ccawonderkids children’s craniofacial association: empowering and giving hope to individuals and families affected by facial differences look different. I just want to be accepted like everyone else, even though I look different. How many surgeries have you had? What’s the worst thing about surgery? I have had 28 surgeries. The worst thing about surgery is waking up from it and the recovery time. Have you ever been bullied? What did you do? No. Has the popularity of Wonder changed your life? In what way? Yes, I liked all of the cards I received. It makes me feel special. samantha klinger Age: 14 Craniofacial syndrome: Apert syndrome State: Ohio What is your favorite activity? Riding my 4-wheeler What do you want to be when you grow up? A babysitter Who is your hero and why? My Aunt Suebee, because we do lots of things together. What is your favorite school subject? Math Do you have any pets? If so, how many and what types? Yes, 3 cats and 1 dog What is your favorite color? Blue What is your favorite movie? Max What is your favorite holiday? Christmas Do you have any siblings? If so, how many and what are their ages? Yes, 1 sister who is 19 years old How do you feel when people stare at you? What do you wish people do instead? I feel sad. I wish they would ask me a question about why I What is your favorite food? Mashed potatoes What is the most important thing readers should remember about Auggie? I just want them to remember that we have feelings, too. We want to be accepted as a person. Even though we look different, what matters the most about a person is what is inside them. I like to have fun and be around people. kalyssa aumann Age: 9 Craniofacial syndrome: Frontal Nasal Dysplasia (FND) State: Nevada What is your favorite activity? Gymnastics What do you want to be when you grow up? Zoo Keeper Who is your hero and why? My favorite super hero is Flash – because he is SUPER FAST. What is your favorite school subject? Art Do you have any pets? If so, how many and what types? Yes, 3 dogs. A Black Lab puppy named Bella, a Morkie (Maltese and Yorkie) named Sasha, and a Maltipoo (Maltese and Toy Poodle) named Shadow What is your favorite movie? I have a lot of favorites, like A Second Chance, Inside Out and The Gabby Douglas Story Do you have any siblings? If so, how many and what are their ages? Yes, one brother, Kaden, who is 10. What is your favorite color? Turquoise What is your favorite food? Mac ‘n Cheese What is your favorite holiday? Christmas! How do you feel when people stare at you? I want to say something – and tell them I am a normal kid like you! Instead of staring, what do you wish people would do/say when they meet you? Say Hi and ask about my nose. What makes you most nervous when meeting new people (new class, club, group, etc.)? Scared of people making fun of me. How many surgeries have you had? Three What’s the worst thing about surgery? The whole thing is scary. Have you ever been bullied? If so, what did you do? Yes. Told them to stop, and when they didn’t stop, I told the teacher. Has the popularity of Wonder changed your life? If so, in what way? Yes. It gives me another thing (tool) to talk to people about. In your opinion, what is the most important thing readers should remember about Auggie? That bullying is not ok, and he is just like other kids. john gorman Age: 8.5 Craniofacial syndrome: Crouzon syndrome State: Texas What is your favorite activity? Playing baseball, soccer, and PS4 (Madden and Minecraft) What do you want to be when you grow up? An owner and chef of a seafood restaurant Who is your hero and why? Superman and my dad. Superman, because he’s Superman. Dad, because he plays Madden with me and he’s funny. And he loves me too. What is your favorite school subject? Math and P.E. Do you have any pets? If so, how many and what types? Ollie, my golden retriever What is your favorite movie? Back to the Future Do you have any siblings? If so, how many and what are their ages? Two sisters, RoryCate (7) and Greta (3) What is your favorite color? Blue What is your favorite food? Shrimp, calamari and oysters What is your favorite holiday? Christmas How do you feel when people stare at you? Instead of staring, what do you wish people would do/say when they meet you? It annoys me. I want to say “What is your problem, dude!?” Instead, I just try to get out of that situation. I wish people would just say “Hi.” It’s easy after you say “Hi.” What makes you most nervous when meeting new people (new class, club, group, etc.)? I don’t like being in situations where I don’t know anyone and they don’t know me. I don’t do it very often. How many surgeries have you had? 13 What’s the worst thing about surgery? Puking after anesthesia. Having to miss out on fun things with my friends. Have you ever been bullied? Not really. Sometimes kids will stare at me or laugh at me. What did you do? I walk away. But sometimes my mom wants to “talk it out” with the kid. That can be kind of embarrassing. Has the popularity of Wonder changed your life? If so, in what way? YES! I think it makes people more kind. It has helped my friends understand me better. In your opinion, what is the most important thing readers should remember about Auggie? He’s a good kid. He’s kind, he’s funny and that is what matters. jeremy dale Age: 16 Craniofacial syndrome: Goldenhar syndrome State: New York What is your favorite activity? To play video games What do you want to be when you grow up? A Lego® designer Who is your hero and why? My grandfather because he was brave and courageous in the Marine Corps. What is your favorite school subject? P.E. Do you have any pets? If so, how many and what types? A dog, MalteseCocker Spaniel-Poodle. Her name is Maddy and she is four. What is your favorite movie? The Lego Movie Do you have any siblings? If so, how many and what are their ages? I have two younger brothers, 13 and 9. What is your favorite color? Black What is your favorite food? Bread What is your favorite holiday? Christmas How do you feel when people stare at you? Instead of staring, what do you wish people would do/say when they meet you? What makes you most nervous when meeting new people (new class, club, group, etc.)? People aren’t afraid of me. I have not experienced other people staring at me. I am not nervous when meeting new people. How many surgeries have you had? What’s the worst thing about surgery? I had 37 surgeries, the worst thing is the IVs. Have you ever been bullied? What did you do? I have never been bullied before. Has the popularity of Wonder changed your life? In what way? In your opinion, what is the most important thing readers should remember about Auggie? Not all that much, but it gave me the opportunity to go in and talk to younger classes about Wonder. People should remember to never judge a book by its cover. Meaning they should never judge someone based on what they look like. bridget hospodka Age: 12 Craniofacial syndrome: Pfeiffer syndrome Type II State: Nebraska What is your favorite activity? Playing soccer, giggling with friends, designing clothes and cooking What do you want to be when you grow up? I want to be either a chef, a fashion designer or a pro soccer player. Who is your hero and why? My dad. He saved my life twice when I had pneumonia. One time if he had waited an hour I would’ve been dead. What is your favorite school subject? Math Do you have any pets? If so, how many and what types? I have one cat named Charlie. What is your favorite movie? The Parent Trap, the Lindsey Lohan version Do you have any siblings? If so, how many and what are their ages? I have 3 siblings; they are 15, 8 and 2. What is your favorite color? Blue What is your favorite food? Mama’s Pepperoni Pizza What is your favorite holiday? Christmas How do you feel when people stare at you? I don’t care if people stare at me, I’m used to it by now. Instead of staring, what do you wish people would do/say when they meet you? I wish they would ask to play or ask my name. What makes you most nervous when meeting new people (new class, club, group, etc.)? That they’ll think I’m different and weird (which is true with my personality). Has the popularity of Wonder changed your life? Yes How many surgeries have you had? I don’t count because it’s tiring, but it’s around 30-35. In what way? People are nicer to me because they have an idea of what I’ve gone through. What’s the worst thing about surgery? I really hate the pain I experience. In your opinion, what is the most important thing readers should remember about Auggie? I think they should remember what struggles he has gone through. Have you ever been bullied? Yes, I actually have. What did you do? I just stand up for myself when I’m bullied. connor ford Age: 12 Craniofacial syndrome: Treacher Collins syndrome State: New York What is your favorite activity? Playing baseball and anything music related. What do you want to be when you grow up? I really like math. I would like to be a software engineer like my dad. Who is your hero and why? My cousin Sara is my hero. She was also in a wheelchair due to a car accident. She taught me that my “wheels” can take me anywhere. What is your favorite school subject? Math and Science Do you have any pets? If so, how many and what types? I have a dog named Bowen. He is still a puppy and is always getting in trouble. What is your favorite movie? Annie (both the old and new) Do you have any siblings? If so, how many and what are their ages? N/A What is your favorite color? All shades of Blue. What is your favorite food? I have a feeding tube. All my food goes through the tube because I have a hard time swallowing solid food. Kids sometimes think it is cool when I tell them that “I can eat and sleep at the same time!” What is your favorite holiday? Christmas. I love having a decorated tree in our house. How do you feel when people stare at you? Instead of staring, what do you wish people would do/say when they meet you? Since I am in a wheelchair I usually have either my mom or dad with me when I am out and about. When people stare at me it makes me anxious but my parents always remind me that most kids are staring because they are curious. Some kids have never seen a trach or hearing aid like mine before. Sometimes, though, kids and adults can point and be mean. This makes me sad. How many surgeries have you had? What’s the worst thing about surgery? I have had six surgeries. The hardest part is being in pain and being in the hospital. Have you ever been bullied? What did you do? I have not been bullied. Has the popularity of Wonder changed your life? In what way? Wonder has helped people understand more about my life. This includes adults too. I think it is neat that Auggie has a hearing aid just like mine. In your opinion, what is the most important thing readers should remember about Auggie? I think people should remember that even though Auggie looks different on the outside he feels the same feelings on the inside that everyone does. children’s craniofacial association 13140 Coit Road • Suite 517 • Dallas, TX 75240 VOICE FAX 214-570-9099 214-570-8811 TOLL-FREE 800-535-3643 www.CCAkids.org
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