Emotional Health and Wellbeing in Bristol Needs Assessment. August 2015 Hannah Russell, Commissioning Manager (Children), Alex Layard, Service Development Manager, Dr Jo Williams, Consultant in Child Public Health, Dr Julie Mytton, Consultant in Child Public Health, Bristol City Council. Contents Executive summary ........................................................................................................4 1.0 Introduction ...............................................................................................................5 2.0 The population of children and young people in Bristol ........................................9 2.1 Current population estimates of children and young people in Bristol. ......................... 9 2.2 Ethnicity of the child population ................................................................................. 11 2.3 Population projections ............................................................................................... 13 3.0 The emotional health of children and young people in Bristol. ...........................16 3.1 Estimates of the prevalence of emotional health problems in children and young people in Bristol ............................................................................................................... 16 3.2 Attention deficit hyperactivity and hyperkinetic disorders ........................................... 17 3.3 Autistic spectrum conditions ...................................................................................... 18 3.4 Estimated need for Child and Adolescent Mental Health Services at each tier .......... 18 3.5 Estimates of neurotic disorders in young people ........................................................ 19 3.6 Eating disorders......................................................................................................... 20 3.7 Self-harm ................................................................................................................... 21 3.8 Estimates of learning difficulties and mental health problems .................................... 21 3.9 Behavioural emotional and social difficulties (BESD) ................................................. 22 4.0 Children & young people vulnerable to poor emotional health ...........................24 4.1 Risk factors for poor emotional health and wellbeing ................................................. 24 5.0 Services for children and young people with emotional health needs ...............30 5.1 Service use by current provider ................................................................................. 30 6.0 Stakeholder perspectives on children and young people’s emotional health and wellbeing services and needs ......................................................................................34 6.1 Consultations on services for children and young people in Bristol ............................ 34 6.2 Messages arising from consultations ......................................................................... 34 7.0 Summary .................................................................................................................37 Appendix 1: Abbreviations ...........................................................................................38 2 List of Tables Table 1: Bristol 2014 Population Estimates by five year age band ............................. 9 Table 2: Overview of child population in Bristol by Locality, 2007-12 ....................... 10 Table 3: Bristol population projections, 2012-2022 .................................................. 13 Table 4: Bristol projected child population, 2012-2022 ............................................. 14 Table 5: Estimated number of children in Bristol with mental health disorders, 2014 ................................................................................................................................. 17 Table 6: Estimated number of children with Autism Spectrum Disorder, Bristol, 2014 ................................................................................................................................. 18 Table 7: Estimated number of children and young people who may experience mental health problems appropriate to a response from CAMHS, Bristol, 2014 ...... 19 Table 8: Estimated number of young people in Bristol with neurotic disorders, 2014 ................................................................................................................................. 20 Table 9: Estimated new diagnoses of eating disorder, children aged 10-19y, Bristol, 2014 ......................................................................................................................... 20 Table 10: Estimated number of children with learning difficulties and mental health problems, Bristol, 2014............................................................................................. 21 Table 11: Number of children in Bristol with BESD, 2014, by Locality ..................... 22 Table 12: Risk factors for mental disorders in children and young people, 2004 ..... 26 Table 13: Snapshot of CAMHS service use in Bristol, June 2014 ............................ 31 Table 14: Referrals to CAMHS Deliberate Self-Harm Service, under 18s, Bristol, 2013 ......................................................................................................................... 32 List of Figures Figure 1: Previous tiered model of care...................................................................... 8 Figure 2: Children and young people population trends, 1991-2013 .......................... 9 Figure 3: Children and young people population change, 2008-13 .......................... 10 Figure 4: Total number of children, 0-15y, by CCG Locality, 2001-13 ...................... 11 Figure 5: Ethnicity and number of children (0-15y), by CCG Locality, 2011 ............. 11 Figure 6: Density of pupils with English as an alternative language, 2013 ............... 12 Figure 7: Bristol population projections, 2012-2022, by age band ............................ 13 Figure 8: Bristol child population projections, 2012-22, by age band ....................... 14 Figure 9: Number of children with BESD special educational needs, Bristol, 2014, by ward ......................................................................................................................... 22 Figure 10: Risk factor profile for children and young people's mental health and wellbeing, 2014 ........................................................................................................ 24 Figure 11: Young people 10-24y admitted to hospital for self-harm, rate per 100,000 population aged 10-24y, 2007-2013, Bristol ............................................................. 32 Figure 12: Children and young people's mental health and wellbeing profile, Admissions data, Bristol ........................................................................................... 33 3 Executive summary Emotional health and wellbeing is a wider concept than poor mental health. It covers a whole spectrum of activities and behaviours, and promoting and maintaining emotional health and wellbeing needs to be a system-wide and integrated activity. This needs assessment attempts to draw together information on the emotional health and wellbeing of children and young people in Bristol. It will provide an information resource on which to develop a five year Emotional Health and Wellbeing Strategy for children and young people in the city and an associated action plan. The needs assessment describes the size and composition of the population of children and young people in the city in chapter 2. In chapter 3, national rates of mental health problems are applied to the Bristol population to estimate need, and in chapter 4 risk factors for poor emotional health are similarly estimated. Data on current services are described in chapter 5, whilst chapter 6 summarises the views of children, young people, their parents and carers on how local services should be developed. The number of children and young people living in the city has increased in recent years and is expected to increase further in the future, though these changes have occurred unevenly across the city and are expected to put additional demands on existing services. Whilst national estimates of the prevalence of clinically diagnosed disorders are in the region of 5400 children and young people, these figures are likely to underestimate the true level of need. Diagnoses of mental health disorders increase with age through childhood and are commoner in boys for all conditions except emotional disorder and self-harm. Most data available on service use reflects services for children and young people with the most severe mental health needs; e.g. those being admitted to hospital, attending emergency services, or accessing Tier 3 or 4 CAMHS services. The data on children with lower levels of need is not available, nor is data on long term outcomes for children with such needs. Service users are clear that they want services for children and young people to be joined-up, across the whole system, with a well-trained workforce. Ease of access, choice and timeliness are very important and services should recognise the potential of using digital and communication technology to improve service delivery and experience. This report aims to support Bristol Clinical Commissioning Group during its recommissioning of community child health and CAMHS for the city, and to facilitate the development of an agreed multi-agency Emotional Health and Wellbeing Strategy for children and young people to prevent poor emotional health where possible and provide high quality and effective care for those affected by poor emotional health. 4 1.0 Introduction This document describes the emotional health and wellbeing of children and young people in Bristol. It aims to inform the Bristol Emotional Health and Wellbeing Strategy for Children and Young People for 2015-20 and the action plan that will enable delivery of the strategy. The Strategy and Action Plan will build on the challenges and successes of the 2009-2014 Strategy, will aim to prevent poor emotional health in children and young people in Bristol and improve health where necessary. What is emotional health and wellbeing? In this document the phrase „emotional health and wellbeing‟ is used to refer to emotional and mental health. „Mental health‟, while recognised as a positive term by professionals, m a y b e seen as stigmatising by young people and may can deter them from accessing services.1 Positive emotional health can be defined as: “…not simply the absence of disorder but a state of wellbeing in which every individual realises his or her own potential, can cope with the normal stresses of life, can work productively and fruitfully, and is able to make a contribution to his or her community”.2 Good mental health is considered a foundation for healthy development 3. The development of mental health problems early in life can have adverse and long lasting effects. The quality of parenting and attachment in the perinatal period and early childhood are particularly important for future emotional health4,5. In this period, developing stable attachment to a parent figure is key6. Good emotional health is characterised by a person‟s ability to fulfil a number of key activities, including: the ability to learn, the ability to feel, express and manage a range of positive and negative emotions, the ability to form and maintain good relationships with others and the ability to cope with and manage change and uncertainty” 7 1 Annual Report of the Chief Medical Officer (2012) Public Mental Health Priorities: Investing in the Evidence. London: Stationery Office 2 World Health Organisation (2010) Mental Health: strengthening our response. Factsheet 220 in Guidance for Commissioners of Child & Adolescent Mental Health Services’ (October 2013; page 5). 3 Joint Commissioning Panel for Mental Health (2013) Guidance for Commissioners of Child and Adolescent Mental Health Services. (page 5) London 4 Children and Young People’s Health Outcome Forum (2012) Report of the Children and Young People’s Health Outcome Forum – Mental Health Sub-group. Available at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/216853/CYP-Mental-Health.pdf (Accessed 2 June 2015) 5 Early Intervention Foundation (2015) The Best Start At Home. London 6 National Institute for Health and Clinical Excellence (2012) Social and emotional wellbeing: early years PH40 (2012), London 7 Available from http://www.mentalhealth.org.uk/help-information/an-introduction-to-mental-health/what-is-goodmental-health/ (Accessed 28 May 2015) 5 What is the impact of poor emotional health and wellbeing? An absence of positive emotional health could be described as emotional ill health. This will usually come to the notice of others by the presence of symptoms or difficulties. The Mental Health Foundation explains that “most mental health symptoms have traditionally been divided into groups called either „neurotic‟ or „psychotic‟ symptoms. „Neurotic‟ covers those symptoms which can be regarded as severe forms of „normal‟ emotional experiences such as depression, anxiety or panic. Less common are „psychotic‟ symptoms, which interfere with a person‟s perception of reality, and may include hallucinations such as seeing, hearing, smelling or feeling things that no one else can”8. Such disorders represent the most severe end of the spectrum of problems and are associated with significant impairment.”9 Use of the term „mental disorder‟ with children and young people may cause its own problems. It has been argued that poor mental health may have less of an impact than the stigma associated with it10. The Surgeon General of the United States cited that stigma is the most important problem facing the field of mental health.11 The links between poor emotional health and wellbeing and poor educational outcomes are clear: Almost half of young people with fewer than 5 GCSEs graded A* to C said they „always‟ or „often‟ feel down or depressed compared to 30% of young people who are more qualified.12 Children with persistent conduct or emotional disorders13 are: More likely to be excluded from school Less likely to engage with out-of-school programmes to help them manage their behaviour and improve literacy More likely to be assessed as having Special Educational Needs More likely to leave school without educational qualifications Children with conduct disorders and severe Attention Deficit Hyperactivity Disorder (ADHD) may be four to five times more likely to struggle to attain literacy and numeracy skills (Green, et al., 2005).14 8 Available from http://www.mentalhealth.org.uk/help-information/an-introduction-to-mental-health/what-aremental-health-problems/ (Accessed 28 May 2015) 9 HM Government (2009). New Horizons: A shared vision for mental health in Joint Commissioning Panel for Mental Health; Guidance for Commissioners of Child and Adolescent Mental Health Services: (October 2013). 10 Children and Young People’s Health Outcome Forum (2012) Report of the Children and Young People’s Health Outcome Forum – Mental Health Sub-group. Available at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/216853/CYP-Mental-Health.pdf (Accessed 2 June 2015) 11 Hinshaw 2005 quoted Young Minds publication ‘Stigma - A Review of Evidence’ Young Minds website. 12 Children and Young People’s Mental Health Coalition (2012) Resilience and Results. Available at http://www.cypmhc.org.uk/media/common/uploads/Final_pdf.pdf (Accessed 1 June 2015) 13 ‘Children and Young People’s Mental Health Coalition (2012) Resilience and Results. Available at http://www.cypmhc.org.uk/media/common/uploads/Final_pdf.pdf (Accessed 1 June 2015) 14 http://www.cypmhc.org.uk/media/common/uploads/Final_pdf.pdf 6 Services for children and young people with poor emotional health and wellbeing Children and young people will have varying needs at different times in relation to all aspects of their holistic health: physical, social and emotional. Child and Adolescent Mental Health Services (CAMHS) have traditionally used a tiered model of care (Figure 1). Children with the most severe needs, requiring access to Tier 4 services in CAMHS, have often needed to travel significant distances to receive care. Current policy is moving away from such a structured, tiered, model of care. A delay in young people seeking help will delay receipt of interventions and support. Early intervention may reduce the risk of later disorders and save money.15 Mental health problems in childhood and adolescence in the UK result have been estimated to cost of between £11,030 and £59,130 per child annually. 16 Studies have shown that public service costs incurred in adulthood by individuals diagnosed with mental health problems in childhood can be as much as 10 times more than the cost of people with no such history.17 Policy context Sir Michael Marmot in his report „Fair Society, Healthy Lives‟ identified that giving every child the best start in life was the first priority18 , and this includes support for children to receive the nurturing environment that leads to good emotional health and wellbeing. The National Institute for Health and Clinical Excellence published guidance in September 201319 on the Social and Emotional Wellbeing of Children and Young People which describes the role of all agencies to provide a cross-partner strategy to promote and support good emotional health. Local Authorities are a lead agency in this partnership, with the public health outcomes framework for England 2013-16 including measures to promote attainment of these outcomes20. Guidance from Public Health England has recently described the actions that schools and colleges can take to promote emotional health21. The Children and Young People‟s Mental Health and Wellbeing Taskforce was established in September 2014. This national multi-stakeholder group has recently published guidance on ways to make it easier for children, young people, parents and carers to access help when it is needed and to improve the way in which services are organised commissioned and provided22. This includes the following 15 CMO Annual Report 2013-14; page 102 CMO Annual Report 2013-14; page 102 17 The NHS Confederation (2007) The Voice of NHS Leadership: London 16 18 Marmot M. Fair Society, Healthy Lives. Available from: http://www.instituteofhealthequity.org/projects/fair-society-healthy-lives-the-marmot-review 19 NICE (2013) Social and emotional wellbeing for children and young people. Available from http://publications.nice.org.uk/lgb12 20 Public Health Outcomes Framework. Available from: http://www.phoutcomes.info/ 21 PHE (2015) Promoting children and young people’s emotional health and wellbeing; A whole school and college approach. Gateway reference no: 2014825. Available from https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/414908/Final_EHWB_d raft_20_03_15.pdf 22 NHS England (2015) Future in mind: promoting, protecting and improving our children and young people’s mental health and wellbeing. NHS England Gateway Ref No: 02939. Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/414024/Childrens_Men tal_Health.pdf 7 five themes: 1. Promoting resilience, prevention and early intervention 2. Improving access to effective support (simplifying structures and removing barriers) 3. Care for the most vulnerable 4. Accountability and transparency 5. Developing the workforce These themes will be considered during the preparation of the Bristol Emotional Health and Wellbeing Strategy for Children and Young People for 2015-20 and associated action plan. Figure 1: Previous tiered model of care Note: this tiered model of care has been included in this needs assessment as the most recent data available on service use relates to the tiers described in this model. 8 2.0 The population of children and young people in Bristol 2.1 Current population estimates of children and young people in Bristol. The latest estimate of the total number of people living in Bristol (2014 mid-year population estimate) is 442,50023 (Table 1). By broad age group, Bristol has 82,800 children under 16 (18.7% of the population), and 67,400 young people 16-24 (15.4%). The current estimate of children under 18 is 91,859 and for children 5-16y is 56,316. Table 1: Bristol 2014 Population Estimates by five year age band Age band 0-4y 5-9y 10-14y 15-19y 20-24y Total Males Number % total male pop 15,900 13,200 10,800 13,100 23,100 76,100 7.2 6.0 4.9 5.9 10.5 Females Number % total female pop 15,100 6.8 12,800 5.8 10,600 4.8 13,200 6.0 23,400 10.6 75,100 Total Number % total pop 31,000 26,000 21,400 26,300 46,500 151,200 7.0 5.9 4.8 5.9 10.5 Source: Population Estimates Unit, ONS: Crown Copyright 2015 In the last decade, Bristol‟s child population has been rising24; about three times faster than national average, and numbers are at the highest level since the mid1980‟s (Figure 2). Figure 2: Children and young people population trends, 1991-2013 23 Available from http://www.bristol.gov.uk/sites/default/files/documents/council_and_democracy/statistics_and_census_informatio n/Briefing%20Note%20-%20Mid-2014%20Population%20Estimates.pdf (Accessed 17Aug2015) 24 Bristol City Council Joint Strategic Needs Assessment; Available at http://www.bristol.gov.uk/page/adult-careand-health/joint-strategic-needs-assessment-jsna (Accessed 1 June 2015) 9 Source: Population Estimates Unit, ONS: Crown Copyright 2014 The change has not been equal across the city. Bristol‟s child population has risen fastest in the increasingly diverse Inner City & East, where since 2001 numbers of children in Inner City alone have increased 48% (Bristol +11%). But in the last 5 years, 2008-13, children (under 16) have risen significantly in all areas (Figure 3 and Table 2). However, for young people (16-24) the 3% city-wide rise has been very concentrated in Inner City & East, with that age group reducing in other areas. Figure 3: Children and young people population change, 2008-13 Source: JSNA 2014; Children and young people update. V5 final. Table 2: Overview of child population in Bristol by Locality, 2007-12 Live Births, 2012 0-4 year olds, 2013 0-15 year olds, 2013 Bristol total Inner City & East North & West South N (% increase 2008-13) N (% increase 2008-13) N (% increase 2008-13) N (% increase 2008-13) 6780 (14%) 2250 (19%) 2190 (11%) 2340 (14%) 30,900 (17%) 10,000 (25%) 10,300 (12%) 10,600 (15%) 81,800 (11%) 25,000 (18%) 28,600 (9%) 28,200 (8%) Source: JSNA 2014; Children and young people update. v5 Bristol‟s child population is rising in all areas, and rising fastest in Inner City & East, which has the least number of wards. Figure 4 illustrates the average rate of increase within wards, highlighting the increasing pressures within the Inner City & East locality area. The North & West locality area now has the highest total number of children but the lowest average number in each ward. 10 Figure 4: Total number of children, 0-15y, by CCG Locality, 2001-13 Source: ONS Mid-year estimates 2001-2013, updated 2014 2.2 Ethnicity of the child population The child population in Bristol is increasingly ethnically diverse. The most recent estimates suggest that 28% of children (under 16) belong to a black or minority ethnic (BME) group, considerably higher than the average for the total population of 16% BME. Using an alternative definition of population diversity 25, 32% of children belong to the non-„White British‟ population, compared to the all-age Bristol population average of 22%. Rates vary considerably across the city; 50% of children in the Inner City & East are BME, a much larger ratio than the 20% in North & West and 13% in South (Figure 5). Across wards the variation is even greater, ranging from 6% BME in Whitchurch Park to 83% in Lawrence Hill. Figure 5: Ethnicity and number of children (0-15y), by CCG Locality, 2011 Source: ONS Census 2011 25 Black or Minority Ethnic group (BME) population includes all groups with the exception of all White groups. Non-‘White British’ population includes all groups with the exception of White British. 11 According to the 2013 School Census, there were 14,000 BME school age children in Bristol council-maintained schools (27.3% of the student population) and 9,150 (17.8% of students) had English as an Alternative Language (EAL) (Figure 6). The largest groups are Black Somali (5.2%), Mixed White and Black Caribbean (3.4%) and Pakistani (3.1%). Figure 6: Density of pupils with English as an alternative language, 2013 Source: Bristol School Census, 2013 National research26 shows that families with an African, Caribbean or Black British mother are more likely than families with a white mother to be lone parents (45% compared with 25%), live in social housing (44% compared with 20%) and be in the lowest income quintile (30% compared with 16%). Pakistani and Bangladeshi families experience the highest rates of poverty, with 65% of children living in poverty (calculated after housing costs). 30% of children in Black families and 28% of children in families of Indian origin also live in poverty. On the other hand, parents of South Asian and Chinese origin are least likely to be lone parents. 26 Cabinet Office (2007) Reaching Out: Think Family (2007) p. 59. Available at http://webarchive.nationalarchives.gov.uk/20080804201836/cabinetoffice.gov.uk/social_exclusion_task_force/fa milies_at_risk/reaching_out_summary.aspx (Accessed 1 June 2015) 12 2.3 Population projections The latest official projections27 for the population of Bristol is to increase by 95,700 people over the 25 year period (2012-2037) to reach a total population of 528,200 by 2037 (projected increase of 22.1%, higher than England 16.2%). Over the 10 year period (2012-2022), Bristol‟s population is projected to increase by 41,900 to 474,400 (a 9.7% increase, above England 7.2%). The child population is projected to rise fastest, by 15.4% (12,400 children), but the young person population (16-24 yrs) remains stable during the next decade (Table 3 and Figure 7): Table 3: Bristol population projections, 2012-2022 Age (years) 0-15 16-24 25-49 50-64 65-74 75 + All ages 2012 2017 2022 Change to 2022 80,700 86,700 93,100 12,400 15.4% 66,800 67,900 66,200 -600 -0.9% 163,900 171,500 178,600 14,700 9.0% 63,900 67,900 71,200 7,300 11.4% 29,100 32,300 33,100 4,000 13.7% 28,100 28,600 32,200 4,100 14.6% 432,500 454,900 474,400 41,900 9.7% Source: 2012-based Sub-national Population Projections, ONS (© 2014) Figure 7: Bristol population projections, 2012-2022, by age band Source: 2012-based Sub-national Population Projections, ONS (© 2014) Supplied by: BCC Performance, Information and Intelligence Service Over this time period, the main drivers of population growth are expected to be due to natural change (i.e. more births than deaths) rather than migration. 27 2012-based Sub-national Population Projections, published by ONS end May 2014. Note – These are trendbased projections, which mean assumptions for future levels of births, deaths and migration are based on observed levels, over 2008 to 2012. They show what the population will be if the trends continue, and do not attempt to predict the impact of future policies, economic circumstances, local development, or other factors. 13 The number of children under 5 years is projected to remain very high and increase slightly, due to Bristol‟s high birth rate, but the main increases over the next decade will be the rise in the 5-9 and from 2016 the rise in 10-14 age bands (Table 4 and Figure 8). This means that the proportion of children under 16 in Bristol, and the proportion under 18 years are projected to rise by 15.4% and 14.6%. Table 4: Bristol projected child population, 2012-2022 Age (years) 0-4y 5-9y 10-14y 15-19y 2012 2017 2022 30700 24100 21500 25700 31600 28000 23000 25500 32800 28800 26600 26700 % change 2012-22 6.8% 19.5% 23.7% 3.9% 0-15 y 0-17y 80,700 89,400 86,700 95,100 93,100 102,400 15.4% 14.6% Source: 2012-based Sub-national Population Projections, ONS (© 2014) Supplied by: BCC Performance, Information and Intelligence Service Figure 8: Bristol child population projections, 2012-22, by age band Bristol child population projections, 2012-2022 (by 5-year bands) 0-4 5-9 10-14 15-19 35,000 30,000 25,000 20,000 15,000 10,000 2012 2013 2014 2015 2016 2017 2018 2019 2020 2021 2022 Source: 2012-based Sub-national Population Projections, ONS (© 2014) Supplied by: BCC Performance, Information and Intelligence Service 14 The population of children and young people in Bristol: summary and implications The number of children and young people living in the city has increased in recent years and is expected to increase further in the future. The increase in the number of children has not occurred equally; the increase in the under 5s group is greater than the increase in older children; the increase in non-white ethnic groups is greater than white ethnic groups; and the increase in the Inner City and East area is greater than in other areas of the city. These increases may stretch the capacity of existing health, education and care services in specific areas of the city and across the city as a whole. 15 3.0 The emotional health of children and young people in Bristol. 3.1 Estimates of the prevalence of emotional health problems in children and young people in Bristol Measuring the prevalence of emotional health problems in children and young people at a local level is challenging. As a proxy measure, we can use national surveys of emotional health problems and apply them to the Bristol population to estimate local needs. In 200428 the Office of National Statistics conducted a survey of 7977 parents of 5-16 year olds living in England, Scotland and Wales, to update a similar survey undertaken in 199929. This remains the most reliable source of prevalence data for children and young people‟s emotional health in England; it has not been repeated more recently. The Chief Medical Officer‟s annual report 2012 on children and young people included a chapter on mental health problems30. Data in this chapter are also based on information collected from the 2004 survey. The 1999 and 2004 studies showed no evidence of increase in rates of emotional health problems between the survey dates. Other sources of evidence have however shown an increase in conduct disorders 31 . A follow-up survey 32 in 2007 of the participants in the 2004 survey showed that persistence and onset of disorders was linked to child, family, household and social characteristics at 2004. It should be noted that these studies did not investigate the prevalence of mental health disorders in children under the age of five years and it is hard to obtain reliable data for this age group33. The 2004 survey found that 1 in 10 children and young people aged 5-16 years had a diagnosable mental health disorder. There were marked gender differences by condition and generally the prevalence of difficulties increases with age. In 5-10 year olds 10% boys and 5% girls had a mental health disorder compared to 13% boys and 10% girls aged 11-16 years. The most common problems were conduct disorders, attention deficit hyperactivity disorder (ADHD), emotional disorders (anxiety and depression) and autism spectrum conditions. These conditions are not mutually exclusive as one in five children with a disorder was estimated to have more than one condition. The most common combinations were conduct with either emotional disorder or hyperkinetic disorder (0.7 per cent in each case)34. 28 Office for National Statistics (2005) The Mental Health of Children and Adolescents in Great Britain, London. Summary report available from http://www.hscic.gov.uk/catalogue/PUB06116/ment-heal-chil-youn-peop-gb-2004rep2.pdf 29 Office for National Statistics (2000) The Mental Health of Children and Adolescents in Great Britain: London 30 Murphy M, Fonagy P (2012) Chapter 12 Mental Health Problems in Children and Young People: London. Available at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/252660/33571_2901304_CMO_Ch apter_10.pdf (Accessed 20 May 2015) 31 Collishaw S, Maughan B, Goodman R, Pickles A (2004): Time trends in adolescent mental health. J Child Psychology and Psychiatry, 45(8):1350-1362. 32 Parry-Langdon N (2007) Three years on: Survey of the development and emotional well-being of children and young people: Office for National Statistics 33 Wichstrom, L (2012) Prevalence of psychiatric disorders in preschoolers. The Journal of Child Psychology and Psychiatry, 53:6, pp. 695-705. 34 Office for National Statistics (2005) The Mental Health of Children and Adolescents in Great Britain Chapter 9, London. 16 The Children and Maternal (ChiMat) Health Intelligence Network have applied these national prevalence estimates to Bristol‟s estimated population of 5-16 year olds in 2014 35 indicates that ~5,400 children and young people have some level of emotional ill health likely to require support from trained workers (Table 5). Table 5: Estimated number of children in Bristol with mental health disorders, 2014 Condition 5 to 10 year olds Boys Girls All 11 to 16 year olds Boys Girls All All children (5-16 yrs) Boys Girls All Conduct disorders a 1100 445 1545 1080 675 1755 2180 1120 3300 Emotional disorders b 335 390 725 595 780 1375 930 1170 2100 Hyperkinetic disorders 460 80 540 325 55 380 785 135 920 340 95 435 225 105 330 565 200 765 1600 790 2390 1685 1320 3005 3285 2110 5395 Autistic spectrum conditions, tics, eating disorders, mutism Any mental health problem Source: 2014 ONS Mid-year population estimates for Bristol applied to ONS report; Mental health of children and young people in Great Britain, 2004. a Notes: Conduct disorders are characterised by awkward, troublesome, aggressive and antisocial b behaviours. Emotional disorder includes depression, anxiety and obsessions. Factors associated with having an emotional disorder included living in a stepfamily, having parents with no educational qualifications and having poorer physical health. 27% may have another clinically recognisable mental disorder 3.2 Attention deficit hyperactivity and hyperkinetic disorders ADHD is a behavioural syndrome characterised by the core symptoms of hyperactivity, impulsivity and inattention. While these symptoms tend to cluster together, some people are predominantly hyperactive and impulsive, while others are principally inattentive. ADHD is thought to affect about 3–9% of school-age children and young people in the UK36. Attention deficit hyperactivity disorder (ADHD) and hyperkinetic disorder are marked by similar symptoms, such as poor attention, hyperactivity and impulsivity, and the terms are sometimes used interchangeably37. The 2004 ONS survey reported above, found that 1.5% of families surveyed had a child aged 5-16 years with a hyperkinetic disorder. 86% of these children were boys. 66% of these children had another clinically recognisable mental health disorder. 35 CAMHS Needs Assessment Bristol Local Authority http://atlas.chimat.org.uk/IAS/profiles/profile?profileId=34&geoTypeId= Accessed 24Aug15 36 National Institute for Health and Clinical Excellence (2008) Attention Deficit Hyperactivity Disorder: Diagnosis and management of ADHD in children, young people and adults (CG72). Available at http://www.nice.org.uk/guidance/cg72/chapter/Introduction (Accessed 1 June 2015) 37 Available at http://www.rcpsych.ac.uk/healthadvice/parentsandyouthinfo/parentscarers/adhdhyperkineticdisorder.aspx (accessed 12 May 2015) 17 62% had conduct disorder and 12% had an emotional disorder. 71% of these children were officially recognised as having special educational needs. The differences in prevalence estimates may reflect differences in definitions and / or improvements in the detection of ADHD / Hyperkinetic conditions. 3.3 Autistic spectrum conditions Autism spectrum disorder (ASD) is a condition with impairments in reciprocal social interaction, social communication, usually restricted interests and repetitive behaviors, and usually becomes apparent in childhood. Estimating the prevalence of autistic spectrum disorders is difficult because of the absence of long term studies and inconsistencies in the use of definitions over time. A study by Baird in 2006 of ~57,000 children in London estimated the prevalence of autism in children aged 9-10 years old to be 38.9/10,000 children, and that of other ASDs to be 77.2/10,000 giving a total prevalence of all ASDs of 116.1/10,00038. A study by Baron-Cohen in 2009 of 5-9 year old children estimated the prevalence of autism spectrum disorder to be 157/10,00039. Table 6: Estimated number of children with Autism Spectrum Disorder, Bristol, 2014 Disorder ASD in children aged 5-9 yearsa Autism in children aged 9-10 yearsb ASD in children aged 9-10 yearsb Total of all ASDs in children aged 9-10 yearsb Estimated prevalence in Bristol, 2014 410 40 75 110 Source: adapted from CAMHS Needs Assessment Bristol Local Authority http://atlas.chimat.org.uk/IAS/profiles/profile?profileId=34&geoTypeId= Accessed 24Aug15 a b Notes: Baron-Cohen (2009), Baird (2006) 3.4 Estimated need for Child and Adolescent Mental Health Services at each tier Estimates of the number of children and young people who may experience mental health problems appropriate to a response from CAMHS at Tiers 1, 2, 3 and 4 have been provided by Kurtz (1996)40. Although this data may appear old, and it relates to tiers of care that are not currently promoted in policy documents, it is the best data currently available and these data are recommended for service planning by the National Child and Maternal (ChiMat) Health Intelligence Network. Table 7 shows the estimated number of children and young people aged 17 and under who may 38 Baird G, Simonoff E, Pickles A, Chandler S, Loucas T, Meldrum D, et al. Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). Lancet 2006; 368 : 210–5. 39 Baron-Cohen S, Scott F, Allison C et al. Prevalence of autism spectrum conditions: UK school based population study. British Journal of Psychiatry. 2009;194:500-509 40 Kurtz, Z. (1996). Treating children well: a guide to using the evidence base in commissioning and managing services for the mental health of children and young people. London. Mental Health Foundation. 18 experience mental health problems appropriate to a response from CAMHS, based on 2014 mid-year population estimates for Bristol. Table 7: Estimated number of children and young people who may experience mental health problems appropriate to a response from CAMHS, Bristol, 2014 Tier Service provided by Support provided Tier 1 Professionals whose main role is not in mental health (e.g. GPs, Health Visitors, school nurses, social workers, teachers, youth workers, Youth Offending Team, Voluntary sector) Specialist trained mental health professionals who may provide input to multiagency teams (e.g. Community Paediatricians, Child psychologists, Educational Psychologists, Child psychiatrists, Child psychiatric nurses) Multidisciplinary CAMHS team (e.g. child and adolescent psychiatrists, social workers, child psychologists, psychiatric nurses, psychotherapists, occupational therapists, music and drama therapists) Services provided by specialist teams based in residential, day or outpatient settings (e.g. inpatient units, forensic units, eating disorder units, specialist teams for sexual abuse) Offer general advice; promotion and prevention work; Identify problems requiring more specialist advice Support those not responded to Tier 1. Provide consultation and training for staff in Tier 1. Tier 2 Tier 3 Tier 4 Number of children in Bristol 13,780 6,435 Support those with complex mental health problems. Support staff at Tier 2 1,700 For children with severe, highly complex and lifethreatening conditions 70 Source: CAMHS Needs Assessment Bristol Local Authority http://atlas.chimat.org.uk/IAS/profiles/profile?profileId=34&geoTypeId= Accessed 24Aug15 3.5 Estimates of neurotic disorders in young people The term „neurotic disorders‟ is used to describe a range of conditions including; anxiety, depression, phobias, obsessive compulsive disorder and panic disorders. Estimates of the prevalence of neurotic disorders in young people have been made by Singleton41. Applied to the population of young people in Bristol they suggest that 3050 young people may have a neurotic disorder (Table 8). 41 Singleton N, Bumpstead R, O’Brien M, Lee A and Meltzer H (2001) Psychiatric morbidity among adults living in private households, 2000. Office for National Statistics. London. HMSO 19 Table 8: Estimated number of young people in Bristol with neurotic disorders, 2014 Disorder Males 16-19 years Mixed anxiety and depressive disorder Generalised anxiety disorder Depressive episode Phobias Obsessive compulsive disorder Panic disorder Any neurotic disorder Females 1619 years Total 16-19 year olds 555 1370 1925 175 100 70 100 55 935 125 300 235 100 70 2115 300 400 305 200 125 3050 Source: 2014 ONS Mid-year population estimates for Bristol applied to ONS report; Mental health of children and young people in Great Britain, 2004. 3.6 Eating disorders A study of a nationally representative sample of general practice records between 2000 and 2009 an incidence of new diagnoses of eating disorders of 164.5/100,000 in girls aged 15-19y, and 63.5/100,000 in girls aged 10-14 years 42. In contrast, rates were lower for boys; 17.4/100,000 for boys aged 15-19y and 17.5/100,000 for boys aged 10-14y. These rates applied to the Bristol population are shown in Table 9 below, and suggest 29 girls and 4 boys aged 10-19 may be diagnosed with an eating disorder each year in Bristol. Table 9: Estimated new diagnoses of eating disorder, children aged 10-19y, Bristol, 2014 Females Males All Bristol population (ONS, 2014 mid-year estimate) 10-14 15-19 10,500 13,200 10,700 13,000 21,200 26,200 Estimate of new GP diagnoses of eating disorders per year based on data from Micali et al (2013) 10-14 15-19 All 10-19 7 22 29 2 2 4 9 24 33 42 Micali N, Hagberg KW, Petersen I, Treasure JL (2013) The incidence of eating disorders in the UK in 2000– 2009: findings from the General Practice Research Database; British Medical Journal. Available at http://bmjopen.bmj.com/content/3/5/e002646.short (Accessed 1 June 2015) 20 3.7 Self-harm A collaborative study across European countries surveyed 6000 young people aged 11, 13 and 15 during 2009/2010 43. This survey showed that up to one in five (20%) 15 year olds reported they self-harm. Similar data were found from the Avon Longitudinal Study of Parents and Children in a paper reporting in 2012. In this study adolescents aged 16-17years reported self-harm rates of 18.8%, with selfcutting being the most common method of harm 44. In 2014 the Bristol Safeguarding Children‟s Board school audit surveyed primary and secondary schools. Of 11 (52%) secondary school settings responding, all reported they perceived self-harm as a growing concern in their school. Of 32 (31%) of the 32 primary school settings responding, 11 (34%) reported that they had similar concerns. Nine of the 11 secondary schools reported having a self-harm policy/strategy in place, compared to only 6 out of the 32 primary schools. 3.8 Estimates of learning difficulties and mental health problems The prevalence of children and young people with learning difficulties in different age groups is difficult to estimate. Information from Special Educational Needs registers may underestimate true rates. Emerson et al 45 calculated the prevalence of learning difficulties in children aged 5-9 years of 0.97%, 10-14 years, 2.26%, and 15-19 years, 2.67%. These rates have been applied to the mid-year population estimates for Bristol by the Child and Maternal Health Intelligence Network Table 10: Estimated number of children with learning difficulties and mental health problems, Bristol, 2014 Children 5-9y Children with a learning disability Children with a learning disability and mental health problems Children 10-14y Young people 15-19y 255 485 705 105 195 285 Source: CAMHS Needs Assessment Bristol Local Authority http://atlas.chimat.org.uk/IAS/profiles/profile?profileId=34&geoTypeId= Accessed 24Aug15 43 Currie C et al., eds. (2012) Social determinants of health and well-being among young people. Health Behaviour in School-aged Children (HBSC) study: International report from the 2009/2010 survey. Copenhagen, WHO Regional Office for Europe, 2012 (Health Policy for Children and Adolescents, No. 6). Available at http://www.euro.who.int/__data/assets/pdf_file/0003/163857/Social-determinants-of-health-and-wellbeing-among-young-people.pdf?ua=1 (Accessed 07 May 2015) 44 Kidger J, Heron J, Lewis G, Evans D and Gunnell D (2012) Adolescent self-harm and suicidal thoughts in the ALSPAC cohort a self-report survey in England, BMC Psychiatry 2012, 12:69. Available at http://www.biomedcentral.com/1471-244X/12/69# (Accessed 1 June 2015) 45 Emerson E and Hatton C. (2004) Estimating current need/demand for support for people with learning difficulties in England. Institute for Health Research, Lancaster University, Lancaster. 21 3.9 Behavioural emotional and social difficulties (BESD) Behavioural, emotional and social difficulties (BESD) describe a range of conditions including depressive attitudes, school phobia, substance misuse, anti-social behaviour, anger and threat/use of violence. Following assessment for Special Educational Needs (SEN) children may be categorised as having BESD. Data from reports of SEN can therefore be used as a proxy indicator of health need. The number of children with BESD in Bristol was 1010 in 2014, estimated from the Bristol School Census 46 ; however the prevalence varies across the city with the greatest number of cases diagnosed in Bristol South (Table 11 and Figure 9). Table 11: Number of children in Bristol with BESD, 2014, by Locality Number of Children with BESD in Area Bristol North East Central South Bristol Total 310 280 410 1010 Average number of Children with BESD per Ward in area 21 35 34 28 Figure 9: Number of children with BESD special educational needs, Bristol, 2014, by ward Number of Children BESD SEN 4 to 19 20 to 35 36 to 52 53 to 68 69 to 85 Source: School Census 2014 OS data © Crown copyright & database rights 2013 Ordnance Survey 100023406 46 Bristol School Census 2014. Available from http://www.bristol.gov.uk/sites/default/files/documents/children_and_young_people/schools/school_admissions/S chool%20Organisation%20Strategy%202013%20-%202017%20Final%20(2)_0_0.pdf p.34 22 Prevalence of emotional health problems in children and young people in Bristol: summary and interpretation Mental health disorders identified through the ONS British Child and Adolescent Mental Health Survey (2004) and applied to the Bristol population of 5-16 year olds in 2014 suggest there may be 5400 children with a mental disorder in Bristol. One in five children with a mental health disorder may have more than one mental health condition (co-morbidity). Diagnoses of mental health disorders are more common in boys than girls for all conditions except for emotional disorders and self-harm which are commonest in girls. The prevalence of mental health disorders increases with age through adolescence. This may reflect the fact that some conditions develop during adolescence, but may also reflect a reluctance to apply a diagnostic label too early to a child with behavioural difficulties. These children may later receive a formal diagnosis to better describe their difficulties and enable them to access services. The number of children and young people with a mental health need that does not meet the threshold for formal diagnosis is likely to be higher than data presented in this section. Application of national estimates (particularly where these estimates are 10 years old) to local populations should be undertaken with caution and interpreted with care. 23 4.0 Children & young people vulnerable to poor emotional health Some children and young people are more at risk of emotional ill-health than others. The British Medical Association in June 200647 found a higher prevalence of mental health problems among children experiencing socio-economic deprivation, those with poor educational and employment opportunities, poor physical health, poor peer and family relationships, witnessing domestic abuse, having a parent that misuses substances or suffers from mental ill health, or having been physically or sexually abused. Asylum seekers and refugee children have also been shown to have higher levels of mental health problems. Data on the emotional health of these groups is presented in this chapter, where available. 4.1 Risk factors for poor emotional health and wellbeing Public Health England published a risk profile for Bristol as part of their Children and Young People‟s Mental Health and Wellbeing Profile48. An extract from this report is presented in Figure 10Figure 10. Figure 10: Risk factor profile for children and young people's mental health and wellbeing, 2014 47 BMA Board of Science (2006) Child and adolescent mental health – a guide for healthcare professionals: British Medical Association. 48 Children and Young People’s Mental Health and Wellbeing Profile. Available from; http://fingertips.phe.org.uk/profile-group/mental-health/profile/cypmh accessed 17/08/15 24 Source: http://fingertips.phe.org.uk/profile-group/mental-health/profile/cypmh Notes: 6,7 49 Figures from the National Child Measurement programme for 2013/14 show that 19.1% of children in Year 6 (aged 10-11) and 9.5% of children in Reception (aged 4-5) 8,9 The number of children born to young mothers (under the age of 20) in Bristol reduced from 320 in 50 2010 to 220 in 2013 . 14 Bristol School Census records for 2014 indicate 130 Gypsy or Traveller children of either Irish heritage or Roma, approximately three times the number in 2008. An estimated 2/3rds are thought to be Roma. These figures are likely to be significant underestimates because (a) Traveller children may not be in school (b) families may choose not to identify themselves as Travellers or Roma 17 51 Nationally, there were nearly 2.0 million lone parents with dependent children in the UK in 2014 . 20 In 2014, Bristol Multi Agency Risk Assessment Conferences (MARAC) discussed 1331 individual 52 children exposed to Domestic Violence, some of whom would have been discussed multiple times . Data show that the proportions of children in poverty, with lone parents, in households where no adult is in employment and where parents are in drug treatment are all statistically significantly higher than the average rate for England. 49 Available at http://www.noo.org.uk/NOO_about_obesity/child_obesity (Accessed on 4 June 2015) Data collated in child health records held by Avon Primary Care Support Agency, extracted and collated by Public Health Bristol Intelligence Unit (Bristol City Council), 2013 51 Available at http://www.ons.gov.uk/ons/rel/family-demography/families-and-households/2014/families-andhouseholds-in-the-uk--2014.html#tab-Lone-parents (accessed 07 May 2015) 52 Personal communication – Rachel Griffiths, Bristol CCG MARAC worker, 2 June 2015 50 25 Risk factors found to be associated with higher rates of mental disorders in children and young people were reported in the ONS the British Child and Adolescent Mental Health Survey in 2004 5354 and were published in the CMOs Atlas of Variation 55 (Table 12) Table 12: Risk factors for mental disorders in children and young people, 2004 Risk factor Prevalence of mental disorder in children and young people in CMOs Atlas of Variation Number of children estimated to have mental disorders in Bristol, where data available Looked after children 45% Children with SEN requiring statutory assessment 44% Children with learning difficulties 36% Children absent from school for >15 days in previous term 17% for emotional disorders 14% for conduct disorders 11% for hyperkinetic disorders 20% In March 2014 the number of Children Looked After in Bristol was 712, suggesting that 320 of these children may have emotional health needs if these national prevalence estimates are applied. In addition, 442 children were subject to a Child Protection Plan and 2788 were considered Children in Need The 2013 Bristol School Census recorded 3,900 (7.6%) children aged 5-16y with special educational needs, suggesting 1716 may have mental disorders. 2013 Bristol School Census recorded 776 children with LDs; Profound & Multiple LD n=84, Severe LD n=199, Moderate LD n=493. If 36% of these children also have mental disorders, this equates to 279 children and young people No dataa Children from households with no working parent Children from families receiving disability benefit Children from families where the household reference person is in 53 24% The number of children 0-16y in low-income familiesb in Bristol is 25.3% (17% in Bristol North, 28% in Bristol South and 32% in Bristol Central). 15% Green, H, et al (2005) Mental health of children and young people in Great Britain 2004. Palgrave: London. 54 Joint Commissioning Panel for Mental Health (2013). Guidance for commissioning public mental health services. Updated July 2013. Available from: www.jcpmh.info/resource/guidance-for-commissioning-public-mental-health-services/. 55 Annual report of the Chief Medical Officer 2012. Our Children Deserve Better: Prevention Pays. Atlas of Variation. Annex 9: Available from: https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/252672/33571_2901304_CMO_Ch apter_Anx_9.pdf 26 a routine occupational group (e.g. unskilled manual worker) Children of parents with no educational qualifications Children in „hard pressed‟ areas (i.e. high prevalence of unemployment and poor qualifications) Children from households with weekly income of <£100 11-16y old from households with a weekly income of <£200 Children in stepfamilies Children from lone parent families 17% 15% 16% 20% 14% No dataa 16% No dataa a No Bristol specific data available at the time of compiling this report Children in low income families are defined as the proportion of children (under 16) living in families that are either in receipt of out-of-work benefits, or in receipt of tax credits with a reported income which is less than 60% of the national medium income. The compared to the England average of 56 20.2 b Additional factors which may increase children‟s vulnerability to poor emotional health outcomes are shown below Young offenders Research has shown that 95% of imprisoned young offenders have a mental health disorder, and many have more than one disorder57. Young people in prison are 18 times more likely to take their own lives than others of the same age58. Not all young offenders are imprisoned. In the period April 2013 to March 2014, the Bristol Youth Offending Team (YOT) reported 446 young offenders up to the age of 18 sentenced to a „Substantive Outcome‟59, committing a total of 793 offences. 56 of those 446 were assessed as having mental health needs. This is 12.56% of Bristol YOT‟s caseload. The majority of these were white males aged 16-17 years. Between January to December 2013 the Bristol YOT‟s CAMHS nurse assessed and worked 56 Available at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/325416/householdsbelow-average-income-1994-1995-2012-2013.pdf (accessed 07 May 2015) 57 Office for National Statistics (1997):Psychiatric morbidity among young offenders in England and Wales. London: Office for National Statistics 58 Children and Young People’s Health Outcome Forum (2012) Report of the Children and Young People’s Health Outcome Forum – Mental Health Sub-group. Available at https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/216853/CYP-Mental-Health.pdf (Accessed 2 June 2015) 59 Substantive Outcome: a pre-court or court disposal. Relating to a reprimand, a final warning with our without an intervention, or a court disposal for those who go directly to court without a reprimand or final warning. 27 with 37 cases which met YOT CAMHS threshold criteria60 (i.e. displaying some mental health difficulties and with no other mental health service involvement, taking into consideration risk to self/others, and for which the young person consented to assessment)61: Bullied children and young people The Chief Medical Officer‟s annual report 201362 describes bullying, or repeated exposure to the negative actions of others where an imbalance of power is present, is reported by 34-46% of English school children in recent surveys. Cyber-bullying through digital media may now be the most common type of bullying. The 2015 Annual Bullying Survey63 reported that 74% of those reporting bullying have at some point been physically attacked, 17% have been sexually assaulted and 62% have been cyber bullied. The Bristol Pupil Voice survey (2013)64 found that 31% of pupils in year 4 and 6 are afraid to go to school because of bullying sometimes, and 25% reported they had been bullied at or near school in the last 12 months. Female genital mutilation The mental health consequences of female genital mutilation (FGM) include posttraumatic stress, flashbacks, fear, anxiety and depression65. A House of Commons Home Affairs Committee report in 2014 estimated that 170,000 (0.48%) women and girls are living with FGM in the UK and that a further 65,000 girls aged 13 and under are at risk of FGM in the UK 66 . 2014 mid-year population estimates for Bristol suggested there were 51,700 young women and girls aged 0-19y in Bristol. Assuming the 0.48% prevalence figure applies to this population, suggests that 248 girls and young women would have experienced FGM. 60 CAMHS YOT Nurse did not deliver work to all 56 YP Assessed as having Mental Health needs for numerous reasons. Some YP who enter the YOT are already being worked with by CAMHS so this would not be duplicated. Some YP are not ready to engage, or already have a number of agencies involved, others require further monitoring and engagement. These would be documented within the consultations of which there were 287 for this period. 61 Personal communication – Sam Waterhouse, Youth Offending Team, 6 August 2014 62 Annual Report of the Chief Medical Officer (2012) Our Children Deserve Better – Prevention Pays. London: Stationery Office 63 http://www.ditchthelabel.org/the-annual-bullying-survey-2015-is-here/ (accessed 19 May 2015) 64 Personal communication – Anne Colquhoun, Service Manager BCC, 8 June 2015 65 UNFPA, International Conference on Research, Health Care and Preventive Measures for Female Genital Mutilation/Cutting and the Strengthening of Leadership and Research in Africa, (2011) Nairobi, Kenya. 66 House of Commons Home Affairs Committee, Female Genital Mutilation; the case for a national action plan. Second report of Session 2014-15. http://www.publications.parliament.uk/pa/cm201415/cmselect/cmhaff/201/201.pdf 28 Children and young people vulnerable to poor emotional health and wellbeing: summary and interpretation A range of risk factors are associated with increased prevalence of poor emotional health outcomes in children and young people o Household level factors include; growing up in a household with a single parent, where there is a low income, where household members are in receipt of disability benefits, the household is in a socioeconomically disadvantaged area, being homeless, or being in a household where there is domestic violence. o Family level risk factors include; having a teenage mother, growing up in family where parents have low educational attainment, or have been in prison, or have alcohol or drug problems. o Child level factors include; being a child in the care of the local authority, being in the criminal justice system, having special educational needs, being bullied, overweight or having experienced female genital mutilation or being LGBT. Most of these factors are associated with adverse physical as well as mental health outcomes. Children and families with these experiences are likely to come into contact with multiple agencies. 29 5.0 Services for children and young people with emotional health needs 5.1 Service use by current provider Use of Child and Adolescent Mental Health Services in Bristol Community children‟s mental health services in Bristol and South Gloucestershire are provided by a partnership between North Bristol NHS Trust and Barnardos, known as the Community Child Health Partnership (CCHP). The contract for this partnership ends in April 2016, when an interim provider will take over, prior to a formal re-commissioning of the service to commence in April 2017. In addition to the tiered CAMHS service, the Community Child Health Partnership supports other services for children and young people in Bristol including; The Young People‟s Substance Misuse Service (based at No 38 Southwell Street, and known as „No 38‟), providing advice for those with drug and alcohol misuse problems. Thinking Allowed, a clinical psychology service for children who are looked after or adopted and their carers in Bristol. Deliberate Self Harm team (now known as the Young People‟s Mental Health Assessment Team) are based in Southwell Street and accept referrals from the Emergency Departments in the acute hospitals in Bristol Current service use by CAMHS tier can be estimated using data from the local service provider for Bristol CAMHS who provided a snapshot of service use in June 2014 (Table 13). Data in the table reflect the primary presentation to each of the three CAMHS services (East Central, North and South), the Young People‟s Substance Misuse Service, Thinking Allowed and the Deliberate Self Harm team. The service snapshot indicated 915 episodes of service use during June 2014, which if applied to a 12 month period would indicate 10980 episodes of service use over the course of a year. At present there is limited data available to estimate the prevalence of psychosis in children and young people in Bristol. In June 2014 Bristol CAMHS reported that 6/915 (0.66%) of referrals to their service were for psychosis. A new Early Intervention in Psychosis service was introduced in Bristol in 2014 supporting the 14-35 age range which may improve data availability for this group of patients. 30 Table 13: Snapshot of CAMHS service use in Bristol, June 2014 East Central CAMHS North CAMHS South CAMHS Total June 2014 Est. total for 2014 Emotional Disorders 49 67 62 178 2136 Conduct Disorders <5 <5 <5 27 324 Hyperkinetic Disorders <5 <5 <5 16 192 Substance Abuse Developmental Disorders <5 <5 <5 261 3132 <5 <5 <5 5 60 Autistic Disorders Eating Disorders 7 11 10 28 336 16 21 9 46 552 Primary Presentation YPSMS Thinking Allowed DSH Hospital Team 260 Deliberate Self 9 17 14 51 91 Harm Habit <5 <5 <5 15 Disorders Psychotic <5 <5 <5 6 Disorders Not possible to <5 <5 <5 14 50 define Other 11 9 8 28 Disorders More than one 48 28 88 164 disorder 172 180 238 260 14 51 915 Total Cases Note: to protect anonymity, where referral numbers were less than 5 the actual figure has been suppressed (indicated by <5). YPSMS = Young Persons Substance Misuse Service 1092 180 72 600 336 1968 10980 Use of Hospital services Admission to hospital for self-harm The most severe episodes of self-harm will be admitted to hospital. Routinely collected Hospital Episode Statistics indicate that there were 411 admissions to hospital for self-harm in children and young people aged 10-24y in Bristol during 2012/13, a directly standardised rate of 430.2/100,000 significantly higher than the England average (346.3/100,000)67. There has been little change in the rate of admissions in recent years (Figure 11). 67 Extract from the Child Health Profile for Bristol 2014. Public Health England/ChiMAT (http://www.chimat.org.uk/profiles/static) 31 Figure 11: Young people 10-24y admitted to hospital for self-harm, rate per 100,000 population aged 10-24y, 2007-2013, Bristol Source: Hospital Episode Statistics, Health and Social Care Information Centre reported in Bristol City Council JSNA 2014; Children and young people update v5 final Attendance at Emergency Departments for self-harm The STITCH Health Integration Team (Improving care in self-harm), a Bristol wide multi-agency collaboration68, has established a self-harm register in the Emergency Department at Bristol Children‟s Hospital. In 2013, there were 173 presentations for self-harm by 157 patients (16 repeat attendances). Over three quarters of patients were female, and 58% were already in contact with mental health services. Studies suggest that only a proportion of self-harm patients present to hospital service. An international study reporting in 2008 estimated that only 12.4% of selfharm episodes reported by 15-16 year olds presented to hospital69. If this estimate were applied to the Bristol presentation rate of 157 cases over one year in 2013, this would suggest there could be as many as 1266 episodes of self-harm occurring in Bristol each year. Referrals to CAMHS Deliberate Self-Harm service In 2013 there were a total of 147 referrals into the CAMHS Deliberate Self-harm Service from the Bristol under 18 population (Table 14) Table 14: Referrals to CAMHS Deliberate Self-Harm Service, under 18s, Bristol, 2013 Bristol Locality North West South East Central Total Number of Referrals 33 48 66 147 Percentage of Referrals 22.45 32.65 44.90 100 68 Available at http://www.bristolhealthpartners.org.uk/health-integration-teams/improving-care-in-self-harm-hit/ (Accessed 20 May 2015) 69 Madge N, Hewitt A, Hawton K, Wilde E J d et al (2008), Deliberate self-harm within an international community sample of young people: comparative findings from the Child & Adolescent Self-harm in Europe (CASE) Study. Journal of Child Psychology and Psychiatry, 49: 667–677. 32 The ChiMat Children and Young People‟s Mental Health and Wellbeing Profile 2014 reports routinely collected data for hospital admissions for conditions related to emotional health and wellbeing. An extract of the table is presented in Figure 12. This indicates that admissions data for Bristol are not significantly different compared to the England average, apart from young people‟s admissions to hospital for self-harm, where the rate for Bristol is statistically significantly higher than the England average. Figure 12: Children and young people's mental health and wellbeing profile, Admissions data, Bristol Source: http://fingertips.phe.org.uk/profile-group/mental-health/profile/cypmh Services for children and young people with emotional needs; Summary and interpretation Most data available on service use reflects services for children and young people with the most severe mental health needs; e.g. those being admitted to hospital, attending emergency services, or accessing Tier 3 or 4 CAMHS services The limited data available to compare service use in Bristol with the England average suggests that service use is similar, except for admissions to hospital due to self-harm which were higher in Bristol during the period 2010/11 – 2012/13 than the average for England. Little data is available for the much larger number of children and young people whose emotional health and wellbeing needs to not reach the threshold for accessing hospital or Tier 3-4 CAMHS National or local long term outcome data is not available. 33 6.0 Stakeholder perspectives on children and young people’s emotional health and wellbeing services and needs 6.1 Consultations on services for children and young people in Bristol Since the previous children and young people‟s health needs assessment in 2008, there have been a number of consultations with local people regarding service developments and delivery; 1. NHS Bristol Clinical Commissioning Group Child and Adolescent Mental Health Services (CAMHS) Re-commissioning Local Consultation – Children, Young People and Families 2. Bristol Healthwatch - #YHWBeingMe event 3. Documented messages from children and young people part of Barnardo‟s informal work 4. Barnardo‟s Eating Disorder care pathway consultation 5. Barnardo‟s Learning Difficulty specialist service care pathway consultation Barnardo‟s Learning Difficulty specialist CAMHS Young People Friendly 6. Barnardo‟s Deliberate Self Harm specialist CAMHS Young People Friendly 7. Barnardo‟s Youth Offending Team Young People specialist CAMHS Friendly 8. Barnardo‟s Drug Treatment Service specialist CAMHS Young People Friendly 9. Barnardo‟s South CAMHS Young People Friendly Document December In addition there have been consultations with practitioners and providers; 1. NHS Bristol Clinical Commissioning Group Child and Adolescent Mental Health Services (CAMHS) Re-commissioning Local Consultation – Professionals 2. Consultation with Bristol Head Teachers Further, relevant messages were collated from Bristol NHS Clinical Commissioning Group Re-commissioning Adult Mental Health Services Consultation. 6.2 Messages arising from consultations The results of the consultations with children, young people and their parents and carers tended to produce similar messages. Children and young people, parents/carers and professionals need whole-system mental health services and approaches: Mental health is everyone‟s business. 34 Everyone needs to know how to support children and young people with mental health needs – e.g. GPs need more training, as do all frontline staff, including school staff. Services need to be clearly communicated – “we know where to go when we start to feel unhappy, anxious, angry” and that communication within services is effective (both between professions and with children and young people and parents/carers) and appropriate (harnessing use of technology). Services are integrated across a number of organisations to form a wholesystem (multi-agency) with built-in flexibility; clear, timely, efficient and accessible with clear referral criteria and routes, effective pathways and informed signposting; the right service, in the right place, first time. The commissioning of services is integrated and outcome-based. Technology is embedded within services to enhance delivery, access and join up. Services support prevention and early intervention with enough lower level support; e.g. via counselling, emotional support in schools, music and art therapy, services offered by the voluntary and community sector partners. Good links are required with Children‟s Community Health Services, School Nurses, Health Visitors etc. Professionals and services should understand the link between mental health and physical health. Services should meet the access and support needs of children, young people and their families/carers. For example, they need to; Be age and gender appropriate and culturally competent with a workforce reflective of the needs/demographic of the local community. Understand and address the needs of young people who are LGBTQ. Be child and family support-centred. Be flexible - meeting the needs of children with complex needs, disabilities, Looked after Children and others who are vulnerable and to include outreach and crisis services. Be user-led. Address and challenge the stigma associated with mental health e.g. awareness raising, change the name, education in schools, use of creative approaches. Be welcoming - in terms of both staff and premises; where CYP have had input into recruitment, training and how the premises are presented. Have staff that are appropriately trained and to a high standard, are passionate, honest and non-judgemental and have the capacity ability to build trusting relationships and understand the pressures faced by young people in the 21st Century. Provide opportunities for safe and appropriate peer support. Provide more support for children and young people with Autism/ADHD. 35 Be appropriately confidential. Account for children and young people as „digital natives‟ (see note below) and address the positives and challenges related to this, including the provision of safe online services. Have the resources (dedicated transition workers) and mechanisms in place to ensure the smooth, managed and timely transitions to adult services (including having good links with Adult Mental Health Services). Ensure that young people have choice in relation to the interventions/support they receive (and provider) The Chief Medical Officer‟s annual report 201370 describes how we are raising a generation of „digital natives‟, who differ from previous generations in the way they communicate, seek information, interact and entertain themselves. Service commissioners and providers need to be aware that this may have both beneficial effects (such as the ability to access support and services remotely) and potentially harmful effects (such as the risk of cyber bullying, physiological arousal, social isolation, access to inaccurate or misleading-information, or technological addiction). Stakeholder consultations; summary and interpretation Service users want joined-up, „whole-system‟ provision of services for children and young people with emotional and mental health needs. Ease of access to services for children and young people is very important; flexibility, choice and timeliness are paramount. Appropriate use should be made of digital and communication technology both for service users and by service providers. Training of staff and the wider health and education workforce will enhance the experience of service users 70 Chief Medical Officer (2012) Public Mental Health Priorities: Investing in the Evidence. London: Stationery Office 36 7.0 Summary This children and young people‟s emotional health and wellbeing needs assessment has brought together the available evidence of population change, estimated service need and actual service use, and the views of recent services users. The report describes a service at a period of significant change. The child population of the city is expected to continue rising and the demography is becoming more diverse, though these changes are not occurring evenly across the city. These two issues will place increased demand on services. In addition, the provision of community child health services, including Child and Adolescent Mental Health Services, is at a time of significant change; with the conclusion of services by the current provider, and delivery of services by a one year interim provider during 20162017 whilst a new, longer-term, provider is commissioned to take over from April 2017. Much of the data on estimated service need is based on national data which is now 10 years old, or, on occasions, older still. Considering the rapid changes in the size and diversity of the child population in Bristol, application of these national estimates to local figures should be undertaken cautiously. Local data on emotional health and wellbeing needs is crucial for service planning that will meet local need. The limited availability of local service use data, including for children and young people with the most severe needs, and the absence of data from some areas of the service is noted. The inadequacy of routinely collected data on mental health has been identified as an issue nationally. A Child and Adolescent Mental Health Minimum Dataset has now been defined and incorporated into a larger, all age, Mental Health Services Dataset71. This dataset has been approved and data collection using this tool will be a requirement of services from January 2016. This dataset will include collection of information to support Children and Young people‟s Improving Access to Psychological Therapies (IAPT), and elements of the Learning Disabilities Census. This development will greatly strengthen the quality and comparability of local data on which to base service developments and benchmark quality of care. It will not however preclude the need for locally collected data on children and young people with emotional health and wellbeing needs that do not meet the threshold for access to services. There is an absence of local data on the long term outcomes for children and young people with emotional health and wellbeing needs. We know at a national level that young people with risk factors for poor mental health (e.g. being looked after, being in the criminal justice system, growing up in poverty) and adults with mental health problems, have poorer physical health and more limited life chances. We will not know if local services are effective unless we establish measures to record the longer term outcomes of service users. 71 http://www.hscic.gov.uk/CAMHS Accessed 24Aug15 37 Appendix 1: Abbreviations ADHD ALSPAC ASD BCC BESD BME BNSSG CAMHS CCG CHIMAT CMO CYP FGM GRT JSNA LD LGBT NICE NBT NHS ONS PCT PHIU SEN SW TPU UHB VCS YOT Attention Deficit Hyperactivity Disorder Avon Longitudinal Study of Parents and Children Autism Spectrum Disorder Bristol City Council Behavioural, Emotional and Social Difficulties Black and Minority Ethnic Bristol/North Somerset/South Gloucestershire Child and Adolescent Mental Health Clinical Commissioning Group Child and Maternal Health Intelligence Network Chief Medical Officer Children and Young People Female Genital Mutilation Gypsy, Roma, Traveller Joint Strategic Needs Assessment Learning Disabilities Lesbian, Gay, Bisexual, Transgender National Institute for Health and Care Excellence North Bristol NHS Trust National Health Service Office for National Statistics Primary Care Trust Public Health Intelligence Unit Special Educational Needs South West Teenage Pregnancy Unit University Hospitals Bristol NHS Foundation Trust Voluntary and Community Sector Youth Offending Team 38
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