spring 2013 children’s progress serving children through philanthropy 18 Making History First epilepsy surgery perfomed at Akron Children’s gives boy a new chance in life. 4 Building on the Promise Ready, set, build! 12 A Look Back at 2102 Making History letter from the executive director Dear Friends, As we grow regionally, so does our donor family. �Family’ is a word that carries a lot of weight at Akron Children’s Hospital. It drives the way we approach patient care, and it guides the way we structure our facilities – from patient rooms to respite centers. As a contributor to Akron Children’s Hospital, you are a part of our hospital family. In 2012, your support helped us grow in ways we never imagined. We ended the year with more than $20 million raised through individual contributions, fundraisers, grants, our “Building on the Promise” campaign and more. It was one of the most monumental years we’ve experienced. In this issue of Children’s Progress, you’ll read stories that reflect an expanding family of people who want to support our mission. Read about the achievements of recent events like the Handel’s Koins for Kids campaign and our annual “Have a Heart, Do Your Part” radiothon. Plan to attend one of our upcoming events, such as the annual Diamond Classic for Kids and the first-ever Flash-A-Thon dance marathon. And learn about the latest developments taking place at our hospital. It’s a privilege to be a part of Akron Children’s – and to have the support of people like you, who are just as committed to ensuring that world-class pediatric care thrives in northeast Ohio. Just like any family grows over time, so does our hospital. One of the ways we grow is by establishing new divisions, programs and services, like the NeuroDevelopmental Science Center. In 2012, the center’s physicians performed our first-ever epilepsy surgery. In these pages you’ll read how it gave hope and a second chance to one local boy. New opportunities like this help us provide the best possible care to the children of our hospital communities and beyond, allowing us to expand our regional presence. Officers foundation board members Philip H. Maynard Chairman William H. Considine President Michael P. Trainer Treasurer John D. Zoilo Executive Director Akron Children’s Hospital Foundation William W. Cushwa Jr. Manager The Braveheart Group LLC John P. Delaney Vice President and Co-Owner G.D.S. Express Inc. John T. McBride, MD Vice Chair, Department of Pediatrics, and Director, Robert T. Stone MD Respiratory Center Akron Children’s Hospital Mrs. James McCool (Diana) Paul M. Dutton Member/Partner Harrington, Hoppe & Mitchell Ltd. Gregory J. Michalec Senior Vice President of Sales and Marketing Superior Beverage Group Valerie A. Geiger Senior Vice President, Corporate Banking PNC Bank Gregory A. McDermott President First Merit Insurance Group Richard R. Grigg Chairman, Board of Directors Akron Children’s Hospital Mark W. Oelschlager Portfolio Manager Oak Associates Ltd. James P. Berry SiebertKeck Insurance Agency (Retired) Raymond Hexamer CEO First Communication Frank Bevilacqua President/Co-owner Winer and Bevilacqua Willard T. Holland Partner Expand Interactive Ernest Pouttu President & Chief Executive Officer Harwick Standard Distribution Corp. David A. Bouffard Vice President, Public Relations Sterling Jewelers Inc. Patrick James Chairman Hawthorn Manufacturing Corp. Adam A. Briggs Financial Advisor Briggs Financial Group Keith Kennedy Director WKDD Radio Elizabeth A. Clark President Friends of Akron Children’s Hospital Rajeev Kishore, MD Director, Allergy-Immunology Akron Children’s Hospital Robert B. Cooper Director, Licensed Real Estate CB Richard Ellis Inc. Kara H. Lewis President Winslow Asset Management Inc. John P. Crow, MD Pediatric Surgeon Akron Children’s Hospital Robert M. Littman, CPA, MT Director SS&G Financial Services Inc. Thomas R. Crowley Chairman of the Board Gasko Products (Retired) Mrs. Robert W. Malone (Paula) President Women’s Board of Akron Children’s Hospital Michael E. George Secretary John D. Zoilo Executive Director Directors John R. Adams Wealth Management Advisor Northwestern Mutual Financial Network Allen L. Ryan Jr. Director of Corporate Affairs Covelli Enterprises James D. Showers* Vice President Strausser Development James Sisek, Esq. President & CEO Farmers Trust Company Mrs. Willis S. Zeigler (Patricia) Member Women’s Board of Akron Children’s Hospital Honorary Director Willard R. Holland Chairman and CEO FirstEnergy Corp. & Pennsylvania Power Co. (Retired) * Deceased features 16Making History First epilepsy surgery performed at Akron Children’s gives boy a new chance in life. 4 Advances and Innovations 08 Recent Events 14 Save the Date 22 Planned Giving 24 Of Note 28 Memorial and Tribute Gifts Ready, set, build! Akron Chilldren’s Hospital embraces a philosophy of family-centered care. We believe that every child has the right to world-class medical care, regardless of a family’s ability to pay. Member, Children’s Hospital Association (CHA). Member, Children’s Miracle Network Hospitals children’s progress is published quarterly by the Akron Children’s Hospital Foundation One Perkins Square Akron, OH 44308-1062 330-543-8340 An Equal Opportunity Employer President and CEO William H. Considine Executive Director, Foundation John D. Zoilo Editor Anne C. Merchant Contributing Writers Becky Badar Linda Beck Daryl Dirham Gretchen Corp Jones Andrea Rogers Holly Pupino Nicole Winkleman Jill Wodtley Contributing Photographers Julie M. Pawlowski Lew Stamp Ted Stevens Tiffany Swift Graphic Design Dawn Tindal and Assoc. Inc. Printing Star Printing Co. Inc. ©2013 Akron Children’s Hospital All rights reserved. Akron Children’s Hospital realizes that individuals enjoy learning more about our services, programs and developments. We also fully respect the privacy of our patients. If you do not wish to receive fundraising materials from Akron Children’s Hospital, you may make the request by sending your name and address to the Akron Children’s Hospital Foundation, One Perkins Square, Akron, Ohio 44308. We will use our best efforts to honor such a request. departments 06 from our cover Building on the Promise Ready, set, build! View from the top The new critical care tower will be connected to the new parking deck and main hospital building by skywalks accessed on the third floor. Last summer, Akron Children’s announced a $200 million expansion of its Akron campus, which includes a new critical care tower. The design phase of the tower is complete, and the timeline for construction has been set. The renderings above and at right will give you a sneak peek inside the new building, which is set to open in 2015. For more information about the building project, visit http://building.akronchildrens.org/. Construction Timeline March 2013 September 2013 Demolition of existing buildings begins Parking garage is complete March-April 2013 October 2013 Preparation of site for construction Building enclosure begins May 2013 First Quarter 2014 Foundation construction begins Interior finishes begin June 2013 Structural frame construction begins 4 CHILDREN’S PROGRESS | SPRING 2013 Things familiar Colorful green chandeliers hang from the ceiling to mimic the feel of sitting beneath a tree in the main lobby of the critical care tower. Green space The campus expansion includes plans to close Locust Street between Exchange and State Streets. A landscaped courtyard will replace the street between the critical care tower and the main hospital building. Did you know that the new building will be 368,735 square feet, which is the same as: 15,084 Atrium ball machines 6 football fields 78 basketball courts Colorful and open The post-anesthesia care unit (PACU) will feature a spacious waiting area and bright interiors. 27 Olympic-sized swimming pools 7 Goodyear blimps Rooms of their own Each room in the new neonatal intensive care unit will be private. AKRONCHILDRENS.ORG/GIVING 5 advances and innovations NE W A DDITIO NS Akron Children’s taps Dr. Robert McGregor for new CMO post Akron Children’s Hospital has named Robert McGregor, MD, to the newly-created position of chief medical officer. Most recently, Dr. McGregor was the pediatricianin-chief and interim chair of pediatrics at St. Christopher’s Hospital for Children in Philadelphia, and professor of pediatrics at the Drexel University College of Medicine. “As our integrated pediatric health system continues Robert McGregor, MD, comes to Akron Children’s from to grow, our Board of Directors, Medical Staff St. Christopher’s Hospital for Children in Philadelphia. leadership and management recognized the need for a full-time CMO with a seasoned knowledge of physician practices, regional partnerships and population health initiatives,” said Bill Considine, president and CEO. “This led to our search and selection of Dr. McGregor, who has a very distinguished resume and senior executive leadership in pediatric healthcare delivery.” As chief medical officer, Dr. McGregor will be a member of Akron Children’s Board of Directors. His responsibilities will include: • Developing goals and implementing the hospital’s strategic plan as it relates to the medical staff. • Overseeing patient safety, quality and clinical performance improvement initiatives. • Mentoring and directing medical education and medical staff services, including the credentialing process. In addition, Dr. McGregor will have a key role in the recruitment and retention of physicians. He will promote organizational research, and work collaboratively with the Board of Directors, administrative and clinical staff and the elected Medical Staff leadership to achieve the hospital’s strategic and operating goals. “My role will be to bring a physician’s perspective to the highest level of the organization as we move forward with the hospital’s goals and objectives,” said Dr. McGregor. “Clearly, quality has to be paramount in all that we do.” According to Dr. McGregor, a key factor in his decision to come to Akron Children’s was the quality and process improvement initiatives the hospital is undertaking and the collaborative nature of its work with children’s hospitals in Ohio and across the country. Dr. McGregor earned his medical degree from Pennsylvania State University College of Medicine and completed his pediatric residency at the University of Pittsburgh’s Children’s Hospital. He also completed post-doctoral training in physician leadership development at the Harvard School of Public Health. “I am looking forward to returning to the Midwest and very excited to join Akron Children’s at such an exciting time with its campus expansion, the growing breadth and depth of its clinical programs and the 6 CHILDREN’S PROGRESS | SPRING 2013 hospital’s growing national reputation,” said Dr. McGregor. Akron Children’s began operating the 15-bed pediatrics unit at East Liverpool City Hospital in January 2013. Akron Children’s Hospital to operate pediatric unit at East Liverpool City Hospital After announcing the partnership last December, Akron Children’s Hospital began operating the pediatric unit at East Liverpool City Hospital in January. “We recognize the need to bring Akron Children’s pediatric expertise closer to where our families live, and are happy to add East Liverpool as a valued partner to our more than 80 service locations,” said Bill Considine, president and CEO of Akron Children’s Hospital. “This will solidify our long relationship with East Liverpool City Hospital and allow us another way to fulfill our promise to care for all children as we would our own and to work tirelessly so all children can reach their full potential.” The transition was expected to be seamless for patients and families. The same team of doctors and clinicians who currently provide care on the unit will continue to staff the 15-bed unit. “This arrangement is another example of our hospital bringing high quality healthcare AKRONCHILDRENS.ORG/GIVING 7 to our community,” said Kenneth Cochran, president and CEO of East Liverpool City Hospital. “East Liverpool City Hospital is determined to provide excellent healthcare, right here at home. Through our relationship with Akron Children’s, we can provide that type of pediatric care onsite, allowing our patient families to receive care locally.” Akron Children’s and East Liverpool City Hospital are working collaboratively to integrate quality monitoring and performance improvement programs, bringing together the best of both organizations. Akron Children’s also operates a pediatric unit at Robinson Memorial Hospital in Ravenna. Akron Children’s operates Neonatal Intensive Care Units (NICUs) at its campus in Akron, Akron General Medical Center, Summa’s Akron City Hospital and St. Elizabeth Health Center in Youngstown. Additionally, Akron Children’s operates a Special Care Nursery at its Beeghly campus in Boardman. recent events A season of giving Community raises $250,000 for Akron Children’s at Holiday Tree Festival For 31 years, the volunteers of Akron Children’s Hospital have presented the Holiday Tree Festival as a gift to the hospital and our community. And this year, the community gave back in a big way. Through the sales of trees, silent auction items, retail sales, holiday gifts, underwriting, raffle tickets for our displays, and the preview gala event, the 2012 Holiday Tree Festival raised a record-breaking $250,000 for Akron Children’s Hospital. Holiday Tree Festival chairperson Mary Leuca presented John Zoilo, executive director of the Akron Children’s Hospital Foundation, with a check for $250,000 at a celebratory luncheon in January. The 2012 Holiday Tree Festival raised more than any other festival to date. Mark Your Calendars for the 2013 Holiday Tree Festival November 23 – December 1 akronchildrens.org/treefestival “It was an unbelievable year – everyone was extremely happy with how it went,” said Mary Leuca, festival chairperson. “Raising the highest amount ever for the hospital was another reason to celebrate. The community is always so grateful that we continue to put on this free event, year after year.” Approximately 200,000 visitors traveled to the John S. Knight Center in downtown Akron this past November to walk through a dazzling display of more than 400 holiday trees, wreaths and countless holiday creations. They also enjoyed the event’s overall atmosphere, listening to performances from local entertainment and visiting with Santa Claus himself. Many took the opportunity to enter the raffle for a free car donated by the VanDevere Bunch, with more than 1,500 of the $5 tickets sold. At the annual thank you luncheon, the volunteers presented John Zoilo, executive director of Akron Children’s Hospital’s Foundation, with a check for the amount raised. The proceeds will help support patient care programs, education and research at the hospital. “We are already getting ready for this year’s festival,” said Leuca. “It just goes to show how much we all love this event.” 8 CHILDREN’S PROGRESS | SPRING 2013 Thank you for doing your �Part’ Radiothon raises $663,865 for Akron Children’s Hospital From Feb. 7 to 9, the Atrium Lobby at Akron Children’s Hospital’s Akron campus transformed into a call center, a radio station, a bank … and a place that helps miracles happen. During the 2013 “Have a Part, Do Your Part” Radiothon, contributions from Change Bandits, area businesses and organizations, schools, individuals and families helped raise $663,865 for Akron Children’s Hospital. The funds will go toward the areas of greatest need at the hospital, such as purchasing child-size medical equipment and funding community outreach initiatives. “We’re absolutely thrilled,” said Nicci Avalon, Children’s Miracle Network Hospitals program manager at Akron Children’s. “Donors of every age imaginable really did their part to help make this year’s Radiothon such a success.” During the three-day event, as donors flooded the lobby in person or over the phone, patients and their families shared their hospital stories of hope and healing live on 98.1 WKDD. More than 500 volunteers were on hand to answer phone calls, collect change and accept additional donations. Students from local schools brought in donations and gifts such as stuffed animals, coloring books and handmade Valentine’s cards, and several providers from the NeuroDevelopmental Science Center even received a pie in the face to raise money for the event. Throughout all the activities, Avalon said that some of the best moments came when current hospital patients had a chance to visit the lobby and share in Radiothon’s excitement. “When our patients come down with their parents, families or caregivers, those are the moments that melt your heart,” said Avalon. “They remind us what Radiothon is all about.” Volunteers from FirstEnergy stayed busy answering phones in the Atrium lobby during Radiothon. A total of 320 phone bank volunteers were able to collect 1,800 donations this year. AKRONCHILDRENS.ORG/GIVING 9 recent events An elegant tradition 2012 Charity Ball raises more than $135,000 for the hospital On Dec. 28, 2012, the floors of Goodyear Hall filled with debutantes past and present for “Charity Ball: An Akron Tradition” – the 110th Charity Ball and Presentation presented by the Women’s Board of Akron Children’s Hospital. That night, 41 debutantes and their families were honored in front of 950 guests for their outstanding volunteer activities in our community. Recognition also was given to previous debutantes, who came from coast to coast to attend. A final tribute was paid to Goodyear Hall as the ball bid adieu to its long-time partner. At the end of the evening, more than $135,000 was raised for Akron Children’s Hospital. “I’ve had so many people tell me what a wonderful night it was for them and their families,” said Connie Nolte, event chairperson. “Each family left that night with memories that they’ll cherish for a lifetime.” The evening paid homage to the history and traditions of the ball, as well as to the city of Akron. The décor harkened to the birch allées of Stan Hywet Hall & Gardens. An entire hallway was lined with photographs and memorabilia from previous balls dating all the way back to the first ball in the late 1800s. Robert Trabucco, a member of the Akron Children’s Hospital Board of Directors and chair of the annual fund campaign, presents his daughter, Kathleen, at the 2012 Charity Ball. For Nolte, one of the most poignant moments of the night occurred when past debutantes were invited to join the current debutantes for a special dance. “It seemed as if more than three quarters of the people in the audience stood up,” said Nolte. “It was stunning to see how many people stepped onto the floor. It was a beautiful evening for the girls – past and present – and our hospital.” 2012 Debutantes Abigail Bashor Daughter of Dr. Kendrick Bashor (Sheila) Colleen Considine Daughter of Mr. Thomas Considine (Susan) Alexis Becker Daughter of Mr. Dale Becker (Carol) Sarah Courtad Daughter of Mr. David Courtad (Katherine) Sonja Beckner Daughter of Mr. Kenneth Beckner and Mrs. Christine Beckner Kyle Cousineau Daughter of Mr. Thomas Cousineau (Dr. Lisa) McKenzie Bell Daughter of Mr. Daniel Bell (Mary) Samantha Crane Daughter of Dr. Stephen Crane (Patricia) Kimberly Berk Daughter of Mr. Robert Berk (Susan) Catherine Culp Daughter of Mr. Robert Culp Jr. (Laura) Ann Brennan Daughter of Ms. Nancy Brennan Madison Cummins Daughter of Mr. Brian Cummins (Brenda) Megan Calderone Daughter of Mr. Kenneth Calderone (Michele) Emma Davis Daughter of Mr. Richard Davis (Julie) Alexandra Eliopoulos Daughter of Mr. Edward Eliopoulos (Cynthia) Grace Finn Daughter of Mr. Terrence Finn (Mary Kay) Emma Fish Daughter of The Honorable David Fish and Ms. Robin Bell Allison Forhan Daughter of Mr. Drew Forhan (Nancy) Kelly Frantz Daughter of Mr. Robert Frantz (Dr. Susan Clark) Keila Hamed-Ramos Daughter of Mr. Scott Hamed (Maryrosa) 10 CHILDREN’S PROGRESS | SPRING 2013 Koins for Kids Kids helping Kids For four years, Handel’s “Koins for Kids” campaign has pitted area schools against each other in a fundraising campaign to benefit Akron Children’s Hospital Mahoning Valley. At its core, this lighthearted competition comes down to one heartfelt concept: kids helping kids. That’s precisely what they did this past winter, raising more than $46,700 for the hospital, with the help of some special community partners. From Nov. 27 to Dec. 7, 2012, more than 20,000 students at 31 schools in Mahoning, Trumbull and Columbiana counties personalized paper snowman ornaments to raise money for the services and programs offered by the hospital to help local children and families. Other organizations, including area Walgreens and firefighters in Mahoning and Trumbull counties, also helped raise funds for the hospital. We appreciate your support! At the end of the campaign, 570 WKBN set up remote sites in each county for three consecutive days to collect the funds raised. Many lucky students even had the opportunity to turn in their donations live on the radio. “It’s wonderful to think how a campaign that started in our schools has now turned into a community-wide fundraising effort for the hospital,” said JoAnn Stock, director of development for Akron Children’s Hospital Mahoning Valley. In 2012, some 90 special events were held to raise money on behalf of Akron Children’s Hospital. Below are events held between September and January that raised more than $10,000. > Walk for Babies – $98,755 > St. Damien Hospital Fundraiser – $29,281 > Courage for Carina Wine Tasting – $28,000 > Noah’s Hope – $13,459 > Holiday Hopes and Wishes – $18,000 > Dunkin Donuts’ Miracles for Munchkins – $10,000 Since its founding in 2009, “Koins for Kids” has raised more than $75,000 for Akron Children’s Hospital Mahoning Valley. Evan Haney Daughter of Mr. Eric Haney (Melissa) Caroline Licata Daughter of Mr. Ross Licata (Heather) Bergen Schmetzer Daughter of Mr. William Hoover (Paige) Margaret Harris Daughter of Mr. Richard Harris III (Tatiana) Mackenna Marks Daughter of Mr. Steven Marks (Jeannine) Rachel Silver Daughter of Dr. Kevin Silver (Sharon) Catrina Hilling Daughter of Mr. Carl Hilling and Ms. Lisa Hilling Grace McGee Daughter of Mr. Walter McGee (Teresa) Victoria Tersigni Daughter of Mr. Vincent Tersigni (Melissa) Nicole Jesser Daughter of Mrs. Lisa Jesser Amanda Merryweather Daughter of Mr. Timothy Merryweather (Denise) Lauren Trabucco Daughter of Mr. Robert Trabucco (Kathleen) Alexandra Karas Daughter of Mr. Arthur Karas (Susan) Jessica Pasternak Daughter of Mr. Michael Pasternak (Julia) Emma Klein Daughter of Mr. James Klein Ann Preston Daughter of Mr. Ernest Preston III (Laura) Alexsandra Kovacevich Daughter of Dr. Gregory Kovacevich (Maria) Natalie Rothenbuecher Daughter of Mr. H. Alan Rothenbuecher (Robin) AKRONCHILDRENS.ORG/GIVING 11 Talor Krauth Daughter of Mr. Richard Krauth (Trayce) Taylor Viscomi Daughter of Mr. Antonio Viscomi (Kristie) Hayley Whitford Daughter of Mr. Darrell Whitford (Cynthia) A look back at 2012 Akron Children’s had a lot to celebrate in 2012. Among the many milestones we celebrated are increasing our U.S. News & World Report rankings for Best Children’s Hospitals, going live with stage 2 of our electronic medical record (EMR) implementation, and celebrating much fundraising success. Take a look at 12 of the 32 highlights from last year. To see the entire list, visit http://inside. akronchildrens.org/2013/02/04/32-mostmemorable-moments-of-2012-infographic 12 CHILDREN’S PROGRESS | SPRING 2013 AKRONCHILDRENS.ORG/GIVING 13 save the date Dancing for a cause Kent State University to host Flash-A-Thon dance marathon Join Kent State University students for the first ever Flash-A-Thon dance marathon, sponsored by Akron Children’s Hospital and Children’s Miracle Network Hospitals. Taking place April 6 from 10 a.m. to 10 p.m. at the Kent State University Student Recreation and Wellness Center, the proceeds from this 12-hour marathon will benefit the Showers Family Center for Childhood Cancer & Blood Disorders at Akron Children’s Hospital. “It’s a fun way to raise funds for such a worthwhile organization,” said Jackie Cornell, event co-chairperson and Kent State University senior. “Anyone from the community can join in.” “We’re so excited to have the patients there,” said Chrissie Seo, event co-chairperson and a senior at Kent State University. “We want them to enjoy their day and see that KSU students are thinking about them and trying to help other children in the hospital.” Registration costs $10, and each dancer is responsible for raising funds from sponsors through their online fundraising pages. To sign up, or to learn more about the event, visit www.helpmakemiracles.org/event/ksuflashathon. You also can email [email protected], or visit the event’s Facebook page – KSU Flashathon – or Twitter feed – @KSUFlashAThon. In addition to dancing, there will be other activities for people to enjoy such as live music, corn hole, video games and more. Former hospital patients and their families will be on hand to share their stories with the audience. �Styles of Yesterday and Today’ American Girl Fashion Show® to benefit Akron Children’s Hospital Mahoning Valley The Kids’ Crew of Akron Children’s Hospital Mahoning Valley invites you to attend the American Girl Fashion Show this April at Stambaugh Auditorium in Youngstown. The dates for this year’s shows are: • Saturday, April 20, 2013: 11 a.m. – 1 p.m.; 3 – 5 p.m. • Sunday, April 21, 2013: 11 a.m. – 1 p.m.; 3 – 5 p.m. It’s a fun-filled time for girls and their families, friends and favorite dolls. With the theme �Styles of Yesterday and Today,’ this year’s events will showcase historical and contemporary fashions. Guests also will learn how clothing has changed throughout the years to reflect history, culture and individual styles. “Not only is it a unique fundraiser for the hospital, it’s an event that creates lifelong memories for girls and their families,” said JoAnn Stock, director of development for Akron Children’s Hospital Mahoning Valley. Each show will feature a tea-party-themed luncheon, raffle and door prizes. Tickets are $25 each. All proceeds will benefit the local programs and services of Akron Children’s Hospital Mahoning Valley. For more information, visit akronchildrens.org/americangirlfashionshow or contact JoAnn Stock at 330-746-9122 or [email protected]. 14 CHILDREN’S PROGRESS | SPRING 2013 Annual baseball game to benefit School Health Services Diamond Classic for Kids The Kent State University Flashes will face The University of Akron Zips on Thursday, May 16, for the seventh annual Diamond Classic for Kids. The first pitch will be thrown at 6:35 p.m. at Canal Park in downtown Akron. “It’s a great family event,” said Michele Wilmoth, MSN, RN, nurse manager, School Health Services. “Kids and families can enjoy watching a college baseball game and take part in other exciting activities. It really is a fun time!” Staff from School Health Services will be on hand to take tickets, perform safety demonstrations, and talk to families about health and wellness. The entire Kids’ Zone at Canal Park also will be open throughout the game. Funds from this year’s event will go toward education, training and equipment that School Health Services needs to improve the delivery of care it provides children in the Akron Public School system and other suburban school districts. Since it started, the Diamond Classic for Kids has raised more than $80,000 for the department. Tickets cost $5 each. Visit http://ach.kintera.org/diamondclassic to purchase yours. They’re also available at the Kent State University and The University of Akron box offices. �Hail to the Chefs’ Preview for Taste of Hudson to benefit Safe Kids Coalition Reserve your tickets for the eighth annual “Hail to the Chefs” fundraising gala on Friday, May 10 at 7 p.m. Held once again at the Lake Forest Country Club in Hudson, the event is a preview night for Taste of Hudson and features selections from some of the area’s finest chefs. It also raises funds and recognition for the hospital-based Safe Kids USA® coalition and several other worthwhile community organizations. “It’s a fantastic event,” said Joni Fitch, coordinator of special projects for Akron Children’s Hospital Foundation. “People can get together and have good food and great drinks and a portion of the proceeds from the event come to the hospital.” AKRONCHILDRENS.ORG/GIVING 15 This year’s event takes place three weeks earlier than previous years, and Mr. and Mrs. Shawn M. Lyden will serve as honorary chairs. Tickets cost $90 each and include one entry for the Ultimate Raffle Experience, where you can win great prizes. Groups of eight or more may purchase tickets at a discounted rate of $80 per ticket. For more information or to buy tickets, visit tasteofhudson.com/hail-to-the-chefs. MAKING HISTORY First epilepsy surgery performed at Akron Children’s gives boy a new chance in life 16 CHILDREN’S PROGRESS | SPRING 2013 AKRONCHILDRENS.ORG/GIVING 17 One in 26. That’s the number of people who will be diagnosed with epilepsy during their lifetime, according to the Centers for Disease Control and Prevention. Almost three years ago, 12-year-old Jake Gmerek of Massillon, Ohio, unexpectedly became one of the “ones.” Wanting to be defined by a different number, Jake chose to undergo a procedure that was the first of its kind at Akron Children’s Hospital: epilepsy surgery. While it was an arduous two-year journey for Jake and his family, he never complained. Instead, he viewed the experience as an opportunity to make history… and to pave the way for other children just like him. A sudden diagnosis On Oct. 19, 2010, Jake was sitting in class when he started to feel “funny.” Concerned that he was going to pass out, he stood up to tell his teacher before collapsing and having a seizure. When the school called Jake’s mother, Kim Gmerek, she was in disbelief. “I thought they called the wrong house,” said Kim. “Nobody expects that call. We were in shock – our perfectly healthy child just had a seizure. It was unimaginable.” Jake was transported to Akron Children’s Hospital, where he underwent an MRI and several other tests. After he was discharged, Jake experienced several more seizures, as well as auras, abnormal sensations – like seeing colored lights or experiencing a tingling sensation – that occur before a seizure. “My husband, Mike, and I kept thinking that it could be a fluke, or there could be something more serious happening,” said Kim. “We were going from one extreme to another.” The Gmereks took Jake to the specialists at the hospital’s NeuroDevelopmental Science Center. An abnormal MRI scan showed that Jake had experienced an injury to the left side of his brain early in life; doctors believed he had suffered a stroke during Kim’s third trimester. With this discovery, coupled with his recent seizure activity, Jake was officially diagnosed with epilepsy. “Epilepsy is one of the most common types of pediatric neurodevelopmental diseases,” said Deborah Holder, MD, director of epilepsy and clinical neurophysiology at Akron Children’s Hospital. “It occurs when there are abnormal electrical discharges in the brain. In Jake’s case, the injured part of his brain triggered the seizures. Since the injury happened so early in his life, that part of the brain became abnormal.” At first, Jake received medications to help control seizure symptoms. However, the Gmereks were told that if he didn’t respond well, he would be a perfect candidate for brain surgery. During the two years prior to his surgery for epilepsy, Jake developed close relationships with the doctors and staff at the NeuroDevelopmental Science Center, including Dr. Patrick Brown, pictured here. “All of my doctors and nurses made me feel really comfortable,” Jake said. “They became really special to me.” 18 CHILDREN’S PROGRESS | SPRING 2013 AKRONCHILDRENS.ORG/GIVING 19 After being diagnosed with epilepsy in 2013, Jake underwent surgery to cure the disease. “I didn’t want to live the rest of my life with seizures. They didn’t just improve my life, they saved it. They gave me hope,” he said. “As parents, what do you do?” Kim said. “You conceal your feelings and stay strong for your child, who’s crushed when he hears �brain surgery.’” After a period of time, it became clear that Jake’s condition wasn’t improving. “Out of those who are diagnosed with epilepsy, 30 percent still have seizures despite the medication,” said Dr. Holder. “That was the group Jake was in.” An important decision For the next year, Mike and Kim avidly researched this type of surgery, simply known as epilepsy surgery, weighing the potential outcomes against the possible risks. It would be the first one performed at Akron Children’s Hospital, accounted for by the additions of Dr. Holder and Roger Hudgins, MD, director of the Division of Neurosurgery and the NeuroDevelopmental Science Center. And it would involve not one surgery, but two. During the first surgery, called brain mapping, surgeons would insert electrodes onto different areas of Jake’s brain. After the surgery, Dr. Holder and her team would stimulate the electrodes to map out the way his brain functioned. The results would then serve as a guide to Dr. Hudgins during epilepsy surgery to ensure that he removed only the abnormal sections of the brain to reduce the risk of difficulties after the procedure. “The problem with the area in which the abnormalities existed in Jake’s brain was that they were very close to his language and motor areas,” said Dr. Holder. “We needed to make sure that we only removed the abnormal brain matter and left the normal portions in place.” Kim and Mike talked through the possibility of surgery with Jake. At 13 years old, they felt he should have a say in the decision. After hearing all of the information, Jake looked at his parents, smiled and replied, “I want to do it. I want to make history.” “I remember Mike and I looked at each other and thought – ok, let’s do it,” said Kim. Making history Dr. Hudgins met with Jake and his parents a few weeks before the surgeries to explain the process and what he would experience during each step. Jake admitted that it helped alleviate some of his anxieties about the procedures. “I really like Dr. Hudgins,” said Jake. “He told me everything that I needed to know about the surgery – about how well it would work, how the scar was going to look, stuff like that. All of my doctors and nurses made me feel really comfortable. They became really special to me.” In an expression of gratitude last fall, Jake and his sister Addy organized a book drive for the hospital. Addy’s Brownie Troop #61014, along with Sauder Elementary School classmates from Jackson Township collected 1,000 books for our patients. Jake and his family are pictured here with doctors and staff from the NeuroDevelopmental Science Center. 20 CHILDREN’S PROGRESS | SPRING 2013 Jake was highlighted as one the miracle kids during the 2013 “Have a Heart, Do Your Part” radiothon. Pictured here with WKDD’s Keith Kennedy, Jake and his family shared their story during a live interview. On Aug. 6, 2012, Jake began his 14-day stay at the hospital. During this time, Jake had 92 wires extending from his head as Dr. Holder and her team mapped Jake’s brain activities, even stimulating a seizure to ensure they pinpointed the exact area of the brain that triggered them. He then underwent epilepsy surgery to remove the abnormal area of the brain. Throughout the procedure, Dr. Holder and C. Patrick Brown, MD, child neurologist and epileptologist, came out at intervals to give Kim and Mike updates on the progress. After the surgery was successfully completed, Mike and Kim were more than ready to see their son. “Even though they told us he came out ok, we’re still thinking, �Will he be able to talk? Will he recognize me?’” said Mike. “We needed to go see him, look in his eyes and hear him say something.” When Mike and Kim reached the Pediatric Intensive Care Unit (PICU), they found Jake lying in his bed, following commands and drinking water. Kim recalled the feeling of relief when Jake saw her, smiled and said, “Hi, Mom.” “This kid had just had a piece of his brain cut out, and he looked great,” said Kim. “His coloring was normal, his incision looked wonderful, he could talk. It was amazing. His time in recovery for a tonsillectomy was worse than this.” One week later, Jake was on his way home. A real life changer Today, Jake is on a positive road to recovery. While he continues to experience auras AKRONCHILDRENS.ORG/GIVING 21 occasionally, he remains seizure-free. Though his stamina is weaker than before his procedures, his health is continuing to improve. And Akron Children’s staff members continue to help him every step of the way. In addition to routine follow-up appointments with Drs. Holder and Hudgins, Jake also received help when it came time to make his transition back into the classroom. To ensure the process went as seamlessly as possible, Jake worked with Lisa Stanford, PhD, ABPP/CN, director of the division of neurobehavioral health. Jake’s grades continue to improve, and he will run track this spring. “While epilepsy is very common in children, surgery is really the only way to cure it,” said Dr. Holder. “Medications just treat the symptoms. By being able to provide this type of surgery at Akron Children’s, we can actually offer children like Jake a way out. It’s a real life-changer.” Kim and Mike couldn’t agree more. “If I was to look back two and a half years ago, and someone would say that I had to use Akron Children’s Hospital like our family did, I wouldn’t have believed them,” said Kim. “When it comes to your child, you want the best, and we have the best right in our own backyard.” As for Jake, he thanks the doctors, nurses and staff members for changing his life. “I always tell my mom that if I did this anywhere else at any other hospital, it wouldn’t have been the same,” said Jake. “I didn’t want to live the rest of my life with seizures. Akron Children’s didn’t just improve my life, they saved it. They gave me hope.” planned giving Endowing values Your personal values are demonstrated when you create and fund a named endowment with Akron Children’s Hospital. This is so much more than endowing a program, facilities, or even part of our operational budget. Your commitment to our mission and ideals will be carried into the future at Akron Children’s for generations to come through your gift. Many generous donors use endowments as tools to pass their values on to future generations. If you’d like to find out about the endowment program at Akron Children’s Hospital, please contact Gretchen Corp Jones, JD, director of principal giving at Akron Children’s Hospital, at 330-543-4167 or visit akronchildrens.org/giving. Consider for a moment your grandchildren and their children. Future generations will not have known you, though they will know what was important to you through the endowment. Imagine the effect this will have on your family. They will have insight into your generosity, your values. And it could influence them to add to your endowment or perhaps create one of their own. An endowment doesn’t necessarily require a lump sum gift or even a large sum of money. Some are surprised to learn that an endowment can be started right away, build up over time, or even receive funding through your estate. We work to help you set reasonable objectives for your endowment and to make it convenient. Are you interested in learning more about how to leave a planned gift to Akron Children’s Hospital? Be sure to visit the Akron Children’s Hospital planned giving site at akronchildrens. org/plannedgiving or scan the tag above. 22 CHILDREN’S PROGRESS | SPRING 2013 grants grants The team launching the Center for the Treatment and Study of Adverse Childhood Events includes (left to right): Patricia Seifert, PhD; Robin Tener, PhD; Sumru BilgeJohnson, MD; Sarah Ostrowski, PhD; Melissa Peace, MSSA, LISW-S; and Norman Christopher, MD. Supporting children, families touched by trauma As adults, we are shocked and saddened by scenes of violence and devastation in the news – the recent shooting in Newtown, Conn., the destruction caused by super storm Sandy and stories of political upheaval from around the world. But what about our children? How do they process these events? How can we help them cope? With the launch of the Center for the Treatment and Study of Adverse Childhood Events, Akron Children’s is shedding light on these questions. Thanks to a four-year, $1.6-million federal grant, we will provide services and support to children and families who have experienced psychological trauma. “Tragic shootings in Copley, Chardon and now Connecticut reinforce the importance of trauma training for teachers, doctors, nurses and others who work with children,” said Norm Christopher, MD, chair of the Department of Pediatrics and author of numerous studies on childhood trauma. “This grant will also enable us to deliver ageappropriate and research-based responses to the death of a high school student, the chronic illness of a sibling, or domestic violence, as they can be equally devastating for loved ones.” The goal of the center is to provide leadership, training and consultative services for childhood traumatic stress for northeast Ohio. It will create a trauma-focused network of care, which will improve access to treatment and help identify children who have been exposed to adverse events. AKRONCHILDRENS.ORG/GIVING 23 The grant also allows Akron Children’s to join the National Child Traumatic Stress Network (NCTSN). Established by Congress in 2000, NCTSN includes more than 150 child trauma centers that provide care and resources for a wide range of traumatic experiences. Melissa Peace, a social worker who spent 10 years leading the Summit County Children Who Witness Violence Program, will serve as project director. According to Peace, her team will begin by creating a community trauma advisory council and rolling out trauma-focused cognitive behavior therapy for clinical staff, community mental health providers and school personnel. This evidence-based approach helps children create and share “trauma narratives” to cope with their emotions. The grant also has a research component, led by pediatric psychologist Sarah Ostrowski, PhD, research program director for the NeuroDevelopmental Science Center. “As a member of the network, we will have a direct connection to the experts and most current research in childhood traumatic stress,” said Ostrowski, who will serve as principal investigator. “Through our own research, we will be contributing to that body of knowledge as well.” of note Presentations Mark Adamczyk, MD, Director, Brachial Plexus Treatment Center, and Todd Ritzman, MD, Director, Pediatric Orthopedic Education, presented “Comparison Between Two Pedicle Screw Constructs in Adolescent Idiopathic Scoliosis Posterior Fusions” with John Kemppainen and Melanie Morscher at Ohio Orthopedic Society, Dublin, OH, May 2012. Michael T. Bigham, MD, Pediatric Intensive Care Physician, Medical Director, Transport Services, and Assistant Patient Safety Officer, presented “Intubation Success Rate Using GlideScope® Video Laryngoscope in Pediatric Critical Care Transport” at International Respiratory Congress, 2012; “Pediatric Transport in Black and White: X-ray Case Reviews” at American Academy of Pediatrics, New Orleans, LA, October 2012; “Pediatric Septic Shock: Evaluation and Management” at Ohio Association of Advance Practice Nurses 22nd annual Statewide Educational Conference, November 2012. Elizabeth A. Bryson, MSN, CNP, CS, Pediatric Nurse Practitioner presented “Nuts and Bolts of Cystic Fibrosis: Pulmonary Overview” at North American Cystic Fibrosis Conference, Orlando, FL, October 2012. Blaise Congeni, MD, Director, Pediatric Infectious Disease, presented at the 30th annual Infectious Disease Update, Naples, FL, December 2012. Joseph A. Congeni, MD, Medical Director, Sports Medicine Center, presented “Traumatic Brain Injury and Post Concussion Care” at 12th annual Ohio Pediatric Trauma Symposium, Toledo, Ohio, 2012 and at Cleveland Clinic, Cleveland, Ohio, 2012; “Sports Medicine in Pediatrics” at University of Chicago, Chicago, IL, 2012. John C. Duby, MD, Director, DevelopmentalBehavioral Pediatrics, presented “Mental Health Competencies for Pediatric Primary Care” at American Academy of Pediatrics, Charleston, SC, January 2013. Richard W. Hertle, MD, Chief, Pediatric Ophthalmology and Director, Vision Center, presented “A Story of Change and Discovery: How and What We Learned from Studying Nystagmus in Infancy and Early Childhood” at the British Pediatric Ophthalmology and Strabismus Association Meeting, Overcliff, Bournemouth, UK, September 2012 and at the Annual Scientific Meeting, Albuquerque, NM, September 2012; “Creativity and Inventiveness in Pediatric Ophthalmology and Strabismus” at the Annual Scientific Meeting, Albuquerque, NM, September 2012; “A Surgical Algorithm for the Treatment of Nystagmus” at 2nd World Congress of Pediatric Ophthalmology and Strabismus, Milano, Italy; “Pediatric Eye Surgery” at Ohio State University, Columbus, OH, December 2012; “The Ocular Motor System” and “Nystagmus in Infancy and Childhood” at Michigan State University, East Lansing, MI, December 2012. Kerwyn Jones, MD, Chair, Department of Orthopedics, presented “Limited Benefit of Hamstrings Forces for the ACL-Deficient Knee” at Ohio Orthopedic Society, Dublin, OH, May 2012; “Gene Expression Differences in Young Male and Female Ruptured Anterior Cruciate Ligament Tissue” at American Academy of Pediatrics, New Orleans, LA, October 2012. 24 CHILDREN’S PROGRESS | SPRING 2013 Dianne Kulasa-Luke, MS, RN, Neurology Nurse Practitioner, presented “Neurological Chronic Illnesses in Children” to University of Akron child development students; “Seizures in Children” to Kent State University College of Nursing students. Starla Martinez, MD, Director, Undergraduate Medical Education, presented “Nuts and Bolts of CF: Pulmonary Overview” at the North American Cystic Fibrosis Conference, Orlando, Florida, October 2012; “Medical Student Peer Assessment: Should I be Using This in My Clerkship?” at a workshop at the Council on Medical Student Education in Pediatrics, March 2012; “CLIPP: Not Just the Facts, Ma’am” at a workshop at the Council on Medical Student Education in Pediatrics, March 2012. Marc Nelson, MD, MS, FAAP, Director, Center for Hearing and Communication Disorders, presented “Pediatric Sleep Disorder Breathing” at the Akron Dental Society. Patrick Riley, Sr., MD, presented “The Incidence of Femoral Head Osteonecrosis in Pediatric Femoral Neck Fractures: A 25 Year Study” at Pediatric Orthopedic Society of North America, Denver, CO, May, 2012 and at the American Academy of Pediatrics, New Orleans, LA, October 2012. Sarah Rush, MD, Director, Neuro-Oncology presented “Volume of Vestibular Schwannoma does not Correlate with Hearing Loss in Pediatric Patients with Neurofibromatosis Type 2” at the International Symposium on Pediatric Neuro-Oncology, Toronto, Canada, June 2012 and at the Children’s Tumor Foundation NF Conference, June 2012; “Brainstem Low Grade Tumors Presenting with BRAF V600E Mutation and Successful Treatment with Vemurafenib” at International Symposium on Pediatric NeuroOncology, Toronto, Canada, June 2012; “The Use of Bevacizumab in the Treatment of Schwannomarelated Pain in a Patient with Neurofibromatosis Type 2” at International Symposium on Pediatric Neuro-Oncology, Toronto, Canada, June 2012 and at Children’s Tumor Foundation NF Conference, June 2012; “Protein Expression is a Potential Independent Prognostic Factor in Pediatric Pilocytic and Pilomyxoid Astrocytoma” at the International Symposium on Pediatric Neuro-Oncology, Toronto, Canada, June 2012. AKRONCHILDRENS.ORG/GIVING 25 Dennis Weiner, MD, Co-Director, Regional Skeletal Dysplasia Center, Professor of Orthopedics, NEOMED, ABIA, and Mark Adamczyk, MD, presented “Microarray Analysis of Slipped Capital Femoral Epiphysis Growth Plates” at Ohio Orthopedic Society, Dublin, OH, May 2012. Publications Micah Baird, MD, Medical Director, Inpatient Rehabilitation, wrote “Interrater Reliability and Convergent Validity of the American Academy for Cerebral Palsy and Developmental Medicine Methodology for Conducting Systematic Reviews” with L. Wiart L, K. Kolaski, C. Butler, L. Vogtle, L.R. Logan, R. Hickman, J. Romeiser, L. Samson-Fang, C.A. Matsuba, L. Roxborough, T. Mayson, I. Dinu in 2012. “Developmental Medicine and Child Neurology” July 54(7):606-611. Michael T. Bigham, MD, Pediatric Intensive Care Physician, Medical Director, Transport Services, Assistant Patient Safety Officer, wrote “Making Good Better: Implementing a Standardized Handoff in Pediatric Transport” with C. Weingart, T. Herstich, P. Baker, M.L. Garrett, M. Bird, J. Billock, and H.P. Schwartz. Air Med J. January 32(1):40-6, 2013; “Interleukin-27 is a Novel Candidate Diagnostic Biomarker for Bacterial Infection in Critically Ill Children” with H.R. Wong, N.Z. Cvijanovich, M. Hall, G.L. Allen, N.J. Thomas, R.J. Freishtat, N. Anas, K. Meyer, P.A. Checchia, R. Lin, A. Sen, J. Nowak, M. Quasney, J.W. Henricksen, A.Chopra, S. Banschbach, E. Beckman, K. Harmon, P. Lahni, T.P. Shanley. Crit Care October 16(5):R174, 2012; “The Pediatric Sepsis Biomarker Risk Model” with H.R.Wong, S.Salisbury, Q. Xiao, N.Z. Cvijanovich, M. Hall, G.L. Allen, N.J. Thomas, R.J. Freishtat, N. Anas, K. Meyer, P.A. Checchia, R. Lin, T.P. Shanley TP, A.Sen, J. Nowak, M. Quasney, J.W. Henricksen, A. Chopra, S. Banschbach, E. Beckman, K. Harmon, P. Lahni, and C.J. Lindsell. Crit Care October 16(5):R174, 2012. Michelle Burke, MD, Medical Director, School Health Services, wrote “Young Athletes,” with Angela D. Smith, and Keith J. Loud. Team Physician Manual: Intervention Federations of Sports Medicine. Ed.3 2013. Chapter 9: 196-215. of note Publications Joseph A. Congeni, MD, Medical Director, Sports Medicine Center, wrote “Association of Goutallier Classification Findings and Presence of Fat Content in the Multifidus Muscles with Delayed or Poor Recovery After Physiotherapy in Adolescents with Spondylolysis” with M. Bragg, Sports Rehab, and J. Peiffer. “Physiotherapy Practice and Research” 34, P29-35, 2013. Richard W. Hertle, MD, Chief, Pediatric Ophthalmology and Director, Vision Center wrote “ROC Analysis of the Accuracy of Noncycloplegic retinoscopy, Retinomax Autorefractor, and SureSigh Vision Screener for Preschool Vision Screening” with G.S. Ying, M. Maguire, G. Quinn, M.T. Kulp, and L. Cyert. “Invest Opthalmol Vis Sci” 52(13): 9658-64, 2011; “Predictability of Intraocular Lens Calculation and Early Refractive Status: The Infant Aphakia Treatment Study” with D.K. Vanderveen, A. Nizam, M.J. Lynn, E.D. Bothun, S.K. McClatchey, D.R. Weakley, DuBois, L.G and S.R. Lambert. “Arch Ophthalmol” 130(3):293-299, 2012; “GlaucomaRelated Adverse Events in the Infant Aphakia Treatment Study: 1-Year Results” with A.D. Beck, S.F. Freedman, M.J. Lynn, E. Bothun, D.E. Neely, and S.R. Lambert. “Arch Ophthalmol.” 130(3):300-305, 2012; “Fixation Control and Eye Alignment in Children Treated for Dense Congenital or Developmental Cataracts” with E.E. Birch, J. Wang, J. Felius, J., D.R. Stager Jr. J AAPOS 16(2):156-60, 2012; “The Infant Aphakia Treatment Study Contact Lens Experience: One-Year Outcomes” with B. Russell, M.A. Ward, L. DuBois, and S.R. Lambert. “Eye Contact Lens” 28(4): 234-9, 2012; “Predictors of Adherence to Occlusion Therapy 3 Months After Cataract Extraction in the Infant Aphakia Treatment Study” with C.D. DrewsBotsch, E.E. Hartmann, and M. Celano. J AAPOS 16(2):150, 2012; “Adherence to Occlusion Therapy in the first Six Months of Follow-up and Visual Acuity Among Participants in the Infant Aphakia Treatment Study” with C.D. Drews-Botsch, E.E. Hartmann, and M. Celano. “Invest Ophthalmol Vis. Sci.” 53(7):336875, 2012; “Infant Aphakia Treatment Study Groups Axial Elongation Following Cataract Surgery During the First Year of Life in the Infant Aphakia Treatment Study” with S.R. Lambert, M.J. Lynn, L.G. DuBois, G.A. Cotsonis, E.E. Hartmann, and M.E. Wilson. “Invest Ophthalmol Vis. Sci 7(12):7539-45; “Chapter. Supranuclear Eye Movement Disorders, Acquired and Neurologic Nystagmus” with N.N. Hanna. “Taylor and Hoyt, Pediatric Ophthalmology and Strabismus, Elsever Press” 2012; “A Systematic Approach to Eye Muscle Surgery for Infantile Nystagmus Syndrome” with D. Yang, J. Jeng, K. Carey, and E. Mitchell. “The Challenge of Nystagmus” 2012. Kerwyn Jones, MD, Chair Dept of Orthopedics, wrote “Limited Benefit of Hamstrings Forces for the ACL-Deficient Knee” with J. Elias, M. Kirkpatrick, M. Stonestreet, K. Shah, C. Frampton, and M. Morscher. Proceedings of the Institution of Mechanical Engineers, Part H: Journal of Engineering in Medicine. October vol. 226 no. 10 752-758, 2012. Marc Nelson, MD, MS, FAAP, Director, Center for Hearing and Communication Disorders, wrote “Pediatric Hearing Loss and Radiographic Hypoattenuation of the Cochlea: Is There a Correlation?” with A. Kroeker, M. Nelson, and M. Thorne. 2012. Sarah Rush, MD, Director, Neuro-Oncology, wrote “Pediatric Brainstem Gangliogliomas Show Overexpression of Neuropeptide Prepronociceptin by Microarray and Immunohistochemistry,” with Michael H. Chan, B.K. Kleinschmidt, Andrew M. Donson, Diane K. Birks, and Nicholas K. Foreman. 2012, P1173-1179. Nancy Wasserbauer, DO, was featured in the press (abstract) after diagnosing CUD in a patient following a treatment for osteosarcama. This will be presented April 2013 at Clinical Immunology Society meeting. Dennis Weiner, MD, Director, Pediatric Orthopedic Research, Co-Director, Regional Skeletal Dysplasia Center, Professor of Orthopedics, NEOMED, ABIA, wrote “A Study In-vivo of the Effects of a Static Compressive Load on the Proximal Tibial Physis in Rabbits” with A. Bries, R. Jacquet, Mark Adamczyk MD, M. Morscher, E. Lowder, M. Askew, R. Steiner, W. Horne, and W. Landis. J Bone Joint Surg Am. August 1;94(15):e 1111-10, 2012. 26 CHILDREN’S PROGRESS | SPRING 2013 Awards and Honors Michael T. Bigham, MD, Pediatric Intensive Care Physician, Medical Director, Transport Services, Assistant Patient Safety Officer, was awarded the President’s Award by the Air Medical Physician Association in 2012. Ann-Marie Brown, MSN, CPNP-AC/PC, CCRN, FCCM, was inducted as a Fellow of the American College of Critical Care Medicine at the Society of Critical Care Medicines Annual Congress, January 2013. Blaise Congeni, MD, Director, Pediatric Infectious Disease, received the Golden Apple award. Richard W. Hertle, MD, Chief, Pediatric Ophthalmology and Director, Vision Center, was a visiting professor and surgeon at Liaocheng Peoples Hospital, Liaocheng, Shaudong, China and at The Goutami Eye Hospital, Rajamundry, India. Starla Martinez, MD, Director, Undergraduate Medical Education was elected to the Council on Medical Student Education in Pediatrics and was appointed to the Planning Committee of Pediatric Educational Excellence across the Continuum as the Chair of the Poster Subgroup. Mary Toth, MD, Division Director, Rheumatology, tology, was named the first division director of rheumatology ology in 2012 and was elected Vice President of the Medical Staff in 2012. Toth will become President of the Medical Staff in July 2013. Nancy Wasserbauer, DO, was appointed to o the American Academy of Allergy, Asthma and Immunology on the Primary Immune Deficiency ency Committee. Other Activities Elizabeth A. Bryson, MSN, CNP, CS, Pediatric atric Nurse Practitioner, is a member of Cystic Fibrosis Foundation and Infection Control Consensus Guideliness for Cystic Fibrosis. AKRONCHILDRENS.ORG/GIVING 27 Joseph A. Congeni, MD, Medical Director, Sports Medicine Center, is on the BS/MD Admissions Committee, Northeastern Ohio Universities College of Medicine; Congeni testified before the House of Representatives on behalf of HB 143, Columbus, Ohio, 2012. John C. Duby, MD, Director, DevelopmentalBehavioral Pediatrics, was appointed co-chair of the Developmental Screening and Follow Up Work Group of the Pediatric Measurement Center of Excellence to establish outcome measures for CHIPRA. William Lawhon, MD, Ophthalmology, is a member of AAPOS Legislative Affairs Committee. Marc Nelson, MD, MS, FAAP, Director, Center for Hearing and Communication Disorders, joined American Society of Pediatric Otolaryngology. Mary Toth, MD, Division Director, Rheumatology, was invited to be a panelist on the FDA Best Pharmaceuticals for Children Act (BPCA) for Rheumatology in 2012; Toth chaired the subcommittee for uveitis pharmaceuticals and was on the bone health subcommittee. Nancy Wasserbauer, DO, joined the Ohio Newborn Screening Committee for the addition of severe combined immune deficiency disease. memorial and tribute gifts Gifts received September 1, 2012 - January 31, 2013 In Celebration of ... Our clients this holiday season Good Scout Group In Honor of ... Gino Altieri Ms. Susan Deitrick and Lakeview Intermediate School K-Kids Dylan Auer Ms. Hillary Auer Dr. Steve and Diane Begezda Mr. and Mrs. Ted B. Bair Brandon Blatt Mr. and Mrs. Lawrence E. 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Heckler Mr. and Mrs. Casey M. Holsapple Mr. Donald J. Housholder Mr. and Mrs. Dale M. Kaiser Mr. and Mrs. Andrew R. Kluesner Mr. and Mrs. Stephen G. Lamont Mr. and Mrs. Mark Lebeis Mr. and Mrs. Mark McRobb Mr. James M. Osborne and Ms. Geraldine Smith Mr. Jack Phillips Mrs. Karen B. Robideau Mr. and Mrs. Raymond G. Walker Mr. and Mrs. Andy Wozniak William Alpern Mr. Rod Wellman Gino Altieri Mrs. and Mrs. Elizabeth L. Nichols Corey Antibus Mr. and Mrs. Charles Antibus Katherine Arapp Anonymous David A. Baer Mr. and Mrs. Daniel B. Pren Jennifer Baker Mr. and Mrs. Richard Miller Rachel Baker Judy, Bruce and Bryan Baker and The Rachel Baker Memorial Toy Drive Jeremiah Baldwin Marjorie Baldwin Jeffrey A. Barbour Mr. and Mrs. Thomas C. Grisez Dr. Henry M. Bartkowski Ms. Ladonna M. Bartkowski James H. Bennett Jr. Mr. Andrew Pratt Haley Bergman Mrs. Carol A. Kimble Cathi Bogavich CTF Inc. Josephine Joyce Boggs Ms. Janette Clements Mr. Randy M. 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Williams Karrie Rebecca Dodez Mrs. Amy Dodez Mrs. Jennifer Harris and Smithville Elementary Students Mr. and Mrs. Michael D. Shaw memorial and tribute gifts Michael Dokes Mr. and Mrs. Daniel B. Pren Jack Robert Donatelli Dr. and Mrs. David Peterson Susann S. Drbal Women’s Board of Akron Children’s Hospital Ms. Joyce K. Hamaker William George Edwards Mr. and Mrs. Adam Chafe Felicia Ely Mr. and Mrs. Charles Schwed Mary J. Esola Mr. and Mrs. Louis B. Perry Sr. Leva Fadel Lt. Col. Chaker Fadel Abbey Foltz Mr. and Mrs. Robert W. Cappello William G. Fox Mr. and Mrs. Daniel B. Pren Roberta Frampton Order of the Eastern Star Carroll Chapter #05-94 Dr. and Mrs. Keith D. Burgett Ms. Rosemary T. Dennis Mr. Steven Gundersen Summit College Engineering and Science Technology Department Dr. David Russell Ms. Marie M. Smith Mr. and Mrs. Ken Stoneman Nicholas Funfgeld Medina County Health Department Ms. Jane E. Gunkelman Ms. Sonja M. Haller Mr. and Mrs. Frank C. Klingshirn Mr. James Lorig Mr. and Mrs. Jon L. McKinnon Mr. and Mrs. Mike Strebler Matthew H. Funk Mr. and Mrs. Alexander Jacovino Lauren Ellen Gartner Ms. Beth Farnstrom Mr. and Mrs. Carl Gartner Ms. Nancy X. Gartner Dr. Timothy L. and Dr. Brenda L. Hagen Ms. Molly J. Pirie Mr. and Mrs. Michael R. Weinsz Clare Glaser Mr. and Mrs. Gary W. Stewart Rita E. Gorman Mr. Guy G. Corzine Ms. Betty J. Gray Jill M. Gorsuch Dr. and Mrs. Thomas Lee Nash Richard M. Goulder Mr. Mark A. Watson Nicole M. Grigg Mr. and Mrs. Richard R. Grigg Jr. Mary Ann Guenther Mr. and Mrs. Eugene Moirano Joseph Hallinan Mrs. Barbara H. Palm Frank E. Hanson Ms. Betty Y. Calvert Ms. Helen W. Garrett Mrs. Virginia M. Hanson Ms. Karen A. Heffley Mrs. Kathryn R. Hibbard Ms. Lorna L. Johnson Dr. Robert H. Jones and Dr. Hedy J. Jones Ms. Dakota Wheeler Daniel John Hayes Nancy Roth Dorothy Hayes Mr. Dan T. Hayes Brian Heslop Ms. Roxann Case Mr. and Mrs. Gary A. Heslop-Baker Preston Hickman Mr. and Mrs. Eugene S. Geiger Willard D. Hodgson Judy and Phil Pedrotty McKayla Hoopes GCAP LLC Harold D. Hoops Judith Geog Kimberly Lynn Hoover Mr. and Mrs. Jeff Hoover Phoebe M. Hoover Mr. Roger W. Hoover Gary Hoy Mr. and Mrs. Daniel B. Pren Alice E. Iacomini Mr. and Mrs. Kevin W. Malick Karen Jones Mrs. Margaret A. Cikity Kathy Jones Mrs. Margaret A. Cikity Kimberly Jones Mrs. Margaret A. Cikity Patrick Connor Kirschnick Mr. and Mrs. Jason P. Pavelschak Donald Kiser Mr. and Mrs. Daniel B. Pren Terri L. Klebs Mr. Jeffery Klebs Adolph J. Konte Mrs. Cora L. Konte John W. Kosola The Muransky Companies James S. Gentile Attorney at Law Mr. and Mrs. John W. Combs Mr. and Mrs. John Latronica John Devitt Kramer Mr. and Mrs. Douglas J. Barber Dr. and Mrs. George A. Nankervis Sam Kurchak Ms. Shirley T. Broadbent Madison Kurtz Mr. and Mrs. Lester D. Kurtz Oliver Lancianese FirstEnergy Corporation Altman Buckeye Company II Kentridge At Golden Pond Self Support Personal Care LLC Pride One Inc. Reserve At Waterford American Endowment Foundation Henry Bierce Company Ms. Allison Biggs Mr. and Mrs. Eren Demiray Ms. Mary Deshon Ms. Lisa Edwards Mr. Jonas Fortenberry and Ms. Dana Wojno Mr. and Mrs. Nicholas T. George Mr. and Mrs. Charles A. Isroff Mr. Scott Kolligian Mr. and Mrs. Dennis K. Loughry Mr. and Mrs. Philip H. Maynard Mr. and Mrs. Montgomery F. Miller Ms. Patricia J. Neely Mr. David Nemer Mr. and Mrs. Robert J. Nemer Mr. and Mrs. Roger T. Read Ms. Dawn Reid Mr. and Mrs. David B. Root Mr. and Mrs. Rodolfo Salas Mr. and Mrs. Robert Shapiro Mr. Robert L. Smallwood Sr. Mr. and Mrs. Thomas J. Strauss Ms. Karen L. Talbott Mr. and Mrs. Richard E. Vastagh Mr. and Mrs. Thomas Wojno Joyce A. Larson Larson Family Barbara J. Lazoran Mr. and Mrs. Daniel B. Pren Ronald P. Leonino Mrs. Agnes J. Leonino Kyle Matthew Lichty Ms. Paula S. Lichty and Mr. Robert Turnbaugh Briana Long Mr. and Mrs. William R. Robb II Richard Louttit Ms. Carylin M. Balchak James E. Lutz Jr. Mr. and Mrs. James E. Lutz Patricia Lynne Mayle Mr. and Mrs. Michael E. Mayle Joyce McFadden Mr. and Mrs. John W. Garger Margaret McKimmie Marilyn Frye Patricia A. Memmer Newcomer Funeral Home Polly and Mark Bissell Ms. Margaret J. Adamson Mr. and Mrs. Matthew M. Clites Ms. Mary Cranston Mr. and Mrs. Charles J. Daniels Mr. and Mrs. Timothy Doyle Mr. and Mrs. John Grubb Mrs. Beverly Hillegas Mr. and Mrs. James P. Hinman Ms. Laverne Mansour Mr. and Mrs. Floyd McMullen Mr. and Mrs. James T. Memmer Mr. and Mrs. Carl Prentiss Carol Salmon Mr. Michael Scott Mr. and Mrs. Stephen J. Sparks Mr. and Mrs. Tracy D. Sweeten 30 CHILDREN’S PROGRESS | SPRING SRPING 2013 Ridge Miller Mr. and Mrs. Donald L. Gray Sr. James A. Modugno Mr. and Mrs. Daniel B. Pren Frances Momchilov Larry Momchilov Rose Montemaggiore Mr. and Mrs. Donald P. Bica Nancy Costanzo Ms. Mary A. Dillon Mr. and Mrs. Paul A. Fedorchak Debra and Rick Germano Sandra and Keith Kurchev Doris and Peter Meduri Anthony and Theresa Montoni Larry and Bonnie Montoni Mary J. Montoni David and Joyce Nemeth Delores Orcutt William and Patricia Stelmack Rosemary Testa Ms. Jeanette T. Thomas Jon and Cindy Waller Thelma Weber Andrew Thomas Moore Mr. and Mrs. Tom Cahalan M. Jeanne Morrison Mr. and Mrs. Erven C. Robinson Richard Morton Ms. O. Jane Moldovan Elijah Cornelius Naylor Ms. Kendra Philon, Family and Friends Jane D. Nichols Dr. D. Gary Benfield and Dr. Catherine Benfield John Nichols Mr. and Mrs. Frank E. Dente Ms. Jo M. Jensen Mr. and Mrs. Gerald S. Nichols Mr. and Mrs. James D. Park Mrs. Sarah M. Nicol Michael G. O’Neil Mrs. Julie O’Neil Jerome S. Palacin Mr. and Mrs. James P. DeMarco Hillary Parker Dr. and Mrs. Michael G. Parker David Lee Partin Mr. and Mrs. Mark Q. Partin Mr. and Mrs. Philip E. Partin Robert Perez Mr. Michael Jamison Andrew N. Pernotto Mr. and Mrs. Fred J. Gentile Toree Lee Poder Mrs. Josephine A. Moran Ms. Kristine R. Moran Austin Leroy Rankin Anonymous Mr. and Mrs. Randall Rankin Donald R. Redrick Mr. and Mrs. Henry H. Wencke Beverly Reese Mr. and Mrs. David Eaton AKRONCHILDRENS.ORG/GIVING 31 Marsha E. Reutter Mr. Dean A. Eucker Diane Michelle Rhodes Mr. and Mrs. Norman Rhodes Stephanie Danielle Rice Bands Co. Inc. Patten Producing Co. Mr. and Mrs. Daniel W. Fought Ms. Ethel F. Goss Ms. Kellie Lanzer Dr. Donna F. Patton Caroline Rinaldi Joanne Rinaldi Matthew Michael Risaliti Mr. and Mrs. Michael J. Risaliti Damion Root Ben Lower Joseph William Rosato Mrs. Lois J. Allshouse Beverly M. Rose Mr. Christopher Massouh Max Joseph Russell Rose Mr. and Mrs. Rich Pacacha Mr. and Mrs. Joe C. Rose II Ruth D. Rosen Mr. and Mrs. Daniel B. Pren Dr. Bruce F. Rothmann Mrs. Rachel A. Perretta Daniel L. Rudy Mrs. Doris E. Rudy Clair Kay Rule Magni-Power Company Diane Salmon Mr. and Mrs. Daniel B. Pren Sandy Hook Elementary School Mrs. Janice D. Williams Ms. Carolyn E. Young Milton M. Sass Mr. and Mrs. Daniel B. Pren Robert Sawyer Mr. Jeff Strainer James Howard Sheatzley Ms. Carole A. Freund Mr. and Mrs. Larry Hiner Mr. and Mrs. David H. Wilhoite Mildred A. Sheatzley Ms. Carole A. Freund Anthony Shingleton Mr. and Mrs. Bryan J. Buck Mr. and Mrs. Shawn M. Oglesbee Mr. and Mrs. Jess V. Shingleton II Michael Shipe Mr. and Mrs. Daniel B. Pren Jimmie L. Sholley Firestone Country Club Mr. and Mrs. Paul P. Porosky James D. “Jamie” Showers Mr. and Mrs. William H. Considine Dr. and Mrs. Dave Fleming Mr. and Mrs. Thomas M. Yakubowski Angie Simmons Mrs. Margie Simmons Matthew G. Smith Mr. and Mrs. Gordon C. Smith Elizabeth “Anne” Starr Anonymous Dr. and Mrs. Monte E. Fox Ms. Virginia Mitchell Mignon Steere Mr. and Mrs. R. Mark Hamlin Jr. Bob Strefeler Mr. and Mrs. John Strefeler Julia Stripe Mr. and Mrs. Daniel B. Pren Chad Study Mr. and Mrs. Dale Study Linda Tanski Ms. Cynthia Harbaugh Stephanie J. Tarajcak Mr. and Mrs. Anthony P. Ricchiuti Ms. Mary E. Schromofsky Andrew Thomas Mr. Thomas R. Kupec Robert George Tomer Ms. Kathleen E. Hogan Mr. and Mrs. Joseph Showalder Mary F. Tych Slovak Catholic Sokol Wr 54 St. Elizabeth Society Mr. and Mrs. Robert C. Butcherine Ms. Linda L. Chiarello Mr. and Mrs. Donald J. Tych Dominic Vesco Dr. and Mrs. David J. Owen Samuel Jacob Walker Wadsworth City School District Emily Ann Wathen Mr. and Mrs. Thomas Wathen Kathryn Keller Wendschuh Mr. and Mrs. Daniel B. Pren Alice Whalen Stouffer Realty Inc. Mr. Kevin McCaffrey Melissa Gatchel Kristin Fawcett Springer Mr. and Mrs. Shane M. Springer Stanford Wiener Mr. and Mrs. James P. DeMarco Mr. and Mrs. Joseph Marchetta Ella Faith Young Mr. and Mrs. Donald E. Baney Jr. Mr. and Mrs. Donald E. Baney Sr. Mr. and Mrs. Frank M. Hays PNC Matching Gifts Program Linda K. Young Mr. and Mrs. Kenneth A. Johns II Erika Yurick Mr. and Mrs. Daniel B. Pren Willis S. Zeigler Dr. and Mrs. Robert J. Hemphill Non-Profit Organization U.S. Postage PAID ONE PERKINS SQUARE A K R O N , O H I O 4 4 3 0 8 -1 0 6 2 Akron, OH Permit No. 202 Have you signed up for Developments, our electronic newsletter, which features the latest hospital news and links to relevant podcasts and videos? Scan the tag below or register online at akronchildrens.org/giving. calendar of events march may Sunday, March 24- Saturday, May 11 Tuesday, May 7 – Friday, June 21 Rite Aid Stores CMN Balloon Campaign Akron and Mahoning Valley locations Walmart CMN Balloon Campaign Akron and Mahoning Valley locations april Friday, April 5 – Friday, April 26 Circle K CMN Balloon Campaign Akron and Mahoning Valley locations Saturday, April 6 Kent State University Flash-a-thon Student Recreation and Wellness Center 10 a.m. - 10 p.m. Tuesday, April 16 “Purses are like Friends” luncheon Fairlawn Country Club 11:30 a.m. Saturday, April 20 and Sunday, April 21 American Girl Fashion Show Stambaugh Auditorium, Youngstown Times Vary Friday, May 10 Courage for Carina Wine Tasting Sky View Lodge, Medina 7 p.m. Friday, May 10 Hail to the Chefs Lake Forest Country Club, Hudson 7 p.m. Tuesday, May 14 Champions for our Valley’s Children The Lake Club, Poland 5:30 p.m. Thursday, May 16 Diamond Classic for Kids Canal Park, Akron 6:35 p.m. Thursday, May 30- Wednesday, June 26 Giant Eagle Register Campaign Locations vary Friday, April 26 An Evening on Wine and Wishes Quaker Station 6 p.m. june Tuesday, June 4 For more information about these events or how you can become a special event coordinator, contact: JoAnn Stock, director of development at Akron Children’s Hospital Mahoning Valley, at 330-746-9122 or Sara Lundenberger, special events coordinator at Akron Children’s Hospital, at 330-543-8037. For a complete listing of all Akron Children’s Hospital events, visit akronchildrens.org/events. Champions for Children Fairlawn Country Club 5:30 p.m. June 6,7,10,11 Piano-a-thon Akron Children’s Hospital Atrium Lobby Times Vary 5:30 p.m. Gett he free mobile appa t http ://g ettag.mobi
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