ISSUE 3 AUTUMN 2013 WISECRAIC inside this issue NIAAS Report MindWise Awards Dear Reader… Welcome to our third edition of WiseCraic. Over recent months we have experienced some organisational change as we bid a fond farewell to Bill Halliday, CEO, who retired, and have welcomed on board our new CEO, Edward Gorringe. Read more on page 3. The Editorial Team continue to welcome all your submissions for publication in future editions of WiseCraic and while we would love to see all of your work included this is not always possible and for this we apologise in advance. Where we are unable to publish an article in WiseCraic we would aim to publish your contribution on the MindWise Website, www.mindwisenv.org, and will request permission from you to do so in advance. We will make every effort to reply to all advising them whether or not they have made a successful contribution. This really is a Magazine aimed at you the reader and we wish for it to be a place that has everything you would like to read. Please get in contact via email [email protected] or by phone: 02890402323. If you would like work included in the next issue please submit by the 12th December. Kind regards Dorothy Lawrence Editor (Publication of contributions is at the Editors discretion) Please find MindWise on Facebook: www.facebook.com/MindWisenv and on Twitter: www. twitter.com/MindwiseNV If you would like to still receive copies of “Your Voice” please arrange with the editor at: [email protected] Views expressed in this magazine do not necessarily represent those of Mindwise, unless agreed by the Board of Trustees. For reasons of confidentiality the testimonials used sometimes do not relate to the individuals photographed. Registered Charity in Northern Ireland Number NI071976 Registered Office: Wyndhurst, Knockbracken Healthcare Park, Saintfield Road, Belfast BT8 8BH MindWise is the operating name of Mind Wise New Vision a company limited by guarantee and recognised by HM Revenue and Customs as a charity for tax purposes. Transforming lives and developing new visions for mental health by challenging stigma and discrimination, and providing quality services and support. Editor: Dorothy Lawrence Print & Design: TH Jordan Ltd 2 WISECRAIC Editorial Team: Elaine Kelly, Anne Doherty, Gwynneth Witherow, Ken Bogle, Robert Mulligan, Fiona Scullion. Contributors: Dr Boris Pinto, Caroline Mc Menamin, Eileen Sweeney, Ross Thompson, Stanley Booth, Stephen Carson, Julie Russell, Gerry Leavey, Dr Joy Bell, Dr Vanessa Craig, Julie Hill, Michael Sheane, Mirjam Bader, Joice Mathew © MindWise 2013 Inside Features 3 CEO Letter 4 News Section 5 News section (NIAAS Special report) 6 Complementary therapies 7 Knowing disorders 8-9 Research article 10-11 Day in the Life: Banbridge 12-13 Puzzles section 14-15 Pressing Play 16 Service User story 17 Criminal Justice 18-19 Creative section 20 Book reviews 21 MindWise Awards 22 Volunteer Section 23 WiseWords Letter from CEO… Hello! By the time most people read this I will, God willing, have started work as the new Chief Executive of MindWise. I am therefore taking this opportunity to pen a few words of introduction before I hopefully get out and about to meet you all. As yet there is no photograph to accompany this piece, and while that may actually be a blessing, the wonders of Google and LinkedIn will satisfy the curious. My background includes spells working within the voluntary sector and with client-centred organisations and I am really excited about moving to MindWise. I am fully aware of the high regard in which MindWise is held within the sector and of the many strengths that exist. This is a great tribute to the Trustees, my predecessor Bill Halliday, the management team and staff, the volunteers, and the service users and members. I will be doing my very best to help build upon this impressive foundation and to lead MindWise in the next phase of what is an exciting journey. We do indeed live in ‘Interesting Times’, and we undoubtedly operate in a challenging environment, but the record of MindWise to date shows an ability to grasp the very real opportunities that exist. I look forward to being part of an exciting, rewarding and enjoyable future! As I said at the beginning a priority for me will be to get out and about and to meet as many staff and service users as possible. This will be essential for me if I am to really get to know the organisation, so please do take the opportunity to introduce yourself and to tell me about the role you play. Equally, you should know a little about me, so I will be very happy to answer any questions you might have as I go around. That is probably enough from me for now; I look forward to our next meeting being face to face at a service near you. I am fully aware of the high regard in which MindWise is held within the sector and of the many strengths that exist. Edward Gorringe New CEO of MindWise WISECRAIC 3 NEWS SECTION We are pleased to announce that the Butterfly Ball will be taking place next year! Date for your diary - Butterfly Ball 2014 It will take place on Friday 6th June 2014 in the Culloden Estate and Spa and will be compered by Tim McGarry. Tickets will be £50 per person and will include a four course meal and entertainment. A discount is available upon purchase of a table of ten. The event is very much at planning stages but if you would like to be kept up-to-date with progress, just send your name and email address to [email protected] and you will be added to the Ball database. If you have any suggestions or would like to sponsor the Ball in any way, please contact Catherine at [email protected] or by phone on 07928 140675. Annsgate Raymond Gray, local Antrim taxi driver presenting a cheque for £1960 to Karen Crothers, Registered Manager, MindWise Belfast. Raymond Gray The annual Annsgate Golf Competition - the Richard McCombe Memorial Cup was hosted at Carrickfergus Golf Club in August. Thanks to all who made donations and joined us on the day. The weather was generous too which contributed to another successful event in Annsgate’s calendar. MindWise Graduate Joice Mathew, Registered Manager MindWise Lurgan & Banbridge Resource centre, and MindWise Millmount Housing at Banbridge who recently graduated with southern regional college with CITY & GUILDS LEVEL 5 DIPLOMA IN LEADERSHIP FOR HEALTH AND SOCIAL CARE SERVICES (ADULTS’ MANAGEMENT) (WALES AND NI) (QCF). MindWise Lurgan Award Survey. Craigavon based company Almac has made a £1,000 donation to each of the three charities its employees have selected as part of Almac’s Employee Charity of Choice initiative. Almac Employees Reward Macmillan Belfast, MindWise Lurgan and Craigavon’s Neonatal Unit in Annual Charity of Choice 4 WISECRAIC Joice Mathew MindWise Abbeyside Tenants at MindWise Abbeyside, Antrim had a 3 mile sponsored walk at Castlewellan Forest Park on Friday 6th September. The walk raised £585.20. NIAAS Special report The Northern Ireland Appropriate Adult Scheme completes another year. Between the 1st July 2012 and 30th June 2013 the NIAAS staff received 1891 requests to attend police stations across Northern Ireland to support vulnerable people, a 15% increase on the previous year. The service was delivered 365 days of the year between 08.00 - 23.00 hours, with an out of hour’s facility explaining specific challenges and complexities but I can confirm that vulnerable people were navigated through a series of legal processes that were intimidating and alien to them, in a caring supportive way that was worthy of the MindWise ethos. available for overnight attendance, which was utilised this year on 81 occasions. Staff attended PSNI stations province wide, regardless of distance, weather conditions, unsocial hours, or public holidays, such as the four calls we attended on Christmas day. Confidentiality prevents me from What does an Appropriate Adult do? Our Appropriate Adults ensure that Police adhere to correct procedures. This includes examination of understanding custody records, explaining to a person their rights, and the interview process, knowing the cautions and special warnings and when fingerprints, medical examinations and samples are required as well as being familiar with the charging and disposal methods. This can on occasions be a difficult role which requires the skill to discuss issues with police on behalf of the detained person and I can assure you that interrupting a Police interview requires a particular sensitivity and is not done lightly. The pattern of appropriate adult attendance 231 255 178 167 134 133 124 83 91 79 89 74 76 57 39 29 8 0 1 3 2 2 3 2 4 2 3 4 5 6 7 8 28 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 Who are the people we support? Anyone who has been arrested by Police or attending a Police Station voluntarily to answer questions may require our support if they are mentally vulnerable. We are non-judgemental, whether a person has committed an offence or not is not an issue for us. Whether or not that person understands exactly what is happening and why is a concern of ours. Generally we encounter people with a diagnosis’s of depression, anxiety, schizophrenia, bi polar disorder; attention deficit hyper activity disorder or young people whom we support because they are vulnerable by virtue of their age. We encounter head injury that affects a person’s memory or a personality disorder affecting a person perception of events and occasionally we encounter posttraumatic stress disorder in former military personnel. MindWise We remind all people we encounter that we are from MindWise, and it’s not unknown for a violent person to calm down once they hear “Hi I am from MindWise”. The schemes success is an organisational one. The support of Chief Executive, Deputy Chief Executive, Board of Trustees, and Senior Management Team all played its part, with a particular thanks to the administration staff and financial staff, for their support during the year. I believe that this scheme has shown year on year that MindWise as an organisation can deliver professional services within the Criminal Justice environment and will continue to do so. Stanley Booth M.B.E. Appropriate Adult Scheme Manager WISECRAIC 5 Complementary therapies ‘Season of mist and mellow fruitfulness’ was how the poet John Keats described autumn; how many of us see it as that I wonder rather than as the doorway to winter? We have had a wonderful summer, soon though we know we will be pulling on our winter coats and woolly hats and boots as we meet the colder months of winter and we can just feel those winter blues coming on. advice you need about the grants and benefits that are available to help you keep your home warm. The Warm Homes scheme www. warm-homes.com will provide information about whether or not you qualify. So how do we beat those blues? Well one good way to do it is by being prepared, we know it’s coming so let’s get ready for it! Some tips that may help: Eat healthily – it’s easy to slip into comfort eating in the winter months and to fill up with carbohydrate heavy foods like potatoes and pasta. Try to balance this to make sure you still eat plenty of fruit and vegetables. Keep active – in the last newsletter I mentioned the benefits of physical activity and how it is not only good for your body but is also good for your mind, well it’s still important in the winter months to get that boost from fresh air and daylight so when you can, get out for a walk in the middle of the day; even a short walk round the block will help. If you have to stay inside, try to get as much light into your home by keeping your curtains or blinds open for as much of the day as possible. Keep warm – ok that sounds obvious but we all know how expensive it is to keep our homes warm in winter now that fuel is so expensive. If you rent or own your home, make sure you have all the 6 WISECRAIC Remember to wear layers to help keep warm, both indoors and outdoors. The layers create air pockets in between the layers which are insulated by your body heat and helps keep you snug. Go back to basics with a hot water bottle or use one of the heat packs you can warm in the microwave. You don’t need to keep these just for bedtime either, you can wrap them up in a rug and use them to keep you snug when you are sitting watching TV. We know how important it is to start the day with breakfast, a bowl of porridge is cheap and you can add a handful of fresh or even dried fruit to help you get your five a day. Winter is a great time for making soup and this can be a really easy and healthy way to eat those vegetables. Homemade soup is cheap and easy – vegetables, a couple of stock cubes and some water = tasty soup. If you don’t already have one, invest in a basic hand blender (about £12) and you can blitz the veg down in seconds. If I’m in a hurry I sometimes cheat and buy the bags of mixed vegetables like sweet potatoes and butternut squash (especially if they are on offer) and use them to make a few bowls of soup for healthy lunches. This links to another thing that is important in the winter months, having something to focus on and keep you occupied, especially if you are stuck indoors for a time. Can you take up a new hobby – (maybe cooking?) that will keep you interested during the winter months; or pick up on a skill that you had forgotten? Winter is a great time for classes in the community - check your local community centre and library about groups and activities that are available; check if there is anywhere you can access free or reduced rate complementary therapies or gym sessions. Going to something new like this once a week, even for a few hours will give you something to focus on the rest of the week. Keep in touch with friends and family. If you are feeling a bit down, don’t keep it to yourself, talk to someone you trust. Sometimes just sharing how we feel can help to break the cycle. Socialising is good for your mental health, it helps to lift your spirits and you might even link up with a friend or family member to help you keep motivated with keeping active or going to a class. And you can always invite them round for a bowl of that soup...! Eileen Sweeney Knowing disorders Depression Feeling depressed is part of normal emotional life and we all face difficult periods in our lives. However, when low mood remains persistent and is associated with certain core symptoms (see below), it may be a sign of a significant depressive episode that needs treatment. Just under 1 in 5 people will suffer a significant depressive episode in their lifetime. How do I spot the signs? Sometimes there may be an obvious reason for becoming depressed – a relationship breakdown, a bereavement or even the birth of a child – sometimes, it is not clear. Depressive episode (several symptoms are continuously present for at least two weeks): • Feel unhappy almost all the time • Lose interest in things normally enjoyed • Sleep pattern is disturbed / feel tired all the time • Stop eating / lose weight • Feel anxious or agitated / can’t make decisions • Feel hopeless about the future • Lose interest in sex • Headaches or pains and aches that cannot be explained medically • Thoughts of wanting to be dead or suicide In severe depression, people can become ‘psychotic’ - they lose touch with reality and have ideas that seem very strange to everyone else (see previous article on Psychosis). In depressive psychosis, they may have ideas that they are guilty of bad things happening in the world, that they are dead or do not exist. In severe episodes, people may hear voices and see things that are not there these are called hallucinations. Seeking help The onset of depression can be slow, so the affected person may not be aware that they are unwell. Often, it is quite clear to others that someone is not behaving like their usual self. Encouraging the person to attend their GP is the first step. If a depressed person is having thoughts of suicide, it is obviously vital to seek medical help urgently. If a woman develops depression in the weeks or months after having a baby, it is very important to seek help urgently – this type of illness can be very serious and if untreated, there may be problems for the new mother bonding with her baby. Treatment Most people with depression can be treated in the community through their GP and primary care services. • Self-help: Avoid drugs and alcohol. Talking about worries and problems with friends and loved ones is important; they may be able to help. Often, people become depressed while caring for a sick or disabled relative; getting respite care and attending a support group can be helpful. • Talking treatments: There are several different types of talking treatments. Counseling is offered by community voluntary services, but may also be accessed through a GP. Cognitive Behavioral Therapy (CBT) is very effective and works by helping people overcome their negative thoughts. There are also now a number of self-help books and computer programs based on CBT for depression. Interpersonal therapy is another type of one-to-one talking treatment that shows good effect in treating depression. • Medication: Antidepressants can help if the depressive illness is severe or goes on for a long time. Medication can help with disturbed sleep and anxiety symptoms, which can allow the affected person to make further steps in getting better or engage with talking therapy. Antidepressants do not work straight away - people often don’t notice any improvement in their mood for 2-3 weeks. • Severe or psychotic depression: In rare cases, a depressed person may need to come into hospital. This is often because they are not eating or drinking or having serious thoughts of harming themselves. They may need additional treatments like antipsychotic medication, lithium or electroconvulsive therapy (ECT). Boris Pinto Royal College of Psychiatrists WISECRAIC 7 Research complementary therapies: Current Challenges Affecting Treatment and Care of Patients with Alcohol Relate Brain Damage in Northern Ireland Dr Joy Bell, Senior Psychiatry Trainee Dr Vanessa Craig, Senior Psychiatry Trainee The extent of alcohol misuse in Northern Ireland In Northern Ireland it is estimated that alcohol misuse costs health and social care services over £170 million per year. More specifically £65m-£72m is spent per year in acute hospital admissions and £16-£30 million per year in A&E attendances. The total number of acute hospital episodes wholly attributable to alcohol in 2007/08 was 11,899. There is no single cause of ARBD but it usually results from a combination of factors, including the toxic effects of alcohol on brain cells as well as vitamin and nutritional deficiencies. It can be complicated by the presence of traumatic and/or vascular brain injury. The condition is thought to be significantly under diagnosed (in up to 90% of cases) for various reasons including issues of awareness, limited screening tools and a lack of adequate service pathways and available treatments. It may be present in up to 30% of the alcohol dependent population. What is Alcohol Related Brain Damage (ARBD)? How can ARBD be treated? ARBD is a relatively newly coined term which describes the long term effects of excessive alcohol consumption on the structure and function of the brain. Patients may present with symptoms caused by frontal lobe abnormalities and/or memory loss. Due to their complex needs this group of patients typically present in crisis on a regular basis to acute medical hospitals where they can remain as inpatients for prolonged periods often due to psychosocial problems. The incidence of this condition is increasing in the UK. Research demonstrates that patients with ARBD have potential for recovery if treated with abstinence based rehabilitation. Outcome studies demonstrate that 75% of patients with ARBD achieve some degree of recovery, with 25% making full recovery. It has been shown that placing these patients in generic nursing homes may be deleterious to recovery. Specific ARBD nursing homes and individual rehabilitation programmes, akin to those that are available for traumatic brain injury, are thought to be more conducive to recovery. 8 WISECRAIC Current service provision in Northern Ireland Patients with ARBD can come to the attention of various specialties including: alcohol treatment services, neuropsychiatry, general medicine and surgery, general psychiatry and brain injury services. There are currently no clear pathways of care and no defined clinical responsibility. This can mean that patients encounter many services without receiving any meaningful treatment. Engagement with services can be made more difficult by the presence of cognitive deficits which may be perceived as the patient having “no motivation to change”. Furthermore following detection of the condition options for specialised rehabilitation are limited. There are a small number of ARBD specific care facilities in the community, some of which are implementing their own rehabilitation programmes. There are no recognised standards for such programmes and no neuropsychology input. In the Bamford Review of Mental Health and Learning Disability in Northern Ireland it was highlighted that there is a lack of information on the extent of ARBD. It stated that this population is likely to be interspersed throughout several programmes of care often without a formal diagnosis. It is suggested in the document that a report should be commissioned to establish the extent of ARBD in Northern Ireland in order to develop pathways of care which address emotional, cognitive, behavioural and social needs of people with this condition. Stigma remains a problem in the world of mental illness. This may be exaggerated in the case of alcohol related brain damage in which patients are often seen to be the “cause of their own circumstance”. We do not refer to ‘smoking related’ lung cancer or ‘road accident’ related brain damage. Patients with ARBD often present with impaired capacity, particularly in relation to their living arrangements. In Northern Ireland community treatment orders are not currently an option. There is an on-going review of the Mental Health (Northern Ireland) Order 1986, with plans to introduce new legislation on capacity. Guardianship orders are used for some of the patients with ARBD living in residential homes. Action in Belfast An audit of service needs of patients with ARBD has been carried out within the Belfast Health and Social Care Trust. This trust serves a population of approximately 350,000 people over three acute hospital sites. The audit targets patients in acute hospital wards including general medicine, hepatology and gastroenterology. Patients at high risk of developing ARBD are referred to the audit and are screened using the following criteria which is derived from research on ARBD detection7. 1. History of drinking 35 units of alcohol or more per week for five years or more 2. Documented concerns about cognition or capacity The ultimate aim of the audit is to understand the likely scale of the problem of ARBD in Belfast with a view to presenting the need for improvement in services. The ARBD audit in the Belfast Trust demonstrates a need for improved ARBD services. It is currently likely that a significant number of patients with chronic alcohol misuse are discharged from hospital with undiagnosed cognitive impairment. This same group of patients have associated prolonged and recurrent hospital admissions, therefore, the development of ARBD services may provide improvement in quality of life for these patients as well as reducing health and social care costs. Shared by Gerry Leavey 3. Three or more alcohol related admissions into hospital and/or A&E in the past year OR One or more delayed discharges from general hospital wards in the past year. WISECRAIC 9 Day in the Life: complementary therapies: MindWise Banbridge Resource centre Banbridge service provides flexible day services and programs of care and support for individuals affected by severe mental illness / mental health difficulties, their families, dependants and carers. The service operates against MindWise generic Modernization template which is adapted to meet service specific needs e.g. cultural diversity programs, geographical and gender specific programs. Banbridge service is provided: 22.5 hours per week 10.00am – 2.30pm; 5 days per week (Monday – Friday) excluding bank holidays The age range is over 18 years and upwards and over 65 if the service can meet the needs of the individual. The service can accommodate up to 20 people per day and is used by more than 40 Service Users. The activity programme includes: Activities within the local leisure centre including, bowls and boccia Swimming & health suite Weight management programme Walking group, with staff completing walk leadership program Stress management Alternative / complimentary therapies Nutrition Various partnership working with other organisations including: “Cook – It” programme facilitated by Action Mental Health; New year New activities in partnership with REACH 10 WISECRAIC Building the Community Pharmacy Partnership Self – management Out and about group Creative dance Writing groups Arts & crafts Community outings ICT support Daily living skills Banbridge Charity Shop The service provides a charity shop which also sells items of up cycling and refurbished by Service Users in the Service. Staff Profiles: Joice Mathew Registered Manager MindWise Lurgan, Banbridge Resource centre, Banbridge Charity Shop and Millmount Housing. Joice has worked for MindWise for over 6 years and is the Manager for the MindWise Lurgan, Banbridge Resource centre, Banbridge Charity Shop and Millmount Housing. Joice with his small staff team supports up to 20 people per day in Banbridge and 6 tenants in Millmount . Joice has secured funding for and managed several community pharmacy initiatives, Awards for All, Art projects etc previously. Joice listens to what the service users want and need and strives to ensure the activity plan best meets their needs and in doing so enhances their confidence, skills and social interactions. Joice’s activities have raised awareness of MindWise amongst the wider community; positively impacted on the wider community’s perception of mental illness and supported and encouraged partnerships working at a local level. Joice has also connected with local politicians to raise the profile of MindWise and lobbying those that can improve mental health services. Joice also organized several open days and cultural events to raise the profile of the organization. Siobhan Conway Siobhan is a community mental health worker based at the resource centre in Banbridge. She has worked with Mindwise for the past 16 months. Prior to this she worked as a support worker for Mencap at Riversley Supported Living Centre also in Banbridge. Siobhan is involved in the day to day running of the resource centre, planning daily activities and supporting the 40 or so services users who attend the centre on a regular basis. The staff and volunteers work to create a safe, warm and comfortable atmosphere at the centre so that all those who attend see it as a positive and uplifting part of their lives. Siobhan enjoys working in partnership with the other services and agencies in Banbridge that support the service users to live independently and contribute well to the Banbridge community. Vanessa Murray Vanessa also works as a community mental health worker and for two days is also based in the Banbridge resource centre. For the other three days she provides a support service for 6 tenants in supported living. Vanessa has worked for MindWise for 15 years, prior to this she was busy bringing up children and throwing herself into numerous courses. In the resource centre my role would be similar to Siobhan’s, if I get the time I love to participate in anything creative, we have recently started a project ; Funky Junk. Which involves ‘upcyling’ old furniture, this has being very successful, however with time restraints we are not achieving our full potential. It would be good to acquire a good creative volunteer for this project. It may sound like a cliché but we are like a big family in Banbridge and everyone looks out for one another, staff and service users alike, I couldn’t imagine working anywhere else. Catherine King (Rene) Rene worked with MindWise for 13 years, started out in Portadown resource centre, moved to Lurgan resource centre and now works with Millmount. Previous to this she worked for Praxis as a home response support worker. Rene works 3 days a week in Millmount supporting 6 tenants. She enjoys working for MindWise. Joan McConville Joan came to MindWise on Steps to Work programme and then on 50+ Step Ahead work placement. Previously she taught for 20 years for SRC in Portadown. She has now with MindWise approximately one year and considers her main role to be supportive to staff and volunteers. Joan has found her time with MindWise so fulfilling that she intends to return as a volunteer immediately after her work placement ends. WISECRAIC 11 WORDSEARCH E A C W J W B Y Q B T M R T X T Z V W W Q R N H U G M G O A J R N I H R R W M T S Q U Y A J D O X S T E H W Y O V Q B X O U R T W R K S S C M H G W X P P P B Q S Q H K I S I D G E W K G W Z P U P V B M Z S L H N L T G V Y O T I G U A P C B I Y R O U X R A Y W Y D Q S N S U M H B Z P P D G S N U Y S S X P E V G W F R B Z N X U M A E W F O H P X C M N N M A G H H L Q M N X G R E B O L R K I Z G Q O S S S F L B V D F X L B P A I T D R F R R M L G N I S U O H B Y W I M A M A E A P E M M G K V H M E I S T C I O T G Y B S L O Z H W H K T W L P I S U L Y M U J C A R E R S S E R V I C E J W F Y R F V Z I D N U M A G Z I P X X W D E C I C J X Q F Y L I M A N Y O V N Z I W N M E S B H Y G F V P W I D Z P U Q Q H Y S E Q G Z B G Q I U W V N B X S U X O O D N A Q Y G P A U Z U G X N S B V V S O C W F BOOKSHOP FLOATINGSUPPORT NIAAS CARERSSERVICE HOUSING SELF-MANAGEMENT CHARITYSHOP NEWSTYLEFURNITURE WISECRAIC 12 WISECRAIC CROSSWORD 1 2 Across 4. How often is WiseCraic released? 3 7. Abbeyside is which kind of service? 8. Who runs the self-management programme? 9. WiseCraic is aimed at? 4 5 10.What day was the 10th October? 6 7 Down 1. New CEO? 2. New Style Furniture is based where? 8 3. Find the First Word D..r.....e psychosis 5. E….. Kelly (Who is the Volunteer coordinator?) 10 6. Chair of the All Party Group? QUIZ 5) Where is Head office? 2) 19th October 4) Who is the New CEO? 3) Belfast Castle 3) Where was the AGM Held? 4) Edward Gorringe 2) When was the staff and Volunteer Awards Held? 5) Knockbracken Health care park 1) World Mental Health day was when? 1) 10th October Answers: Answers can be found opposite. WISECRAIC 13 Pressing Play: complementary therapies: By Caroline Mc Menamin Having a Mental Health issue doesn’t always mean that you’ll suffer from it all the time. Although, it can mean you’re more susceptible to setbacks. Some people have to take a little bit more time to adjust to situations and events and take a little bit more time to nurture themselves in face of adverse conditions. I recently had a setback. My anxiety levels rose, panic attacks were prevalent and my O.C.D began to fester. I felt like a failure. I hadn’t had a panic attack in over 14 WISECRAIC three years and I thought I was ‘past all that’. This meant I had to take time out. So I had to cancel all my clients and pull out of all events. The pressure, stress and anticipation of a family member’s health, a matter of life and death, was a trigger and surely taking its toll on my ability to function normally in my daily routine. I was losing my confidence, I had fear over becoming depressed again and not being able to ‘get over it’. I had feelings of complete terror over ‘losing’ myself, my identity and being consumed by a disorder that I was fighting hard against, and was winning, until when I wasn’t looking, the enemy came up and got me in a headlock which I had no ability to get loose from. I became very sensitized to everything. The thought of leaving the house was terrifying and I just wanted to stay in my bed, reality was too much for me. I was convinced that this was it, my career was over and my life was going to be like this from now on. The last time I had a setback it had lasted over 7 months, and now here I was, back at the start again. My life had stopped. Two weeks later I was back to feeling my normal self again. “Life is a stage on which we experience the comedy and tragedy of our fate, it’s up to ourselves to be the hero.” Never in my life had I had a setback that just lasted two weeks. My confidence was restored, I was ambitious again, creative, energetic and completely in love with life again. So what helped me press play on my life again? Firstly I acknowledged that I was not in a good place. I told my family and clients, I was honest. I didn’t have the energy to pretend that things were not what they were. Being honest and telling people that I had to take time out was such a pressure taken off me. I was received with compassion, empathy and the utmost support. This taught me that it’s important to be true to yourself and to take the time you need to rejuvenate, even if it means admitting a certain weakness. I felt my shoulders relax. I secondly decided that I would nurture myself. I was so busy since the start of the year that I felt it was time for me to sit and not think about other people’s issues and actually focus on myself, even though I felt I was neglecting my clients. I knew that I couldn’t help them if I couldn’t help myself. So I knew I had to do this for everyone. My mornings were filled with panic, anxiety and sickness from nerves. My mind was a fog, I couldn’t think rationally and logically. I decided that I would meditate. I had meditated before, but I didn’t feel any different. Although, now I needed something to stop the adrenaline pumping through my body, I needed to feel peace. My laptop was in front of me and it was the only thing I could think of. So I went on ‘You Tube’ and searched for ‘Guided meditation music for anxiety’. I found some and I hesitantly lay in one spot, my body shivering and my mouth dry, feeling like 2% of the person I had been the week before. The meditation music started. I felt my erratic heart slowing, shivering stopping and my body warming up. It was soothing me, I felt considerably more relaxed and my mind felt clearer. For the next week I meditated every morning before I could let my mind take off on an expedition of panic and turmoil. I retrain my thoughts and my body’s reaction to them whilst in a meditative state. I was beginning to disarm the negative thoughts with positive and realistic thoughts and expectations. I read more on anxiety, studied O.C.D more so that when I did have bad feelings and thoughts I neutralised them by understanding that they were just a symptom of anxiety and O.C.D, they were not real. Doing this stopped them before my body could react to them with panic and terror. Within days of intensive monitoring of my thoughts, feelings and moods and learning how to change my thought patterns, I was becoming myself again. I couldn’t believe how a little self-nurturing was helping. I was pressing play on my life again because I chose to. The difference this time was that despite the fact that I was in complete mental agony I didn’t sit in self-pity. I, now, acknowledge that I’m susceptible to setbacks, but I have the power to bring myself forward again. I came across a quote which I identified with “It is the deepest pain which empowers you to grow to your highest self’’. From this I decided that ‘this is meant to happen so I can appreciate life more’. Perhaps a drop is needed so you can appreciate how high you’ve been and show how far you can go, strive towards and go beyond. Life is a stage on which we experience the comedy and tragedy of our fate, it’s up to ourselves to be the hero in our lives and not the victim, to empower ourselves and to do all the things that gives our audience something to remember us by. Caroline McMenamin WISECRAIC 15 Michael’s Story: Michael lives in supported housing provided by MindWise. He is 66 years of age and has experienced Mental Health problems from a very young age. He is diagnosed with schizoaffective disorder and has had a very successful writing career, he has had 21 published books on Irish history and is currently working on his 22nd book. Michael describes living in England and experiencing symptoms but he kept them to himself. He then returned to Northern Ireland and was admitted to hospital. When he was initially diagnosed he thought he would be cured straight away and didn’t think this would be a long term condition. About 20 years ago he was in and out of hospital. In 2000 Michael moved to MindWise’s 24 hour supported housing service and a year later moved into the independent accommodation. Michael describes how he doesn’t tend to suffer so much from the schizoaffective symptoms now at this age but does describe more symptoms of anxiety and stress particularly when using public transport or taxis but went on to say even though he experiences these difficulties he won’t let it stop him getting out and about. I asked him if he had experienced any negative aspect of growing older and having Mental Health problems and he talked about how well he had been supported by his Community Psychiatric Nurse and MindWise, that he hadn’t experienced any ageism. He said he hadn’t experienced social isolation especially with the friends 16 WISECRAIC he had made at MindWise and that staff in the service encouraged him to lead a healthy lifestyle. Often people who are older and have Mental Health problems will become socially isolated; lose their independence; and don’t receive the level of support or care that they need from health professionals as there is a perception that a decline in Mental Health is an inevitable part of growing older and are not seen as contributing or being a valued part of society. Michael provides an example of an independent successful individual who has not let his Mental Health or age prevent him achieving his goals and enjoying life. MindWise operates a step down model for its housing services so that when somebody needs intensive support they get it but when they improve and are able to live independently they should be supported to do so and this was evident in Michael’s move from one house to another to live more independently. MindWise’s ethos is very much that it is a person’s home. In some cases the Health Trust will try to move an individual who is getting older, from their supported housing to accommodation that is specifically for older people. MindWise advocates that as far as possible the service should adapt to meet the needs of the individual rather than the individual having to change or move because the service can’t meet their needs. “Often people who are older and have Mental Health problems will become socially isolated; lose their independence” Julie Hill (Director of Workforce Development) Sept 2013 with thanks to Michael for sharing his experiences. Criminal Justice: Anyone who has had a look at the MindWise Business Plan for 2012 – 2017 will have seen our commitment to continue to grow and expand business in the criminal and youth justice area. As this is a relatively new area of work for us, I would like to tell you more about it. MindWise has successfully delivered the NI Appropriate Adult Scheme (NIAAS) since 2008. This service provides support to young people and so-called mentally vulnerable adults who have been arrested by the police where no parent, guardian or other appropriate adult is available. Then in 2010, BBC Children in Need started to support my post of Youth Manager to oversee the implementation of the targets included in the MindWise Children and Young People’s Strategy. As part of this role, I identified a major gap in current provision of support to meet the needs of young people who offend. currently is no Mental Health and well-being support for the 95% of young people released from police custody after arrest. Therefore, despite experiencing above average levels of need and being involved in offending, no specific support was being made available to this group. Instead of taking the opportunity for early intervention, only if or when a young person ended up in a Hydebank Young Offenders Institute or after their release from prison custody was individual support made available. What was already very clear to the Appropriate Adult Scheme Workers was that young people released from police custody after being bailed, receiving a caution or a no-further-action decision experienced many problems impacting on their Mental Health and well-being. Furthermore, they realised that especially young people detained by the police found it difficult to understand and stick to bail conditions or understand the implications of not attending a bail meeting or court hearing. All this was confirmed by an analysis of existing research into the needs of young people in the criminal justice system from both NI and around the rest of the UK which I carried out. In line with the target included in the MindWise Children & Young People Strategy of ‘developing models of support, in collaboration with Criminal Justice system, to meet the needs of young people leaving custody’, I then developed a new service delivery model. With support from the NIAAS Manager and other members of the Senior Management Team, a successful application was made to the Big Lottery for a 4-year pilot project; called the Linked-In Project. Workers based in Belfast, Antrim Town and Derry- Londonderry who receive referrals from NIAAS Workers, PSNI custody staff, community police officers and other professionals involved in working with young people aged 13 to 21 who are at risk of offending. So far, feedback from both service users and juvenile / criminal justice agencies has been very positive. However, most importantly what became evident was that there The work to meet the Mental Health needs of both young people and adults who come into contact with the PSNI and the courts, as either a defendant or a victim or witness, continues with Children in Need supporting my post part-time for the work in relation to young people. The three main issues currently being worked are the need for: • An appropriate adult-type service for young people age 13 to 18 and mentally vulnerable adults who are interviewed by the PSNI as victims or witnesses; • An improvement to the way in which the PSNI monitors, records and uses mental health issues and risk factors (like for example alcohol and drug misuse) in the custody suite; • Improving the ways in which community police officers can improve screening and signposting for Mental Health problems and associated risk factors and stressors; • The monitoring of the effectiveness of support for people experiencing severe Mental Health conditions who come into contact with the PSNI and forensic Mental Health services. If you would like to find out more about my work, please feel free to give me a ring or send me an e-mail. Mirjam Bader Young People / Criminal Justice Manager [email protected] WISECRAIC 17 Creative Section by Ross Thompson My Shadow My dark companion, Shifting and changing shape in the light. Moving as I move. One with me. Flickering against the wall in the fire light. Lengthening in the sun as I walk along. lf I lost my shadow I would lose my very soul; like a lover’s soul. A dark side perhaps to my soul, as reflected in the shadow. Anonymous 18 WISECRAIC by Ross Thompson We welcome all submissions for our creative section. If you have anything you wish to submit please contact head office on 028 90402323 or email directly to [email protected] Please do so by the 12th December for consideration for next issue. by Ross Thompson WISECRAIC 19 Book Review: We would welcome submissions of Book Reviews from all readers. Please contact dorothy.lawrence@ mindwisenv.org or 02890402323 for more information. The following reviews have been supplied by the Health in Mind Team. Author: Robert Anthony Welch Title: Kicking the Black Mamba (life, alcohol and death) ‘We say of things we fear may work out badly, though we may not have enough evidence to be certain of failure, that we have ‘misgivings’ – a strange and wonderful word.’ The author tells the story of the life and death through depression and alcohol addiction of his much loved son. The story was made all the more vivid and heart-breaking to me as it all took place in Coleraine, where I live, and Author: Kate de Goldi You can’t help but love Frankie Parsons who is 12 but carries the weight of the world on his shoulders. While most of the people around him seem to have no worries, Frankie worries about lots of things and especially about looking after his mum. She’s the only person WISECRAIC Robert Welch succeeds in making the reader see his son Egan through his eyes, not as an alcoholic but as a beautiful, intelligent boy; a gentle, caring and generous man whose life is blighted by addiction and who tries so hard to overcome his demons. The family goes through many torments as they all try to help. Welch is a poet and he uses the words of poets to help him express his feelings and his grief and to try to make sense of this terrible experience. It’s not a big book but it expresses big emotions and will stay in my mind as a story of the strength of family love. Title: The 10pm Question “He was a funny guy, and a smart one- and the smartest thing about him, in Frankie’s view, was that he never, ever, ever worried.” 20 I found I knew some of the people involved. who seems able to calm his fears and he often has a chat with her at 10pm, before he goes to sleep at night; but Frankie’s mum has difficulties of her own and hasn’t been out of the house for many years. This is something Frankie tries to ignore and keep secret. Then a new friend breezes into Frankie’s life; she is bold and fun and inquisitive… and Frankie’s control begins to slip. This is a lovely story of friendship and also deals with the challenges of phobias and anxieties. Julie Russell Health in Mind Team, Libraries NI Awards MindWise held our annual staff and volunteer awards on the 19th September at Belfast Castle. It was a wonderful day of celebration to honour those that really are the foundation of MindWise. Below is a list of our winners and some beautiful snap shots of the day. Volunteer Winners: Staff Winners: Internal Volunteer Award Thelma McCullough Exceptional fundraising/ lobbying/campaigning Gwynn Witherow External Volunteer Award William Brennan Miriam Walsh Charity Shop Volunteer Award Ruth McKenzie Patsy England Volunteer of the Year Award Ruth McKenzie Open Your Mind Student Award for Mental Health Campaigning Laura Mocanu Open Your Mind College/ University Awards for Mental Health Campaigning University of Ulster Students Union Volunteering over and above job role Suzanne Allen Exceptional support to service users/volunteers/ members/carers (underpinned by Recovery) Samuel Redfern Exceptional work during difficult or in challenging situations Elaine Kelly Exceptional partnership working Lisa Devine Tom Beare Award Maureen Foley Health in Mind Volunteer Award David Smith WISECRAIC 21 VOLUNTEERS SECTION MindWise could not exist without the valuable work from all of our Volunteers across the organisation. Volunteer Tatiana Therrien who was an events volunteer for the Butterfly Ball earlier this year shares her story of why she volunteers with MindWise. “It all started on front of a computer screen, where many voluntary work opportunities were popping up out of the blue. I wanted something related to cultural activities, parties and languages since tourism management (the program that I am currently studying in) requires work or voluntary work experience in organising big events. During that time, I was unsure if I wanted to follow the course to become an event planner. However, at the moment that I saw the advertisement of MindWise, I just whispered to myself ‘’this is my chance to gain skills and to know if I am in the right direction’’. Helping Catherine and Gwynneth to organise the Butterfly Ball was an unforgettable experience to me. Catherine actually inspired me as she was taking care of the most important details for the ball such as goody bags, prizes, tables, musicians... and the list never ended! At that moment, I realized that I wanted to be like her, the woman who would organise the whole ball from A to Z! Not only that I found the answer that I was searching for but I got to volunteer for a very good cause. This experience enabled me to understand that every little help that you give matters. No matter what you do for MindWise, you can surely be proud of yourself. Also, I got to meet the other volunteers who had other tasks to take in and they were all sweet and kind. I can assure you that being part of MindWise is like being part of a family 22 WISECRAIC I can assure you that being part of MindWise is like being part of a family that cares for every single human being who has mental issues. Since I moved back home, I got many student job offers and not because of my work experience in catering and retail but because of my voluntary work at MindWise. I conclude that doing something good for the society is a very important duty to do as a citizen. I would like to thank all the staff members at MindWise for giving me the opportunity to learn more about myself and to find ways to help the rest of my surroundings.” If like Tatiana you would like to volunteer for MindWise we are always looking for more volunteers currently we are recruiting for more helpers for our BallyClare Bookshop. For more information on how to get involved as a volunteer, please contact Elaine, Volunteer Co-ordinator on 028 9031 5060 or by email at [email protected]. information page: WiseWords Have a worry window in your day take ten minutes to worry about everything...then close the window. Try to have a mind like a rubber ball; when it hits a wall, it bounces back. Don’t worry about becoming the best; it’s good enough just to try to be better. Maybe you could think about your worries as a coat - something to take off and leave at the door. It’s not about yesterday. It’s not about tomorrow. It’s about today. Laugh in the face of adversity! OK, you still might fail, but you’ll be laughing as you lose! Nothing is important...so it’s essential to do just that from time to time! WISECRAIC 23 Code Join online www.mindwisenv.org/membership or join by post complete this form Membership application Mr Mrs Ms Other (please specify) Name Company (if applicable) Address Postcode Email I am Phone Someone with a severe mental illness or mental health difficulty A carer Other (please specify) Give what you can £15 (waged) £5 (unwaged) £0 £100 (group membership) £150 (individual lifetime member) I enclose a cheque made payable to MindWise £ I wish to pay by: Visa Mastercard Maestro The sum of Card No Expiry Date / (Maestro Only) Issue No Card holder name Signature Date Start Date / Please detach this section of the leaflet (along scissor lines shown) and post it to: Membership, MindWise, Head Office, Wyndhurst, Knockbracken Healthcare Park, Saintfield Road, Belfast BT8 8BH
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