3 2 N D A N N U A L N AT I O N A L A L O P E C I A A R E ATA F O U N D AT I O N
I N T E R N AT I O N A L C O N F E R E N C E
My Life,
My
P wer,
Miami
Thursday, June 22 to Sunday, June 25, 2017
Miami, Florida
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
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My Life,
My
P wer,
Miami
My Life – My Power – Miami is the theme of the 32nd
Annual NAAF International Conference scheduled for
Thursday, June 22, to Sunday, June 25, 2017, in Miami,
Florida. This conference is for people of all ages who
have alopecia areata or care about someone who
does. Among those tentatively scheduled to appear are
eminent alopecia areata researcher Angela Christiano,
actor Anthony Carrigan (Parenthood, The Flash, Gotham),
and UK rugby star and Olympian Heather Fisher. A panel
of researchers and pharmaceutical industry representatives is tentatively scheduled and will provide you with
the extraordinary opportunity to directly address your
questions to the very people most intimately involved in
the search for treatment and a cure. This unforgettable
experience will connect you with a network of individuals
and families who share the same challenges you face,
professional caregivers offering medical information and
advice to better understand and manage alopecia
areata, and researchers detailing the latest findings of
NAAF’s Treatment Development Program. Plus, you’ll be
in one of the world’s most exciting and diverse cities.
This is an experience not to be missed!
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You will:
Learn you are not alone.
Share personal connections with others who
understand and care.
Hear about the latest research progress and
opportunities for your involvement.
Learn about useful products for people with
alopecia areata.
Exchange ideas, support, and advice.
Enjoy inspiring sights, stories, and experiences.
Develop personal memories that will last a lifetime.
Become empowered to go home and make
a difference.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
OUR CONFERENCE HOTEL:
Hyatt Regency Miami
With its striking white towers overlooking
the Miami River, the Hyatt Regency Miami is
a landmark hotel offering top travel services
and amenities and the most convenient
location in the area. You’ll enjoy easy access
to popular attractions, like Brickell City Center,
Wynwood Arts District, Coral Gables, the
Port of Miami, and the Latin flavor of Little
Havana. With this setting as backdrop, the
four-day NAAF conference may transform
not only your life but those around you!
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
NAAF Conference Program at a Glance
ALL
AFTERNOON
THURSDAY, JUNE 22
1:00 pm – 6:00 pm Registration and Tortoise & Hair™ Conference Walk Check-In
1:00 pm – 6:00 pm Exhibitor Displays
1:00 pm – 7:45 pm Children’s Alopecia Areata Conference Camp (Ages 5–17) (dinner included)
2:00 pm – 4:00 pm
Meet the Exhibitors (with snacks and refreshments)
4:00 pm – 5:30 pm
Community Empowerment Workshops 1–4
6:00 pm – 7:30 pm
Veteran & VIP (First-Timer) Welcome Reception (with hearty appetizers and cash bar)
ALL
DAY
FRIDAY, JUNE 23
8:00 am – 5:30 pm
Registration, Information and Tortoise & Hair™ Conference Walk Check-In
8:15 am – 5:45 pm
Children’s Alopecia Areata Conference Camp (Ages 5–17)
8:30 am – 10:00 am
Orientation Session: What You Should Know (Primarily for First-Timers)
10:00 am – 12:30 pm
Opening Session: New Frontiers in Alopecia Areata Research
12:30 pm – 1:45 pm
Lunch on your own
12:30 pm – 6:00 pm
Exhibitor Displays
2:00 pm – 3:30 pm
Support and Empowerment Sessions A–K
4:00 pm – 5:30 pm
Community Empowerment Workshops 5-6
5:30 pm – 10:00 pm Dinner on your own and free night
Registration, Information
and Tortoise & Hair™
Conference Walk Check-In
ALL
DAY
SATURDAY, JUNE 24
7:00 am – 5:30 pm
ALL
DAY
7:30 am – 9:30 am
9:45 am – 5:45 pm
Registration, Information and Tortoise & Hair™
Conference Walk Check-In
THURSDAY, JUNE 22
Tortoise & Hair™ Conference Walk
1:00 pm – 6:00 pm
Children’s Alopecia Areata Conference Camp (Ages 5–17)
10:00 am – 11:00 am
General Session: The Push for Change – From Insights to Action
11:00 am – 1:00 pm
Patient-Centered Outcomes Research (PCOR) Training
1:00 pm – 2:00 pm
Lunch on your own
1:00 pm – 6:00 pm
Exhibitor Displays
2:00 pm – 4:00 pm
Ask the Experts
4:00 pm – 5:30 pm
Young Adult Perspectives
5:30 pm – 8:00 pm
Dinner on your own
8:00 pm – Midnight
Night in the Caribbean Dance Party
(Registration & Tortoise & Hair™
Conference Walk Only)
FRIDAY, JUNE 23
8:00 am – 5:30 pm
SATURDAY, JUNE 24
7:00 am – 5:30 pm
SUNDAY, JUNE 25
9:00 am – 1:30 pm
(Info Display Only)
ALL
DAY
SUNDAY, JUNE 25
All conference attendees must
begin their conference experience
at registration where they receive
their portfolios with detailed
information. Name tags are
required to attend all sessions.
9:00 am – 1:30 pm NAAF Information Display
9:15 am – 11:15 am Children’s Alopecia Areata Conference Camp (ages 5–17)
9:30 am – 11:00 am Support and Empowerment Sessions L–T
11:00 am – 11:30 am Hotel Check-Out
11:30 am – 1:00 pm Closing Session
1:00 pm – 2:00 pm
Good-bye Gathering
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
You can register online:
support.naaf.org/
2017conference
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
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Exciting and Informative
Guest Speakers
(Scheduled to Appear)
Alopecia Areata 101
Maria Hordinsky, MD
University of Minnesota Medical School,
Minneapolis, MN
The Clinic Visit in 2017:
Current Treatments for Alopecia Areata
Treatment Development Program
Angela Christiano, PhD
Columbia University Medical Center
New York, NY
Genetics, Immunology and Targeted
Therapies in Alopecia Areata
Conference Highlights
Tortoise & Hair™ Conference Walk
On this year’s Tortoise
& Hair™ Conference
Walk, you will trace
Miami’s picturesque
Riverwalk as you raise
awareness of alopecia
areata along with funds
to benefit NAAF in
our ongoing effort to
provide awareness,
support, and research for the alopecia areata community.
There’s no entry fee, but each walker or family must
have a pledge sheet with a minimum total donation of $25
per individual or $50 per family—and there will be amazing
prizes for those who raise the most. Details and pledge
sheets will be included in conference confirmation packets.
(See page 11 for details)
Don’t think you’ll be going to the conference, but still
want to participate in the walk? No problem! You can set
up a donation page allowing you to hold your own virtual
Tortoise & Hair™ right in your own hometown.
How to Get Started:
Natasha Atanaskova Mesinkovska, MD
UC Irvine School of Medicine
Orange, CA
NAAF’s Treatment Development Program:
New Initiatives and Future Directions
1. Set a fundraising goal. It’s easy! Build your own
fundraising page at support.naaf.org/2017
conferencewalk
2. Share your story. Tell others about yourself, why
alopecia areata is important to you—and
upload photos!
3. Share your page on Facebook and Twitter, ask your
friends and family to support your goal, and invite
others to join your team!
Inspirational Speakers
Heather Fisher
Rugby Sporting Star and
Olympic Competitor,
Worcester, England
Experiences with Alopecia Areata
On and Off the Field
Anthony Carrigan
Actor and Star of Primetime
TV Drama Gotham
Boston, MA
Acting, Alopecia Areata, and Learning
to Love My Look
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Patient-Centered Outcomes Research
(PCOR) Training
With the current accelerated pace of research in our
disease and the increasing importance of patient-centered
outcomes to inform the development of treatments
relevant to patients, we find ourselves at a critical juncture
where we need, but lack a way to measure results that are
meaningful to you.
Our community is being asked to participate in the
research process by providing experiential testimony,
contributing to the development of a Patient Reported
Outcomes Instrument, and participating in clinical studies,
but we are not yet prepared to meaningfully engage
in and inform the design of patient-centered clinical
research to its fullest potential.
During this two-hour training session led by NAAF’s
Health and Research Ambassadors, you will learn how to
find your voice in research, meaningfully engage in and
inform the design of patient-centered clinical research,
and gain an understanding of the impact we can have in
the research and regulatory process.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
Exhibitor Displays
NAAF Conference Exhibitors invite
you to visit their
displays showcasing
the many products
and supplies available for people with
alopecia areata.
All exhibitors are
available for private
appointments. There will be no exhibitor displays on
Sunday, but there will be a special “Meet the Exhibitors”
session from 2 to 4 pm on Thursday, June 22. This is your
opportunity to see, touch, feel, and purchase hard-to-find
products that are helpful for dealing with alopecia areata
on a daily basis.
Parents are required to complete and return permission
and emergency consent forms for each child participating in the Children’s Conference Camp. See pages 9–10
for details. For children with allergies or special dietary
needs, parents MUST provide a detailed list of safe and
acceptable foods for the scheduled snacks, lunches and/
or dinners during the Children’s Conference Camp. This
information needs to be included with the Parent Permission
and Responsibility Form so we can plan an appropriate
menu for your child. Upon receipt of all your completed
registration forms, NAAF will send a conference confirmation packet.
Due to logistical and space issues, the children’s talent
show will be incorporated into the Children’s Conference
Camp events again this year.
Children’s Alopecia Areata Conference Camp:
The Premier Event for Kids with Alopecia Areata
The NAAF Conference is for people of all ages who live
with alopecia areata or care about someone who does.
The following conference “tracks” highlight group sessions
and activities based on targeted interests to help you get
the most out of your four-day conference experience.
You can attend sessions in one track or multiple tracks.
Kids Camp (ages 5–10)
Tweens Camp (ages 11–13)
Teens Camp (ages 14–17)
The Children’s Conference Camp supports children
with alopecia areata by nurturing their self-esteem through
carefully planned activities by the Corporate Kids Events
(CKE) team. Support arises spontaneously as the kids interact with others who have alopecia areata, as well as their
siblings and friends, in
a fun, creative, and
active environment.
Kids, Tweens and Teens
are sure to adapt
quickly and make new
friends and wonderful
memories. Creative
arts and activities are
interspersed throughout the weekend.
Camp Safety
Sign-in & Digital Photos are required for all Campers. To
ensure their safety, children who participate in the Kids
& Tweens Camp will be photographed initially with their
parent or guardian, and only those adults who appear in
the photo with the child will be able to sign-out the child
from camp.
Corporate Kids Events has organized and managed
camps for children of all ages for over 20 years. Parents
trust and value the professional, high-quality care the CKE
counselors consistently give to children. All CKE counselors
are certified in CPR and First Aid and take part in an
extensive CKE training program. They are fingerprinted
and background-checked. NAAF volunteers will also
be on hand to interact with the children to enrich their
conference experience.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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Tracks & Audiences
Individuals Track: Primarily for men and women living
with alopecia areata to discuss day-to-day personal
and social issues, and share information, resources
and support to live confidently with alopecia areata.
Parents Track: For parents to connect with other
parents, young adults and experts about social,
emotional and educational topics related to raising
a child with alopecia areata.
Young Adults Leadership Track: For young adults
(ages 17–30) with alopecia areata to connect with
peers, learn and engage in workshops related to
leadership, community outreach, and mentorship.
This track includes a Young Adults Guidance Circle
during Friday’s Children’s Conference Camp, where
young adult leaders have the opportunity to spend
an hour sharing experiences, strength and care with
younger generations.
General Track: Sessions open to everyone such as the
Opening, General and Closing Sessions.
Conference events are classified as General,
Individuals, Parents or Young Adults Track by color and
after the title.
MIAMI, FL
|
JUNE 22 – 25, 2017
|
www.naaf.org
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Detailed Program
THURSDAY, JUNE 22
Registration and Tortoise & Hair™ Conference Walk
Check-In | 1:00 pm – 6:00 pm
All conference attendees must begin their conference experience
at registration where they receive their portfolios of detailed
information. Name tags are required to attend all sessions. All
Walk participants must have an Online Donation Page, submit
a Pledge sheet, or pay an additional fee ($25 per person/
$50 per family) prior to receiving a t-shirt for the Tortoise & Hair™
Conference Walk.
Exhibitor Displays | 1:00 pm – 6:00 pm
NAAF Conference Exhibitors invite you to visit a variety of displays
showcasing the many products and supplies available for people
with alopecia areata.
Children’s Alopecia Areata
Conference Camp (Ages 5–17) | 1:00 pm – 7:45 pm
Our Children’s Conference Camp supports children, tweens and
teens with alopecia areata by nurturing their self-esteem in a fun,
creative and active environment. Dinner is included today.
n Meet the Exhibitors | 2:00 pm – 4:00 pm
GENERAL TRACK
This is a special time to meet with the exhibitors to discuss and
ask questions about their products. Snacks and refreshments will
be served.
Community Empowerment Workshops 1–4
4:00 pm – 5:30 pm
n 1) It’s OK to Feel Sad | GENERAL TRACK
Are you struggling with alopecia areata? You are not alone.
Whether you yourself, your child, or a loved one have been
diagnosed with this disease, this support group is for people
who are having a hard time coping with the grief and loss
associated with alopecia areata. Whether it’s been months or
years, it’s okay to feel sad. Just as alopecia areata (and the
associated amount and type of hair loss) differs for everyone,
so does the grief and loss process surrounding the condition.
Workshop leader Matt Kelley is a longtime NAAF volunteer and
telephone support contact, a Marriage & Family Therapist,
and a Licensed Professional Clinical Counselor Intern.
n 3) Alopecia Areata Mentoring Program
YOUNG ADULTS TRACK
Looking to make a difference? NAAF’s Mentoring Program
will formally launch at the Conference! We invite you to join
us as the first generation of mentors. The best role model is
someone who is one step ahead. Sharing your personal
experience may help other kids and teens live with alopecia
areata as well as parents cope with their child’s condition.
NAAF volunteers Rafi Wasserman and Nell Sanders will lead this
session that will introduce the program, define the roles and
objectives for the mentors and show you how to get involved!
n 4) Child Development Resiliency | PARENTS TRACK
This workshop will help parents understand the phases of
a child’s overall growth, how a child with alopecia areata
develops his or her concept of self, and how resiliency can
be nurtured and supported to empower a child’s efforts to
cope. Workshop leader, Dr. Richard Long, has worked with
NAAF since its inception as a government relations and mental
health consultant and holds a doctorate in counseling from
George Washington University.
n Veteran & VIP (First-Timer) Welcome Reception
6:00 pm – 7:30 pm | GENERAL TRACK
Reconnect with old friends and greet
new ones during the Veteran & VIP
Welcome Reception. Don’t be shy!
Whether it’s your first conference or
your fifteenth, we are all here for the
same reason. We encourage all
conference Veterans to welcome the
VIP attendees (the First-Timers), and we
urge all VIPs to introduce themselves!
Hearty appetizers will be served, and
a cash bar will be available.
FRIDAY, JUNE 23
Registration and Tortoise & Hair™ Conference Walk
Check-In | 8:00 am – 5:30 pm
Children’s Alopecia Areata
Conference Camp (Ages 5–17) | 8:15 am – 5:45 pm
Lunch is included today.
n 2) Where Are the Psychologists? | INDIVIDUALS TRACK
Participate in exercises to help you talk to your doctor about
the emotional burdens you may be facing, learn tips to help
you communicate with confidence about your decisions
related to treatments, and discuss how acceptance can lead
to overall better health outcomes. Workshop leader, Kristina
Gorbatenko-Roth, a psychology professor at the University
of Wisconsin-Stout, will discuss the role of mental health
education and care throughout the course of alopecia
areata and share tips for communicating with your physician
and advocating for improved psychological services.
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T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
Detailed Program continued on page 12
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MIAMI, FL
|
JUNE 22 – 25, 2017
|
www.naaf.org
32ND ANNUAL NAAF INTERNATIONAL CONFERENCE
Miami, FL | Thursday, June 22 through Sunday, June 25, 2017
Conference Registration Form
You can register online at support.naaf.org/2017conference
NAME ________________________________________________________________________________________________________AGE____________________
ADDRESS___________________________________________________________________________________ # of Conferences Attended________________
CITY___________________________________________________________________STATE________________ZIP________________________________________
PHONE____________________________________________________ EMAIL_____________________________________________________________________
ARRIVING (day, date, time)_______________________________________ DEPARTING (day, date, time)_________________________________________
Will you be staying at the Hyatt Regency Miami
Yes q
Will you be part of the NAAF group rate at the hotel?
No q
Yes q
No q (Only NAAF conferees will get the special room rate.)
You are responsible for making your own hotel reservations by calling 1-305-358-1234. Don’t Delay! Be sure to say you are part of the of the
National Alopecia Areata Foundation group to get your special room rate. Reservations are limited, and are on a first-come, first-served
basis. Reservations must be made by Friday, May 19, 2017.
Hotel Confirmation # _________________________ *Names* of additional persons sharing room_____________________________________________
If you are not staying at the hotel, where will you be staying?_____________________________________________________________________________
REGISTRATION IS FIRST-COME, FIRST-SERVED. ATTENDANCE WILL BE DENIED OUT OF NECESSITY ONCE MEETING ROOM CAPACITY IS REACHED.
The conference early bird registration deadline is Monday, May 22, 2017.
# of People
Per Person Fee Totals
Registration received by May 22, 2017 (first person) $285 $
Accompanying spouses, family, and friends $215 $
Children ages 5 to 17 $215 $
Children pre-K or younger
Comp
Registration received after May 22, 2017 (first person) $550 $
Accompanying family & friends received after May 22
$270 $
Children ages 5 to 17 received after May 22
$270 $
Children pre-K or younger Comp
Scholarship Fund Donation (optional, but greatly appreciated) $
GRAND TOTAL $
PAYMENT MUST ACCOMPANY THIS FORM. MAKE CHECKS PAYABLE TO NAAF IN US DOLLARS.
MAIL CHECKS TO NAAF, 65 MITCHELL BLVD., SUITE 200-B, SAN RAFAEL, CA 94903. TO PAY BY VISA, MC or AMEX, PLEASE COMPLETE
ALL INFORMATION BELOW.
Account # _______________________________________________________________ Expiration______________________ CVC________________________
Name on Card___________________________________________________________ Signature___________________________________________________
Billing Address (if different than registrant address)_______________________________________________________________________________________
Please list names and ages of other family members who are attending, including children age 4 and under.
Name______________________________________________________ Age____________ Grade____________ # of Conferences Attended_________
Name______________________________________________________ Age____________ Grade____________ # of Conferences Attended_________
Name______________________________________________________ Age____________ Grade____________ # of Conferences Attended_________
Name______________________________________________________ Age____________ Grade____________ # of Conferences Attended_________
Name______________________________________________________ Age____________ Grade____________ # of Conferences Attended_________
Name of registrant(s) who have alopecia areata________________________________________________________________________________
q Please check here if you require special assistance to fully participate. Attach a written description of your needs.
(NAAF reserves the right to use any photograph taken at the NAAF conference in Miami, FL, unless otherwise notified.)
Registration for children attending the Children’s Conference Camp must include two signed permission forms: the NAAF Parent Permission
& Responsibility Form and the Corporate Kids Events Emergency Consent Release and Rules & Regulations Form. These two forms are on
pages 9 and 10. Missing or uncompleted forms will be returned to you. Upon receipt of your registration, we will send you a confirmation packet.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
7
32ND ANNUAL NAAF INTERNATIONAL CONFERENCE
Miami, FL | Thursday, June 22 through Sunday, June 25, 2017
Name
Name
Name
Name
We need this detailed information to determine room size, name tags, and schedules.
Only registered guests are allowed to attend sessions. Use a separate column for each person.
Please carefully and thoroughly complete this sheet. Thank you.
Name
Conference Registration Form
1. Enter the name and age of each person attending the conference. Names are to be written
as you would like them to appear on a name tag (nicknames, etc.).
2. Place an X in the box next to the events each person will attend UNLESS the event has multiple
choices, i.e. Use letter or number code for choice of Support and Community Empowerment
Sessions (see pages 6, 12, 13 & 14).
3. Be sure to indicate t-shirt size for each participant in the Tortoise & Hair™ Conference Walk.
4. For each child who will attend the children’s camp, a Parent Permission & Responsibility Form and an
Emergency Consent, Release, and Rules & Regulations Form must be submitted. (see pages 9 & 10)
* Tortoise & Hair™ t-shirt – size YS, YM, YL, WS, WM, WL, WXL, WXXL, MS, MM, ML, MXL, MXXL
AgeAgeAgeAgeAge
*Tshirt Size
*Tshirt Size
*Tshirt Size
*Tshirt Size
*Tshirt Size
Thursday, June 22
1:00 pm – 7:45 pm
Children’s Alopecia Areata Conference Camp (Ages 5 – 17)
2:00 pm – 4:00 pm Meet the Exhibitors
4:00 pm – 5:30 pm
Community Empowerment Workshops (choose 1, 2, 3 or 4)**
6:00 pm – 7:30 pm Veteran & VIP (First-Timer) Welcome Reception
Friday, June 23
8:15 am – 5:45 pm
Children’s Alopecia Areata Conference Camp (Ages 5 – 17)
8:30 am – 10:00 am Orientation Session: What You Should Know (Primarily for First-Timers)
10:00 am – 12:30 pm Opening Session: New Frontiers in Alopecia Areata Research
2:00 pm – 3:30 pm
Support and Empowerment Sessions (choose A, B, C, D, E ,G, H, I, J or K) **
4:00 pm – 5:30 pm
Community Empowerment Workshops 5–6 (choose 5 or 6)**
Saturday, June 24
7:30 am – 9:30 am Tortoise & Hair™ Conference Walk (All Adults & Kids!)
9:45 am – 5:45 pm
Children’s Alopecia Areata Conference Camp (Ages 5 – 17)
10:00 am – 11:00 am General Session: The Push for Change — From Insights to Action
11:00 am – 1:00 pm Patient-Centered Outcomes Research (PCOR) Training
2:00 pm – 4:00 pm
Ask the Experts
4:00 pm – 5:30 pm
Young Adult Perspectives
8:00 pm – Midnight Night in the Caribbean Dance Party
Sunday, June 25
9:15 am – 11:15 am Children’s Alopecia Areata Conference Camp (ages 5–17)
9:30 am – 11:00 am Support and Empowerment Sessions L–T (choose L, M, N, O, P, Q, R, S or T)**
11:00 am – 11:30 am Hotel Check-Out
11:30 am – 1:00 pm Closing Session
1:00 pm – 2:00 pm
Good-bye Gathering
**Please commit to sessions you sign up for as we plan our meeting room sizes accordingly.
NAAF VOLUNTEERS
Together Everyone Achieves More (TEAM)
Are you available to join the NAAF T.E.A.M. of volunteers? Please indicate what times & days you are available, i.e. not attending sessions, and
which type of volunteer work you prefer. Thank you for volunteering: You’ll receive a schedule in June if your schedule works with our needs.
q Hospitality Person: Welcome conferees and answer their questions throughout the weekend. q Tortoise & HairTM Helpers
q Room Assistant: Assist in meeting rooms as a door monitor, light monitor, materials distributor, etc.
Available on days_____________________________________________ and times ______________________________________________________________
Name________________________________________________________Phone__________________________________________________________________
E-mail address_________________________________________________ Cell phone_____________________________________________________________
8
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
|
JUNE 22 – 25, 2017
|
www.naaf.org
Corporate Kids Events, Inc.®
Emergency Consent, Release, and Rules and Regulations Form
32ND ANNUAL NAAF INTERNATIONAL CONFERENCE
Miami, FL | Thursday, June 22 through Sunday, June 25, 2017
Children’s Conference Camp
Please complete and return one form for each child participating in the above referenced children’s program.
All information is required. If not applicable, please indicate N/A. You may mail with registration or fax to NAAF at
415-480-1800 or scan and email to [email protected]. (Please make copies if necessary.)
Child’s Name__________________________________________________________________________________________
Male q
Female q
Age (as of 06/01/17)________________________ Birth date _____________________________ Entering Grade (in Fall 2017)________________
Name of Child’s Parent or Legal Guardian______________________________________________________________________________________
Please list your child’s:
1. Food allergies ____________________________________________________________________________________________________________
2. Medical problems_________________________________________________________________________________________________________
3. Current medications________________________________________________________________________________________________________
Physician’s Name_____________________________________________________ Telephone ( _______ ) ___________________________________
Insurance Carrier_____________________________________________________ Group Policy Number____________________________________
• In the event of an emergency, I hereby authorize any and all medical attention to be administered that is deemed necessary by
the attending physician or nurse. I understand and agree that I am financially responsible for any care so provided. In consideration of the opportunity to participate in the activities sponsored by Corporate Kids Events, Inc., the undersigned hereby assumes
all risks and waives all claims for bodily injury or death and for damage of any property directly or indirectly arising from or in connection with any activities of the conference and activities program, except directly and solely caused by the willful misconduct
of the corporation or its agents.
• Corporate Kids Events, Inc., often provides a photographer and/or videographer for its events. When possible, the photographer
will record an image of each participant during the initial registration and then will capture footage and stills of the participants
as they enjoy the event. I hereby grant Corporate Kids Events, Inc., and its representatives, employees, agents, and assigns, the
irrevocable and unrestricted right to use, reproduce, and publish photographs or digital images of the child referenced above,
including his or her image and likeness as depicted therein, for editorial, trade, advertising, or any other purpose and in any manner and medium; to alter the same without restriction; and to copyright the same. I hereby release Corporate Kids Events, Inc.,
and NAAF, and their officers, employees, agents, legal representatives, and assigns from any and all claims, actions, and liability
relating to the use of said photographs or digital images.
Permission is hereby given for my child to participate in the NAAF Children’s Conference Camp from June 22 through June 25, 2017.
I have read all materials presented with full knowledge prior to the program
Parent’s/Guardian’s signature____________________________________________________________________ Date________________________
Name(s) of Adult(s) Traveling with Child_________________________________________________________________________________________
Rules and Regulations:
Parents will be held responsible for the behavior of children participating in the 2017 Children’s Conference Camp. The following
rules must be observed and will be strictly enforced during the activities. Corporate Kids Events reserves the right to remove the
child from the program with no refund of monies.
1. All children must adhere to instructions given them by Corporate Kids Events Youth Counselors.
2. No roughhousing, foul language, or raucous conduct will be allowed.
3. No smoking allowed.
Child’s Signature_____________________________________________________________________________ Date ___________________________
Parent’s/Guardian’s Signature____________________________________________________________________ Date_______________________
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
9
32ND ANNUAL NAAF INTERNATIONAL CONFERENCE
Miami, FL | Thursday, June 22 through Sunday, June 25, 2017
NAAF Parent Permission & Responsibility Form
Please complete and return one form for each child participating in the 32nd Annual NAAF
International Conference. You may mail with registration or fax to NAAF at 415-480-1800
or scan and email to [email protected]. (Please make copies if necessary).
• Registration forms will not be accepted without a completed permission form for each child.
• The undersigned as parent or guardian gives permission to the National Alopecia Areata Foundation (NAAF)
for his/her child to participate in the NAAF International Conference activities at the Hyatt Regency Miami in
Miami, FL Thursday, June 22 through Sunday, June 25, 2017.
• The undersigned understands and agrees that participation in the National Alopecia Areata Foundation
International Conference shall be at the undersigned’s sole risk, and that the NAAF, its agents, employees,
officers, directors, and contractors shall not be liable for any injuries or any damage to such child and hereby
waives and releases the National Alopecia Areata Foundation and its agents, employees, officers, directors,
and contractors from any liability or claims for such injuries or damages. The undersigned understands that
he/she is solely responsible for the conduct of the child throughout the NAAF Conference.
The undersigned acknowledges that this agreement constitutes the entire understanding and agreement
concerning liability and responsibility at the NAAF Conference.
I have carefully read and understand the foregoing agreement and agree to the
terms and conditions.
_______________________________________________________
PRINT NAME (PARENT/GUARDIAN) _______________________________________________________
CHILD’S FULL NAME _______________________________________________________
HOME PHONE NUMBER 10
______________________________________________________ SIGNATURE
______________________________________________________
CHILD’S DATE OF BIRTH
AGE
______________________________________________________
CELL PHONE NUMBER
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
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www.naaf.org
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ADDRESS CITY/STATE/ZIP Telephone: Address: Date/City of Walk: EMAIL/TELEPHONE TOTAL: Saturday, June 23, 2017 – Miami, FL PLEASE BRING ALL OF YOUR PLEDGE MONEY AND THIS FORM TO THE EVENT. Donations should be collected prior to the event. Please ask donors to pay by check or money order made payable to NAAF in US dollars. For donations of $250 or more, NAAF will send a tax receipt. All Contributions are Fully Tax Deductible and Support the National Alopecia Areata Foundation. NAME City/State/Zip: Email: Walker Name: AMOUNT ($) Since you will be participating far from home, please ask your family, friends and co‐workers to support your efforts in Miami, FL! Please bring all of your pledge money and this form to the event. Print NAAF tax receipts here: www.naaf.org/resource/tortoise‐hair‐pledge‐tax‐receipt and issue to any donors who give $249 or less. A formal tax receipt will ONLY be issued by NAAF if the donor gives $250 or more and their name and address are complete and clearly printed. Prizes will be awarded to the 10 individuals raising the highest pledges! Be sure to photocopy this blank page for additional pledges. You may also collect pledges on your own fundraising web page. Sign up at support.naaf.org/2017ConferenceWalk. Contact NAAF at 415‐472‐3780 with any questions. PLEDGE SHEET Tortoise & Hair™ Conference Walk |Miami, FL | Saturday, June 23, 2017 32nd ANNUAL NAAF INTERNATIONAL CONFERENCE Detailed Program continued from page 6
FRIDAY, JUNE 23
n Orientation Session: What You Should Know
8:30 am – 10:00 am | GENERAL TRACK
This session is especially valuable to first-time conference
attendees. Veteran emcee Maureen McGettigan, a longtime
friend, volunteer and past Chair of the NAAF Board of Directors,
will welcome everyone to get acquainted and provide an
overview of what to expect throughout the weekend.
Dr. Maria Hordinsky will provide an informative, straightforward
presentation of everything you need to know about alopecia areata,
including risks and benefits of current and evolving off-label treatment options. Dr. Hordinsky is Professor and Chair of the Department
of Dermatology at the University of Minnesota and is recognized
for her clinical expertise and research in alopecia areata.
Rugby sporting star and Olympic competitor, Heather Fisher, is
scheduled to appear and share her personal battle with alopecia
areata and the struggles she faces on and off the field. Heather
is a full-time professional rugby player and was part of England’s
World Cup winning team in 2014. She was chosen in the 12-strong
British Women’s sevens squad for the Rio 2016 Olympic Games,
assisting the team to their fourth place finish. Heather, who is
from Birmingham, has worked on behalf of the Youth Sport Trust
and Cheadle Hulme School as an athlete mentor and is an
ambassador for Alopecia UK.
This session will close with a panel of veteran conference
attendees who will share their experiences at past conferences,
discuss anxieties related to attending the conference, and provide
tips on how to get the most out of your conference experience.
preclinical research and discovery all the way through clinical
trials and approval pipelines. Learn about the entire process,
ask questions, provide feedback and become empowered with
information to support your involvement in research. This panel is
designed as an open exchange between industry experts and
audience members to learn how we can work together to move
products for alopecia areata from discovery to market.
Facilitator Luncheon | 12:30 pm – 1:45 pm
Volunteer leaders of Conference Support Sessions are invited
to learn strategies and best practices for facilitating discussion
groups from Dr. Richard Long. Dr. Long holds a doctorate in
counseling from George Washington University and has been a
longtime mental health consultant for NAAF.
Exhibitor Displays | 12:30 pm – 6:00 pm
Support and Empowerment Sessions A–K
2:00 pm – 3:30 pm
Come as you are to share experiences, advice, support, and
personal connections with others who understand. Select the
topic that interests you most from our list of sessions focused on
personal and/or social issues related to alopecia areata. Sessions
will be conducted in a support group–style format with attendees
sharing experiences and exchanging information.
n A) Parents of Children (Girls) with Alopecia Areata
PARENTS TRACK
An exchange of ideas on being a parent of a girl with
alopecia areata.
n B) Parents of Children (Boys) with Alopecia Areata
n Opening Session: New Frontiers in
Alopecia Areata Research | 10:00 am – 12:30 pm
GENERAL TRACK
Learn about the latest breakthroughs in alopecia areata
research, potential treatments in the pipeline, and emerging
initiatives that matter most to you.
Dr. Angela Christiano will provide an update on genetic and
immunological studies in alopecia areata. By working to elucidate
the genes responsible for alopecia areata, Dr. Christiano’s
research has helped clarify the immunologic mechanisms behind
the disease. Now, early clinical trials with existing drugs that
specifically target these mechanisms are showing promising hair
regrowth for the first time ever. Dr. Christiano is the Richard and
Mildred Rhodebeck Professor of Dermatology and Professor of
Genetics & Development, and Vice Chair for Basic Science
Research in Dermatology at Columbia University.
Dr. Natasha Mesinkovska, NAAF’s Chief Scientific Officer,
will share the latest progress of NAAF’s Treatment Development
Program, our efforts to build a stronger patient-centered research
community and how your involvement is critical to developing
treatments for alopecia areata. Dr. Mesinkovska is Director of
Clinical Research in the Department of Dermatology at the
University of California Irvine.
An industry panel has been invited to conclude this session.
Biopharmaceutical industry experts will discuss current challenges
and opportunities in drug development for alopecia areata; from
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PARENTS TRACK
An exchange of ideas on being a parent of a boy with
alopecia areata.
n C) Parents of Preteens with Alopecia Areata
PARENTS TRACK
An exchange of ideas on being a parent of preteens with
alopecia areata.
n D) Parents of Teens with Alopecia Areata
PARENTS TRACK
An exchange of ideas on being a parent of teens with
alopecia areata.
n E) Women & Alopecia Areata | INDIVIDUALS TRACK
An honest discussion on being a woman with alopecia areata.
n F) Men & Alopecia Areata INDIVIDUALS TRACK
An honest discussion on being a men with alopecia areata.
n G) Dating & Alopecia Areata | INDIVIDUALS TRACK
An in-depth look at how alopecia areata affects you and your
dating life.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
|
www.naaf.org
n H) Living the Active Life with Alopecia Areata
SATURDAY, JUNE 24
INDIVIDUALS TRACK
For those who have changed their active lifestyle because of
alopecia areata. Join in an honest discussion about how to
feel comfortable and gain confidence to still do the activities
you love.
Registration and Tortoise & Hair™ Conference Walk
Check-In | 7:00 am – 5:30 pm
n I)The Good, The Bad and The Maybe OK . . .
After All These Years | INDIVIDUALS TRACK
For everyone who has been living with alopecia areata for a
long time; how our situation differs from the recently diagnosed.
This session will focus on how we have learned to cope (tricks
of the trade) or not, and to discover new tools.
n J) Support for the Supporters | GENERAL TRACK
Tortoise & Hair™ Conference Walk | 7:30 am – 9:30 am
On this year’s Tortoise & Hair™ Conference Walk, you will trace Miami’s
picturesque Riverwalk as you raise awareness of alopecia areata
along with funds to benefit NAAF in our ongoing effort to provide
awareness, support, and research for the alopecia areata community. Start your day with energy, beautiful scenery, and camaraderie
while raising funds to help NAAF support people with alopecia areata
and continue our search for a cure. Be sure to wear comfortable
shoes and don’t forget to wear your Tortoise & Hair™ t-shirt!
Children’s Alopecia Areata
Conference Camp (Ages 5–17) | 9:45 am – 5:45 pm
Ideas on how to help your friend, sibling or family
member who has alopecia areata.
n General Session: The Push for Change —
n K) The Power of Us: Become a Social Ambassador
YOUNG ADULTS TRACK
Together our voice is louder and our impact greater! Get
involved in our Power of Us opportunities, bringing young adult
voices together collectively to help us spread the word and
increase awareness of alopecia areata. Social Ambassadors
are passionate about the alopecia areata community and
want to harness their dedication into spreading NAAF’s
messages to others through various communication channels.
If you have these qualities, we welcome you and look forward
to adding your voice to the roar that will change lives.
Community Empowerment Workshops 5–6
4:00 pm – 5:30 pm
n 5) Cosmetic Demonstration Workshop
INDIVIDUALS TRACK
Empower yourself by embracing your inner beauty and letting
your outer beauty shine. An expert makeup artist will provide
a hands-on tutorial on applying eye makeup and eyebrows to
empower you and keep you looking your best! You will learn
professional makeup application techniques.
n 6) Awareness & Advocacy Workshop | GENERAL TRACK
Let your voice be heard! Learn from others about how to
organize events, raise awareness and educate your local
community about alopecia areata. And learn from a
Legislative Liaison about how to educate your congressional
representatives about alopecia areata and important issues
related to our cause.
From Insights to Action | 10:00 am – 11:00 am
GENERAL TRACK
Learn how NAAF and others are advancing patient-centeredness
and engagement in research, what we know so far about the
impact of this trend, what we hope to learn in the future, and
implications for the alopecia areata community. Hear an overview of what Patient-Centered Outcomes Research looks like,
and how you can get involved by using the information you have
to make decisions that reflect your desired health outcomes.
NAAF President & CEO Dory Kranz will discuss our increased
focus on patient engagement, as well as opportunities for you to
take action in your own health care and research that will lead to
treatments. The collaboration of our global researchers continues
to provide breakthroughs in understanding your alopecia areata
and in charting the course for our future. This is an unparalleled
time in NAAF’s history and your participation is critical to inform
the development of medications that are effective, safe, and
acceptable to you and your families.
n Patient-Centered Outcomes Research
(PCOR) Training | 11:00 am – 1:00 pm | GENERAL TRACK
Learn how to meaningfully participate in clinical research, provide
input to improve clinical trial design, and gain an understanding
of the FDA’s review and approval process for new products.
NAAF’s Health and Research Ambassadors will teach you about
the research and development world and help you find your
voice throughout the research and regulatory process so that
treatments developed are meaningful to you!
Exhibitor Displays | 1:00 pm – 6:00 pm
n Ask the Experts | 2:00 pm – 4:00 pm | GENERAL TRACK
This panel of medical and research experts from a variety of fields
will answer your questions about different aspects of alopecia
areata, including treatment, heritability, related conditions,
emotional effects, environmental triggers, clinical trials, ongoing
research, and more. Please submit your questions in advance via
email to [email protected] so the experts can fully prepare for this
popular session.
Detailed Program continued on page 14
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
|
JUNE 22 – 25, 2017
|
www.naaf.org
13
Detailed Program continued from page 13
n n Young Adult Perspectives | 4:00 pm – 5:30 pm
PARENTS & YOUNG ADULTS TRACK
A panel of young adults will share their experiences growing up
with alopecia areata and answer questions about situations other
children may eventually face. They will also introduce the Young
Adult Mentorship program and share this opportunity to add
another level of support for our children.
n Night in the Caribbean Dance Party
8:00 pm – Midnight | GENERAL TRACK
Reggae, Afro-Cuban and salsa together with your dance
favorites will make for one spicy mix at the Night in the Caribbean
Dance Party. Come samba ’til midnight while enjoying ice cream
or a drink at the no-host bar. And the adults-only private lounge
is the perfect place to chill and unwind. But don’t rest too long
’cause once again we’re going to be looking for the best dancers
to honor at the next day’s closing ceremony.
SUNDAY, JUNE 25
NAAF Information Display | 9:00 am – 1:30 am Gather informative materials for your personal use or to raise
awareness in your local area.
Children’s Alopecia Areata
Conference Camp (Ages 5–17) | 9:15 am – 11:15 am Support and Empowerment Sessions L–T
9:30 am – 11:00 am Come as you are to share experiences, advice, support, and
personal connections with others who understand. Select the
topic that interests you most from our list of sessions focused on
personal and/or social issues related to alopecia areata. Sessions
will be conducted in a support group–style format with attendees
sharing experiences and exchanging information.
n L) Enriching the Elementary School Experience for Your
Child (Girl) with Alopecia Areata | PARENTS TRACK
Making elementary school a positive experience for your girl.
n M) Enriching the Elementary School Experience for Your
Child (Boy) with Alopecia Areata | PARENTS TRACK
Making elementary school a positive experience for your boy.
n N) Making the Most Out of Junior High for Your Child
with Alopecia Areata | PARENTS TRACK
An exchange of ideas on how to help your child make the
most out of school.
n O) Making the Most Out of High School for Your Child
with Alopecia Areata | PARENTS TRACK
An exchange of ideas on how to help your child make the
most out of school.
14
n P) Relationships & Intimacy | GENERAL TRACK
An in-depth look at how alopecia areata affects you and
your partner.
n Q) Support for the Supporters | GENERAL TRACK
Ideas on how to help your friend, sibling or family member who
has alopecia areata.
n R) Wigged Out and Loving It! | INDIVIDUALS TRACK
A session for those who choose to go full time or close to full
time wearing a wig or other head covering. Share ideas about
talking to friends, co-workers and family about the fact that
you wear a wig. Is this something you keep very private? Share
your thoughts and concerns.
n S) Alopecia Areata in the Workplace | INDIVIDUALS TRACK
For those dealing with career challenges such as: job interviews, communication to fellow workers and employers, and
revealing your alopecia areata.
n T) Am I Okay? Yes I Am! Or I’ll Fake It ‘til I Make It
INDIVIDUALS TRACK
This session is for anyone with alopecia areata. Alopecia
areata can change your self-perception and impact your
outlook on life. Please come to talk about your changing
appearance and learn how to cope and thrive despite this
autoimmune diagnosis.
Hotel Check-Out | 11:00 am – 11:30 am
n Closing Session | 11:30 am – 1:00 pm | GENERAL TRACK
This year, as the conference comes to a close, NAAF Communications Director Gary Sherwood and Chief Development Strategist
Maureen Smith will share the latest accomplishments of NAAF’s
Advocacy and Awareness Program.
This session will close with our inspirational guest speaker,
Anthony Carrigan, a prolific television and motion picture actor
best known for his portrayals of “Kyle Nimbus” aka ”The Mist” on the
series The Flash and “Victor Zsasz” on the series Gotham. A native
of Boston, Massachusetts, Anthony was diagnosed with alopecia
areata at the age of 3. Although he initially would hide his hair loss
to get acting jobs, he eventually came out about his alopecia areata
and says, “The most important thing was that I just felt so good
to not have to hide anymore, to own the way that I am and feel
really good about it, feel really positive about the way that I look.”
Emotions are high the entire weekend and Sunday provides
a moving farewell, a time for bonding as a group, and a time for
closure. Be sure you are in attendance to root for the winners of
the dance party and Tortoise & Hair™ Conference Walk fundraising challenge as they are announced.
n Good-bye Gathering | 1:00 pm – 2:00 pm
GENERAL TRACK
Join your new and old friends before departing to the airport or
beginning your long drive home. Be sure to exchange contact
information with new friends to keep in touch throughout the year.
Light snacks will be served.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
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MIAMI, FL
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JUNE 22 – 25, 2017
|
www.naaf.org
Additional Information
Registration Deadlines & Fees
We encourage you to return your registration form as soon
as possible. Registrations must be received by Monday,
May 22, 2017, to qualify for the Early Registration Fee.
Specific registration preferences are fulfilled on a first-come,
first-served basis. Attendance in some support sessions is
limited due to meeting room capacity.
Early Registration Fees (received by Monday, May 22, 2017):
• First person registration fee (Adult).................................. $285
• Accompanying spouses, family members,
and friends....................................................$215 (per person)
• Children ages 5–17............................................................ $215
• Children pre-K or younger............................................ COMP
Parking
Hyatt Regency Miami offers on-property indoor valet
parking at the rate of $37 per night (including 24-hour in/out
privileges) for hotel guests. Self-Parking Rates: $19, payable
by cash or credit card. Self-parking is in a garage with no
in/out privileges.
Roommates
If you wish to share a hotel room with another conference
participant, NAAF will make every effort to connect you
with other potential roommates so that you may make hotel
arrangements together. Please contact Mary Cosgrove at
(415) 472-3780 or [email protected] by Monday, May 15, 2017.
Late Registrations Fees (received after Monday, June 5):
• First person registration fee (Adult).................................. $550
• Accompanying spouses, family members,
and friends....................................................$270 (per person)
• Children ages 5–17............................................................ $270
• Children pre-K or younger............................................ COMP
Airports & Ground Transportation
Registration Cancellations
Cancellations received by NAAF no later than Monday,
June 5, 2017, will be refunded less a $25 per person administrative fee. No refunds will be given for cancellations after
Monday, June 5. Refunds will be mailed in August.
Fort Lauderdale International Airport (FLL) is 27.5 Miles/
30 Minutes from Hyatt Regency Miami. Taxi Fare from FLL
to conference hotel is approximately $75–$80 (plus tip)
one way.
SuperShuttle fare is approximately $32–$35 round trip per
person from MIA airport and $72–$75 round trip per person
from FLL airport to the conference hotel. You can book
your reservation online at www.supershuttle.com or call
(800) 258-3826.
Hotel
Hyatt Regency Miami
400 SE Second Avenue, Miami, Florida 33131-2197
Hotel Direct Line: 1-305-358-1234
Central Reservations: (888) 421-1442
Attire
Conference participants are responsible for making their
own hotel reservations directly with the Hyatt Regency
Miami. Hotel rooms tend to sell out quickly, so please don’t
delay. Rooms are available on a first-come, first-served basis,
and bed size is not guaranteed. To make your reservation,
please call and ask for the NATIONAL ALOPECIA AREATA
FOUNDATION group rate. Only registered conferees will get
our special low rates.
Hotel Reservation Deadline: Friday, May 19, 2017
$139 Single/Double Occupancy
$164 Triple Occupancy
$189 Quadruple Occupancy
Casual attire is appropriate for the entire conference.
Dressier attire is frequently chosen for the social events
but is not required. Attire to keep warm while indoors is
recommended since air conditioned hotels are sometimes
chilly. Please be prepared with umbrellas for rain or shine!
Make sure you wear comfortable walking shoes for the
Tortoise & Hair™ Conference Walk, and don’t forget to bring
your outfit for the Night in the Caribbean Dance Party!
Income Tax Deduction for
Parents with Children
• Current room tax is 13%
• Hotel cancellations must be made 72 hours in advance of
the day of arrival.
• Children 18 and under stay free in a room with an adult.
• Four guests are allowed per room. Rollaway beds are
available in King Rooms only, and cribs are available upon
request on a first-come, first-served basis.
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
Miami International Airport (MIA) is the closest airport,
located just 7.6 miles/16 minutes from the Hyatt Regency
Miami. Taxi fare from MIA to the conference hotel is
approximately $21–$25 (plus tip) one way.
|
An IRS ruling allows parents to deduct the expenses of
admission and transportation to a medical conference
relating to the chronic disease of the individual’s dependent.
Please note: Conference Program of Events may be subject
to change.
MIAMI, FL
|
JUNE 22 – 25, 2017
|
www.naaf.org
15
65 Mitchell Boulevard, Suite 200-B
San Rafael, CA 94903
How to Register
1. Complete the Conference Registration Form and Sign-Up Sheet (use
one individual column for each person attending). Pay close attention
so that you are not signing up for a session that does not apply to you.
2. For children ages 5 to 17 TWO PERMISSION FORMS MUST BE SIGNED
AND SUBMITTED: the NAAF Parent Permission and Responsibility Form and
the Corporate Kids Events Emergency Consent, Release, and Rules and
Regulations Form. FOOD ALLERGY NOTICE: For children with allergies or
special dietary needs, parents MUST provide a detailed list of safe and
acceptable foods for the scheduled snacks, lunches and/or dinners
during the Children’s Conference Camp. This information needs to be
included with the Parent Permission and Responsibility Form so we can
plan an appropriate menu for your child. Registration forms that are
missing any of the necessary permission/food allergy information and
emergency consent forms for children will be returned.
To reserve your hotel room at the Hyatt Regency Miami where the
conference will be held, please call the Hotel Direct Line: (305) 358-1234
or Central Reservations: (888) 421-1442 and request the National Alopecia
Areata Foundation group rate.
1. Hotel reservations must be made by Friday, May 19, 2017. Once you
have your hotel confirmation number, it is important that you include it
on your NAAF Registration Form. These rooms sell fast, so book early!
2. Please take a moment to review your completed forms for accuracy,
and check that your hotel confirmation number is included. Registration forms that are missing information will be returned.
3. Submit your payment by check or credit card. If the registration form
is received by Monday, May 22, at NAAF, these fees are $285 for the
first adult person and $215 for each additional person (except pre-K
kids). Please remember to sign up for Tortoise & Hair™ Conference
Walk with your registration.
4. Send all forms to: NAAF, 65 Mitchell Blvd., Suite 200-B, San Rafael, CA
94903. Early registrations must be received by Monday, May 22, 2017.
Registrations received after Monday, May 22 will be considered late
and will require the higher late registration fees.
5. Alternatively, all forms may be completed and submitted online via
our website, www.naaf.org.
6. Upon receipt of your complete registration, NAAF will send you a
confirmation packet verifying your registration with the selections you
have made.
Deadlines
FRIDAY, MAY 19, 2017:
Hotel Reservations
MONDAY, MAY 22, 2017:
Early Registration (received by NAAF)
MONDAY, JUNE 5, 2017:
Last Day for Registration Cancellations
& Refunds (NAAF)
Help Others in Need by Donating to the
NAAF Conference Scholarship Fund
Last year, the NAAF Conference Scholarship Fund
enabled 61 people to attend the 31st Annual NAAF
International Conference in Washington DC. Generous
donations have helped over 1,600 people attend the
last 24 NAAF conferences, and with your support, we
will continue to assist those in need. We invite you to
help change a life by making a contribution that will
allow a person in need to attend this exciting and
inspiring event. You can simply include this gift in
your final registration payment or donate online at
support.naaf.org/2017conferencescholarship.
Conference Sponsorships and Partnerships
Would you like to support NAAF and increase recognition of your brand? As the largest, most influential,
and most representative nonprofit patient advocacy
organization dedicated to improving the quality of life
for patients with alopecia areata around the world, the
National Alopecia Areata Foundation
offers unique partnership and sponsorship
opportunities. Many corporations support
NAAF in exclusive collaborations. For
more information regarding our array of
programs and sponsorship opportunities,
please contact Maureen Smith at
[email protected] or (415) 472-3780.
National Alopecia Areata Foundation | 65 Mitchell Boulevard, Suite 200-B, San Rafael, CA 94903
Phone: 415-472-3780 | Fax: 415-480-1800 | [email protected] | www.naaf.org
16
JOIN NAAF IN| 2018!|
T H E 3 2 N D A N N U A L N A A F I N T E R N AT I O N A L C O N F E R E N C E
MIAMI, FL
JUNE 22 – 25, 2017
|
www.naaf.org
The Conference Destination is Scottsdale, Arizona • Thursday, June 28 – Sunday, July 1, 2018