun k ap fè entèvyou ki se temwen konsantman _________________ Dat Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 25 ! ! ! ! Appendix A2: English Version Verbal Consent Form for Research for Research Study Instructions for the Interviewer Note to Interviewer: The following sections printed in bold are to be read to the subject prior to the interview. If the subject then agrees to participate, you must sign on the line marked ‘Witness to Consent Procedures’ at the end of this form. Also mark the date on the appropriate line. Purpose of the Study You are being asked to be part of a research study. We want to find out about the problems affecting children/youth in this area and what children do in general. By learning about the problems of local people Beyond Borders/Limyè Lavi along with other organizations that work with children hope to create programs that can better support children and their families. Beyond Borders / Limyè Lavi are conducting this study with the collaboration of OIM, Foyer L’escale, CAD, andk Restavèk Freedom. We would like to invite you to participate. Procedures To obtain this information we are talking with some children in the community as well as the adults who take care of them. This is how we selected you. If you agree to help us, I will ask you some questions. Risks and Discomfort Each interview will take about 30-60 minutes. It is possible that you may not like some questions or that some questions may upset you. You may refuse to answer these questions, or any questions, if you wish. You may stop the interview at any time. If at the end of the interview you feel uncomfortable for any reason, we have a member of our team who will be available to speak with you. Benefits This information will help Beyond Borders / Fondasyon Limyè Lavi / OIM to provide better programs to improve the health of the people in this area. However, there may be no direct benefit to you personally. Confidentiality During the interview I will write down the information you tell me. This is the information we will use for our study. The record of this information will not have any information which can be used to identify you. Only the research team will be able to see this information. Nothing that you tell us will be shared with anyone outside the research team. We will not allow anyone else to find out who gave a particular answer unless we think that you or someone else might be in danger. In that case, we cannot keep that information private and we will take steps to make sure that all people involved are kept safe. Whom to Contact Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 26 ! ! ! ! If you have any questions now you can ask me. If you have any questions after I leave, you can ask (Site Directors). And, you can also contact Cara Kennedy, director of this study. She can be contacted through (your center) in [address], or by telephone at [xxxx-xxxx]. Do you have any questions? Do you agree to participate in this study? Yes [Continue] No [Stop] ___________________________________________ Child’s Name [I explained the study to the participant] ________________________ Name of Interviewer, Witness of Consent _________________ Date Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 27 ! ! ! ! Appendix B: Explanation of Reliability and Validity Concepts 10 Reliability Reliability refers to the extent to which different measures of the same concept agree with each other. It can refer to measurements taken at the same time, or different times. To be useful an instrument must have good local reliability, which must therefore be tested whenever a questionnaire is changed (including translation) or used among a new population. Test-Retest Reliability Testing reliability over time is also useful. This is called test-retest reliability. The questionnaire is given to the same subject on two different occasions. It is usually done at least a day later, to reduce the effect of memory on the responses, but not too long because what is being measured may actually change (mood, for example). Therefore, the repeat interview is usually done 1-7 days after the first interview. To make this comparison, a summary scale is first created using all the questions on the same topic and calculated for both the first and second interview. Test-retest reliability measures correlations between these scores. Opinions vary as to what is an acceptable score, although correlations above 0.7 are considered desirable for test-retest reliability. A problem arises in interpreting low scores. These may be due to a poor instrument, or to using different interviewers, or because the concept being measured has changed. Internal Consistency Reliability This refers to how well questions measuring the same underlying concept on the same occasion agree with each other. For example, two questions that measure different aspects of depression should agree with each other in that the same individual should score high or low on both. Agreement is measured quantitatively by correlations. For questionnaires with many questions measuring the same concept, a large number of correlations would be required to check the agreement of every question with every other question, and some summary of these correlations would be needed. Cronbach’s alpha is a statistical measure that provides this. It is a single figure that summarizes the average correlation between all pairs of questions in a questionnaire. Cronbach’s alphas should be above 0.7 and ideally between 0.8-0.9. The reliability of each question can be assessed by calculating the alpha with and without it. Significant increases in alpha without the question would suggest that the question is not measuring the same construct as the other questions, and should be removed. Studying the effect of each question in this way is called Item Analysis. Validity Validity refers to the extent to which the measurement provided by an instrument agrees with the correct measurement. Instruments may be reliable but not valid, if they consistently give the same (but wrong) measurement and so both reliability and validity must be measured to assess instrument accuracy. There are two aspects of validity to be considered when testing a questionnaire: Content validity !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! 10 "Adapted!with!permission!from!Applied!Mental!Health!Research!Group!(2007)."Assessment"of"Urban"Street"Children"and"Children"living"in"Government"Institutions"in" Georgia:"Development"and"testing"of"a"locally6adapted"psychosocial"assessment"instrument." Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 28 ! ! ! ! This refers to whether the instrument is considered by experts to be appropriate for measuring what it is supposed to measure. Part of content validity is whether experts believe that the questionnaire covers all the important aspects of the concept being studied. In the course of this study and the previous qualitative studies we consulted two groups of ‘experts.’ The first group consisted of Haitian and U.S. psychologists/clinicians who helped us choose the YSR as an appropriate measure for this population. The second group was the local population, through the qualitative study; the choice of these instruments was also based on trying to achieve as close a match as possible to the psychosocial issues that emerged in that study. Criterion Validity This refers to the agreement between the questionnaire and an external measure (criterion) of the same construct known to be accurate. In other words, comparing the questionnaire with a ‘gold standard.’ In this study the ‘gold standard’ was a combination of the assessment of the staff of the institutions and the respondents themselves as to whether or not they had a mental health problem. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 29 ! ! ! ! Appendix C: Outlier Analyses Appendix C1: Outlier analysis of scale scores Scale YSR Subscales YSR Internalizing Problems YSR Externalizing Problems YSR Activities Competence YSR Social Competence YSR Academic Competence YSR Total Scales YSR Total Problems YSR Total Competence Haiti Scales Haiti Symptoms* Haiti Function Items* YSR-Haiti Subscales Combined YSR and Haiti Internalizing* Combined YSR and Haiti Externalizing* Time Point # of Outliers Baseline Retest Baseline Retest Baseline Retest Baseline Retest Baseline Retest 0 0 0 2 0 0 1 1 0 0 Baseline Retest Baseline Retest 1 0 0 0 Baseline Retest Baseline Retest 0 0 0 0 Baseline Retest Baseline Retest 0 0 0 1 Case ID F003, F024 T002 F011 F003 F024 *Not all respondents have complete data. Data presented for only those with complete data. Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 30 ! ! ! ! Appendix C2: Outlier analysis of difference scores Scale # of Outliers Case ID YSR Subscales YSR Internalizing YSR Externalizing YSR Activities Competence YSR Social Competence YSR Academic Competence 0 3 0 1 0 YSR Total Scales YSR Total Competence YSR Total Problems 3 3 F002, F005, F023 F024, C008, T001 Haiti Scales Haiti Symptoms Haiti Function 0 3 F001, F011, C008 YSR-Haiti Subscales Combined YSR and Haiti Internalizing Combined YSR and Haiti Externalizing 0 2 T001, F024 T001, F021, F024 F005 Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 31 ! ! ! ! Appendix D: “Youth Self-Report – Haiti” (English Translation) ! Assessment!of!Child!Survivors!of!Restavèk!in!Haiti:!Development!and!Testing!of!a!Locally!Adapted!Psychosocial! Assessment!Instrument! ! 32 9:14 AM Page 1 M PL E 4/9/09 SA 81945_CBCL_501 9:14 AM Page 2 M PL E 4/9/09 SA 81945_CBCL_501 9:14 AM Page 3 M PL E 4/9/09 SA 81945_CBCL_501 9:14 AM Page 4 M PL E 4/9/09 SA 81945_CBCL_501 Local Symptoms and Functioning Items 0 = Not true 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 0 ! 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 1 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 1 = Somewhat or Sometimes True 1. I am not comfortable 2. When other children are playing, I don't play with them 3. I stay by myself 4. I am always uncertain 5. I remember the bad moments 6. Sometimes I'm distracted 7. I feel distant from everything around me 8. Everything annoys me 9. I am sad 10. I am thievish 11. I am sorrowful 12. I have unruly behavior 13. I ruminate 14. I hit others 15. I don't trust people 16. I am always working and/or serving others 17. I get up early 18. I have difficulty learning in school 19. I don't want to go to school 20. I can be violent 21. I can be badly behaved 22. I give adults trouble 23. I feel I'm nothing 24. I am stressed 25. I don't listen 26. I don't take care of my hygiene 27. I am traumatized 28. I get angry 29. I can't express how I feel 30. I don't have hope in the future 31. I wet the bed 32. I feel ashamed 33. I am sad 34. I have emotional crises 0 0 0 0 0 0 0 0 0 0 0 0 0 0 1 1 1 1 1 1 1 1 1 1 1 1 1 1 2 2 2 2 2 2 2 2 2 2 2 2 2 2 2 = Very True or Often True 35. I like to go to school 36. I play with other children 37. I learn well 38. I eat well 39. I respect my parents or other adults 40. I feel comfortable 41. I go to school 42. I take care of my hygiene 43. I do all of my work 44. I am healthy 45. I have a lot of friends 46. I have leisure activities 47. I am intelligent 48. I am comfortable with the people around me
© Copyright 2026 Paperzz